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jamie-rosemary69 · 8 months

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Having FND and autism is the wildest thing, I just had a partial seizure because I got too excited about Spider-Man?

#autism #disabled and proud #functional neurological disorder #seizures #seizure disorder #partial seizures

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x-littlemoth · 6 months

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My mom thinks I've been having partial seizures since I was little, and I'm a little inclined to believe her because epilepsy runs in our family (though we recently found that out, so I never got tested when I was younger).

#little moth's page #epilepsy #partial seizures

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echoes-in-the-multiverse · 11 days

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Dissociative Seizures

Educational post. Trigger warnings: Medical equipment and description of seizure.

Written by Tom and Blade.

Why will we cover this?

Although dissociative seizures are not exclusive for those with dissociative disorders. Some people with dissociative disorders will have seizures.

A dissociative seizure is named differently in different parts of the world.

I will be referring to them as dissociative seizures or Non-epileptic attack disorder (NEAD).

However, may also be seen as a one of the many symptoms/types of Functional neurological disorders (FND) its matching term in the ICD-11 is Dissociative neurological symptom disorder. And this post will focus specifically on only the non epileptic seizures.

It is also known as Psychogenic non-epileptic seizures (PNES), Non-epileptic seizures, and Psychogenic seizures.

If you have known these as "pseudo seizures", it is asked that this is no longer a term that should be used because the name suggests that the seizures are not real or faked by the individual having them or cannot have an ever lasting impact.

What causes a dissociative seizure?

Unlike epileptic seizures they are not caused by abnormal electrical activity in the brain.

A person can get triggered by sensations, thoughts, emotions and difficult situations. Memories of painful events can suddenly come into thoughts or awareness or a build up of stress can happen in a moment. The dissociative seizure can happen as a way to cut off stress or bad memories so that they are not relieved. This can cause a person to start to dissociate. This is when they will feel disconnected from the world around them or make it seem like the world is not real. The brain will "shut down" to protect itself from overwhelming stress. The seizure then happens because the emotional reaction of the person becomes physical. It is known that extreme emotional distress can cause illnesses and disorders such as non epileptic seizures.

Some people who have dissociative seizures have them caused by traumatic events. For some they may happen after the event or for others they could start years later. They may start to happen suddenly with no apparent reason at the moment. However, in some people they can be caused by the build up of stress overtime.

When seizures start they can be triggered by stressful or frightening events, even the worry of having a seizure can trigger one. They could also occur spontaneously in non stressful events. Patients may not be able to understand why seizures happen as for some it is hard to recognise the level of stress they are feeling.

What do dissociative seizures look like?

Dissociative seizures can look different from person to person.

You could have episodes of uncontrolled movements, sensations or behaviour. Some dissociative seizures may look more like epileptic seizures or may look more like fainting. Someone may have palpitations, sweat, hyperventilate and have a dry mouth. Someone may fall on the ground or have jerking and shaking movements either on one side or the whole body. A person may lose control of their bladder or bowels and may also bite their tongue. Some people may go unresponsive to people around them and may stare and go blank.

Having seizures caused by a delayed response to a traumatic event may be a part of Post Traumatic Stress Disorder (PTSD). In these seizures a person may have flashbacks, scream or cry and they may not remember the seizure afterwards.

Diagnosis of dissociative seizures.

A specialist will have many ways to tell whether the seizures are epileptic or not. The doctor may be able to tell from detailed descriptions of the seizures or a video of one happening. However, a doctor may ask someone to have an electroencephalogram (EEG) to determine whether electrical changes occur within the person's brain during a seizure. It may also be suggested for a person to have a video-telemetry. This could be done as an inpatient in a hospital or at home. A person will wear EEG equipment for a few days and is linked to a camera. This means that during a seizure the EEG and a video of it happening can be taken at the same time.

Brain scans such as Magnetic resonance imaging (MRI) or Computed Tomography Scan (CT) scans may also be done to rule out any neurological cause for these seizures.

Treatment for dissociative seizures.

Patients may also be asked to see a psychiatrist or psychologist. They can offer Treatment such as psychotherapy, stress-reduction (such as relaxation and biofeedback training), and personal support to help you cope with their seizures.

Talking therapy is useful to understand if there are triggers for the seizures and ways to manage these triggers in daily life. Cognitive behavioural therapy (CBT) is often recommended.

Medication will not help treat non epileptic seizures so they will only be suggested if the patient also has epileptic seizures. Taking medication for non epileptic seizures can cause side effects and do not benefit the person.

It is recommended to keep a normal daily routine. And to make sure that their family and friends are aware and understand. This will mean they will likely be able to help the person in a seizure and prevent harm.

First aid for dissociative seizures (Outsider's perspective):

DO:

- Make sure the person is safe. This can include moving objects away from them. If the person is lying on the floor, put a cushion/something soft under their head.

- Speak Calmly and in a reassuring way to the person

- Non epileptic seizures do not cause damage to the brain no matter how long it happens BUT if you are not sure if it is a dissociative seizure and lasts more than 5 minutes an ambulance must be called. If it is epileptic then a seizure longer than 5 minutes can damage the brain. (Again important to note this is advice given by the NHS of the UK)

- Stay with the person until they have recovered

DO NOT:

- Do not restrain the person. This can cause injury and make the seizure worse.

- Do not put anything in the person's mouth

- Do not attempt to give medication

Self-help tips:

- Write down how you are feeling

- Continue to live normally and not become over cautious. This can help to speed up recovery. It is important to talk to your employer about these seizures and make clear your colleagues know what to do as well.

- Eat and Sleep well

- Build up self confidence

- Green exercise is a great way to boost your mood by being outside even if it is for a short while. Going for a walk outside.

- Fitness programmes can be found online and most can be done from your home

- Remaining positive

The sources we have used for this information also have more information on disability rights and benefits for those with dissociative seizures. And on driving regulations. However, these are only applicable to the UK.

Resources we have used to create this article:

Epilepsy Society: https://epilepsysociety.org.uk/about-epilepsy/what-epilepsy/non-epileptic-seizures

Epilepsy Action: https://www.epilepsy.org.uk/info/seizures/dissociative-seizures-non-epileptic-attack-disorder-nead

Sheffield Teaching Hospital document: https://www.sth.nhs.uk/clientfiles/File/pd3922_NonEpilepticSeizures.pdf

Non-Epileptic Attacks: https://sites.google.com/sheffield.ac.uk/non-epileptic-attacks/home.

Further information:

People's experiences:

Documentary film https://www.youtube.com/watch?v=MA1EYAg9y5k. Photosensitive Epilepsy Trigger Warning at (9:14 - 9:30 ) and at (45:25 - 46:18)

Websites for more information:

NeuroKid: https://www.neurokid.co.uk/ - This is a website for children and young people with dissociative seizures but also has information for parents of these children. The website is also available in French at https://www.neurokid.co.uk/fr/.

Non-Epileptic Attacks: https://sites.google.com/sheffield.ac.uk/non-epileptic-attacks/home. A page written by professionals. They have more resources and go into more detail about the self help we have addressed.

FNH Hope UK: https://www.fndhope.org.uk/about-fnd-hope/fnd-hope-uk/. Has fundraising challenges across the UK. They also have online classes such as dance, painting, mindful meditation and yoga.

Charities:

FND Action: https://www.fndhope.org.uk/about-fnd-hope/fnd-hope-uk/. They can provide ID cards for those in the UK struggling with dissociative seizures.

Brain Charity: https://www.thebraincharity.org.uk/condition/non-epileptic-attack-disorder/. Provides Emotional support and social support for those in the UK and has a helpline.

Trigger warnings: Medical equipment and description of seizure. Educational post.

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hollyhomburg · 10 days

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Y E S i live for sad bily facts

Okay so! Hiding them in the tags cuz I’m on mobile enter at your own risk

#seriously If you don’t want spoilers or to be apart of the angst dont click!!!!!#first off: jungkook dies first #a seizure takes him out at 55-60 and it’s partially namjoon’s fault #namjoon doesn’t catch him before he hits his head and he goes through a period of depression after and eventually comes to the conclusion #that jungkook would have forgiven him and he would have #the kids take it the worst especially their youngest who ends up sleeping between the mc and tae for a full year #as for the next angsty tidbit- yoongi dies before the m/c #and she’s actually really really happy because he never got to know what a dead mating mark feels like like she’s actually very thankful #tae and the m/c and hobi are the last ones alive and they leave the house to their kids and retire to a smaller seaside cottage #hobi only gets to live in it for a few weeks before he passes at like 80 #the mc and tae live for a few more years after that both of them with their dead mating marks on the sides of their necks #the spend most of their time with their grand pups of which there are 8 of one of which looks so much like namjoon that #tae in her haze of dimentia actually talks to him like he is namjoon #tae and the m/c pass hours from each other though like #maybe less than 3 hours #and live until they’re 91 years old

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arowrath · 10 months

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i think my dad and i are the worst people to be in a groupchat with during an emergency

#text #IT WAS FUNNY THOUGH #also my dog is fine now :D we r still keeping a close eye on him and he has to have 4 small meals instead of 2 normal ones #but hes doing good :D we thought he hurt his shoulder so he had 2 go 2 the hospital AGAIN but it was a partial siezure which #is not GOOD per se but he has a seizure disorder and hes had partial seizures before so we know its not anything new #anyway my dad would not stop texting me bad puns during the whole Fiasco. i think its his way of coping with stress #its okay though. i understand him #dogposting

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ribbitflings · 6 months

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Hey, I know we don't know each other, but you seem to know a lot about the topic of seizures.

If it's not a bother, could I ask you a few questions about them?

Specifically about focal seizures/partial seizures.

What is a focal seizure like for you?

I've been having these episodes for as long as I can remember that I labeled dissociation for a long time, but recently have come to find out resemble focal seizures. A few triggers are bright flashing light, and being stressed out and tired at the same time. My vision gets blurry, a wave washes over my brain (dunno how else to describe it), I feel either so spaced out I don't have feelings, or I feel extremely fearful with a feeling a deja vu, I blink a lot and lick my lips, and sometimes my hand moves on its own in repeated motions. Usually lasts about two minutes, and leaves me feeling quite haggard for hours afterwards, I usually sleep after them if possible.

I'm going to try and get into a neuro soon but it's been driving me NUTS thinking about it. Does this sound like it could be a focal seizure to you? I haven't been able to talk to anyone with epilepsy about it, and I think doing so could be enlightening, like they'd know what questions to ask to tell the difference having been through a seizure themselves.

Thank you for your time, even if you don't reply. Have a nice day.

this sounds a lot like textbook TLE focals or a generalized absence, yes. depending on your doctor, you might be labelled as "easy" or it might seem suspicious because it's "too textbook."

i just came back from a follow up that went downhill because i happen to have mood changes associated with my biggest seizures, that also clear up after the events, so i turned down antidepressants since im not currently depressed and its a self solving issue, and i have an aura, postictal state, seizures during sleep, stereotypical posturing, bro has seen literal videos of the typical events, and the moment i mentioned any kind of mood change with bigger events, he immediately slapped the mental health label on it, is ready to stop my meds, and did not set up a follow up. he was positive the appointment before that i have TLE and where it was probably coming from and now he wants to slap the mental health label and not bother. i also happen to have life stressors, as does everyone else, mine may be more so since i have insane parents and in-laws, but yeah just be really careful of that. epilepsy is a very common neurological disorder, second to headaches, but when someone isnt willing to put in the work (this guy barely asks questions and did not know that one of my recent seizures was my fault for taking meds too late and happened during my sleep), they jump to statistically unlikely conclusions that are overtly sexist and can become extremely dangerous for the patient (such as pulling a patient off of necessary meds)

#seizures #actually epileptic #anti epileptic drugs #epileptic problems #seizure #partial seizure #seizure disorder #grand mal seizures #absence seizures

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bergamotz · 1 month

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in which I look like a serial killer

#had another seizure nd busted my lip #also came to w my shoes off nd a partially smoked cigarette (put out) behind my ear?

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jellypawss · 7 months

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I’m getting deja vu every thirty seconds or so and it’s scaring me so bad

#it’s an aura for my seizures but it never happens this much #I shouldn’t have overslept :l #idk if I should go er or wait to see if I’ll have a grand mal or my regular #simple partial seizures #seizures #frontal lobe seizures

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sunkern-plus · 8 months

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shout out to the people who can never have kids physically because their physical and mental health issues combined alone would put them at risk of serious harm or death if not on the right amount of pills at the right time, you guys are the real ones

#watching a the queer kiwi video about babylon bee's very unfunny shorts and like. the childless one is fucking awful #i don't want kids in the first place first of all #(not because i hate kids but because i doubt my ability to take care of any life more complex than a dog)#and second of all i literally have epilepsy so bad that i probably would die if i was off my medications #because my epilepsy is PARTIALLY TRIGGERED BY HORMONAL CHANGES #like if i have seizures if i'm on my period i will probably have seizures when i'm pregnant and that's uh. bad!#like my hypothetical baby would die of brain damage bad #like do conservatives WANT to be pro life or not because seizures + pregnant = dead baby #ableism for ts #actuallydisabled #actuallyepileptic #actuallypsychotic #actuallyautistic #actuallyocd #actuallyadhd #actuallyborderline #(because yeah without those mental health medications i'd probably die of suicide which. ALSO results in a dead baby)#again. why do they call themselves pro life if pregnancy for me would either result in brain death or suicide #(and pregnancy for people who had late onset epilepsy as bad as me and mental illnesses as bad as me)

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seasickzig · 2 months

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Possible Seizures, help needed

Hey guys, I’m currently in a flare with my hypermobile disorder. I am still not diagnosed with EDS yet, even though ive seen five doctors and two physical therapists who all say I have it and that Im the worst case theyve ever seen. However, with this flare I have started to get new symptoms and I need some help. I know this is not a diagnostic tool and I dont plan on using it as such, I really just need support and to know I’m not alone.

The other day, I took a small hike while in a flare. I know I shouldn’t have, but I figured if I just pushed my body harder it would just result in more pain. But on the way back, I started feeling really weird. I felt nauseous and like i was going to pass out. My vision started blacking out and I could barely think. I felt clumsy. By the time I got to the car I could not move or speak at all. I was trying to tell my body to move but it just wouldnt happen. My arm jerked occasionally, and I was in and out of it all the way home. i felt like i couldnt see even with my eyes open, but i do get migraines like that. i barely remember the ride. my boyfriend had to carry me to bed. I was sobbing. I started having really bad muscle spasms and eventually slept it off.

Someone in an EDS discord I’m in said this sounds like a seizure, but I’m not sure. I was partially/fully conscious, and I didnt have any lip smacking or picking/fidgetting symptoms. Ive been having muscle spasms this whole flare, so I don’t think that it was a grand mal or anything. The lack of ability to speak might just be my autism, the loss of the ability to move might have been my physical health condition, it might not have been neurological at all, other than the occular migraine. It also all lasted multiple hours and Im not sure if thats standard for seizure activity, usually its just a few minutes with a lot of fog surrounding it, right?

I am going to talk to a doctor about this TODAY but who says hes even going to do anything? no one else has. idk i just need help and support. if you have EDS and/or seizures please reach out with your experiences. I’m really scared.

#seizures #eds #ehlers danlos syndrome #hypermobility syndrome #partial seizure #focal seizure #temporal lobe seizure #medical help

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mabelsguidetolife · 20 days

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I’ve been fighting to stay awake because i got up much earlier than I’m used to

the body is strong but my will is weak so now i must rest

#also though my brain requires more sleep because im epileptic #and the medication i’m on for that doesn’t exactly make me feel alert #in fact i partially blame it for how sleepy i always am but it’s that or seizures #and the drowsiness is really the only negative side effect

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science-lings · 1 year

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Hmmmmm. How about seizure for the ask thing thing?

"Can you find something blue?" Hyrule asked his injured teammate as a pink glow emitted from his fingers, the smithy himself gripped Twilight's arm in a white-knuckled attempt to comfort himself, though it was hard to tell if it was working.

"Win-Wind's shirt," He replied weakly, continuing their coping method to keep him from drowning in the panic that came from brain damage.

"Good, don't close your eyes now, we need you to stay awake."

#based on my own experience with someone who has multiple types of seizures #this is how we deal with 'partial seizures' though I think they have a different name now #idk how medically accurate this is though #linked universe #ask andromeda #ask game #lu hyrule #lu four #lu twilight #three sentence fic #three sentence prompt

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brokenfoxproductions · 7 months

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I love having stress induced seizures.

I'm so glad that, according to people online, they're not a "real" disability. They're "just a neurodivergence/medication side effect that never went away". I wouldn't have them if I hadn't been on abilify as a kid, and those are psych meds, so my seizures aren't a "real physical disability". The spinal cord injury I have from having a seizure during a spinal tap at age 11 also isn't a "real physical disability" for that reason, apparently.

It would be nice if that meant that they didn't affect my heart rhythm or cause dislocations and concussions. It would be great, too, if I could walk normally again and if I didn't have constant chronic pain and sciatica.

It's almost like some neurological conditions are actually physically disabling. Crippling, even.

But nope. My seizures and spinal cord injury started with a bipolar medication so I'm not really crippled. Just another stupid neurodivergent psycho who's too crazy to be respected by people who have similar experiences to mine because I don't count. I should just go kill myself so that the world will be right because I am an offense to humanity by trying to get help for my seizure disorder like it's a physical disability, whenever really, it's not.

This entire post is sarcastic by the way. I'm just still a little salty about the fact that I had a literal stress-induced seizure because some fascist piece of shit wanted to try to claim that I'm not really disabled and that I'm a bad person for not liking ableist assholes.

#actually crippled #actually disabled #actually neurodivergent #actually physically disabled #ableism #seizures #spinal cord injury #bipolar #abilify #medical malpractice #it's almost like I'm physically disabled partially because of people being ableist due to my mental health conditions #it's almost like if you take someone with a disability & treat them like shit & abuse them eventually their body is going to fail #it's almost like there's more crossover between physical disabilities and neurodivergencies than people are willing to admit right now #this entire post is sarcastic by the way

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echoes-in-the-multiverse · 3 days

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