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flutt3rb4tz · 4 months
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i hate when people who dont have marfans make/headcanon characters with marfans as some quirky trait. i really do, i've seen it a lot in my life as someone who was diagnosed at 3 with the condition and it honestly grinds my gears they always do the most stereotype-y traits, or ignore how much of a struggle it is to live with marfans, or how marfans can fuck up your body further by just how much shit it causes.
to put it into perspective, i got tagged like a fucking animal at school because they didnt want to take too much care into explaining that i needed extra care if something happened, or that people should be gentle with me because i could die on school grounds. ive sat cooped up in my home most of my life, i've only been on a fair ride once because getting on a roller coaster could harm me as well. i need help walking or getting around because my body cant always handle it, i have other problems due to marfans that have hurt me greatly for my entire life.
i'm slowly going blind from marfans and theres nothing a doctor can do that will stick. i risk aortic dissection simply by being hit in the chest, i used to be afraid of going to bed because if anything hit my chest too hard i could literally fucking die then and there, because my heart would fucking collapse on itself and theres a decent chance that i wouldnt make it to the emergency room.
it's not just some trait, it is a disability. and it's not quirky!! it was never fucking quirky!!! getting discriminated against for being disabled by the age of 4 wasnt fun! it wasnt silly! it was traumatizing!!!!
if you're going to make a character or headcanon a character with marfans take into account how much of a stereotype you're making them. there are short people with marfans, fat people with marfans (like myself), poc with marfans, there are people who cannot walk or function because of marfans, people with marfans arent scary or shy or weak all the time. we're human people! we vary!
talk to actual people with marfans. look up posts about the condition from people with the condition. dont confuse marfans with EDS. just have common sense!! its exhausting trying to look at content from people like me and either seeing headcanons, EDS posts, or people telling everyone with marfans that they have no hope (this ones common on reddit, but it applies).
people with marfans dont immediately die either, btw. i saw a post recently that was just "haha this character better have had amazing doctors or his marfans would kill him in 2 seconds!!!" and that's not how it works. of course it can be fatal thats with all things, but dont act like its an immediate death sentence, please. i'm sure a lot of us have heard it enough already
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boss-of-armadildos · 3 months
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Post corrections/clarifications are my favorite genre of humor: a compilation
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prokopetz · 2 months
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This site: What the fuck is with all these animated shows getting terrible live-action remakes? We should start remaking live action media as cartoons to balance the scales.
The monkey's paw: *curls one finger*
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tariah23 · 3 months
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Oh…. Well, it’s over for Crunchyroll I guess
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nothazellevesque · 2 months
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a man self immolated in front of the israeli embassy in washington dc yesterday. not just any man. an active member of the us air force. he live streamed his death, and said that he refused to be complicit in a genocide any longer. he said that compared to what palestinians were facing every day, setting himself alight was nothing.
let me reiterate. an active duty air force member burned himself alive because he was so disgusted by what the us government was openly supporting. he live-streamed his own suicide, so the whole world could bear witness as a man in his military uniform set himself on fire to protest his government’s complicity in the horrors that we have all been forced to watch happen in real time. he became a new horror. footage of the immolation blurs him out the moment the fire catches, but you can hear him. it is over in seconds, really, but you can hear him screaming. he shouts “free palestine” until his body physically cannot make any sounds other than guttural screams of agony. and then he falls silent. a police officer arrives and points a gun at his still burning body, shouting at him to get down on the ground. and it is over.
his name was Aaron Bushnell. he was twenty five years old. and he isn’t here anymore because the political ruling class has decided that genocide is perfectly fine as long as it preserves imperialism. in the coming days, people will try to discredit him. to say that he was mentally unstable. they will try to bury his actions to save face and defend israel’s propaganda. do not let them. aaron knew what he was doing. he knew what he was doing when he put on his military uniform, set up his twitch stream, and made his final walk up to the embassy. he knew what would happen to him when he flicked that lighter. do not let them forget. aaron’s blood is on the hands of the political ruling class.
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mcromwell · 4 months
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"Nihilist Heron" 12"x16" acrylic, conté crayon, wax pastel on reclaimed support
Herons have captured my attention lately. I love their feathers and shapes.
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spooksier · 5 months
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passages that make you whisper "oh my god"
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limelocked · 4 months
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iri-desky · 2 months
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GET KOSA TRENDING.
STOP SCROLLING NOW!
AS OF FEBRUARY 21ST, 2024, WE GOT FIVE DAYS UNTIL THE DAY OF DECISION OF THE KOSA BILL, WHICH WILL CAUSE MASS CENSORSHIP ROUND THE INTERNET IF PASSED. WE NEED EVERYONE TO KNOW ABOUT THIS AND CONTRIBUTE. I'M NOT GIVING UP ON YOU ALL.
(IMPORTANT UPDATE: Kosa will not necessarily pass on the 26th. It only has the support to pass in Senate, and we STILL HAVE TIME. That being said, time is of the essence.)
WE'RE DOWN TO THE WIRE BUT WE CAN'T GIVE UP YET. IF WE GIVE UP, EVERYTHING IS OVER. IF WE DON'T, AT LEAST WE HAVE A CHANCE.
I'M THE ONE WHO SOUNDED THE ALARM, AND I'M NOT GOING TO CURL UP AND DIE YET.
Reblog this post in every LEGAL way you can under the Tumblr guidelines with the appropriate tags. TELL AND TAG EVERYONE YOU KNOW, then add the tags to see below... and more if you can think of any complying.
Visit badinternetbills.com if you want to find a way to defeat KOSA. It WILL NOT take much of your time. Reblog with any other information or sources, too-- but make sure to reblog if you can.
Reblog if you support lgbtq+ content.
Reblog if you support questioning queer youth and/or abused youth getting the information they need.
Reblog if you support Ao3 and/or other sites that wholeheartedly preserve talentedly made media.
Reblog if you're going to repost this on other sites than Tumblr and spread the word across Twitter, Tik Tok, Pinterest, or elsewhere, alongside the link to badinternetbills.com.
Reblog if you think KOSA is unfair and shouldn't be anyone's problem -- including the adults ALL OVER THE DAMN EARTH forced to face the mass censorship it causes because "think of the American Children!".
Reblog if you support internet activism and Palestine.
Reblog if you hate fascism or censorship, and don't want actually serious and helpful conversations censored on the internet.
Reblog if you value the internet in any way at all whatsoever.
CHECK THIS PETITION, TOO! https://www.change.org/p/stop-the-kosa?recruiter=1331807538&utm_source=share_petition&utm_medium=sms&utm_campaign=psf_combo_share_initial&utm_term=psf&recruited_by_id=57368c40-d0fd-11ee-98f7-2175430f819f&share_bandit_exp=initial-36809664-en-US
(Also, please reblog with at least "stop kosa" as a tag and not "kosa". I made the mistake of not adding just "kosa" as a tag...)
We won't let this stand any longer. Let's start a riot and get this trending.
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z0mbiefrank · 1 year
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HOLD THE LINE!! KEEP PUSHING!!!!!
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fiannalover · 4 months
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What's that bro? You began interacting with a media from a different country than yours and/or was made in time period different than the recent present day? Haha that's sick bro! Keep expanding your horizons bro! You're remembering to take into account that sociocultural norms, gender roles and genre expectations are different from what you are used to and meeting the story halfway, instead of forcibly superimposing your ideals into the story, right bro? Right? Right?
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I love the "came back wrong" trope but from the opposite side.
Imagine you are dead. And then you are RIPPED from the embrace of decay into the world of the living again. Your memories are hazy and you don't recognize any of these people, but they act like they're close to you? Like they love you? So you try to get your memories back, to act like you belong here, but everybody tries to forget you died. And you can't. It is omnipresent. And just trying to grapple with that fact pushes the people who "love" you away, and they're incapable of understanding, and they're so confused, what's wrong N̶̄̀O̶͛͗T̷̉́ ̷͋͝Y̴̎̌Ȍ̴̈U̸̓R NÄM̴̃͑E̵̾̇? And you just need them to understand, you aren't that person! You aren't! You don't know who that person is! You don't know why any of this is happening, but they're unwilling to bend, they keep insisting you are that person, your memories will come back, everything will be normal again, and you want to scream and cry and claw yourself open to show them you're different. Your existence as a being wholly separate from whoever you "used to be" is a sin unto itself. All you can do is scrabble for life and to them, you're killing whoever they loved to do it.
just. lots of fun in that concept, you know?
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prokopetz · 8 months
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One of my favourite bits of media history trivia is that back in the Elizabethan period, people used to publish unauthorised copies of plays by sending someone who was good with shorthand to discretely write down all of the play's dialogue while they watched it, then reconstructing the play by combining those notes with audience interviews to recover the stage directions; in some cases, these unauthorised copies are the only record of a given play that survives to the present day. It's one of my favourites for two reasons:
It demonstrates that piracy has always lay at the heart of media preservation; and
Imagine being the 1603 equivalent of the guy with the cell phone camera in the movie theatre, furtively scribbling down notes in a little book and hoping Shakespeare himself doesn't catch you.
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jasontoddiefor · 5 months
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I need minors to learn how to lie online again. Your name is Derek, you’re 25 and work in accounting now. Please for your own safety learn how to fucking lie. And if you don’t want to lie, then don’t put your age anywhere. Don’t even say whether you’re a minor or not. It is perfectly easy to avoid adult spaces without signposting that you are doing so because you’re a child.
Stating your age doesn’t protect you this only makes you a target.
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sayruq · 1 month
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They're already trying to create support for new settlements in Gaza. Unreal.
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