i hate when people who dont have marfans make/headcanon characters with marfans as some quirky trait. i really do, i've seen it a lot in my life as someone who was diagnosed at 3 with the condition and it honestly grinds my gears they always do the most stereotype-y traits, or ignore how much of a struggle it is to live with marfans, or how marfans can fuck up your body further by just how much shit it causes.

to put it into perspective, i got tagged like a fucking animal at school because they didnt want to take too much care into explaining that i needed extra care if something happened, or that people should be gentle with me because i could die on school grounds. ive sat cooped up in my home most of my life, i've only been on a fair ride once because getting on a roller coaster could harm me as well. i need help walking or getting around because my body cant always handle it, i have other problems due to marfans that have hurt me greatly for my entire life.

i'm slowly going blind from marfans and theres nothing a doctor can do that will stick. i risk aortic dissection simply by being hit in the chest, i used to be afraid of going to bed because if anything hit my chest too hard i could literally fucking die then and there, because my heart would fucking collapse on itself and theres a decent chance that i wouldnt make it to the emergency room.

it's not just some trait, it is a disability. and it's not quirky!! it was never fucking quirky!!! getting discriminated against for being disabled by the age of 4 wasnt fun! it wasnt silly! it was traumatizing!!!!

if you're going to make a character or headcanon a character with marfans take into account how much of a stereotype you're making them. there are short people with marfans, fat people with marfans (like myself), poc with marfans, there are people who cannot walk or function because of marfans, people with marfans arent scary or shy or weak all the time. we're human people! we vary!

talk to actual people with marfans. look up posts about the condition from people with the condition. dont confuse marfans with EDS. just have common sense!! its exhausting trying to look at content from people like me and either seeing headcanons, EDS posts, or people telling everyone with marfans that they have no hope (this ones common on reddit, but it applies).

people with marfans dont immediately die either, btw. i saw a post recently that was just "haha this character better have had amazing doctors or his marfans would kill him in 2 seconds!!!" and that's not how it works. of course it can be fatal thats with all things, but dont act like its an immediate death sentence, please. i'm sure a lot of us have heard it enough already