cripplecore - Tumblr blog

cripplecore · 4 months

Text

oh hey btw, apparently tumblr mobile now has an option to report ads for having flashing lights, if you click the three dots in the top right corner it should show up. not sure how long thats been there but i dont remember it being there at least a few months back, i would venture to guess it came with the recent update but shrug. fucking ridiculous that they cant just not put flashing ads in our faces in the first place, but at least this is an option.

people who dont have issues with flashing lights are allowed and encouraged to reblog

#ask to tag #<- sorry i have no spoons rn

22K notes · View notes

cripplecore · 4 months

Text

We ask your questions so you don’t have to! Submit your questions to have them posted anonymously as polls.

#i picked 'depends on the context' because i refer to myself as special in a joking way sometimes #but i HATE when anyone else calls me special in a serious way. i'm not special just disabled.#polls #disabled #disability #ask to tag

418 notes · View notes

cripplecore · 4 months

Text

Hi I'm Abi! I'm a Black disabled queer creator! Please share, it could lead to my next sale!

I need 2100$ for a sleep apnea device. So please share!

I sell pins, compression gloves, artist gloves, wrist braces, elbow sleeves, compression socks & more!

Store details below!

#disabled creator #mobility devices #mobility aids #ask to tag #<- i don't have spoons for proper tagging rn #these look so cool!! i'll have to try some of this stuff out

5K notes · View notes

cripplecore · 6 months

Text

happy POTS awareness day to those who are very aware already <3 it's a struggle, but you're not alone out there

#disabled #disability #cripple punk #cane user #chronic pain #chronic illness #actually disabled #dysautonomia #dysautonomia awareness #dysautonomia awareness month #pots #pots syndrome #potsie #postural orthostatic tachycardia syndrome #postural tachycardia syndrome #pots awareness #pots awareness day

370 notes · View notes

cripplecore · 6 months

Text

Blind Tumblr users: don’t get the latest iOS app update!

I just updated my tablet to the newest version of the tumblr app for iOS and it completely broke screen reader access for both VoiceOver and Spoken Content. This has happened in the past already, so I will file a support ticket and copy-paste my text from last time, but this really sucks. I sincerely hope this doesn’t affect all screen reader users, but I’m unsure how they could program this bug in a way it only affects me. If you rely on a screen reader to use the tumblr app, I’d advice to not get the latest update to be on the safe side.

When I say “completely broke access”, what I mean is that no posts on my dash or on individual blogs get read or recognized at all. No plain text, alt text, tags, etc. Note count and buttons still work though.

If you also run into this bug, here’s my advice. If anyone has something more useful, please tell me

File a support ticket and report this bug

Use the browser web version, which still works for me

Interestingly, if you save a post to your drafts and click on “edit” the post text seems to get read correctly. This might be a work-around for some people.

If you have the latest version but your screen reader didn’t break, also please tell me! I would be fascinated to know if this bug is only affecting some people

TL;DR: The latest tumblr app update for iOS made it so screen readers no longer work in the app

Please boost!

#blind #blindness #screen reader #visually impaired #accessibility

21K notes · View notes

cripplecore · 7 months

Text

how ironic is it that october is dysautonomia awareness month when a lot of us are dealing with the october slide. like, yes, be aware of us during the time that our symptoms are flaring the most /lh

#in other words it went from 80°f weather to 50°f weather pretty much overnight and i have a cold now lol.#disabled #disability #cripple punk #chronic illness #chronic pain #chronically ill #dysautonomia #dysautonomia awareness month #pots #postural orthostatic tachycardia syndrome #postural tachycardia syndrome #<- this is obv about other dysautonomia types too btw :) not just pots

144 notes · View notes

cripplecore · 8 months

Text

Terrible / Incorrect Things Cardiologists Have Told Me While Pursuing a Diagnosis For My POTS

For context I have been fainting since age 12 (2013). A full decade+ of a ton of disabling and quality of life-altering dysautonomia/postural orthostatic tachycardia syndrome (POTS) symptoms, and knowing this is the condition I have + self treating for the last 5 or so years. And I am still formally undiagnosed and untreated.

“You’re just dehydrated.” (many times)

“You’re just anemic.” (tests said otherwise and no treatment was given because he knew he was wrong but wouldn’t admit it)

“This is normal for girls your age. You’ll grow out of it.” (it was not normal and symptoms only got worse)

“Well it’s not seizures so you’ve got nothing to worry about.”

“You need to cut down on the sugar. Don’t drink juice. You’re probably becoming diabetic because of kids’ diets these days.” (meanwhile, on a low sugar diet because sugar really worsens some of my symptoms)

“You’re just fainting because you’re scared. You need to go to therapy to learn coping skills.” (scared of what? I was fainting in P.E.)

“Don’t drink Starbucks every morning and you’ll be fine.” (I’m literally caffeine-intolerant, I never drink coffee)

“You’re just deconditioned. Exercise and you’ll be cured.” (3x. always after I already explained that I overheat and faint from any exercise)

“There’s no reason for you to experience these things.” End of discussion.

“People with POTS don’t faint, so you can’t have it.” (not only blatantly wrong but what about all my other symptoms? ignored. didn’t offer further help/explanation)

“I don’t think you have POTS, but just keep doing what you’re doing because that seems to be helping.” (referring to the self treatment I do that’s specifically tailored for POTS)

“Come back to me after you’ve got some therapy.” (after I had a panic attack due to his malpractice that took me weeks to physically recover from)

“You meet the criteria, but I’m not going to diagnose you.” (2x)

“You’re not allowed to use a wheelchair, you don’t have any disabling conditions.” Notes orthostatic intolerance on visit report

“It’s just because you’re not eating enough.” (after I already explained I constantly overeat to maintain my weight, and purely based on me being thin and not my diet)

“Your heart rate is supposed to go up when you stand up. The tachycardia isn’t a problem.”

“I don’t think you have hEDS.. you don’t have the symptoms. And so POTS is out of the question.” (hadn’t discussed anything about my hEDS symptoms, not his place as a cardiologist to determine EDS, and you don’t need it to have POTS)

Feel free to reblog with what you’ve been told. These doctors are so arrogant, they drive me crazy 🙃

74 notes · View notes

cripplecore · 8 months

Text

me: huh, i wonder why i keep getting random anxiety attacks

also me: *has POTS and gets frequent adrenaline dumps as a result, leading to sudden feelings of anxiety*

#i hate this stupid body i'm forced to inhabit!!!!!!!#disabled #disability #actually disabled #pots #potsie #pots syndrome #postural orthostatic tachycardia syndrome #postural tachycardia syndrome #cripple punk #crip punk #queer cripple #queer and disabled #disabled queer #physically disabled #ask to tag #also i just want to add that this is NOT medical advice and is not the case for everyone! this is just based off of my experiences

64 notes · View notes

cripplecore · 9 months

Text

am i shaking because i'm having an anxiety attack or because i haven't eaten in a while: a book by me (spoiler: the answer is probably both)

8 notes · View notes

cripplecore · 10 months

Text

Happy disability pride month to:

Physically disabled people

Mentally ill people

Mentally disabled people

Neurodivergent people

Psychotic people

Multiply disabled people

Visibly disabled people

Invisibly disabled people

Mobility aid users

People with chronic pain

People with chronic fatigue

People with neurodevelopmental disabilities

People with neurocognitive disabilities

People with intellectual disability

People with neurogenic disability

People with cognitive disability

People with motor disorders

People with rare disabilities

People with common disabilities

People who were born with disability

People who acquired a disability/disorder later in life

People with bodily differences

Nonverbal people

Semiverbal people

People who experience speech lose

AAC users

People with ‘gross’ symptoms

People with sensory disabilities

People who aren’t sure if they are disabled

Disabled people who don’t know they are disabled

Disabled people who want treatment

Disabled people who do not want treatment

Disabled people with disorders that ‘don’t match’ their assigned gender

Zebras

Spoonies

Cripples

Happy Disability Pride Month to all disabled people!

May your tomorrow be kinder than today.

#cripplepunk #cripple punk #crip punk #disability #disabled #actually disabled #disability positivity #disability pride month #positivity

2K notes · View notes

cripplecore · 10 months

Text

A general cane guide for writers and artists (from a cane user, writer, and artist!)

Disclaimer: Though I have been using a cane for 6 years, I am not a doctor, nor am I by any means an expert. This guide is true to my experience, but there are as many ways to use a cane as there are cane users!

This guide will not include: White canes for blindness, crutches, walkers, or wheelchairs as I have no personal experience with these.

This is meant to be a general guide to get you started and avoid some common mishaps/misconceptions, but you absolutely should continue to do your own research outside of this guide!

The biggest recurring problem I've seen is using the cane on the wrong side. The cane goes on the opposite side of the pain! If your character has even-sided pain or needs it for balance/weakness, then use the cane in the non-dominant hand to keep the dominant hand free. Some cane users also switch sides to give their arm a rest!

A cane takes about 20% of your weight off the opposite leg. It should fit within your natural gait and become something of an extension of your body. If you need more weight off than 20%, then crutches, a walker, or a wheelchair is needed.

Putting more pressure on the cane, using it on the wrong side, or having it at the wrong height will make it less effective, and can cause long term damage to your body from improper pressure and posture. (Hugh Laurie genuinely hurt his body from years of using a cane wrong on House!)

(an animated GIF of a cane matching the natural walking gait. It turns red when pressure is placed on it.)

When going up and down stairs, there is an ideal standard: You want to use the handrail and the cane at the same time, or prioritize the handrail if it's only on one side. When going up stairs you lead with your good leg and follow with the cane and hurt leg together. When going down stairs you lead with the cane and the bad leg and follow with the good leg!

Realistically though, many people don't move out of the way for cane users to access the railing, many stairs don't have railings, and many are wet, rusty, or generally not ideal to grip.

In these cases, if you have a friend nearby, holding on to them is a good idea. Or, take it one step at a time carefully if you're alone.

Now we come to a very common mistake I see... Using fashion canes for medical use!

(These are 4 broad shapes, but there is INCREDIBLE variation in cane handles. Research heavily what will be best for your character's specific needs!)

The handle is the contact point for all the weight you're putting on your cane, and that pressure is being put onto your hand, wrist, and shoulder. So the shape is very important for long term use!

Knob handles (and very decorative handles) are not used for medical use for this reason. It adds extra stress to the body and can damage your hand to put constant pressure onto these painful shapes.

The weight of a cane is also incredibly important, as a heavier cane will cause wear on your body much faster. When you're using it all day, it gets heavy fast! If your character struggles with weakness, then they won't want a heavy cane if they can help it!

This is also part of why sword canes aren't usually very viable for medical use (along with them usually being knob handles) is that swords are extra weight!

However, a small knife or perhaps a retractable blade hidden within the base might be viable even for weak characters.

Bases have a lot of variability as well, and the modern standard is generally adjustable bases. Adjustable canes are very handy if your character regularly changes shoe height, for instance (gotta keep the height at your hip!)

Canes help on most terrain with their standard base and structure. But for some terrain, you might want a different base, or to forego the cane entirely! This article covers it pretty well.

Many cane users decorate their canes! Stickers are incredibly common, and painting canes is relatively common as well! You'll also see people replacing the standard wrist strap with a personalized one, or even adding a small charm to the ring the strap connects to. (nothing too large, or it gets annoying as the cane is swinging around everywhere)

(my canes, for reference)

If your character uses a cane full time, then they might also have multiple canes that look different aesthetically to match their outfits!

When it comes to practical things outside of the cane, you reasonably only have one hand available while it's being used. Many people will hook their cane onto their arm or let it dangle on the strap (if they have one) while using their cane arm, but it's often significantly less convenient than 2 hands. But, if you need 2 hands, then it's either setting the cane down or letting it hang!

For this reason, optimizing one handed use is ideal! Keeping bags/items on the side of your free hand helps keep your items accessible.

When sitting, the cane either leans against a wall or table, goes under the chair, or hooks onto the back of the chair. (It often falls when hanging off of a chair, in my experience)

When getting up, the user will either use their cane to help them balance/support as they stand, or get up and then grab their cane. This depends on what it's being used for (balance vs pain when walking, for instance!)

That's everything I can think of for now. Thank you for reading my long-but-absolutely-not-comprehensive list of things to keep in mind when writing or drawing a cane user!

Happy disability pride month! Go forth and make more characters use canes!!!

#mobility aid #mobility aids #cane user #writing tips #writing advice #drawing tips #art tips #reference #disability aid resources #disability resources #disability #disabled

73K notes · View notes

cripplecore · 10 months

Text

don’t forget! tomorrow starts disability pride month!! i know it’s also “wrath month,, or whatever y’all call it but you better lift disabled people’s voices this month. ESPECIALLY physically disabled people.

#cripple punk #disability pride #disabled pride #disability pride month #one day late whoops

11K notes · View notes

cripplecore · 10 months

Note

sorry if this comes off as rude, but i just wanted to ask so i know what to do if this happens. if someone with a cane or something similar drops it, is it polite to pick it up for them as you might with any dropped object or is it rude because it's a mobility aid/extension of their body?

don't worry your question doesn't come off as rude at all! whether or not someone would want you to grab their cane is really something that will depend on the person

I've seen people say that they appreciate people picking up their cane when they drop it, I've seen people say they don't like it, and I've seen people with no strong opinion in either direction.

I know personally I don't like it when people grab my cane for me because it's an extension of my body but also because I'm immunocompromised and as a stranger I'd have no idea whether you're sick, what your hygiene habits are, etc. so I'd have to disinfect my cane.

on the other hand many cane users struggle with bending down or are downright incapable of it. for them, picking up their cane on their own might be very painful or impossible.

the best thing to do is really just ask. if you need a script, "would you like me to grab that for you?" and "do you need any help picking that up?" both work and are questions that I don't see anyone being upset by. I'd avoid picking a cane up without asking but it never hurts to offer help.

tldr; it varies a lot, ask!

other cane users are welcome to add on with their thoughts!

#disabled #disability #cripple punk #cane user #mobility aid #mobility aids #immunocompromised #personally i prefer people grabbing mine if i drop it because my POTS makes me dizzy if i bend down+stand back up fast #but that's usually only if it's someone i know well/trust or a healthcare professional. if it's a stranger i likely won't appreciate it #that being said always feel free to ask! the majority of us will appreciate it even if we say we don't want help

496 notes · View notes

cripplecore · 11 months

Text

Pride is not pride without including disabled queer people. 🌈

#ableism #queer and disabled #disabled queer #disabled #disability #accessibility

7K notes · View notes

cripplecore · 11 months

Text

migraine? MY graine? why can't it be someone else's graine for a change for fucks sake

#migraines #chronic illness memes #disability memes #disability #disabled #chronically ill #chronic pain #chronic pain memes #tw swearing #swearing tw

2K notes · View notes

cripplecore · 11 months

Text

Disabled people pointing out ableism by the wider queer community is not "ruining the vibes" of pride month

#disability #disabled #ableism #disabled queer #queer and disabled #pride month #ask to tag

18K notes · View notes

cripplecore · 11 months

Text

USAmericans: This pride month, talk to the queer people who actually live in all those bad evil icky red states and find out what it's actually like, how we actually feel about it, and who here is actively fighting against it. No more telling us to "just leave" or reducing us to innocent victims who are "trapped" here. There are so many of us and we live here for so many reasons, none of which should be justified. We are resilient, we are powerful, and we are fighting against the fascist laws working to eradicate us or scare us away. Being trans in a red state right now is in and of itself an act of resistance. That being said, pay attention to the brave souls on the front lines, pushing against the laws, making good trouble, and refusing to be silenced.

I won't let myself be talked about like I'm stupid to live here.

I won't let myself be talked about like I'm a helpless victim who's trapped here.

If you can't join the fight by standing beside us, then the least you can do is empower us, amplify our voices, and pay more attention to the ones who are FIGHTING AGAINST THESE LAWS than you are to the chucklefucks trying to pass them.

#i fucking adore my town #it's kind of shitty yes. but it's my town.#and i don't want to leave just because the government hates me.#i shouldn't be forced to evacuate my hometown. i shouldn't be in danger in the place i love.

23K notes · View notes