Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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been watching mashle and oh my god, the eugenics???? the way lance's parents were so ready to give up their daughter??? no second thought???? just "why did this child have to be born to us?"???? um everyone talking in mash's face about how non-magic people are inherently worthless???? the triple line dude fucking making dolls out of people and somehow no one??? is??? checking him???? and then when questioned immediately jumping into "well humans are little more than mindless beasts and i will become a creator deity and reshape the world in my liking!"????? the, um, corruption in the government??? the way this story is so clearly "h*rry p*tter if it was actually funny"??? the slytherin coded characters are blood purists???? they took out hufflepuff??? one of the magia lupus' mage's powerset was just big shuriken???? another one is rip off kisame???? lance is a siscon and the first thing mash says is "that doesn't make it better"???? lemon is genuinely so fuckin funny??? dot is incel-coded but like in a funny way??? dot says that lance is playing life on "easy mode" cause lance has a good face??? dot likes tea??? dot has good manners??? everybody only has one spell they can use??? finn ames is like if you transported is regular human into this stupid ass world??? i think the old man and the cop have explored each others bodies.
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Anyone else come to some wildly different conclusion on Ghibli movies with age?
Kiki's Delivery Service:
Kid: Being a witch is so cool!
Adult: Growing up and growing apart from the life you had before is a natural progression of life. You aren't losing the old parts of yourself, just finding new pieces that were there all along. Life is about changing, you'll never stay stagnant.
Ponyo:
Kid: She's such a cute fish, you should always follow your dreams!
Adult: Leaving home will not take you away from your family. Even when you're miles away and you feel like you're in different worlds your family will still be there, encouraging you. Parents are meant to let go of their kids at some point.
Howl's Moving Castle:
Kid: Sophie's a big sister like me! I want to a princess in a magic castle.
Adult (I've also read the book): Sometimes you don't find your place in this world, you make one. The people that come along with you will see you through every ugly part of yourself and you would do the same for them. Chase after that shooting star.
Spirited Away:
Kid: What just happened...
Adult: SHIT HAPPENS! And it sucks, life sucks but you keep going. You can cry along the way. You are being so fucking brave for even going on this hellish journey we call life. It's okay. You're okay.
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