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clownrecess · 10 months

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Happy disabled pride month to disabled people with undiagnosed physical disabilities

Happy disabled pride month to disabled people with undiagnosed mental disabilities

Happy disabled pride month to mobility aid users

Happy disabled pride month to disabled people who are in constant pain

Happy disabled pride month to AAC users

Happy disabled pride month to disabled people with ableist family

Happy disabled pride month to fat disabled people

Happy disabled pride month to disabled people with scars

Happy disabled pride month to disabled addicts

Happy disabled pride month to disabled people who's disability is progressing

Happy disabled pride month to disabled people who love their disability

Happy disabled pride month to disabled people who hate their disability

Happy disabled pride month to disabled people with underrepresented and/or uncommonly known disabilities

Happy disabled pride month to all disabled people. I love you. /p

#multiply disabled #disabled pride #actually autistic #physically disabled #autipunk #cripplepunk #aac user #nonspeaking autistic #nonspeaking #disabled #autism #aac users #aac device #neurodivergent #chronic fatigue #hypermobile eds #hypermobile ehlers danlos #undiagnosed ehlers danlos #ehlers danlos syndrome

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tobytalksaac · 4 months

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Reminder that AAC device/mobility aid does not ruin your outfit!

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arquaticdreamer · 1 month

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New bluey communication cards

ID:

1. Silly picture of Bingo with phrase "I'm unreliably/Nonspeaking" on white background and blue border

2. Pink poodle bluey character waving hi with "my name is Cloud, I use He/They Pronouns" on white background and blue border

3. Short navy and grey puppy from bluey with blue tutu on stimming with phrase "I need space"

4. Bluey with mouth agape and hands close to mouth with phrase "I'm struggling to talk" white background blue border

5. Bingo fallen to knees and hands in air phrase says "I'm overstimulated"

6. White and brown girl puppy with teal glasses from bluey with phrase that says "Caregiver: Mizu" and blured out phone number below l. White background blue border

End ID:

#nonspeaking #nonspeakingautism #aac user #autism spectrum disorder #actually disabled #nonverbal #unreliably speaking #nonspeaking autistic #communication cards #nonverbal autistic #bluey cartoon #bluey heeler #bingo heeler

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enbycrip · 27 days

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Yup, that includes nonspeaking and partially speaking autistic folks too. And learning disabled autistics. And autistic folk with lots of co-occurring conditions. And autistic wheelchair users ♿️ and other mobility aid users. Did you know that increasing evidence is being found of co-occurrence of autism and hypermobility disorders, including Ehlers-Danlos Syndromes, Marfan Syndrome and Joint Hypermobility Syndrome?

That includes queer and binary and nonbinary trans autistics - did you know autistic folks are about three times more likely to be trans or gender-nonconforming than the general population?

That includes sex workers too - did you know sex work is one job a lot of autistic folk can actually manage to do, and that’s really vital when it’s so difficult for so many of us to access disability benefits and reasonable accommodations in paid work?

That includes autistics with mental health diagnoses, including schizophrenia and psychosis. Autistic folks in prison and with criminal records too - do you know that the U.K. Government’s own disability strategy notes that about 40% of people in the criminal system are neurodivergent and/or learning disabled?

That includes Black autistics, indigenous autistics and autistics of colour, who are not only horribly more likely to be the targets of violence, including fatal violence, from law enforcement and from paid carers - the Judge Rotenberg Centre, notorious for subjecting autistics to *electric shocks* as punishment, primarily hosts BIPOC folk - but are also far more likely to be misdiagnosed or go undiagnosed?

#autistic acceptance month #centre autistic voices #acceptance not just awareness #autistic #autistic adult #queer autistic #nonbinary autistic #trans autistic #autistic and physically disabled #autistic sex workers #fuck autism speaks #intellectually disabled autistics #nonspeaking autistic #autistic mobility aid user

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wxrmeaterz · 2 months

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uh just cus u experience verbal shutdown does NOT mean u r semiverbal

semiverbality is not:

being unable to speak when anxious , stressed , tired or overwhelmed (this is verbal shutdown)

or

being unable to use most words or phrases when anxious , stressed , tired or overwhelmed (this is also verbal shutdown)

semiverbality is:

stop misusing verbality labels

we will not engage with discourse on this topic as we do not have to spoons to do so

-Arson (a semiverbal alter) (it/xe) + Sorine gatekeeper (death/hate/flesh)

#semiverbal #actually autistic #non verbal #autistic things #autism #stop spreading misinformation #nonspeaking #semiverbal autistic #semi verbal #non speaking #nonspeaking autistic #level 2 autism #level 2 autistic

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chasm-side · 2 months

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I'm reading an academic article about autism and neurodivergence, and this stopped me dead. What the fuck, what the fuck

"Furthermore, at the time of writing, there is still one facility in the United States (the Judge Rotenberg Center in Massachusetts) that employs electric shock on Autistic people as punishment to enforce neuronormative behaviour, despite an initial ban in 2020 (Young and McMahon, 2021). Given that these residents are among the most vulnerable members of the Autistic population, those who are non-speaking or with high support needs (overlapping but not identical groups), the lack of public will to end this abuse is a significant political and human rights issue."

-- Eleanor Thomas, "Why critical psychology and the neurodiversity movement need each other." Frontiers in Psychology, vol. 15, Jan. 2024.

#cw torture #autism #autistic #nonspeaking autistic #high support needs #neurodiversity #neurodivergent #electric shock #cw medical abuse #cw institutionalization #cw abuse

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autisticlee · 11 months

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I often think about how many nonspeaking autistic people get treated like they are unintelligent, incapable of thought or learning, and will never be able to communicate, from the time they are time children. so many parents of autistic kids and even "professionals" base their intelligence and/or ability to learn and communicate on their ability to speak. it's so sad to see.

I always think about how many autistic kids might never get the chance to communicate because their judgemental parents don't try to teach them basic things or give them an alternative form of communication. so many "autism parents" seem to think if their child doesn't speak, or has impared speech, that means they are incapable of using or understanding words.

i'm sure there's a lot of autistic people who do have that disability, not being able to learn or understand words at all and therefore unable to learn communication methods i mention. but how many can learn to understand just fine and have the ability to communicate with other means that isn't physically speaking, but are never taught any language or communication skills? how many could use alternate communication if given the chance? what if instead of speaking for their child because their child can't physically speak, the parents taught them how to write, how to type on a phone/computer, how to use sign language, or use AAC device? (whichever they are able/most comfortable with) how many are denied that chance, treated like they are "stupid" and can't understand anything anyone says to them, but they understand it all and just can't communicate that to anyone?

I imagine it feels like being trapped. so much to say, but unable. people speaking for and over you, going against your wants and needs, deciding everything for you because you can't make words come out of your mouth, and they didn't give you another way to make words.

i'm semi-speaking, if that's the correct way to refer to myself? I can speak when i'm not overloaded. when i'm too overwhelmed and go into shutdown mode, i'm unable to speak at all even if i really want to. i mainly only speak to close family/friends when at home and have great difficulty trying to speak outside of home and with people i dont know well. it took me almost 2 years to be able to minimally speak to the staff at a place i volunteer every week, and still have trouble asking questions or even saying hell/goodbye. but on a good day, if I try really hard, I can say a few sentences! if i'm completely comfortable and in a stable or familiar environment, I can have "normal" conversation. though, talking exhausts me so I still can't do it for extended periods and prefer not to. I prefer to listen. I get tired and overwhelmed a lot faster if I have to speak a lot, especially when i'm not at home and in an overwhelming environment.

I know it's VRRY different from nonspeakers, but just from the experiences I had as a kid, I can kind of try to imagine how frustrating it may be for the ones who may be denied the chance to communicate: as a kid, school overwhelmed and overloaded me to the point where just the noisy school bus in the mornings caused a shutdown that lasted all day. I would be unable to speak at school at all and beat myself up over it because I could not get words out. I would try, but I was physically unable to produce sounds in the form of words. sometimes I could make a squeak sound or one word out of a whole sentence. if I did manage to get words out, it was too quiet or slurred and no one could hear or understand me. I couldn't answer anyone 99% of the time at school (or anywhere else that overwhelmed me)

people did and said things I couldn't respond to. my needs were denied. people decided things for me. other kids bullied me, the teachers bullied me, they acted like I couldn't understand them sometimes and treated me like a baby. I would sometimes write responses in a notebook or on a paper. i've had my responses torn up and thrown away by other kids and teachers. getting told to speak instead. it was so frustrating, isolating, and dehumanizing.

but there were rare times I could speak. this made them even more insistent about trying to force me to speak and was always told I was doing it on purpose (and they eventually made me believe it! I couldn't figure out why I couldn't stop choosing to do it! i had so much to say and didn't know why i could not say any of it!) trying to make me speak became a game for them. if I did say a word, they treated me like a baby or a dog doing a command. they would act like they won a game. it felt so dehumanizing like I was a circus act. they called me a scary freak and I felt like one... evenrually I learned I'm autistic and that's what's causing it, that sensory overload, overwhelmed, and stress cause me to lose my speech ability, that it's not my fault. i'm still not sure if I'm doing better now because I learned I'm autistic and can regulate it better and avoid triggers that lead to shutdown, or it's because i'm not in school anymore and spend most of my time at home where I control my environment and needs.

but I feel like that whole experience as a kid gave me a very small taste of what I imagine some nonspeakers experience. it makes me think about the ones denied a communication outlet a lot 😭 they must feel so isolated and frustrated and might not ever get or got the chance to tell anyone about it. we might never get to hear about their experiences and what they feel and go through.

even ones who are given an outlet and taught language and alternate form of communication like typing or AAC, or whatever they need, and are still treated poorly just because they are unable to physically speak or communicate...I think about you too and hope you're able to do well and keep going. I think you're doing great and i'm proud of you 💜 I haven't been able to find many posts online from nonspeakers, so if you want to share your stories, I will listen. you can write a post or find posts already made and send it to me and I will read!

#autistic #autism #actually autistic #autism things #nonspeaking #nonspeaking autistic #lee rambles #this is kind of like how english speakers (maybe others do too but this is my experience) treat people who arent fluent or have an accent #while speaking english as “stupid” and question their intelligence. i hate it so much!!!!#stop equating speech to intelligence level because it doesnt prove anything!!!!

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nonspeakingpoetry · 1 year

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Solace

Do not repost without my permission, even then, you must credit me.

Safety, warmth. A magical sensation, a sensation of true belonging, a sensation of hope. A sensation of solace. A solace I long for. A solace I yearn for, even.

Why is it some achieve this solace within you so easily? Born into this solace, this warmth. I sit in silence, as the intervening cold grows near. This cold, this trepidation, as I grew it grew too. Trepidation turned to hubris. Hubris brain, hubris heart.

Shame. Hubris is shameful.

Fix it.

Fix it, or that warmth we speak so highly of will come to you, it will come to you with the strength of a titan. Warmth will turn to hot, hot will turn to burns. Deep burns. Burns that will melt your skin, melt the layers clean off your bones.

Those sickly bones.

The warmth was never warm. It was no solace.

I've now found that through the disquiet of the cold I missed the point.

You, were the cold. Ice. Ice so cold, so unfathomably cold it burns skin. Leaving deep pink scars atop my outsides.

Some species, the polar bear for example, are meant for the cold. They thrive in it. However, when you take a snake, and suddenly pitch it into the snow, well, it dies.

#poetry #poem #literature #disabled poet #queer poetry #nonspeaking autistic #sad poem #long poem #poems #poet #religious poem #religious poetry #vent poem #vent poetry #religious trauma

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autball · 7 months

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We. Can. Hear. You.

It’s AAC Awareness Month! AAC (Augmentative and Alternative Communication) is more than just high tech devices like the one depicted here. It includes picture books/cards, sign language, writing it down, Spelling to Communicate - basically anything that conveys a message that is not speech.

And anyone can use it! If you are non-speaking, unreliably speaking, not-yet speaking, or just find words hard sometimes, then AAC is for you. There is no “non-speaking enough” threshold you have to meet - if it makes your life easier, go ahead and use it.

AAC is empowering. People routinely talk about autistic kids and adults like they’re not even in the room, even when they CAN speak. (Which, if you’re someone who does this, STOP IT RIGHT NOW.) This parent could have assured this asshole professional person that her son could understand til they were blue in the face, and they wouldn’t have been believed if he hadn’t been able to communicate it for himself.

Communication is a right. Don’t let anyone try to discourage AAC on the basis of it hindering speech or “being the easy way out” or whatever other nonsense they come up with. AAC *enhances* communication, and everyone deserves the ability to communicate their needs, tell you their thoughts and feelings, share their hopes and dreams, and tell people to fuck off when needed. 😉

(Image description in Alt Text.)

#autism #autistic #actually autistic #aac #aac awareness month #nonspeaking #nonspeakingdoesnotequalnonthinking #autistic funny

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five-thousand-loaves-of-bread · 18 days

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autism awareness & autism acceptance not either or. not mutually exclusive. can coexist. need coexist.

“there enough awareness for autism already 🙄 we need acceptance”

ok. you aware of high support needs autism? aware what that even means? not “need reminder take meds need remind take shower” “high” support needs autism, but “need full physical help do bADLs lack danger awareness may accidentally hurt self or even kill self without support” high support needs autism? not just higher support needs people who can be independently online do advocacy, but those who need help from others even be online, or those who cannot be online at. all.?

aware of nonverbal nonspeaking people? not just nonverbal nonspeaking people who can write grammatically correct cannot tell apart base on writing. not just nonverbal nonspeaking people who can be online who can advocate online.

aware of nonverbal nonspeaking people who cannot communicate in way that easily understood, either for now, or ever? aware of nonverbal nonspeaking people without functional communication, aware of how without functional communication, how that drastically limit communication, even though behaviors are valid communication? aware of nonverbal nonspeaking people who may never use AAC fluently even with best support?

aware of technically verbal but very limited verbal autistics who may only able say wants & needs but not other things and certainly not online advocacy, “despite being verbal”?

aware of just how much our life depends on caregiver/carer/PCA/etc? aware how vulnerable that make us? aware of abuse from caregivers? aware of caregiver burnout from lack of support for caregivers, & how that impact our care we receive? have you even heard of term respite care? aware of those of us who cannot separate ourselves from caregiver? aware of those of us who cannot participate in autism community without caregiver?

aware of visibly autistic people? aware how we not automatically believed? aware how we often bear blunt of violence because we most easily identified target because we visible? aware visible =/= get support, aware that many those diagnosed severe who now adult so no longer qualify for services under 21 year old, languish in hospitals because nowhere to go? aware how long life saving necessary waitlists are? aware that even to this day parents have to fight school fight day service fight government fight insurance for them give their nonverbal nonspeaking child AAC & be properly taught how use it? actually, are you aware of how properly teach AAC to nonverbal nonspeaking, developmentally delayed child who may or may not have intellectual disability?

actually, aware of autistics with (correctly diagnosed) intellectual disability & how they make up big amount of autistic? aware of institutional systemic & legal impact of mental [r word] right & the human rights abuse justified using r word right? wait, you aware that r word come from old term for intellectual disability, that, actually, still in many laws because no one bothered updating, right? aware of what severe profound ID look like? and aware they real and they still human deserve education deserve life deserve care, yes?

aware of early diagnosis 20 30 or even 10 years ago, not same as now, even less resources & knowledge about autism now? aware that while gender race class 1000% impacted diagnoses, a lot of early diagnosed people early diagnosed because… they die without support unlocked by diagnosis, right? but also, aware that in old times, early diagnosis often did mean doom, not because autism bad or anything, but because severe lack of support & diagnosis can literally bar you from so many things including basic education?

aware that for many people in special education, which impact specific group of autistic people, they not get degree when graduate high school, they just get certificate, which limit their educational & employment opportunities & others?

aware of life saving importance and necessity of masking for autistic of color especially Black autistic people, despite stress inducing traumatic? aware that live in broken system be victim of hate crime & police brutality just as traumatic often even more traumatic than masking? aware that many Black & other parents of color forced to teach their child masking because of this?

are you aware of most marginalized autistic people? aware of leadership of most impacted?

aware you can and need to care about autistic experiences & form of autism you not experience? aware that you can and need to do that without try twist your experience into our experience into our words our community?

aware that advocacy goes beyond about you?

aware that you can’t speak for all autistic? aware that you shouldn’t speak for all autistic?

are you aware of when you need to stop talking & listen & amplify others? aware of when and how to decenter self?

aware that even this long post, barely scratch surface? still so much to say?

[better worded version of original post]

#loaf screm #actually autistic #autism acceptence month #autism awareness #autism awareness month #high support needs #long post #nonverbal #nonspeaking #autism #autistic #autism acceptance

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clownrecess · 1 year

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It is not inappropriate for AAC users to have acsess to swear words.

My peers started swearing at around age 10, and if that is what language the speaking people of that age are using, nonspeaking people have the same right.

Not giving us acsess to the same type of language as our peers feels alienating, it doesn't let us communicate with the same language and terms our peers and friends do. We are not babies. We are not stupid. We are the same as our speaking peers. Just because you can sometimes control what language we use, doesnt mean you should.

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tobytalksaac · 4 months

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Reminder not to change topic when you know AAC user is typing!!! Let us add to topic before continuing!

#aac #aac user #autism #nonspeaking autistic #nonverbal #semiverbal #semispeaking #non reliably speaking #selective mutism #situational mutism #mute #nonspeaking #augmentative and alternative communication #aac users #aac app

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arquaticdreamer · 1 month

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ID: P2G AAC app tablet 6x10 with message bar saying, “Cloud feel so frustrated!” End ID

Autistic Vent: Part of being high support needs autistic is always feeling frustrated and angry about just generally everything that can’t do or things like Abl**sm and things that are inaccessible to us (especially as wheelchair users, and mobility users). Needing to use mobility aids should never be something that should be shamed for or made more difficult but Cloud just today had to deal with disabled inaccessibility at the local Denny’s Diner cafe with only one disabled parking slot and someone had already parked there, there were no other disabled parking spots but that single one user and so Caregiver had to park farther away from the front because the disabled parking was farther away from the front door of the diner and everywhere else was too far away to be wheeled. Cloud dealt with this poised and gracefully and just really wanted to sit down and have breakfast and thankfully the experience inside the Denny’s was much better than the actual parking problem. But still there needs to be more renovation for disabled parking places, and accessibility. That includes closer disabled parking and not just ONE!

#nonspeaking #nonspeakingautism #aac user #autism spectrum disorder #actually disabled #nonverbal #unreliably speaking #nonspeaking autistic #proloquo2go #venting #autistic vent #arquaticcries #accesibility #disabled #wheelchair user #mobility aids #autistic community #nonverbal autistic

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meowtismz · 4 months

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Something people NEED understand is.

NO we not WANT an AAC device

NO we not WANT a wherlchair

NO we not WANT use a cane

NO we not WANT any disability aid

We NEED it. Is not a desire is a NECESSITY

Get this inside dumbass brain of you already! Need stop think us disabled people like be disabled just because proud or aware need help.

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zebulontheplanet · 8 days

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When I talk about visible autism on my blog, I’m usually not talking about those who are clocked as quirky and weird. Although that’s completely valid, I’m not talking about them. I’m talking about those of us who are VISIBLY autistic. Those of us who are clocked as those autistics. Who are clocked immediately as having something wrong with them. Those of us who are named as slurs. Who are yelled at. Who are attacked. Who are glared at, pointed at, stared at, pitied. Those of us who are automatically assumed to be with caregivers. Those of us you see talked about in medical journals and on the news as “inspiration” when we graduate or get invited to prom.

This is us. This is who we’re marked as. This is who we are seen as. We are seen as less than, as animals, as objects, as “inspirations”. When we accomplish something it’s usually not seen as our accomplishments but as the accomplishments of our caregivers and support staff.

I get so mad when someone comes onto my blog, MY blog. Me. A visibly autistic, nonverbal person, and doesn’t even look at my tags or pinned post and says “Omg me too, I’m seen as quirky and awkward, I’m visibly autistic 🥰” and like…go you but I’m not talking about you. I’m not talking about “low masking”. Im talking about LOW masking. No masking or very very low masking. Those of us who are immediately seen as autistic.

And it’s frustrating. It’s frustrating when people come into my blog and say this because, you DON’T get it. You just don’t. You don’t get what my life is like, what my experiences are. What it’s like to be LOW masking or no masking. You don’t get that. And yet you try and squeeze yourself in. And that hurts. It hurts to have people who won’t ever understand this squeeze themselves in. Stop doing this.

#zebrambles #autism #actually autism #medium support needs #actually autistic #nonverbal #actually nonverbal #nonspeaking #low masking #no masking #masking #higher support needs #high support needs #angry ramble #anger

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pixierainbows · 3 months

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Pixie give up . Autism people too angry refuse to stop say “going nonverbal” . refuse to listen … and Pixie just . Can not any more . Crying so much upset so much nobody care at all … just How very very different is to never be able speak … not AT ALL same as losing Mouth words sometimes .

pixie all done being talked over and ignored and yelled at and told go kill pixie self … pixie WISH could just stop exist …

pixie ALL DONE .

from now on . People who miss use actually nonverbal words, Pixie just BLOCK . not care If mean Pixie not welcome in autism community anymore , Pixie never been welcome by community pixie Never welcome by speaking autism people anyway .

is no safe place for Pixie . :( :( :( :( :( :( :( :( :( :( :( :( :( :( :( :( :( :( :(

#autism community #actually autistic #actually nonverbal #actually disabled #nonverbal #nonverbal autism #nonspeaking #severe autism #bad autism

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