Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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IN DEFENSE OF ARIANNE MARTELL
My 1980s and Other Essays, Wayne Koestenbaum // Looking in the Mirror, George Tsui. // A Feast for Crows, Chapter 40, Princess In The Tower
for @alicentcole, my long lost twin
lyanna stark || elia martell || sansa stark || arya stark || alicent hightower || jaehaera targaryen || cersei lannister || myrcella baratheon || joanna lannister || aemma arryn || catelyn stark || sansa stark (2) || margaery tyrell || rhaena targaryen, daughter of aenys i || arianne martell || aerea targaryen || obara sand
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so im a fucking idiot and didnt include a "multiple" option in this poll, lets try again?
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“I felt the red-winged man gaze, I heard him speaking. I know who you are, he said, there are two ways this can go, no, three ways. I don’t want to count the ways, I said, I just want to finish it. I need to get to the end. His wings lifted and sanked. Oh my darling, he said, you’re a long way from the end.”
— Anne Carson, H of H Playbook
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fuck the nhl and this bullshit prohibiting pride tape. seriously. fuck provorov too. fuck every fucking homophobe. "players are allowed to show their support off the ice". go fuck yourself. i hope players say fuck this shit and use pride tape anyways. i'd like to see the nhl infringing on their freedom and telling them they can't. put. fucking. tape. on. their. fucking. stick.
like how fucking stupid does that sound?
you aren't allowed to use tape.
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