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crohnsawarenessproject · 2 years

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‘Gut of the Tiger’ July 12th, 2022 #gutofthetiger © Outhouse Cartoons/C.A.P 2022

Weight issues have commonly been one of the worst of my IBD enemies. The problems I have with weight mostly started after my first resection but took me years to truly grasp. Over the last two years I’ve been in a constant battle with my body. It is constantly trying to shed any of the weight I attempt to put on it. I’m trying to eat as many calories in a day as I can but honestly, this year has been pretty tough. Food has, once again, become just a fuel source for my body. Rarely does it interest me and yet, through everything, I am still hovering around the 140lb mark.

My permanent ileostomy is coming up in September, and I’m doing my best to gain and retain as much weight as I possibly can to make my recovery easier. I was in the 120lb range with my first surgery and the recovery process was hard. In all honesty, I would probably have ‘thrown the towel in’ a while back. Not for good, no. I never give up. But I do have my moments where I get so tired of fighting that I would start to give in for a spell. Not very long, but long enough to cause damage.

Every year I go through the same routine. From the start of Fall and into the colder months, I do my best to put on weight since I know once we get into the warmer summer months, I tend to shed it again as I can’t keep up with my high calorie diet. With the heat, I used to have my breakfast, or at least as much of it as I could get down, then throughout the day, I’d do my best to snack. I tend to snack before going to bed. I have a heavy sweet tooth at night so more often than not, a big bowl of cereal is something I've been able to enjoy once again as lactose-free products have really taken storm over the last few years. And now, with my wife around, I try to at least eat my breakfast and dinner. She takes over the cooking during the nights when I just don’t have it in me which, during the summer, is more often than I’d like. This has been a positive change for me in the fight against my weight.

Many of us deal with weight gain & loss due to IBD, how do you cope with it? What are some of the routines you go through to maintain? Tell us in the comments below.

#crohnie #crohn's awareness project #ibd #crohn's awareness #web comic #crohn's disease #inflamatory bowel disease #cap funnies #health #humour #ibd problems #weight gain

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newtness532 · 5 months

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im so annoyed with everything today, i think i need some tasty food and a million hours of sleep and then I'll be back to normal

#the teacher at the first class today was so dibsjdhdhdhdhsgs 😫#like she was teaching us things that are like unrelated to the class that shes teaching so idek why she was teaching it #but also its things that we have been learning since the 1st semester and we've done them in at least 10 classes and she was acting like #this was the 1st time we were hearing about it #like oh yeah we're on the 7th semester of studying nutrition but no one bothered to tell us how many calories are in a gram of fat #and she gave us homework 'to see if we know this' like #oh yes i can make a meal plan for a child with crohns or cystic fibrosis or celiac disease or everything else we've done this semester and #all the other semesters but i guess i cant tell you what micronutrients are in this one breakfast meal #like fuck off and stick to what you're supposed to be teaching #anyway i know im getting more annoyed than i should but she was just even more annoying than usual today #like she interrupted the lesson every 5 minutes to yell at someome to be quiet i wasnt even aware there were people talking until she yelled #anyway #also my new earphones aren't working well idk why ive definitely not been mistreating them that much for them to break in less than a month #like i had my old pair for at least 4 years until the broke and i dont think the wire got cut in them like the sound was coming out weird #but there was sound coming out. in the new ones you need to hold them in a very specific angle for sound to come out #and like im careful with how i put them away so what is up with them?#my theory is that they make wired earphones shitty on purpose so that you will spend a lot of money and buy wireless #also we had said from Tuesday that we would hang out with my friends today but i guess they forgot or idk and they made other plans #(to go home and sleep) and during the weekend the one friend wont be here and next week my family will be here so we probably wont hang out #again until next year and we have exams almost immediately so we wont be hanging out much then either #also my period is supposed to come soon and i hope that it will either come today or it will wait until after Christmas #ideally it will never come ever again but we cant always get what we want #anyway im gonna go eat the rest of my μεσογειακό and go take a nap #jo says stuff #personal ramblings

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cfs-crohns-colitis-warrior · 4 days

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Honestly so fed up of these pains. They’re at their absolute worst today.

Can’t breathe properly without major pains. Nothing is helping. I expected some pains after my weekend away doing stuff but never expected it to be this bad. I’d rather just deal with tiredness and exhaustion cause at least then I can just sleep but I can’t even sleep because the pain is so bad and my steroids are affecting my sleep so even without the pain I’m struggling to sleep.

So much fun 👍🏻

#chronic illness warrior #chronic fatigue syndrome #cfs/me #myalgic encephalomyelitis #chronic illness #chronic illnesses #awareness #crohn’s disease #crohn’s warrior #stoma #chest pain #pains #aches and pains

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jscarzfava · 11 months

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Heard today was World Crohn’s and Colitis Day. I think it’s important to normalize talking about it because it’s something that can impact all of us and the way we handle it.

If this is you, feel free to share your story.

#world crohn’s and colitis day #crohn's disease #ulcerative colitis #health and safety #awareness

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skyllion-uwu · 1 year

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I always realize that it's been an awareness day or week related to IBDs after the event happened like I wanna fucking say something because I never see anyone talking about it but then I miss it myself ughhhh

#sky screams into the void #12/7 is the last day of crohns and colitis awareness week this year and for most people thats over now #i think the next thing is may 19th for world ibd day so hopefully ill remember by then

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spartanmemesmedical · 4 days

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Vitamin B12: What to Know

Introduction: Vitamin B12, also known as cobalamin, is a vital nutrient that plays a crucial role in maintaining overall health and well-being. Despite its importance, many individuals may not be aware of the signs of B12 deficiency or how it can impact their health. In this comprehensive guide, we’ll explore the significance of vitamin B12, common symptoms of deficiency, and strategies for…

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balajihospital · 12 days

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Balaji Hospital | Minimally Laparoscopic Surgery for Recovery

Balaji Hospital's Laparoscopic Surgery showcases their expertise in minimally invasive procedures focusing on patient safety & comfort resulting in faster recovery

#Laproscopic Surgery #Surgery for Crohn’s disease #Ulcerative colitis #Radiologist #Vascular radiology #Periodical medical examinations #First aid training programs #Intensive Care Medicine #Health awareness programs #Guj.Factory rules #Work of H.I.R.A #Vadodara

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anne-chloe · 3 months

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to celebrate the fact that I have earned and completed my level 3 childcare qualification, I baked myself a lemon and raspberry cake, complete with icing! 🩷

it probably won’t seem like a big deal for some, but considering the fact that I believed I would be dead by the time I turned 18, this is huge for me

I never aspired to do anything with my life and never tried because I thought it would be a waste of energy

here I am, 21 years of age, having completed therapy and driven with a new motivation to be alive

I’m so thankful every day for this chance to see the world in a new light, and im so glad I didn’t end my life when I wanted to

#mental health #suicide awareness #childcare practitioner #early years education #early years level 3 childcare #type 1 diabetic #type 1 diabetes #ulcerative colitis #crohns disease #still alive #writer

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disabled-not-dead · 5 months

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https://rdbl.co/47gppMi Rebubble Up to 40% off

https://bit.ly/3uBt9JG Teepublic Up to 35% off

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shanzodragoness · 5 months

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My newest piece is dedicated to everyone who is defiant in the face of chronic illness

For all of us who fight every day and never give up, the warriors of the world.

My goal is to spread awareness and encourage fellow artists to draw your OC with the ribbon for a cause dear to you, whether you or someone you know if affected.

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About me... I'm 25 years old and was diagnosed with Crohn's Disease earlier this year, the only sign being the intense knoting pain in my abdomen. It is very much a hidden disability which I fight every day, most often needing to take naps to fight fatigue. Thanks to me thinking I'd be a burden, I am beyond management with diet and immunesuppresants alone, I was put onto biologic medication within days of diagnosis, it saved my life. I was risking a bowel perforation which would've killed me. The character shows my determination and DEFIANCE in the face of this disease I must carry for the rest of my life

Crohn's and Colitus UK uses a purple ribbon, the one Shannon wears on the end of her tail

Defiance by ShannonDragoness on @DeviantArt

https://www.deviantart.com/shannondragoness/art/Defiance-999686501

#chrinic illness #signal boost #oc #ribbons of defiance #defiance #campaign #awareness #disease #Crohn's #Crohn's and Colitis #Crohn's and Colitis UK #crohn's disease #crohnie

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crohnsawarenessproject · 2 years

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‘Dracula vs Ironman’ June 28th, 2022 #draculavsironman © Outhouse Cartoons/C.A.P 2022

In my last write-up, I mentioned how iron infusions have been a regular part of my IBD maintenance for nearly twenty years. As of last year, I started on a newly upgraded iron product called monoferric iron. This wasn’t only because I have near-constant anemia but also due to the fact that in 2021, I had begun to bleed rather excessively*.

Less than six months into starting my Entyvio infusions, the new biologic I had started in October 2020, I noticed that I was starting to bleed. Not like my normal bleeding I’d become accustomed to seeing whenever I’d be over-stressed. This was new. Amounts I’d never seen before. But as I’ve tended to do in the past, I let it slide longer than I should have, thinking I’d be okay. In June 2021 I admitted myself into the ER where I received my very first blood transfusion. Over the next five months, I would get several blood transfusions as my medical team couldn’t replace the blood and iron I’d lost fast enough. Late in the fall of 2021, I reached out to my GP to get his opinion on the situation, getting him up to date with, as he put it, my ‘novel of medical information.’

He suggested that if it was possible, to try to get more frequent iron infusions rather than constant blood transfusions as the latter could lead to possible complications. Very very rare complications, but still something to look out for. So with that, I went back to my medical team and relayed the information. At this point, I was admitted back into the ER for more testing and a drug change. We fully boosted my iron back up with several iron sucrose infusions which lasted longer, getting me through to the end of 2021. By the new year I was back on the new upgraded iron monoferric and as of today, have yet to need another blood transfusion. I’m still bleeding a decent amount, but nowhere like I was last year. We’re hoping my upcoming surgery will finally give me the relief I’ve been looking for.

Have you had to have blood transfusions? How did you cope with the stress of it? Tell us in the comments below.

*Refer to Funny from ‘A Bloody Good Time’ [July 12th, 2021]

#crohn's awareness project #ibd #crohn's awareness #web comic #crohn's disease #inflamatory bowel disease #cap funnies #health #humour #ibd problems #crohn's problems #crohnie #crohns #crohn’s advocates

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i-cannot-live-without-coffee · 1 year

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A massive fuck-you to my grotesquely cramping innards.

#personal #Crohn's disease #happy Crohn's and colitis awareness week everyone!#i am certainly aware of crohn's right now

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cfs-crohns-colitis-warrior · 10 days

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Just typical that I was on a bit of a roll, getting a few things done, then just as I’m going for a bath so I can be all fresh for my weekend away the pain kicks in and goes from 0 to 100 in a split second so I have to stop completely 😭

I just wanna be able to get on with my day!

#chronic illness warrior #chronic fatigue syndrome #cfs/me #myalgic encephalomyelitis #chronic illness #chronic illnesses #awareness #crohn’s disease #crohn’s warrior #stoma #chest pain #pain #agony

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lifesapolyp · 2 years

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One Cancer Place is a place on FB that’s being created for ALL cancers and is including places for not only hereditary colon cancer syndromes but also for FAP/AFAP specifically.

There’s also a place for IBD.

Who else is excited for this and wants to join me in building this much needed place!?

If you’re interested, send me a message and let’s get connected!

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cannabiscomrade · 1 year

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February 6-10 is Feeding Tube Awareness Week!

The beginning of February was selected because of its proximity to Valentine’s Day, because we love our feeding tubes. This is my first year as a tubie and I’m looking forward to learning more about feeding tubes and the conditions that necessitate them! I do love my tube, it saved my life!

I am an adult with a feeding tube, and a lot of the awareness and attention surrounding these medical devices is child focused. A lot of children depend on tube feeding to thrive, but there are plenty of disabled adults that depend on tube feeding as well! In 2017 there were approximately 438,000 people with feeding tubes in the US, and 60% of them are adults.

I have gastroparesis, which directly translates to paralysis of the stomach. My stomach doesn’t grind food the way it’s supposed to, and my pylorus sphincter at the bottom of my stomach doesn’t open well to pass food and liquids through. While gastroparesis has a range of impact and severity, I have a very severe case, and I am no longer able to eat or drink by mouth for nutrition. I am 100% tube fed. I went into starvation ketoacidosis prior to my placement.

Tube feeding, or enteral nutrition, has several different forms. There are nasal tubes and there are surgical tubes. Nasal tubes can go into your stomach (NG), duodenum (ND), or your jejunum (NJ) and are typically for short-term use. They can be used for acute illness and malnutrition, or to trial tolerance of enteral feeding. Surgical tubes go into your stomach (gastrostomy/G) jejunum (jejunostomy/J) or both (gastrojejunostomy/GJ) and they’re for chronic conditions and/or long-term use. I have a GJ tube and it looks like this:

I have a GJ tube so that I can bypass my paralyzed stomach and feed directly into my intestine. I can also drain stomach contents from the gastric port, which allows me to drink liquids and drain them out before they make me sick. Different people will have different tubes depending on their diagnosis and prognosis! Some people have one form of tube, and others have separate G and J tubes.

There are over 400 conditions that can require tube feeding. Some of those include

Gastroparesis

Intestinal dysmotility

Cancer

Intestinal failure

Inflammatory Bowel Disease (Crohn’s disease and Ulcerative Colitis)

Cerebral Palsy

Congenital/chromosomal conditions

Cyclic Vomiting Syndrome

Ehlers-Danlos Syndrome

Several trisomy conditions

Prematurity

Other conditions not mentioned in the link above include

Hyperemesis gravadarium, severe nausea/vomiting during pregnancy to the point of significant weight loss and electrolyte imbalance

Acute trauma requiring bowel rest

Eating disorders

This week, I want to promote visibility for disabled adults with feeding tubes. I didn’t know anything about enteral nutrition until I got sick. Once I had a confirmed diagnosis of gastroparesis, the reality that I was facing forced me to learn and adapt quickly to a completely life changing treatment. I know there are other adults like me, as well as tubie adults that used to be a child with a tube!

#disability tag #feeding tube #gastroparesis #tube feeding

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0xo · 10 months

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i would like to remind everyone that most disabilities come with comorbidities. what this means is that, most of the time, someone who is disabled does not have just *one* condition that causes them pain or difficulty.

for example, i have crohn's, which is an autoimmune disease primarily affecting the bowels. i also have ehlers-danlos syndrome(eds), which is a connective tissue disorder. eds can make crohn's worse because eds can affect your intestinal lining. crohn's can make eds worse because crohn's can also affect joint inflammation, so loose joints become more inflamed than they otherwise would. both can severely affect fatigue levels.

these are just two things i deal with. there are other comorbidities and complications i deal with, like fibromyalgia, dysautonomia, nerve damage, and more; but eds and crohn's are the easiest to explain how they play off each other.

i don't think abled people realize that most disabled people deal with something like this. i see disabled people online being very open about their multiple diagnoses to raise awareness and understanding - and then i see abled people shitting on them because "there's no way you can have that many things wrong with you."

but this is the truth of the situation: being disabled is almost never a straightforward, one-and-done diagnosis thing. even if it starts as one diagnosis, many people discover or develop other problems as their health changes. or even develop other issues because of medications! the intravenous medication i took for crohn's causes arthritis in a significant number of patients, and is most likely responsible for just how severe my joint inflammation gets.

so if you're abled, and you've ever seen a long diagnosis list and thought maybe someone was exaggerating - please step back and rethink. this is a very common thing. i would dare to guess that more people are multi-diagnosis than single-diagnosis. you are not helping anyone by accusing someone of faking or exaggerating, you are just being ableist.

as a disabled person, it takes immense bravery to speak openly and publicly about how our lives are affected by our disabilities, and we do not deserve to be treated poorly for being honest about our realities. your lack of knowledge or willingness to learn should not become our additional pain.

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