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conversationswithmybipolarchild · 5 years

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#2: WHAT IS BIPOLAR DISORDER?

FELICITY: Bipolar disorder is a mental illness. Key word one: “illness,” meaning you are afflicted with it. Key word two: “mental,” it being a part of the brain.

F: Mental health is as important as physical health. They are both very important, they go hand in hand. Bipolar disorder is a chemical imbalance in the brain. Whether or not it comes upon you after a traumatic event, or when puberty hits, or if it- if you show signs when you’re born, it doesn’t matter. it is all a chemical imbalance.

F: You are born with it, no matter what. You can go...twenty five years without seeing any symptoms, simply because you never had anything to jumpstart your bipolar disorder. But, if you have bipolar disorder, were properly diagnosed with it...you were already born with it. It was already in your brain.

F: Bipolar disorder is categorized by highs and lows in your mood. That’s why it’s called a mood disorder [edit: it can also be called a psychotic disorder]. Not just simple, everyday highs and lows like everybody has, it’s not just “oh, I feel sad today, it’s not just, “oh, I have a lot of energy.” It’s extreme.

ANJA: That’s why they’re called poles. That’s why it’s bipolar disorder

F: Yes, it’s the two poles, the high and the low.

A: The mania and the depression.

F: So mania, is when you...[trails off]...

A: It’s the high.

F: It’s the high. Mania is the high, that means you have a lot of energy, you are very impulsive, can have a lot of aggression, rage, risky thoughts, risky behaviors.

A: Racing thoughts.

F: Racing thoughts, absolutely. Nightmares, hallucinations, hypersexuality, violence, paranoia...

A: Also, I don’t think this is an official symptom, but coming from myself and a lot of other bipolar people, you get this feeling where you’re like, crawling in your own skin.

F: Yeah. Definitely. I hear that one a lot.

F: So, symptoms of a depressive episode is that you...well, you are depressed. Not just kinda sad, you feel really, really, down. When I’m depressed, and I have major depressive disorder, when I’m depressed I don’t want to get out of bed. I don’t want to take a shower. I don’t want to get dressed, I don’t want to do anything, I don’t want to be anything.

A: There’s no motivation whatsoever.

F: No motivation whatsoever.

A: I don’t get depressive episodes very often because I have bipolar I, and I get manic more than I do depressed. I don’t really- I don’t have to worry about depression, unless I like, unless I have no stimulation in my everyday life.

F: You have to stay busy in order to not get depressed. I’m the same way. If I don’t want to sit in that pit, I have to stay busy all the time. That’s why I’m constantly going, and going, and going, and doing, because if I just sit for more than a couple days, I’m in that pit and I don’t feel good.

F: So, another symptom, another result, of bipolar disorder, is uh, suicide. There is a hefty suicide rate among bipolar people. That is- that is the worst part. And as a parent of a bipolar child, knowing the statistics around bipolar disorder and suicide, it’s enough to kickstart me into a depression. It is- it worries me.

A: The, um, I’m not gonna say the only reason, but it is one of the biggest reasons why I didn’t try to kill myself when I was younger, was because I’m so afraid of death. Maybe not death, but what happens after it.

F: To tell you the truth, me too. It absolutely terrifies me.

F: So, some statistics from the NIMH, claim that 2.9% of thirteen to eighteen year olds have bipolar disorder, and eighty one percent of those kids have it severe. It’s bad enough to be hospitalized, and make their life really difficult.

F: So I was reading earlier...about bipolar disorder, and someone asked the question, “can someone with bipolar disorder live a normal life?” And it says here, “people with bipolar disorder usually go ten years before being accurately diagnosed. Treatment can make a huge difference. It is a chronic health condition that needs lifetime management. Plenty of people with this condition do well, they have families and jobs and live normal lives.” So that ought to give you a little hope for the future.

F: That’s...that’s the other thing. Meds...they are- in my opinion, they are a must. It’s beyond me how people aren’t medicated.

A: I think it’s really funny how, um, how after I was diagnosed bipolar, the last thing you wanted me to do was be on meds. Now, we depend on it. We have to. There’s no choice.

F: As you were growing up and you were being misdiagnosed all over the place, meds were the last thing on my mind. We tried every single thing else. We tried discipline, rewards, I tried diet changes, we tried all sorts of therapy, I tried changing the way that I parent! And none of it worked.

A: Because you can’t just change those chemicals. Without medication.

F: You can’t! Exactly. You can’t change those chemicals. Absolutely. I’m the same way with mine, my MDD. It doesn’t fix itself. I need medication to give me the right chemicals. To balance those chemicals in my brain. That is a must.

F: So, we’ve talked about what bipolar is, now let’s talk about what it is not. It’s not learned. It’s not a discipline problem. It’s not something that you can beat out of a child, teach out of a child, train out of a child, It’s not something that’s going to go away. And it’s not something that’s just going to one day change. It’s an ever evolving illness...

A: But it’s always there.

F: But it’s always there. And unless you’re treating it with therapy and medication, you’re fighting a losing battle.

A: Chronic is the key word.

F: Chronic is the key word. Bipolar disorder is a chronic illness.

A: Which, that really scares me. Because I’ll have to live with this for the rest of my life.

F: Let me tell you something. I’ve described severe depression as rain. Imagine you have to go out in the rain. And you have to change the tires on your car, you have to check your mail, you have to walk your dog, you have to go to work. You have to hoe your garden, mow your lawn. Daily things, but you have to do them in the rain. That’s what my brain is like every single day. I will always live doing everything in the rain. And that’s a daunting thing to think about.

F: I can still do all those daily activities, but you know how when you go in the rain, everything’s just harder? And you’re just slightly more miserable doing them? That’s what it’s like with MDD, I’m constantly having to force myself to do things. And when I do them, I’m miserable. It’s harder for me. It’s harder for me to go take a shower than it is for other people. It’s harder for me to do things because it’s like when you’re out in the rain, everything’s just that much harder.

A: It’s like- I’ve said it before- but it’s like when you do anything, it would be much easier for a neurotypical person.

F: It is much easier for a neurotypical person. They’re not fighting chemicals in their brain.

A: They’re not fighting their own mind on a daily basis.

F: Yeah! And I know that’s exhausting. I know your brain is tired. I know you’re tired. I know you are. But you can’t really think about it that way, because then you’ll get overwhelmed. I can’t think about how I will never not be in the rain. I can’t think about it...because that’s just gonna throw me back in that pit. And I can’t live my life, raise my kids, and take care of everything I need to take care of..if I’m in that pit.

A: And it’s okay to be miserable. It’s okay to rest.

F: As long as you don’t give up. I like Kevin Hines’s hashtag, #beheretomorrow. Today might not have been the best day, but as long as you’re here tomorrow, that’s what matters.

F: Let’s touch on what bipolar disorder means for you- for us. What does bipolar disorder mean for you?

A: I really hate to say this but...bipolar disorder is a part of me. And I can’t change that. I mean, sometimes I really wish I didn’t have bipolar disorder, but I don’t know what I would be without it.

F: Absolutely. I completely agree with you. I feel the same way about myself. I don’t know who I would be. I don’t know who my father would have been, who my grandmother would have been, without mental illness.

F: While I understand your sentiment, I think that because you’re medicated, and nobody else was, you are more you.

A: And less bipolar disorder.

F: Yes! Exactly. When you were eight years old and running away and acting out, being violent and raging, I didn’t know who you were! I couldn’t buy you gifts, I didn’t know what you liked. I didn’t know your personality...all I knew was this child I couldn’t connect with. All I knew was this child that absolutely hated me.

A: I was mostly bipolar disorder.

F: One of the more prominent symptoms that you had was lack of motivation. Smartest kid ever, bad grades. It’s not that you didn’t know the work, you just didn’t turn stuff in. Soon as we got you on medication, that mostly changed.

F: Super energy.

A: Aggressive. Frustrated.

F: Violent. Raging. Yeah, those were scary times.

A: I had anger issues.

F: A lot. Yeah. You couldn’t focus on anything. I know a lot of that are symptoms of ADHD.

A: Which is why I got misdiagnosed.

F: But its the hallucinations and the nightmares that sealed the deal. That turned things around. When we brought those up, it turned things around. That’s when the term “bipolar” came into play, and it fit. It fit you.

F: I know that some of the symptoms in my family, that are or were mentally ill, were definitely instability. Never being able to stay put. Not being consistent. Inconsistency was huge.

A: Even me, now, medicated, I can’t stay on the same routine or the same surroundings for more than a month. I have to change something about my life, whether it be my room, or, hell, my Tumblr blog. There has to be something that changes.

F: I agree. I’m the same way. I get very bored very easily.

F: Money! Money was a huge problem when I was growing up. You know, nobody could save. They would spend wildly.

A: Money? You mean lack of!

F: Yeah. It was impulsive spending. That’s one of the bigger symptoms of bipolar disorder in adults. Impulsive spending. That was a huge one when I was growing up.

F: My family was never very affectionate. They were always very distant.

A: I don’t know what I would do if you weren’t affectionate.

F: Well, that’s the whole reason I am affectionate, is because I was starved as a child. I needed affection and I never got it. So, it was super important to me that I be an affectionate parent. I don’t know what I would do if I wasn’t affectionate either, because I thrive on being close to you guys. And I don’t want to raise you in the same situation. In an angry, distant, impulsive, unstable situation. I don’t want to raise you that way.

F: So, what did we learn today?

F: That it’s a little scary.

A: It’s scary.

F: But it can be managed.

A: It can be managed.

F: And you’re doing a fantastic job. And I’m doing a fantastic job, and your team is doing a fantastic job.

F: Do you remember the time we were standing outside Old Navy and you told me you wanted to buy a gun?

[blank stare]

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