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#dystrophy
gregor-samsung · 5 months
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Σελήνη, 66 ερωτήσεις [Moon, 66 Questions] (Jacqueline Lentzou, 2021)
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purulens-kopet · 5 months
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bpod-bpod · 9 months
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Eschewing the Fat
Limiting harmful fat deposition (here in red) in degenerating muscle – such as is found in the wasting in human dystrophies – using an agent called a GSK3 inhibitor
Read the published research paper here
Image from work by Alessio Reggio and colleagues
Department of Biology, University of Rome ‘Tor Vergata’, Rome, Italy
Image originally published with a Creative Commons Attribution 4.0 International (CC BY 4.0)
Published in Disease Models & Mechanisms, June 2023 and cover image
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corvianbard · 1 year
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#5072
The felicity From philosophy Is of no quality But in dystrophy.
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सांधेदुखी, धाप लागणे यांना हलक्यात घेऊ नका, ही नरेंद्र मोदींनी सांगितलेल्या Muscular Dystrophy आजाराची लक्षणे
सांधेदुखी, धाप लागणे यांना हलक्यात घेऊ नका, ही नरेंद्र मोदींनी सांगितलेल्या Muscular Dystrophy आजाराची लक्षणे
सांधेदुखी, धाप लागणे यांना हलक्यात घेऊ नका, ही नरेंद्र मोदींनी सांगितलेल्या Muscular Dystrophy आजाराची लक्षणे ‘मन की बात’ च्या 95 व्या आवृत्तीत, भारताचे पंतप्रधान नरेंद्र मोदी यांनी एक अनुवांशिक रोग असलेल्या मस्कुलर डिस्ट्रॉफी याबद्दल माहिती दिली. हिमाचल प्रदेशातील सोलन येथील ‘मानव मंदिर’ हेल्थ क्लिनिकच्या प्रयत्नांचेही कौतुक केले.पंतप्रधान मोदी म्हणाले की, संशोधन आणि नवकल्पनासोबतच अत्याधुनिक…
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astrafortune · 6 months
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Yippee circus gang pre-circus
Bonus:
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houstonxbreed · 3 months
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thealienmoth · 4 months
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Sometimes you go "nyah!" As a tic and people are like "aw that's adorable, I wish I had tourettes!".
And then you tic "I SHAT on your pillow!" with the deepest gravely voice your body can produce and suddenly everyone is uncomfortable.
Please decide if my disability is desirable or not, I need to know what the value is for pricing.
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gayaest · 1 year
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Tanaka and Kiyoko, disability introduction cards 🫶🤍
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gregor-samsung · 2 months
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Σελήνη, 66 ερωτήσεις [Moon, 66 Questions] (Jacqueline Lentzou, 2021)
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while me post most about nonverbal nonspeaking because intellectual/developmental disabilities, here something about become nonspeaking after/because medical crisis in 2022 & tracheotomy & muscular dystrophy, by alice wong.
overview: “This is a 2-3 minute audio letter to the late David Muir, a disabled man who invented the Passy Muir® Valve, an attachment that enables people with tracheostomies to speak. As a newly nonspeaking person, this letter allows me to share my thoughts on the desire to speak and reflections on silence.”
I paused to consider the phrase “dignity through speech.” There is dignity in silence too. Silence does not mean a person is voiceless, as there are millions of nonspeaking people who use gestures, sign language, writing, technology, and other means to communicate with the world.
I live in a world of silence that is not lesser or devoid of richness. My reality is just different. Silence forces me to be more thoughtful and intentional in considering what I want to say and how I say it when I type into my speech-to-text app, which listeners to this letter are hearing now.
The worlds of speech and silence intersect and overlap. Silence isn’t static or limiting. Silence is not an empty void. Silence has a landscape of its own. Silence has its own dimension, a space that enables another way of thinking and being. There is dignity in all forms of communicating.
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unstablemotions · 3 months
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Help Save My Cousin's Life 💜
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My 25 y/o cousin Line, known as @nebulow online, needs for surgery for Craniocervical Instability (CCI). This is her last resort as she's been deteriorating fast. She's also diagnosed with Congenital Muscular Dystrophy (CMD), which will kill her if her CCI isn't treated.
Here's her Fundraiser
Any amount helps!! If you can't donate, just reblogging/liking this is a help 💜
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briarpatch-kids · 5 months
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I'm still in happy awe of my new physical therapist who asked what *I* wanted to get out of physical therapy verses just trying to "get better"
More physical therapists should do that, huge W right there.
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chuchu-sammika · 9 months
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Y’know at this point I kinda don’t care if I drive people away with this.
I have a right to talk about my disability, and how much I hate it.
I’m tired of dealing with it. And I’m constantly uncomfortable with it.
It’s hard to live a fully happy life if your physically in discomfort almost all the time. It’s hard to be happy when you can’t do almost anything.
It hurts. It’s tiring.
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disabled-stuck · 4 months
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lalondes + crocker page
[id: two sketch pages. the first shows rose and roxy posing-- rose is a thin goth wheelchair user & roxy is a thin alt person (kind of scene) with cat ears and a tail and forearm crutches. the second shows a bundle of sketches of jane crocker, including a simplified one with her thinking "shut the fuuuuck up", her looking a bit forlorn, taking meds, and sitting idly as she holds a mug. end id]
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thecinamonroe · 1 year
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Marilyn Monroe with 12 year old Donald Thompson, a boy who suffered with the condition and to whom she donated to at the “1955 Thanksgiving week March of Muscular Dystrophy” in New York on November 17, 1955. 
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