#chronic spoonie
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i really hate when we r like can we please stop the trend of disabled characters magically being Cured as this like amazing plot point or ending n people are like “SO YOU WANT THEM TO STAY SUFFERING?” no i just want some accurate representation without it feeling like my disability is being rubbed in my face because a cure doesn’t fucking exist irl. “it’s fantasy” it’s inspiration porn u fuckin weirdos.
why do u hate disabled people being disabled why do you feel like we all need curing?? you know we can be happy right? we can live full, joyous lives! disabled characters don’t need to me cured to be fulfilled!!!!!
some of u need to just admit that seeing disabled characters Be Disabled scares u. like u need to see us cured and able bodied miraculously because u don’t like the actual truth about being disabled because u know u can become One of Us at any moment.
stop trying to make us palatable for your own comfort u weirdos !!! i fucking hate The Disabled Character is cured and it’s a miracle!!!
it is literally just..inspiration porn idk how people can’t see that. it’s so fucking blatant
#sludge speaks#physically disabled#physical disability#disabled#spoonie#chronic spoonie#chronic illness#crip punk#cpunk#crippunk#cripple punk#disability#movies#tropes#mike crippleposts
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i don’t know if anyone has seen that absolute piece of shit article written by Emma James for the daily mail but here’s my thoughts as someone who is directly affected and suffering because of ideas like hers
i can’t provide alt text at this time but here’s a link to my thread on twitter
also ! no one truly wants to be disabled and what she doesn’t realise is outside of just some attention there is nothing truly gained and more often than not that attention will be negative and you’ll lose friends and family and support as a consequence of becoming sick.
it wont let me add a link but there’s a petition in @the_chronic_notebook ‘s instagram bio to have the article removed.
also something that i was made aware of after posting that thread is that one of the people ‘quoted’ was never interviewed by the author and those quotes weren’t said by her and are essentially fabricated. she’s trying to turn members of our own community against us
#disabled#disability#spoonie#chronic illness#chronically ill#crip punk#cpunk#chronic spoonie#spoonie community#disabled community#ableism tw#tw // ableism#tw ableism#the ableds are at it again#physically disabled#physical disability#cfs/me#POTS#EDS#chronic pain#daily mail#emma james
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Please check out my update. I'm heartbroken. I was in the hospital and everything is getting worse and scarier. I told my family and they didn't care. They get defensive and upset when I try to ask for help and I'm realizing more and more how little I mean to them. It would mean so so much If y'all would read and share my story. I've lost so much to my illnesses. But I just want to share positivity and love.
#endometriosis#invisibleillness#endosisters#chronicillness#endosucks#chronic pain#ehlers danlos syndrome#ehlers danlos zebra#hypermobile ehlers danlos#chronic spoonie#vascular eds#health updates#spoonie#zebra strong#pots syndrome#rhuematoid arthritis#disabled#disabledandcute
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The chronic illness rainbow
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#fibromyalgia#chronic pain#chronic fatigue#chronic illness#spoonie#fibro#chronically ill#invisible illness
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#spooniestrong#spoonie#disability#chronic illness#chronic pain#ableism#disabled#autoimmine disease#autoimmune
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I think the reason a lot of leftists struggle with disability justice is that they haven't moved past the concept that discrimination isn't bad because it's objectively "wrong." yes, sexists are objectively wrong when they try to claim women are dumber than men. yes, antisemites are objectively wrong that jewish people are inherently greedy and run the state. yes, racists are wrong when they try to claim that white people are the superior race. and so on.
but then with disabled people, there are a lot of objective truths to the discrimination we face. people with IDs/LDs do fall behind and struggle with certain concepts. physically disabled people are often weaker and less capable of performing demanding tasks than able bodied people. many of us with mental illnesses are more reckless and less responsible. a lot of us are dependent on others and do not contribute much "worth".
and guess what? disabled people still deserve a place in the world. disabled people still deserve the supports they need. because they are people, and that should be enough to support them and believe they deserve a place at the table.
if your only rebuttal against discrimination is its objective inaccuracies, you are meeting bigots where they are at. you are validating the very concept that if and when people are truly incapable of being equal to the majority, that means they are worth less. this causes some leftists to then try to deny the objective realities of disabled people and/or become ableist themselves.
your rallying behind marginalized groups should start and end with the fact that people are completely worthy of life and equity, because they are fellow human beings and that should, frankly, be enough.
#chronic pain#spoonie#disability#physical disability#chronically ill#disability justice#physically disabled#disabilties#cripple punk#cripplepunk
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Sorry I Spent all mY spoons this week already and it's fucking Tuesday. We're heading to the knives
#actually spoonie#chronic pain#fibromyalgia#actually mentally ill#chronic illness#aroace agender#spoonie#chronic fatigue#disability#actually disabled#chronic disability#spoon theory
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This makes so much sense
#chronic illness#chronically ill#chroniclesofchronicillness#chronic pain#invisible illness#invisible disability#spoonie#mental health#pots#svt#trigeminal neuralgia#potsandspoonies#100 percent
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This one isn't that specific to any one condition. I thought it was very good and it would be great if loved ones would read it (though making that happen might be easier said than done, but perhaps some will see it if you share and/or like it).
Summary: "Written from the perspective of an individual with chronic illness to a caregiver, friend, spouse, etc. This letter provides insight into the patient experience and how you can support them. "
Here: https://batemanhornecenter.org/wp-content/uploads/filebase/Caregiver-Letter-Insights-into-My-Chronic-Illness-V5.pdf (Clickable link in profile)
Extract:
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"My Spoons Are Precious/Honor How I Use Them:
Spoon theory is a metaphor used to describe the amount of mental or physical energy a person has available for daily activities and tasks. A spoon represents a unit of energy allocated to each exertion. I must use each spoon (unit of energy) wisely so that I don’t run out before the end of the day.
Because things are such a roller coaster, this can affect my mental health. It can sometimes feel like my life is out of control because I cannot control my own body and what it decides to feel on any given day. Depression and anxiety tend to be higher in people with chronic illness. Because of this, there is a balancing act between trying to take care of my physical needs and emotional needs.
It is helpful when you can help take care of my physical needs, so that I can focus on meeting my emotional needs. For example, when you offer to drive or do the dishes, you just saved several of my spoons so I can use them elsewhere in my day. My spoons are my lifeline. Please support me in how I use them."
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When the chronic fatigue is chronic
#chronic illness#chronic pain#disability#pots syndrome#postural orthostatic tachycardia syndrome#chronic fatigue#invisible disability#fibromyalgia#spoonie#chronic life#hypermobile eds
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me when the chronic pain is chronic and painful:
#spoonie#chronic pain#rheumatoid arthritis#disabled#disability#cripple punk#crip punk#joint hypermobility
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Doctor red flags:
-Mentions weight loss, exercise, nutrition, mental wellness, before any physical examination/testing
-interrupts you
-tries to rush the appointment
-laughs at you
-says you're too young
-Touches you without warning or asking for consent (common with older male doctors unfortunately, but is becoming less common)
-accuses you of self dxing/mentions dr. Google
-mentions anything about powering through the pain
Do not be afraid to drop a doctor/caregiver and see a new one. Doctor shopping is a term made by ableds who believe every doctor is perfect. Your health is precious and you should only trust those you're comfortable with to take care of it. Do not feel bad about offending the doctor. They do not care. They won't harass you or question you (if they do then that's..probably illegal). I know its hard with some insurances or lesser served areas so don't feel bad if you can't, but if you have the option to do so do not be afraid.
Extra tip: Most doctors will behave themselves if you bring an advocate. Even just having a friend sit quietly will help.
#chronic disability#chronic pain#spoonie#disability#chronic illness#wrenfea.exe#feel free to add on#edited
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#fibromyalgia#chronic illness#chronic pain#chronic fatigue#spoonie#fibro#chronically ill#invisible illness#brain fog
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This ABSOLUTELY works.
I have used this for many years. Definitely do it.
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