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thedisablednaturalist · 23 hours

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Guys Jansport adaptive backpack is on sale for 32% off on Amazon right now (blue color, pink color is on sale for 24%). The usual price is $70, right now it's $47.

#wrenfea.exe #ive been watching it for a while since i desperately need a bag that can actually stay put #on my wheelchair #also no i am not paid for this my ass is not sponsored #chronic disability #spoonie #wheelchair #wheelchair user #i think it can also be used for rollators #and walkers #chronic pain #disability #chronic illness #physical disability #physically disabled

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wrenfea · 3 months

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Sometimes I think I'm no longer bi and then I'll end up bingeing a show just bc I become enamored with one of the background gals..like she shows up I start giggling and swinging my legs

#wrenfea.exe #this is about Xing from Brothers Sun btw #I watched the entire thing yesterday #she is FAT and she is STRONG and [redacted] i think i hauve covuid..

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thedisablednaturalist · 3 months

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In case the esim process confuses you or you aren't able to buy them yourself for any other reason, crips for esims for Gaza is collecting donations, they've almost met their goal of $150,000 raised. Donating allows them to buy esims in bulk which allows them to obtain more than individuals would be able to. I just donated and it was super easy as you can use paypal.

#wrenfea.exe #gaza #palestine #esims #from the river to the sea palestine will be free #cripplepunk #cpunk #lets support our disabled siblings!

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thedisablednaturalist · 5 months

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FUCKING

ANGY

(A planthopper nymph in the family flatidae)

#wrenfea.exe #i love planthoppers #bugs #bugblr #insects #Hemiptera #flatidae #Fulgoromorpha #planthoppers

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thedisablednaturalist · 6 months

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Doctor red flags:

-Mentions weight loss, exercise, nutrition, mental wellness, before any physical examination/testing

-interrupts you

-tries to rush the appointment

-laughs at you

-says you're too young

-Touches you without warning or asking for consent (common with older male doctors unfortunately, but is becoming less common)

-accuses you of self dxing/mentions dr. Google

-mentions anything about powering through the pain

Do not be afraid to drop a doctor/caregiver and see a new one. Doctor shopping is a term made by ableds who believe every doctor is perfect. Your health is precious and you should only trust those you're comfortable with to take care of it. Do not feel bad about offending the doctor. They do not care. They won't harass you or question you (if they do then that's..probably illegal). I know its hard with some insurances or lesser served areas so don't feel bad if you can't, but if you have the option to do so do not be afraid.

Extra tip: Most doctors will behave themselves if you bring an advocate. Even just having a friend sit quietly will help.

#chronic disability #chronic pain #spoonie #disability #chronic illness #wrenfea.exe #feel free to add on #edited

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thedisablednaturalist · 3 months

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You will not be able to fully understand or relate to people with differing disabilities. Being disabled yourself does not give you immunity to having biases, ableist ideas, or misunderstandings about people with different disabilities. We all have unique struggles and things that help/hurt us, and it's both beautiful and frustrating. It's what makes our community strong but it also can lead to infighting and miscommunication. Be aware of other disabilities, listen to people outside your specific condition. Don't talk over others and if you do apologize and learn from it. Don't assume because YOU haven't encountered something that it means anyone talking about it is lying or exaggerating. We can still have each other's backs without having the same experiences. We can do this. Take my hand.

#wrenfea.exe #disability #disabilities #cripplepunk #neuropunk #madpunk #and yes that includes me. i am human and i have and will make mistakes #what matters is how you act after making the mistake #when in doubt ASK POLITELY #dont like run up to a stranger and bager them with questions #but find someone (like me!) who is open and willing to answering questions about their disability experience #as long as you ask nicely im pretty chill

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thedisablednaturalist · 7 months

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Literally all the shit rich people have turned into luxuries are stuff many disabled people need (or would need to manage their pain but can't afford it)

Comfy ergonomic chairs

Indoor pool/hot tub (therapy bath)

Massages on the regular

Aides (rich people call them servants)

Yea even a cook who makes you special meals (perfect for people with special dietary needs and for those with severe allergies, as well as people who are in too much pain or are otherwise unable to cook)

Elevators in your house (even small ones just for groceries, my rich aunt has one in her beach house!)

Rich people don't buy these for fun I hope but custom powerchairs are obscenely expensive. It pisses me off when I see another person invent "the wheelchair of the future!" Which then is literally never fucking used because none of us can afford it (and insurance definitely won't pay)

Indoor gyms or even personal exercise equipment. Hard to go out to a gym somewhere else when you're disabled, especially if you are immunocompromised

Outdoor spaces to relax in. It's literally vital for your mental health to at least see the outdoors. I'd rather be bedridden in a sunroom (with retractable blinds) than a shitty apartment with one tiny window.

There's even freaking health retreats these people go to regularly. There's a fibromyalgia retreat in new york where they basically take care of all your needs while trying different treatments and seeing which ones help. Either it's heaven or making money off of scamming desperate people who are able to scrape the money together to go.

Private planes, which I honestly think shouldn't exist, but one that specifically catered to people with disabilities (spaces for wheelchairs/other mobility devices, accessible handicapped airplane bathroom, anxiety reducing tools, trained medical personnel and care team)

Also customized cars, except instead of making gas guzzling racecars to joyride in while everyone else is trying to get to work, cars with electric ramps, lifts, doors, cars customized for someone with limb differences. Those cars where you can roll your wheelchair right up to the wheel. Fuck even self driving cars once they are no longer deathtraps.

Skincare products that are safe for sensitive skin like eczema but also actually work

Nice-looking clothes customized to fit limb differences, access points, look good in wheelchairs, colostomy bags, etc. while also being comfortable and not fast fashion.

Dental care!!! What the fuck why is this shit so expensive!! I don't want my teeth to fall out!! (Disabled people usually need more dental care bc we have a harder time keeping up maintenance)

Rich people go and splurge on all of these even though they don't need them while calling disabled people selfish for begging their insurance for even one of these.

#disability #chronic disability #chronic pain #chronic illness #fibromyalgia #spoonie #wheelchair #wrenfea.exe #i hope one day i can get even a small therapy tub #bc hot water therapy is one of the best things for my pain #and swimming is the only painless exercise i can do

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thedisablednaturalist · 3 months

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I can be your angle..

Or your devil

(Least Brook Lamprey, lampetra aepyptera)

#wrenfea.exe #least brook lamprey #lamprey #fish #fishblr #Trypophobia cw

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thedisablednaturalist · 4 months

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I think when people think of mental illness and what helps, especially with things like anxiety and depression, the treatment involves pushing yourself. Pushing yourself to get out of bed, to exercise, to take a shower, to go out in public, to order your own food from the cashier, etc.

And because the mental health movement has grown so much, people think that's the default of ALL illnesses. That the only way someone will get better is if they push themselves. That practice makes perfect. That you'll become more comfortable or strong over time the more you do something.

But what people need to realize is, with physical disabilities and chronic illnesses, pushing yourself in most cases is DETRIMENTAL. Pushing yourself past your limits can lead to flare ups or further injury. That's why it's important to know your limits, how certain activities may affect your condition, and learn how to either adapt or get help to complete the activity in question.

Also, most of us are already pushing ourselves. Most of us don't have access to the help or equipment we need. Most of us live in places where we frequently encounter inaccessible obstacles. Most of us NEED to rest.

So please don't try to be our physical therapists or doctors. There are people specifically trained to help us navigate our own conditions and limitations. There are people trained to help us strengthen our body's resilience without causing flare-ups or injury. Do not tell us "it'll be good for you" or "you need the exercise" when we say something is too heavy or too far or when we say we need our mobility aid(s). Your friend with depression may need to be encouraged to get out of bed, but your friend with chronic illness definitely doesn't.

Respect our rest.

#wrenfea.exe #DISCLAIMER: dont take this as me saying you should be pushing your mentally ill friends #this is more about how physical conditions often differ in how they are treated #also dont like. force your friends or anyone with anxiety to do things they dont want to #thats what therapists are for #also most mental illnesses require medication alongside therapy before they can get better #but even chronic illnesses and disabilities that benefit from exercise still require knowing your limits #and not being pressured to push past them #ive noticed some professionals who help both mentally and physically ill patients tend towards the push method #like my therapist and sometimes my counselors fall back on that method #and i have to remind them i am already pushing myself #and i need to adapt rather than push forward #chronic disability #chronic pain #spoonie #disability #chronic illness #cripple punk #cripplepunk #cpunk

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thedisablednaturalist · 4 months

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How to not derail a physically disabled person's post -guide for abled neurodivergents

Hey this is a huge problem and a ton of my and other peoples posts about physical disabilities have been getting overrun with comments making it about mental illness and completely derailing the post.

Here's some things to think about before adding a comment/reply onto a physically disabled person's post:

Is the person talking about disabilities in general? Or are they only talking about physical disabilities?

Do they say specifically that neurodivergent people are welcome to comment? Or do they have a banner or tag that says DO NOT DERAIL

Check the comments and reblogs that are currently there. Are they already overrun with people making the same points you are? Are physically disabled voices getting drowned out?

Is the post tagged with cripplepunk only? (Aka not neuropunk or madpunk)

What is your addition adding to the conversation? How is it related to the original post? Is it shifting the conversation or generalizing it?

Did you actually read and internalize the post or did you only focus on adding your point of view.

Who is the intended audience for the post? Is it you? Are you listening or arguing?

Are you using their language for yourself?

Could the addition stand on its own as a separate post? (If so it probably should)

Think about how you would feel if someone did that to your post and everyone only talked about their problems and ignored your original statement. Think about how angry you'd be if they then said "you're not allowed to get mad cuz I said I wasn't derailing! I love you people!"

Also these questions can and should apply to other posts made by people who are frequently talked over (people of color, fat people, etc.) No your adhd autism does not count. There is a long history on this site of neurodivergent people talking over and taking over entire disability spaces and the problem persists today. This problem is why cripplepunk was created in the first place.

Yes mental illness deserves to be talked about. I'm proudly neurodivergent and often reblog posts from neurodivergent blogs. But you are able to make your own posts, you don't need to take over ours, especially when we are specifically pointing out how our physical disabilities differ from mental disabilities.

Also respect when someone asks you to please delete your addition. Mistakes happen what matters is how you respond to them. Learn from it and move on. Don't cry about the meanie cripples "censoring" you.

#wrenfea.exe #im gonna end up on so many blocklists for this #cripplepunk #chronic disability #chronic pain #spoonie #disability #chronic illness #cpunk #physical disability #physically disabled #do not derail

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thedisablednaturalist · 5 months

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I think some of us ambulatory wheelchair users are getting pretty close to (or already are) throwing full time users and higher support needs disableds under the bus. And that shit needs to be shut down NOW.

It's the problem of: "how dare they treat us like those people!"

The problem with ableists isn't that they assume we can't walk The problem is they assume we don't need our wheelchairs if we can. That we don't need our handicapped placards or transport vehicles. That we are taking advantage of other "actually" disabled people, that the ableists also don't give a shit about unless they're using them as an excuse to be ableist.

The problem with ableists isn't that they assume we are intellectually and/or developmentally disabled. The problem is they assume that every intellectually/developmentally disabled person needs to be treated with baby talk, dismissal, and ignorance. That they don't see them as people and refuse to listen to intellectually and developmentally disabled voices without making fun of them.

Stop throwing people with higher support needs under the bus. Stop doing what the abled neurodivergent community did to all physically disabled people. Us cripples gotta stick together and fight for one another, not push one down to make ourselves somehow look better to ableist fucks.

#wrenfea.exe #i wont call the people out but seriously you guys need to think about how you phrase things #and how you talk about full time users #they arent lucky or privileged #and i see the way some of yall get more offended about being seen as developmentally/intellectually disabled #instead of how these ableists think it's okay to treat people like that #chronic disability #chronic pain #spoonie #fibromyalgia #disability #wheelchair #ambulatory wheelchair user #cripplepunk #developmental disabilities #intellectual disability #cpunk #degenerative disc disease

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thedisablednaturalist · 6 months

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The amount of owie in my body could level a small town

#wrenfea.exe #chronic disability #chronic pain #spoonie #fibromyalgia #disability #physical disability #chronic illness #degenerative disc disease #it feels like someone filled my legs with cement

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thedisablednaturalist · 3 months

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Sometimes terms mean certain things and belong to certain groups of people and are not meant to apply to people outside that group. And that is on purpose and valid. You can make your own terms to describe your own experiences, you don't get to take terms from other people, especially people more vulnerable/less privileged than you. If multiple people tell you that the term is not for you, respect that.

When terms get used for many different situations they get diluted and trivialized. Remember "trigger"? It was a specific medical term and is now used to mean "something that pissed or upset someone". Brain fog is now turning into abled people just being a little sleepy or out of it, not literally a clinical term for brains not functioning correctly due to various illnesses. I tell someone I have brain fog and they say lol me too XD no you fucking don't. "Spirit animal" was taken from indigenous peoples so white people could make funny haha relatable t-shirts. Two spirit almost got taken by queer white people as well (although I think most people have backed off on that hopefully).

Not everything needs to apply to as many people as possible. You don't need to and can't relate to everyone. We can still support each other while respecting differences.

(Edited ver)

#wrenfea.exe #this is about people using nonverbal for selective mutism btw #and about mentally ill abled people using cripple #like if ambulatory wheelchair users can come up with our own term then you can too #idk if its not as concise or it takes effort to get it to catch on #you dont get to steal the work other people have done to spread awareness of their term and its meaning #disability #nonverbal #selective mutism #spoonie #chronic disability #chronic pain #chronic illness #cripple #cripple punk #autism #adhd #readying my inbox for a wave of the stupidest people who've never seen any of my posts to flood the gates #i saw someone throwing ambulatory wheelchair users under the bus to justify why they should be able #to use the term nonverbal #pls correct me if you are from the relevant communities #i updated this to make it more accurate bc funnily enough brain fog made me forget about chronic illness triggers

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thedisablednaturalist · 7 months

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Theres a ton of inspiring game devs (and actual game devs) on this site and this is a message for them

Please include wheelchairs in customization. Include player characters who are in wheelchairs. I'm begging you.

There are less than a handful of playable characters in wheelchairs I can think of (and most of them are ableist haha funny characters like the guy from happy wheels)

I promise you, any extra work that needs to be done to make them playable IS worth it. I don't give a fuck if its not realistic. Most people can't fling fireballs in real life either.

Like I've seen prosthetics, I've seen glasses, when I've brought up wheelchairs to devs they say the best they can do is braces and maybe crutches or a cane. Maybe a hearing aid.

I've SEEN the amazing stuff that can be made, and I'm tired of devs whining that it's too hard. It's too late to add something that complex. Well maybe you should've thought about wheelchairs in the early stages instead of adding representation as an afterthought.

The only time we are thought of is when its a horror game or for a fucking joke.

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thedisablednaturalist · 2 months

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Of course the kaiser Permanente office has a "why not take the stairs" sign right by the elevators. MOST PEOPLE COMING HERE CAN'T USE STAIRS YOU FUCKS

#wrenfea.exe #chronic disability #chronic pain #spoonie #disability #chronic illness #cpunk #cripplepunk #like thanks for making me feel like a lazy fuck when im seeking healthcare!#this is the floor with THE FUCKING SPINE SURGERY AND CLINIC

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thedisablednaturalist · 2 months

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Can we not use subhuman to describe people we don't like k thanks

#wrenfea.exe #disability #cpunk #chronic disability #chronic pain #cripplepunk #spoonie #chronic illness #learning disability #intellectual disability #same with calling someone a degenerate

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