#actually epilepsy | Explore Tumblr Posts and Blogs

saybiwithme · 7 months

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New term for epilepsy unlocked

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birdofmay · 1 year

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Hey Tumblr, if I select "never auto-play" for GIFs and videos, this also goes for banners. And this also goes for previews.

GIFs in the preview/background when you open a tag shouldn't auto-play. Your banners we see when we open the app shouldn't auto-play.

It's overstimulating for me and it's extremely unsafe for epileptics, people with migraines, and other photosensitive people. Everything that moves can be a trigger, not only flashing lights.

This isn't a "Please, that would be very nice", this is a "You could be responsible for an epileptic not being able to drive for 6 months because of one (1) small absence seizure".

It has real consequences, and you constantly forget photosensitive people, to say the least.

Photosensitive people can avoid unsafe apps if they know they're unsafe. But you provide the option to disable auto-play. You make people think that it's safe for them to use your app. They let their guard down. They think it's fine.

Only for you to make it unsafe again all of a sudden. That's a real asshole move tbh.

@staff

#please make this post blow up it's important #photosensitivity #epilepsy #migraine #actually epileptic #actually epilepsy

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a-sassy-bench · 6 months

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getting ready for work in 2023

coffee: ✅

wallet: ✅

will to live: ❌

keys: ✅

.

#this is not how humans are supposed to live #fuck capitalism #eat the rich #anti capitalism #disabilties #mental health #actually epilepsy #actually epileptic #actually disabled #crip punk #c punk #cripple punk #ehlers danlos syndrome #heds #actually adhd #spoonie

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xx-webfoxxez-xx · 7 months

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couldnt find good epilepsy memes so yeah fine i'll do it myself

#LMFAOO NO BC THE LAST ONE IS MY EEG #epilepsy moments #actually epileptic #actually epilepsy #epilepsy #epileptic #memes #neurodiversesquad #actually neurodivergent #actually autistic #mine #tommie speaks #neurologicalhealth #neurology #neurological disability #neurological conditions

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kunaigirl · 10 months

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Please keep in mind your epileptic friends this disability pride/awareness month! We are consistently being left out and ignored by everyone and it’s VERY disheartening and it’s a life-impacting disability to have. Please don’t forget about us.

#disability pride month #actually epileptic #actually epilepsy #epilepsy #epilepsy awareness

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justepilepsy · 9 months

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So - I have been talking a lot to people without epilepsy about epilepsy recently, in part due to my recent video essay. One thing I have taken away from the talks is, that schools, staff, teachers AND students need to learn first-aid. As a mandatory thing. Not just as an optional extra curricular. It's not enough to just teach the teachers, but also students need to learn about health conditions and how to react. e.g.

How to apply an Epi-Pen What is Diabetes Stroke Heart Infact CPR Epilepsy First Aid... It's not just mental health awareness and education, we need health awareness and education, and more of it. Why does it have to take somebody having an emergency for people to learn about the first aid after the emergency happened?

If you work anywhere! Or if you are active anywhere no matter where, initiate getting some first aid training for everyone. There is probably also some subsidies and funds, tax incentives etc for some companies and organisations who do this sort of stuff!

#first aid #disability #health #epilepsy #actually epilepsy #food for thought

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chronicallyuniconic · 12 days

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you know when you feel like shit in every way, but you don't have the words, cus no energy, you don't know whether to laugh or cry, all of it is making you feel like shit, but there's just nothing that can be done, you never get anywhere when doing it for yourself, and the ppl that can help, won't either. just yeah, all of that.

#chronic life #chronically ill #chronic illness #chronic pain #chronic fatigue #spoonie problems #actually epilepsy #epilepsy #chronic migraine #myalgic encephalomyelitis #fibromyalgia

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delilah-briarwood · 11 months

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People who don’t tag Spiderverse gifs containing flashing imagery/strobe effects make me want to commit several crimes tbh

#the first being to rip all the studio execs who think films need excessive strobe lights to be good to shreds #across the spiderverse #atsv #into the spider verse #itsv #spiderverse #actually epileptic #actually epilepsy #behold a creation

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bugileptic · 1 year

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the spiritfarer devs continue to refuse to add a flash toggle and claim their game is safe even after learning that their game caused at least one person to have a seizure. screenshots (alt text available):

link to their photosensitivity warning page where they claim the game is safe for photosensitive people:

the spiritfarer devs already have a history of ableism, so this really isn’t a huge surprise

#epilepsy #actually epileptic #actually epilepsy #accessibility #disability #disabilities #spiritfarer

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maddisandy · 9 months

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pros of taking my seizure medication: no seizures yay

cons of taking my seizure meds: literally everything else

#when keppra helps but also gives me keppra rage and makes me sleep 15 hours a day #i quite enjoy being seizure free but is there really no better solution to this #epilepsy #epilectic #actually epilepsy #actually epileptic

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disabledprincesses · 1 year

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I'm going to be staying in the hospital for 5 days for a long-term E.E.G. session. Any tips for hospital stays?

#hospital cw #hospital stay #eeg #actually epilepsy #seizuredisorder #spoonie tips

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saybiwithme · 3 months

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Split second flash warnings on videos just may as well be no warnings at all.

#actually epilepsy #actually epileptic #I saw one as soon as I opened tik tok and because I missed the warning I got bombarded with intense flashing that has my stomach in knots 🙃

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impromptu-breakdancing · 6 months

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Happy Halloween

#I know it’s not painted very well #but I thought I might make a little epilepsy pumpkin #pictures #parker talks #actually epilepsy #epilepsy awareness #bitch ass illness #epilepsy

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a-sassy-bench · 6 months

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spent the morning with my neurologist explaining to me how i might need brain surgery and now I have to pretend everything's cool and go to work or i won't have insurance for brain surgery

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xx-webfoxxez-xx · 7 months

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#keppra is helping a lot but the side effects?? wow.#epilepsy #epilepsy memes #epilepsy stuff #actually epileptic #actually epilepsy #seizure #actually neurodivergent #neurologicalhealth #neurological disability #neurological conditions #keppra

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amporalicious · 1 year

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i kinda wish there was another word for people who arent neurotypical but arent what people typically think for neurodivergent (autism, adhd, etc)

like, when i say im neurodivergent i always have to say "technically" so i dont accidentally have people believe im autistic, even though i am by definition neurodivergent (epileptic)

im neurodivergent, but not in the way where i eat with only little spoons and get overstimulated in loud environments. im neurodivergent in the way i cant drive a car for 6 months if my brain decides to crap out and that sometimes i embarass myself because i have to tell my superior medical information i cant do a job because it increases the likelihood of my brain zappin me

#vent #neurodiversity #neurodivergent #epilepsy #just epileptic things #epileptic #epileptic problems #actually epilepsy #epilepsy things #fuck epilepsy

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