after numerous debates and peer reviewing my symptoms maybe……….maybe i have……….maybe i got c….cov…….i can’t say it

I seriously am getting paranoid thinking im cursed. my sleep quality is SO poor and my whole body iz in pain and I had a dream I Died and I keep shivering and getting severe headaches. also everytjing having a weird after taste makes me feel that way too like oh can't even eat food. I'm crazy

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Shout out to the ten year old who just got diagnosed. Shout out to the housebound fourteen year old. Shout out to the eighteen year old who can’t go to the university they wanted. Shout out to the twenty two year old who can’t get a job. Shout out to the twenty six year old with a caretaker. Shout out to the thirty year old who can’t buy their own house.

Shout out to young disabled people. We exist.

Sorry I Spent all mY spoons this week already and it's fucking Tuesday. We're heading to the knives

chronic fatigue from mental illness and neurodivergency isn't something you can just will your way out of. your nervous system is part of your body. your brain is an organ. the fatigue is real. you're not lazy. so be kinder to yourself. be gentler with your bodymind.

shaking myself (very gently) . being in pain takes a lot of energy!!!!!! being in pain is exhausting!!!!!!! you are not lazy or weak because you need to spend so much time resting, this is your body coping with how much pain you’re in literally 24/7!!!!!!!!!

When the chronic fatigue is chronic

i feel like every human should max out at one disability or chronic illness. like when i hit adolescence and my brain chemistry went “bipolar time now?” the response should have been an error message like sorry! this slot can only contain one (1) item and has been filled with childhood asthma. i would even allow the possibility that you can overwrite previous disorders like “you have equipped chronic migraines and so now will no longer display symptoms of bipolar disorder.” i just think it should work that way.

When a chronically ill or disabled person gets their lab tests back as “normal” or all clear, we aren’t sad because we WANT to be sick.

We’re sad because we *know* there’s something wrong with us, yet the scans still stay clear.

Before you kill the monster you gotta know its name.

anyone else ever wish they could lie down harder? Like, I'm already horizonal, but I need more horizonal. I need to be absorbed by the floor. I think that would fix me

In 2016, years before long COVID was a thing, the US National Institutes of Health, the largest single public funder of medical research in the world, launched a study into a long-neglected and puzzling condition: chronic fatigue syndrome (CFS), also known as myalgic encephalomyelitis, or ME/CFS. Eight years later, the results of that study are finally out. In one of the most thorough investigations to date, researchers took a deep dive into a small group of 17 people who developed ME/CFS after an infection and found distinct biological differences compared to 21 healthy controls. "Overall, what we show is that ME/CFS is unambiguously biological, with multiple organ systems affected," neurologist Avindra Nath, lead researcher of the study and clinical director of NIH's National Institute of Neurological Disorders and Stroke (NINDS), said in an interview with JAMA. For decades, many doctors had dismissed ME/CFS as a psychosomatic condition that was 'all in patients' heads'. Now there is little doubt: a host of biological changes underpin ME/CFS.

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