#research in autism | Explore Tumblr Posts and Blogs

my-autism-adhd-blog · 24 days

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Why self-diagnosed autistics are valid

medical diagnosis can be expensive

humans are the experts on their own minds

family may prevent assessment

diagnosis criteria is a poor checklist of stereotypes

diagnosis criteria ignores gender, race, sexuality, culture & more

medical diagnosis confirms autism, but doesn't create it

discrimination within the medical profession may prevent diagnosis.

Assessment waiting lists often long

medical trauma may make assessment unfeasible

Neurodiverse Journeys

#self diagnosis #why it’s valid #I find it perfectly acceptable with doing the correct research #the diagnosis process can be complicated and sometimes not a very pleasant experience #i honestly think I had ADHD too but I have no idea if I am #actually autistic #self diagnosed adhd #neurodivergence #neurodiversity #actually neurodivergent #feel free to share/reblog #Neurodiverse Journeys (Facebook)#autism awareness month #autism acceptence month

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zebulontheplanet · 6 months

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Not going to tag a very icky post that I found but it’s not hard to find. So, here’s your reminder that;

Self suspecting and self diagnosed autistic people are NOT taking resources from diagnosed people. You can’t get autism services without a diagnosis, you can’t go to any therapies really without a diagnosis and so on.

Autism accessories have a abundance supply. So yeah, get those ear defenders, get those sunglasses, get those stim toys.

You aren’t taking anything from diagnosed people.

Stop saying self diagnosed people are taking away from diagnosed people, because they’re not. They have their space in the community. The community is big enough for them.

#I support people who self diagnosis with research!#self diagnosed autism #autism #zebrambles #actually autism #actually autistic #self diagnosed #discourse #Zebplanet

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cluepoke-archive · 8 months

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Actually just curious :]

SYNESTHESIA is characterized as a 'cross wiring' of senses in your brain

for example

tasting words

Numbers and letters having personalities

and having a consistent link between colors and numbers/letters etc. This can be fully visual (seeing aura simmialr to migrains when hearing noises) or internal (imagining bright colors or shape/ number associations to things in your 'minds eye')

Diffrent days of the week having a strong color connection

Alternatively days of the week and calender months having a specific mental layout or 'shape' and days of the week and month having a specific place om this mental map that shifts depending on where you are in time, simmilar to a clock or time table

I'm also curious on how this effects you so you can leave that in the reblogs if your comfortable!

For me personally my synesthesia effects my writing because I'll often mix up letters and numbers ( I write down 4 alot instead of G and vice versa, I also mix up 4 and 7 because they 'look' the same, I'm wondering if this is some sort of dyscalculia though, the same thing happens with A and 8)

#dustbunnies.txt #polls #synesthesia #autism #actually autistic #adhd #you guys can do your own research #but personally i have grapheme color synesthesia and music/color/shape association. idk what that about lol #off the top of my head

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awoefulstudent · 2 months

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Hello everyone!

My name is Amina and I am a BSc Psychology with Honours student at the University of Hertfordshire. I am also the principal researcher of a study that aims to investigate whether judging category relatedness within semantic memory can be influenced by the level of typicality the items have alongside whether high versus low autistic traits have any effect on the performance of different types of processing.

I am currently taking volunteers for this online study. Any adults aged 18 to 65 can volunteer and you do not need an official Autism diagnosis to take part.

In the study, you will be given an item/ definition/ scenario at the top of your screen and will have to decide which of two following words match best to that using your keyboard. After that is completed you will be given the RAADS-14 questionnaire to complete.

It will take roughly 15 minutes to complete. However, a maximum of 30 minutes is given for the entire study to be completed including the information sheet, consent form, debrief sheet, and the “breaks” given (which are just for momentarily resting your eyes and hands), otherwise I cannot use your data. Please note that this study cannot be completed on a mobile phone or tablet, it must be done on a computer/laptop as the keyboard is required for the study’s completion.

You can completed this study at anytime until 23:59 GMT on Friday 1st of March here:

https://research.sc/participant/login/dynamic/0D915D45-8D85-44F9-9B63-376AF0C70573

This study has been approved by the Ethics Committee at the University of Hertfordshire and is also being conducted under the supervision of Dr. Nicholas Shipp.

Your participation is very important for this study and is very much appreciated.

Thank you for your time!

Many Thanks

Amina

EDIT: Study is now no longer taking participants!!! Thank you all who took part and spread the word of my study, it definitely means a lot to me 💟

#autistic traits #conceptual processing #typicality #processing #mental processing #autism spectrum disorder #psychology study #psychology research #undergraduate #student dissertation

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dejamepiola0404 · 2 years

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so i have a question to nd people, do some of you also got this urge to "behave correctly" all the time, like you created this whole personality to please adults but then had your moments were you just got a lil bit excited, perhaps looked kinda crazy, talking too much, moving too much, laughing too much and doing things you don't normally do but actually you do but in your mind, like you look "normal" on the outside but your mind was always super messy full of ideas and stuff happening but tried your best at hiding and now everything's kinda falling(?? so now you have identity crisis or something???

#actually autism #actually neurodivergent #actually autistic #actually adhd #neurodivergent #self diagnosed neurodivergent #nd community #long story short I've done research for almost 4-5 years but i still cant get a diagnosis and don't really feel comfy self diagnosing #autism #autistic #adhd #social anxiety

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avelera · 3 months

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Ok so I think I need to write a follow-up fic for “my love is thine to teach” where Hob’s university offers some sensitivity training for how to support neurodivergent students and Hob gamely signs up for it because he sure as hell knows by now that there’s a lot of things about the world he could stand to educate himself on

And at some point during the seminar a little lightbulb goes on over his head when they talk about how to support autism spectrum students because that sure as hell sounds a lot like Dream

(In another world, Hob doesn’t become a teacher and the 1989 meeting happens as planned and Hob continues his life as he always has and Dream just continues to mystify him.)

Now, it could just be that Dream is eldritch, right? That’s why he’s a bit odd sometimes…. Right?

(And then Hob meets Death and is like ooooh, it’s not because he’s Endless, Dream is just Like That.)

And anyway, just for the hell of it, Hob decides to employ some of those strategies for how to help neurodivergent students open up and feel comfortable next time Dream comes around.

And it fucking works.

Suddenly, Dream is talking about crafting dreams and nightmares, as engaged as Hob has ever seen him. Suddenly it clicks in Hob’s head why pressing Dream on things like being lonely might have been hurtful to Dream, who saw it as a criticism on a painful subject for him because he struggles to form friendships.

Suddenly Hob (who is probably ADHD the seminar was useful all around, who would have guessed) as a teacher is realizing things he never in that other world would have realized about how to be a better friend to his stranger because the modern world is awesome and finally gave him the tools to help recognize how to do so.

#dreamling #fic idea #I’d need to do more research for this one #as I have adhd but not autism and I’d want it to be a sensitive piece #but it could make for a fluffy one shot

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she-is-ovarit · 9 months

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Trans research and scientific consensus

(2020) - Study of 139,829 students finds that in comparison to other students, transgender identity, especially non-binary identity, is associated more with perpetrating bullying than being bullied. Non-binary identity was most strongly associated with involvement in bullying, followed by [transgender] opposite sex identity and cisgender identity.

(2023) 21 leading experts on pediatric gender medicine from 8 countries wrote a letter to Wall Street Journal expressing disagreement over how gender dysphoria in youth is treated, voicing concerns against things such as the affirmative model and research conducted outside of the US has found hormonal interventions for gender dysphoria to be without reliable evidence. Among these international experts is Dr. Rita Kaltiala, chief psychiatrist at Tampere university gender clinic and author of several peer-reviewed studies on trans medicine and Finland's top authority on pediatric gender care.

(2023) Landmark study from Denmark on 3,800 transgender patients pulled data from hospital records and applications from legal gender changes and discovered 43% of this group had a psychiatric illness compared with 7% of non-trans group, and despite "gender affirming care" and legal gender changes, still had 7.7 the rate of suicide attempts and 3.5 times the rate of suicide deaths. Researchers state this rate is likely even higher due to missing data.

(2016) Study finds association with increased risk of multiple sclerosis for trans women taking estrogen/reducing testosterone levels.

(2023) Metadata study shows, at best, no improvement for patients in gender-affirming care. "The conclusions of the systematic reviews of evidence for adolescents are consistent with long-term adult studies, which failed to show credible improvements in mental health and suggested a pattern of treatment-associated harms. Three recent papers examined the studies that underpin the practice of youth gender transition and found the research to be deeply flawed. Evidence does not support the notion that “affirmative care” of today’s adolescents is net beneficial."

(2011) Long term follow up of 324 transgender people having undergone sex reassignment surgery in Sweden, found that trans women retained male patterned incidents and rates of violence and had a greater significance and rate of rape and sexual violence than cisgender men. The study also found, "Persons with transsexualism, after sex reassignment, have considerably higher risks for mortality, suicidal behaviour, and psychiatric morbidity than the general population. Our findings suggest that sex reassignment, although alleviating gender dysphoria, may not suffice as treatment for transsexualism, and should inspire improved psychiatric and somatic care after sex reassignment for this patient group."

(2020) Largest study to date on 641,860 people finds association with autism and "gender diversity", "Gender-diverse people also report, on average, more traits associated with autism, such as sensory difficulties, pattern-recognition skills and lower rates of empathy — or accurately understanding and responding to another person’s emotional state".

(2022) US study examining 10 years of data on 952 people finds large percentages of young adults prescribed hormones for trans identity no longer getting the drugs 4 years later. Discontinuation rate for both sexes combined = 30%. Female discontinuation rate as high as 44%. The standard disinformation pushed is that only 1-2% of people who begin medical transition end up desisting. But these figures show that in this cohort of young adults, the overall rate of discontinuing hormone treatment ranged from a low of 10% to a high of 44% within a space of just 4 years.

Abruzzese et al. 2023 'The Myth of “Reliable Research” in Pediatric Gender Medicine: A critical evaluation of the Dutch Studies—and research that has followed'

More to come.

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purpleweredragon · 2 months

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"Too often, autistic people don’t get the support they need. This can lead to crisis and, for many, suicide becomes a real possibility. Research shows that two thirds of autistic people have considered suicide, and one third have planned or attempted to take their own life.

We believe this can – and must – change.

Take our survey to help us understand what support is needed

We want to hear from autistic people, with or without a diagnosis, who have struggled with suicidal thoughts.

We also want to hear from people who have supported or continue to support an autistic person who has experienced suicidal thoughts."

#actuallyautistic #autism #suicide #suicide mention #suicide prevention #mental health #survey #research #suicicide tw #cw suicide

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bugblast · 6 months

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NEW updated furby speculative evolution chart!!! :] click 2 zoom in or read under cut

SHELBY (2001) Evolving throughout Paleozoic Era, mainly Permian Period. ~275 MYA. Related to clams and horseshoe crabs. Lives on coasts.

FURBY (1998-9) First appeard in late Triassic period. ~220 MYA. Similar to early mammals like Morganucodon, with Lystosaurus-like beak and reptillian parietal eye (infared sensor). Lives on sandy beaches.

FURBY (2012) Like some birds, evolved to have brighter colors in response to tropical environment and abundance of species. Ears are made of cartilage, and larger eyes as a result of having no natural predators. (It's literally called Furby Island).

BOOM (2013) Different coat patterns evolve through selective mating. Holes in ears for wider range of hearing.

PARTY ROCKERS (2013) Experimental subspecies with differing beak, ear, and eye proportions. Honestly probably boardering on extinction.

EMOTOTRONIC (2005) Emerged during early Cretaceous period. ~105 MYA. Similar to Repenomamus in size in order to compete with dinosaurs. Thick, leathery skin replaces beak, and forms toenails for rougher terrain. Lives in lush tropical forests.

FUNKY (2006) A selection of Emoto-tronics that developed brighter colors, and tails developed from selective mating.

CONNECT (2016) Antenna forms for advanced communication. Beak size shrinks to compensate for larger eyes, ears, and increased brain size. Almost like aliens.

FURBY (2023) Glowing ears fromed from gradual absorpsion of antenna. More advanced communication and higher level of conciousness. Beak continues to shrink and eyes continue to enlargen.

FURBLETS (2023) Smaller subspecies, exchanged bioluminescence for higher range of motion. Can fold ears over body for protection.

#furby #speculative evolution #speculative biology #furby family #furby fandom #2005 furby #furby baby #2023 furby #all furby #furby community #furby shelby #ft more research and more autism

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tadaxii-i · 6 months

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I see so much autistic Regulus in ffs but it's always used as a quirky character trait and never really as a disorder with actual consequences. Yes to stimming, but also yes to meltdowns. Yes to apathy, but also yes to sensory hypersensitivity. Yes to special interests, but also yes to crying at every single inconvenience. Yes to rambling, but also yes to processing issues. Yes to difficult communication, but also yes to constant and uninterrupted speaking to himself when he's alone. Yes to saying he's autistic, but also yes to showing it.

#autistic regulus black #autism #autistic representation #it's so important to me #because i'm autistic and a reggie kinnie #the fact that I had to research what was autism and what was adhd because i have both 🧍🏼‍♀️#but yes it's very important #regulus black #marauders #jegulus #marauders headcanon #autistic characters #:p

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my-autism-adhd-blog · 9 months

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@adamfare1996

#autism #actually autistic #autism research #autism resources #why can’t we get the resources we really need?#it looks like all the sources and research are more focused on kids than adults #that’s not fair imo #feel free to reblog/share #source: X @adamfare1996

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roachie-paradise · 13 days

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line-up of all disorder creatures i know of!!!!! !!!

i love the silly silly creatures sm

credits ;;

schizospec creature (the irl) by @thenullepisode

stpd creature (the brb) by @thenearsightedmicroraptor

npd creature (the imo) by @/imnotherelmao

avpd creature (the brb) by ME!!!

bpd creature (the kms) by @mentallyillanimal

hpd creature (the wyd) by @mentallyillanimal

aspd creature (the idc) by @mentallyillanimal

autism creature (the tbh) by @/princestarangel

adhd creature (the btw) by also the same person as above? correct me if im wrong <:3

and tagging @telephone-blights who watched me draw these sillies

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escapism-from-the-real-world · 3 months

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Honestly, it’s so frustrating taking any kind of autism/adhd/neurodivergent test/assessment/quiz. It’s especially frustrating since I’m taking a research methods class that talks about how to make surveys and questionnaires and so many of these assessments break basic rules on how to make good surveys.

For one, the way they set up the questions are either way too vague or way too specific or combine two different questions together that makes it hard to answer. For example, one autism assessment I took asked whether you think and talk a lot about your special interests. Thinking and talking are different things and the frequency of what I talk about completely depends on who I’m with but the only answers I could pick were “true now and when I was young, only true now, only true when I was young (16 and under), and never true”.

Which brings me to my next point. The way a lot of professional and certified surveys are set up usually have either a five point or seven point system (example: disagree, somewhat disagree, neither agree or disagree, somewhat agree, agree. Seven point systems would add definitely agree or disagree). For the survey mentioned, adding another option that doesn’t land in the extreme of either “always” or “never” allows for better and more realistic answers (like a “I exhibit this behavior sometimes under certain circumstances” or something).

Also these assessments sometimes add in why you exhibit these behaviors like “I spend a lot of time at home. This is because I hate people and don’t like going out”. I do spend a lot of time at home. It is not because I hate people or don’t like going out so it’s hard to answer that question.

Assessments for mental health or neurodivergence like this make it really hard for people to answer in a way that gives an honest assessment of their mental state and it’s really frustrating taking quizzes over and over again just to have the same issues come up again and again and I feel like I’m being robbed of an actual answer to my question.

Someone fix this before I take things into my own hands. This is a threat. I will do it.

#autism #adhd #neurodivergent #neurodivergence #autism assessment #adhd assessment #surveys #questionnaires #proper research conductment #like this is survey making 101 #the first thing I learned about surveys and questionnaires in my research methods class #i am judging you #feel judged

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zeynatura · 8 months

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Ranting about Nucani

There is something I want to express and this fandom should know.

Nu: Carnival is a Harem game but unlike most games in the genre the relationships with MC are all canon within the same story, there are no "Routes", no "Alternate Universe/Timelines", it's all 1 Main Story where you get to gradually meet all the Characters who'll be your companions, in this game named Clan members, and all of them one way or another end up falling for Eiden (MC), which makes polyam relationship canon with Eiden as the center:

Like very few games have polyam representation, let alone a positive one, like yes the polycule it's very Eiden central but even then all the Clan Members interact with one another, as we see mainly in the time limited Events but also in the Main Story, and have friendly and amicable interactions, they rely on one another sometimes even without Eiden being involved.

But also, Aster and Morvay have a relationship established too since way before the events of the prologue of the game, Kuya and Quincy have hinted some sort of situationship (idk I don't care about Quincy and my knowledge about Kuya is limited to what happens in the story and events cause I have no limited SSRs nor have I read any of his Intimacy Rooms).

[Also if any of you knows of any other relationship that have been hinted at that i'm missing feel free to share, i specifically ask of you to refer to only canon, i know in fanon anything and everything is possible and sometimes we may be missperceiving some interactions between characters so i ask of you to take those rose tinted glasses off and see unfiltered canon, it's hard for me too ngl so dw]

All this started with some posts I saw about ppl feeling bad for Yakumo and/or Edmond to be "forced into a polyam relationship" when they are the "most romantic members" and "deserve a monogamous relationship", their words not mine, as if mono > poly , but also do you really think they're against it!?

One thing is being Clan Members against their will (which is all Huey's fault btw), having to work together to regulate the Altars' Essence (or their own) and then another one completely is involving themselves in a personal and intimate way with Eiden, which the latter they all did in their own terms and out of free will.

Also i wanna share one of the best and my fav scenes with Karu, which i know not everyone was able to experience it cause it's hidden in the Intimacy Rooms of a Limited SSR, but it expresses exactly why the polycule is consensual.

Context: Eiden has been worrying about forcing the Clan Members to be with him because he is the New Grand Sorcerer, against their will just because of Huey's magic that ties them together and the responsibility of Regulating the Altars and basically maintaining stability in the Klein Continent.

His worries began (at least that i noticed) in "Eerie Escapade" (Halloween Event), that was also the first time Garu got hurt while protecting Eiden and the first time Karu got mad at him and fronted to yell at Eiden (which is my another fav scene of Karu omg i love him so much i gotta go back and take screenshots of that but that's for another post), the second one being in "Army x Blood x Oath" (which are the screenshots i'll show u)

Because this are the Intimacy Rooms of Garu/Karu's Limited SSR this scene focuses on Eiden feeling guilty because Garu got hurt in the past (Halloween Event) and this time he lost his memory (temporarily, due to this event's story) and Eiden blaming himself for it all and wondering if they would be better off without him, but the same can and is applied to the rest of the Clan Members, seeing how Eiden met and approached Rei while respecting his privacy and independency even tho he's also a Clan Member and the newest introduced in the story, means that the Limited Events are also canon and part of the story because Eiden seems to be growing and learning from previous Events and showing that development in future Events and the Main Story.

Karu also mentions that Garu (prior to losing his memories) was also worrying about the same thing Eiden was, like 'what if Master (Eiden) stays with us just because of the contract with Huey? :c' and he calls them both idiots because they don't communicate and fronts to fix it! (Mighty Karu to the rescue)

And talking about "Eerie Escapade" that is also the event where Yakumo's possessiveness towards Eiden shows, i'll admit i haven't seen the last room but i feel like those people i mentioned before are using it as fuel to their idea, because if Yakumo is jealous of other Clan Members interacting with Eiden and "Wants him all to himself" that must mean he wants a monogamous relationship, right?

WRONG!

That just means Yakumo is a complex person that feels different emotions specially when it comes to the most important person in his life (Eiden) other than his grandparents!

And Yakumo feels guilty for having those feelings, not because of them being in a polycule and he not wanting to be in it, but because he has trauma and sees his desires and wants as selfishness and he would never allow himself to be selfish cause he doesn't want to hurt people, he's a people's pleaser! He lives with constant fear of hurting others like the Great Serpent did when it killed many (but apparently there may be more that meets the eye, because the current event hinted that the Great Serpent actually liked humans and took care of children ???)

And Yakumo dealing with those feelings along with his yokai powers as a descendant of The Great Serpent have been the main topic of his last 3 Limited SSRs, which is great because that means CHARACTER DEVELOPMENT~

Now unfortunately i cannot talk about Edmond's Intimacy Rooms as i'm missing ALL OF HIS SSRs (why do you hate me Edmond if ily) but from what i've seen he's also pretty happy being with Eiden, heck even HIS MOM is happy his son is with Eiden!

That's right, she's the first and only parent of the Clan Members that knows and approves of their relationship, if it weren't because most of them are orphan we could get many more... i wonder if Yakumo's grandparents are aware hmmm ... and we all know Olivine's parents are gonna HATE it xD and maybe Garu's wolf pack will approve of Eiden by the end of this event.

#i just realized i may not be the right person to talk about polyam relationships and representation #even if i'm open to polyamory while in a monogamous relationship currently #and i do my best to do my research about it and learn from polyam people #but then again i used to do the same with queer people before finding out i was queer #and neurodiverse people before realizing i am one too #and the most recent was autism :D #so maybe i'm not the wrong person to talk about it #also if any of you treat Garu and Karu as the same person when they're a system i will lose it #or worse when people don't acknowledge Karu #help me i love these pups with my life and i will protect them #aster and morvay relationship's nature is not for us to decide #but the fact is that they have one #nu carnival #nucani #canon polyamory #if you read all this i love you~#edit: i thought Morvay having multiple sex partner was obvious 🤔#but some ppl pointed it out so #yeah #the incubus has sex with many ppl besides Eiden and Aster all consensual #while Aster finds it annoying but also helpful Eiden think it's hot #big edit: nvm I AM THE RIGHT PERSON to talk about this as im ambiamorous #which means im happy both in a monoam and polyam relationships #so i am in the polyam spectrum and would love to have what these boys have

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yellowyarn · 8 months

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any other autistic people feel like over the counter pain medication doesn't work for them? like tylonel does nothing for me and ibeprophen has almost no effect, but maybe im imagining it?

edit: i made a poll ↓

#autism can affect how medications affect you and jt has been researched with stimulant ADHD meds #i tried looking up if any one had done any research on this but i only found stupid articles about tylonel causing autism #thanks ableism #autism #autistic #nuero punk #auti punk #autipunk #level 2 autism #nueropunk #asd #disability #level 1 autism #level 3 autism #autistic things #nuerodiversity #nuerodivergent #autism acceptance #please tell me im not just imagining this

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nicodwhw · 6 months

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autistic and neurodivergent people that build a career around their special interests are the backbone of this world

#everyone who does insane amounts of research into a topic they like i’m fucking love u and also am very fucking jealous #im also audhd but 1) hate doing research and 2) can’t fucking remember anything i research :((((#autism #adhd #neurodivergent #asd

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