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#i have fibromyalgia lol
sunnycanwrite · 1 year
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the way that people underestimate disabled people. Barbara Gordon as Oracle was the best era. Her disability did not stop her from being badass. She deserves to keep being oracle. It showed how strong she is as a person. To find a way to keep protecting her city. To still be able to fight from her wheelchair. To prove so many people wrong and keep living life.
The stupid storyline of implanting a chip in her spine was out of character. And I know "if you were given the option to have your mobilty back won't you pick it." That's a hard question to answer personally as a wheelchair user. But Barbara never need to be Batgirl again. She was past that part in her life, it was so unnecessary. And beyond ableist to do.
Being disabled does not make a person powerless, in most cases. As a wheelchair user, and even before that a cane user it hurts like DC refuses to see us as human beings anymore. We are not powerless, we do not need to be "cured". Living with a disability is hard, but it's not less of a life.
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themathomhouse · 10 months
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this disability pride month, stop making jokes about people in wheelchairs standing up or walking.
can I stand and walk? sure, for a short while and with pain. the consequences for trying to be out all day without a wheelchair are that I'll be in bed for the rest of the week, too tired and in too much pain to move.
but the government won't give me my own wheelchair because they have the same attitude as these jokes - I can stand up, so I don't need one. exercise is good for you, you should walk!
it keeps me trapped in the house, unable to do anything more than short stints anywhere without borrowing or hiring a wheelchair - one that causes me pain to sit in and relies on someone to push me (usually with difficulty), because they're not going to have a high-end chair for that sort of thing.
it's not a miracle that a wheelchair user can stand or walk. it's something we should aspire to see more often.
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thespacesay · 10 months
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this disability pride month, may your care team(s) refill your prescriptions in a timely manner
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disasterhimbo · 13 days
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I wish expressing myself didn’t take so much energy
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daffodil--lament · 3 months
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being an athlete with fibromyalgia is stupid as all hell. i have the strongest legs in the room. no i cannot walk up stairs today. i can hold my leg above my head and have more than a 90° arabesque. i almost passed out trying to unplug an unforgiving power strip from the wall last week. i could do more crunches than anybody else in school and i have to walk with a cane at college. everything feels so fake what is happening
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halogalopaghost · 4 months
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I was on track to be on time for work for once and chronic tummy ache disease got me literally on my way out the door. Abject misery. Despair. Twelve dead five million injured
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hellyeahsickaf · 4 months
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Thinkin about the POTS episode I had at a weed shop once like 5 years ago (well before I knew i had it. I thought i was just dehydrated) in which I passed out in the arms of the cute desk clerk who actually happened to also be an EMT and he knew I was passing out well before I did.
I remember sweating and being embarrassed because of how bad I was struggling to get my sweater off, couldn't stand straight, I was slurring my words and not fully understanding him. Last thing I remember was him deadass leaping over the desk after asking me if I needed to sit down (really hot of him). I'm quite sure he caught me because when I fall I definitely feel it later
It's a super humiliating disability to have but he definitely knew how to make it easier and feel less awful. I was halfway through my sweater when I went down but it was folded next to me and he was holding a cup of water for me until I came to. He was really wholesome and just left the desk and sat with me, tried to make me feel normal about it and distract me from people's wandering eyes and was just really chill. I don't think I was out for more than a few seconds but I definitely would've eaten shit if anyone else was helping me check out. Most people would not in fact jump over the counter to make sure a guy they don't know didn't crack his head open. But he's probably seen horrible things happen to people who didn't have someone there to catch them
I hope he's doing well, I was way too out of it to remember his name but I remember him being really chill and funny, being lighthearted about it to cheer me up. I'd smoke a bowl with him idk. He seemed like such a genuinely good person, didn't go back to his shift until he was sure I'd be okay and even then told me to take my time and call him over if I needed anything (dispensaries are often very particular making sure you're in and out and control the amount of people in there at once). Told me how I should breathe, how I should sit, and it's stuff I do when I have POTS episodes to this day
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entropy-sea-system · 5 months
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We tried a body wash with epsom salts in it and genuinely our pain hasnt been this low in a while
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cha-cha-barney · 2 years
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this may be an unpopular opinion but i really dont want hunter to be able to do magic now. belos wasn't ablw to do magic without an artificial staff after consuming thousands of palismen, so it wouldn't make sense in the show and it feels like erasure of what is really good disability coding. hunters non-magic is the boiling isles is the human equivalent of a disability (physical or learning, i can see both) and getting rid of that feels like erasing a disability, like curing eda and lilliths curse, it just doesn't feel right. idk if this is coherent, but i have big feelings about hunter and i want him to stay non-magical.
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sunnycanwrite · 10 months
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What is fibromyalgia (did i spell that right?) And why do you think tim and cass have it?
im actually so happy someone asked this! Fibromyalgia (you spelled it right!), commonly just called Fibro, is a chronic pain condition. It causes pain in 18 central points across the body, chronic fatigue, and brain fog. Many doctors think it is caused by traumatic events, stress, or depression. Though the root cause is unknown. It can can be mild with pain that is manageable, but flare ups often leave people bedridden. Or like me, a wheelchair user.
Tim's canon issued with falling asleep in odd places scream chronic fatigued to me. And I can just see him hiding chronic pain for years, not wanting to mention it. Ad someone with fibro so many thingsabout him, just screams that he has it as well. It's honestly hard to explain.
It's pretty similar with Cass. I see her as growing up with it and thinking consent pain was normal. Due to the way she was treated by her biological father. So she just got used to the pain, and bonded with Tim over it, and they got diagnosed around the same time.
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letthebookbegin · 11 months
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#nothing like being in varying states of pain for a few years - sometimes less#sometimes more but always there - and being too exhausted to go to a doctor about it bc everyone around you says you just need to do yoga &#the only way ur job will accommodate is by giving u the less staffed late shift so u can go in the morning and ur so exhausted youd rather#just deal eith the pain like u already have been doing for years#to moving to a job that actually allows u to leave early for medical reasons if you can get the essentials done#then phoning the gp with hope & motivation for the first time in a long time#and being told lol no appointments left until july#i had hope for once i really did 🥲 my friend is a pt & said i might have fibromyalgia and i really really dont want it to be that bc that#means i have a chronic illness with no cure but i looked it up and just. every single symptom was a check for me#and i started thinking if i do have it ill have it whether im diagnosed or not & if i dont then thats good to know too? & psyched myself up#for the phone call and. ugh it really hit me#she said to do their online service. tried and it said no appointments available. tried nhs online. it said make an appointment with ur gp#within the next few days 🥲 back to giving up and just bearing the pain and never mentioning it bc i'll just get told it's my own fault bc#i didnt go yoga ig#just needed to rant into the void for a bit sigh#time to go back into work i guess#*#UGH I JUST GOT MY PERIOD TOO#also like. this isn't to say i do have chronic pain it could be something easily solved#and id be delighted if it was#but i hate how the people around me trivialise it like. it's not normal to have intense pain and stiffness from sitting down/standing for#the duration of one train stop ok it's not. it's not normal to feel sharp jolts of pain through my body every time i cough or sneeze.#every part of my body aches! literally from my head to my toes! they dont do toe yoga!#okay enough back into the fray
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telnaga · 3 months
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every day i let myself be more outwardly insane. it has the dual purpose of easing up my fucking repressive nature, and of connecting to others more without being stopped by a fear of abnormality
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hartlow · 2 years
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they should invent doctors who see you for your problems
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orcelito · 1 year
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I essentially got told that my cringefail ribs r just gonna cringefail & I Can get an MRI or a CT scan but it'd be some hundreds of bucks & if my quality of life isn't too severely impacted then I might just have to deal with it 🤷
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imma-lil-sunshy · 6 months
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I've been forgetting like regular everyday words and stopping mid sentence a lot lately. ... googling if I should be concerned
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just-aro · 1 year
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will return to posting on aro culture is. medical bullshit continues unfortunately :(
would be super neat if my body was functional, but alas... if it is not one thing, it is another. it is also usually more than one thing. my body is like an apartment complex that looks alright on the outside, but is hot garbage when you look inside. you're not just gonna find one problem.
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