#home aid
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Knit and crochet more, clean less.
I'm finally sharing the simple system and spreadhseet that I have used for years to clean my house. It's based on two-week intervals and it works!
Like everyone, I hate cleaning and I hate the "big clean" even more, so I do this: 👉 https://bit.ly/KnitMoreCleanLess 💜
#Etsy#cleaning#organization#home#home help#home helper#home organization#home clean#home cleaning#clean house#clean home#help#home aid#google sheet#google sheet template#home hack#house hack#cleaning hack#clean hack#life hack#life hacker#ADHD#ADHD hack#ADHD helper#ADHD aid
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The laundry trolley - the improved way to do your washing with CFS!
Muscle weakness is one of the sucky things about CFS, and quite frankly one of the most annoying things (for me at least)! We have to put triple, or even quadruple the amount of effort into doing the simplest tasks compared to able-bodied people, and doing the laundry is no exception. The lifting, the hanging, it can do a number on you.
I'll be honest, I didn't know laundry trolleys existed until I got desperate enough to do some googling. After my shower stool, it was the next purchase I made to improve my life and man, I could never live without it now! I use it everyday.
I bought mine from the local hardware store for around $20 NZD. Its simple and plain in design but it does the job wonderfully! An added benefit is that it can fold up partially, as well as flat for storage when not in use. There are fancier, bigger and more expensive laundry trolleys out there, but this one suits me and my compact house better.
I wheel it into our laundry room when a wash load is finished, fill it up with our clothes, and wheel it outside to the line. Its the perfect height that there's no bending to get laundry out of the basket.
Its also made washing our bedsheets a whole lot easier too! We all know how much damp bedsheets can weigh, and its exhausting to hold them up while we hang them on the line. When I hang out our bedsheets, I can spread the weight by leaving a majority of the sheet in the basket while picking up one part at a time to hang. I then wheel the trolley along while picking up more of the bedsheet until its all hung up.
The trolley has the added benefit that I can use it to move other things around the house and in the garden - just plop the items in the basket and wheel it away!
Its really worth it to invest in a laundry trolley, there's no need to exhaust yourself lifting the washing again!
#me cfs#chronic fatigue#chronic illness#chronically ill#myalgic encephalomyelitis#spoonie#chronic fatigue syndrome#chronic pain#disability#disabilties#bathroomlaundry#shower#bathroom#home aid#mobility#mobility aid#aroundthehouse
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Having quality care is a necessity for seniors, especially since aging can affect the body in irreversible ways that may impede mobility and affect comfort. And as we age each day, we also become more susceptible to illnesses as our immune system also weakens, making high-grade care and reliable home care services absolute musts to ensure health and safety.
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Americans not giving a shit about the wildfires burning down forests and homes in Canada until smoke starts spreading across the border. Meanwhile Indigenous communities across the country are far more likely to be impacted by the fires and I’ve seen all of one link to a charity and about nine million memes. 🙃
#yeah yeah hashtag notallamericans or whatever the fuck#I’m just irritated watching people whine or centre themselves#like sorry your clothes smell like smoke gladys but people have lost their fucking homes#and the government does fuck all for indigenous communities#so you know who’s gonna end up getting more aid#but sure brad can’t go out for his usual morning jog because of the canadians#also all these fucking news articles making ir about america as if canada has somehow done this on purpose out of spite#someone buy me a punching bag for my birthday thanks#artschoolrambles
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do you think they knew even then that it was gonna be forever
#sent this to my friend in the middle of class and she physically put her head in her hands with such devastation another classmate asked-#-if she was ok. so i hope it can aid u guys in similar manners i suppose!#smiling shakily… Do You Remember. The Time. When W#no one look too hard at the train i don’t care what trains look like. it’s not about that.#it’s about. sing along to the start of forever. as paramore once said.#took the train home for spring break yesterday! just thought of them. x#dnp#dan and phil#phanart
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I feel like people often don’t talk about the experiences of disabled people who have caretakers because so much of the conversation is about us—not including us.
I receive in home care for 30 hours a week (+ 4 hours/week for respite). This is paid for by Medicaid (state insurance). Outside of paid hours, my primary caretakers care for me unpaid and assist me most of the time. I’m very rarely left alone due to my high support needs. Often, when I am left alone, I am completely bedridden or at minimum housebound. I have frequent emergency life threatening health problems, falls, and serious injuries even with support in place, and these things significantly increase when I’m on my own.
I’m extremely lucky that my paid caretakers are my partner, my sister (the only family member I have regular contact with, I’m estranged from the rest of my immediate family and most of my extended family) and my best friend.
I used to have agency staffing which was horrible for me and borderline traumatic. At several points, before doing the self directed care option (which allows me to choose my own staff, hire and train them myself and dictate hours for them), I opted to not have any staffing. I was regularly in the emergency room. I can’t drive, so I was having to walk and if I was lucky enough to be able to take the bus on occasion or get a ride from a Facebook acquaintance, they were few and far in between. I don’t have family support, and even my sister who is supportive wasn’t living in the state at the time and doesn’t have a car most of the time.
And before I could even choose which staffing option, even though medically it had been deemed essential for me to have in home care, even though my insurance covered it, I had to wait several years (I was 18 when I was approved) until I was 21 to qualify to start. The reason why: I was legally an “adult disabled child” because of my high support needs (which is funny because I STILL don’t have SSI at age 24) and thus legally unable to consent to my own care plan. I needed a blood relative to consent, and that same blood relative (who had to have proof of such!) couldn’t care for me. At the time, my sister was the only person who could’ve been my caregiver and also she is the only verifiable blood relative I have contact with for safety reasons, and my only relative on this side of the USA.
The first business day after my 21st birthday I immediately got things set up to get in home care.
This is out of date, I get assistance with more than just these highlighted ADL (activities of daily living) tasks now.
In short: my day-to-day life is entirely dependent on others.
And there’s power imbalances that exist between me and my caregivers, even with my current caregivers being amazing and anti-ableist. They will always exist. We talk about the power dynamics of me being dependent on them for my survival, and how heavy that weight can be for each of us.
Having caregivers often means that accessibility is extra difficult— I’ve been told straight up multiple times that I can’t have assistance from my caregivers to help me change in a changing room when we’re out shopping. That they can’t go into the bathroom with me, that they can’t help me get un/dressed during appointments, that they can’t come into spaces with me.
I’ve been denied access to psychiatric care because I can’t do my daily living tasks (ADLs- the highlighted items) independently. And when I’m in a hospital or emergency room, I can’t have my in home workers be paid to care for me, there’s an expectation that the nursing staff at the hospital will do it. Even though my caregivers were specifically trained to learn my body and needs for weeks and have been working with me for years. I have severe cPTSD and showering in front of a stranger is something I cannot do. I would rather fall or faint or get injured or just not shower than deal with that. But I’m expected to just let anyone have access to my body just because I’m physically disabled and need support.
When I faint/fall/get injured/have life threatening health issues arise while I’m not clothed, or when I’m otherwise vulnerable, I’m supposed to let strangers just touch me however they want to. I have to show them my chest (for my cardiac care) and let them poke and examine me. I can’t object without losing access to vital care.
I have agency. I have rights. I have autonomy. I deserve to be able to exercise these things.
#chronically couchbound#disability#disabled#disabled pride#cripple punk#cripplepunk#disability pride#high support needs#ableism#professional caregiver#activities of daily living#ADL#medicaid#healthcare#in home care#home care#home care aids#nothing about us without us
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Ppl are always like “it would be so much easier to be disabled if society wasn’t ableist” and in a general sense they’re very very correct but it would also drastically improve my life if my immediate family was just like…ten percent less ableist. Like that’s all I’m really asking for. Maybe just! Don’t make a disgusted face when I use mobility aids! That’s it that’s literally all I’m asking for.
#all the work I’ve done#attempting to love myself#is destroyed every time my mom says “’wouldn’t it be better to just stay home rather than let people see you in that chair?’#literally just. dial it back like 10% please and thank you#that would improve my life so much dude#disabled#disability#mobility aid#wheelchair user#wheelchair#physically disabled#chronic pain#cane user#ableism#my ramblings
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sorry i got asked about the themes of discipline today and one of the ones i said was “how remembering the dead can sometimes be the most meaningful act of resistance and love a person can do” and now i’m just thinking about it.
the shelled one’s first appearance featured a taunting string of the names of every player who had died above him. he was defeated by some of the most well remembered players in the league, in a last ditch attempt. idk man maybe it’s a little on the nose but it means a lot to me.
#blaseball#it’s also national aids day and i just watched something about the aids quilt so i’m. fragile.#i’m not at home so i cant visit any important graves but. i can think about them.
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entire body workout just to write "0/100... see me after class"
#he’s standing on the regular desk btw but they also brought him a dollhouse desk to use lol#my-art#wordgirl#steven boxleitner#fanart#magic school au#is that the tag i use?? xD#it is now i guess#maybe after a few weeks of not being able to turn back the school gives him a teachers aid#also they give him a proper staircase instead of a rickety ladder#also i think it could be fun if the home ec teacher develops a hobby of making him cute mouse sized clothes#i think the aesthetic would be more dark academia but its super late for me and i didnt wanna pull up pinterest
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Leaving my abusive household.
Hello, I try to not get too serious or talk about my private life too often, but today I've finally started up a gofundme to. Well. Get out of the abusive situation I live in. It's something I've thought long and hard about, and while I hate having to resort to this, all other options have failed me, and I'm desperate to leave so I can start actually living. Please, any and all help sharing this around will mean the world to me, as this situation has gotten dire, and I honestly cannot live in this house with my mother for another year.
Thank you for taking the time to read this post, I appreciate it, and I hope you have a wonderful day.
https://gofund.me/5c65ef49
#Beetle Chitter#gofundme#financial aid#donate if you can#crowdfunding#go fund me#gofundme link#fundraising#fundraiser#Aid Request#financial aid request#leaving home#abusive parent#please.
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My Oven Exploded
*Dramatization, no large explosion took place
The igniter on my oven blew, and it requires a $350 repair. Luckily, I have $200 in savings, but I'm scrambling to put together the rest so! I'm doing a little
DOODLES FOR DONATIONS DRIVE
Wherein you can leave a tip of any size through my Ko-Fi with a one or two-word prompt (eg. 'Sleepy kitty' or 'big cupcake' or 'butts!') And I will do a little thank you doodle like the above! Note: style may vary
Thank you for reading and sharing this post!
#ko-fi#doodles#mutual aid#home repair#both hubby jon and i have specific medical dietary needs so it is very important that we have a functioning oven#or i would not be so desperate to fix it asap!#mod post#doodle#naomi art#<- check out that tag for more examples of my drawings!
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Get yourself a shower stool - it doesn't have to be fancy!
TFDR: Too Fatigued Didn't Read (at the bottom of the post)
The title of this post says it all. I didn't realise how much getting myself a stool for the shower would change my quality of life. Most days, but especially on my bad days, standing in the shower and moving my arms was too much exertion for me to handle. It became part of the daily routine that I despised, so much in fact that I was skipping showers, or only washing the essential body parts to conserve energy. And you bet doing that did a number on my mental health.
A shower stool was the first 'home aid' purchase that I did for myself and honestly I wish I had done it sooner. At the time of buying my first shower stool, my husband was living and working in another city for 3 months. I was all on my lonesome at home, so I decided what would be a better time to start looking at improving my life and getting some independence back.
As I said, it doesn't have to be fancy! I purchased this one from the $2 store down the road from my home, and it served me perfectly until my upgrade just this week. To make it safer to use in the shower, I glued rubber grips to the bottom of the feet to prevent any sliding.
Suddenly after getting my stool, I was able to shower properly again! I could wash my entire body and my hair sitting down, and I could take breaks while doing so, which was especially important to me. I'm even able to shave my legs again! While leg shaving is unnecessary, it does boost my self confidence.
The stool was small and light enough that I could move it when my husband wanted to shower, or if I wanted to use the stool in another part of the house.
My shower stool upgrade this week came from a lucky find at a second hand shop!
We scored it for $5 NZD!!
Its got a very sturdy design with its rubber feet, adjustable leg height, is lightweight and can support weights over 100kg, meaning that my husband can use it as well! I've walked into the bathroom a few times and seen my husband sitting on it while taking a shower. This new stool folds flat so can be stored when not in use, I didn't think about how handy this is until I had one that could do that - definitely a huge benefit when living in a small home like mine.
Honestly, I can't think of anything but positives to having a shower stool, especially when it comes to CFS. Do yourself a huge favour and treat yourself to one - you won't regret it!
TFDR:
Get a shower stool - it doesn't need to be a expensive one! As long as it is weighted to your weight and you can add some kind of rubber to the feet to prevent slipping, it'll work!
It helps prevent fatigue, you can take breaks mid-shower!
Honestly one of the best things that I did for myself, would highly recommend.
#me cfs#chronically ill#chronic fatigue syndrome#chronic illness#chronic pain#chronic fatigue#myalgic encephalomyelitis#spoonie#bathroomlaundry#shower#bathroom#home aid
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Were about to be without power!
TLDR: My mom missed so much work leading up to her heart attack that bills bounced from her accts and now we are scrambling because the internet and power are basically being shut off back to back!
CA: $sleepyhen OR $grumblybear
VN: wildwotko OR XochiRose
My mom has been dealing with an increase of various undiagnosed chronic illnesses for the past two months and was in the ER 6 times before her recent heart attack. Since she basically is unable to work right now her last check isnt going to cover much of anything.
I have a job starting in late Oct but I still need internet to finish my schooling/get certified as an herbalist. I do plan on selling my art again but that also requires internet access, and since my partner is not a legal resident finding jobs is really really difficult for them right now.
There is a lot of shit going on in my life right now, Until I get my 1st check at the end of Oct or sell some art between now and then I dont have any income to cover any bills (my own phone has been unpaid as well). We can go without internet for a while but I really dont want all of our food to go to waste, because that was the last food I was able to buy for our house.
The electric/gas is $181 and the internet is $320
CA: $sleepyhen OR $grumblybear
VN: wildwotko OR XochiRose
#mutual aid#community care#chronic illness#i dunno what or how to tag this but im poor pls help me#my mom is so sick atm and is trying to work but everytime she tries she comes home sicker#so her last check was 221 dollars#I just wanna finish school and start my job#i can make the food stretch but i cant let this power go out
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Hello everyone. I feel very embarrassed to have to make a post, but I’m dealing with some urgent dental issues that need to be treated ASAP.
I have two teeth that need root canals. The molar tooth might need to be extracted and done as an implant, but I won’t know until they look at it. I also have a bad cavity that formed last night (exposing some of my dentin) next to the other tooth that needs a root canal. Infection is starting to form bad in there, as well. I’m not currently in any pain, but I’ve been getting sick lately because of it.
Using the cost estimator for my dental insurance, the total [estimated] portion of my half for my treatments is going to be $1,455. This is including the two root canal costs, and the new cavity that formed. I’m going to see my dentist ASAP, so the total cost may be adjusted after he checks it out. That said, I believe that my estimate should be accurate.
I’m in a very bad financial situation where I can’t save up the money for the treatment. I’m almost $4,000 in debt, and struggling to crawl myself out of it while barely being able to pay for rent and bills. I’m not asking for assistance on that mess though.
I have a scheduled appointment on my birthday, on April 1st. However, I’m only going to be able to reschedule the appointment back by another month. I really don’t want to, though, because of my health being affected.
I’ll be updating this once a day, apologizing for the spam.
Goal: $20/$1,455
Paypal: [email protected]
Cashapp: $deadnettled
I don’t have other payment methods yet, but I can look into them if needed. Even if you can’t donate, I have very little of a following, so reblogging would be extremely appreciated. If anyone knows of other resources for me to look into (I can’t do CareCredit), I would appreciate it also.
#mutual aid#dental emergency#signal boost#also not sure if it would help anything but I’m an enby who’s trying to get their life back together after getting out of an abusive home
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I saw a post somewhere that advised, if you can't strike, go slow. I think that's a good goal for a lot of us who can't call out. move slower at work this week. gum the wheels of capitalism up. that plus not spending can noticeably affect the market
#eventually we need to get to a point of saving and mutual aid that we CAN strike for a week#without ending up on the streets in a few weeks#although that's a privilege in and of itself that we lose our homes in weeks and months while Palestinians lose theirs in a single night#free palestine#palestine#global strike week#again every single tiny step matters!
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there is a hollowness inside of rich kids that truly terrifies me.
#no wonder some of them don’t know how to be people#like. i was never poor growing up. we were two disasters from bankruptcy instead of just one. but at least i had normal child experiences??#did my own first aid and was so proud of that. getting dragged to my mom’s work when i had a sick day and getting basically all the regional#colds over in that waiting room. making a grilled cheese or a pbj when my parents weren’t home yet#gotten really annoyed about having to take care of siblings and drive them places#like man sometimes i think I’m so clueless and then others I’m like. how the hell are you people still alive#you look like a deep sea fish collapsing under the lack of pressure on the surface
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