Does anyone have any personal recommendations for online forums or support groups for chronic pain/arthritis/nr-axspa/ankylosing spondylitis?

I know there are sites to find open discord severs for these things, but with my social anxiety I’d really love if I could hear some like.. actual recs or something.

do i have any nr-axspa Or AS followers. or people seeing this since i’m gonna put it in the tags. has anyone managed to get any actual prescription painkillers that actually do Shit,

cant move our bodies well before noon bc we have the arthritis of a 70 year old: mox 🤝 me

contemplating getting a head start on NaNo cuz I get the feeling...for REASONS UNKNOWN *slams hands repeatedly on table*...that I'm not gonna be up for writing at all again for a bit 😒

I am finally officially Diagnosed physically.

Rheumatoid Arthritis, Fibromyalgia, and Inflammatory Spondyloarthripathy at several sites in Spine. Which I'm pretty sure is one step below NR-AxSpa. So yeah. I have all three, which is why I couldn't figure out which "one" I had on my own. These were the three conditions I had settled on as options, basically. Feels bad man.

At least I can start Humira this week or early next week. Still can't believe I didn't have to get a PA. And that it's actually going to be free like the rest of my meds. If they weren't I'd not be able to be on much of any of them, and I'm reliant on them to function. Yet another reason I'm thankful to have been a foster kid for at least a year. Too bad I can't keep this insurance forever. It's almost like living in a world with universal Healthcare. But that's far too much to ask in the good ol USA, huh?

Lots of conflicting feelings right now.

tumblr keeps giving me ankylosing spondyloarthritis ads like ok i get it i'll talk to my rheum about nr-axspa when i see her again

god i’m so fucking frustrated i haven’t been able to get my very important medication for my nr-axspa and my stupid insurance makes me fill it through this useless specialty pharmacy bc it’s a “specialty medication” and this pharmacy will not fill it and i thought it was finally fixed and id get my fucking medicine but no!!! there’s another fucking issue!!! cool great cool

Non-radiographic Axial Spondyloarthritis (Nr-AxSpA) Market to Exhibit Rapid Growth Rate During the Forecast Period (2023-2032), Investigates DelveInsight | UCB Biopharma, Novartis, Jiangsu HengRui

http://dlvr.it/SxFyHD

Non-radiographic Axial Spondyloarthritis (Nr-AxSpA) Market is Expected to Expand at a Healthy Growth Rate During the Forecast Period (2023-2032), States DelveInsight | Novartis, Jiangsu HengRui

http://dlvr.it/SwTdkt

Non-radiographic Axial Spondyloarthritis (Nr-AxSpA) Market is Expected to Expand at a Healthy Growth Rate During the Forecast Period (2023-2032), States DelveInsight | Novartis, Jiangsu HengRui

http://dlvr.it/SwTZ0v

Non-radiographic Axial Spondyloarthritis (Nr-AxSpA) Market is Expected to Expand at a Healthy Growth Rate During the Forecast Period (2023-2032), States DelveInsight | Novartis, Jiangsu HengRui

http://dlvr.it/SwTYy4

Non-radiographic Axial Spondyloarthritis (Nr-AxSpA) Market is Expected to Expand at a Healthy Growth Rate During the Forecast Period (2023-2032), States DelveInsight | Novartis, Jiangsu HengRui

http://dlvr.it/SwTSFM

Die Kombinationsbehandlung verlangsamt die röntgenologische Wirbelsäulenprogression bei röntgenologischen axSpA-Patienten nicht Neue Forschungsergebnisse, die diese Woche auf der ACR Convergence 2022, der Jahrestagung des American College of Rheumatology, vorgestellt wurden, zeigten, dass die Kombination eines nichtsteroidalen Entzündungshemmers und eines TNF-Hemmers die röntgenologische Wirbelsäulenprogression bei röntgenologischen Patienten mit axialer Spondyloarthritis nicht signifikant verlangsamte (Abstract Nr. 0546). Die axiale Spondyloarthritis (axSpA) ist eine chronisch entzündliche Erkranku... #Antiphlogistikum #Arthritis #Ausbildung #Behinderung #C_reaktives_Protein #Celecoxib #chronisch #Drogen #EIWEISS #Entzündung #Forschung #Golimumab #Knochen #Nekrose #Rheumatologie #Rückenschmerzen #Schmerz #Spondylitis #Spondylitis_ankylosans #Spondyloarthritis #tumor #Tumornekrosefaktor #Wirbelsäule

I just think it's funny that the diagnosis I briefly researched while bored at my sister's house a few months ago thinking "oh that sounds a lot like what's going on with me" ended up being what the rheumatologist is tentatively saying is what's going on with me

Personal update

Hey guys, I finally have some answers about what's wrong with me and why I'm in pain. Turns out I have fibromyalgia AND either seronegative RA, undifferentiated inflammatory arthritis, or possibly NR-AxSpa if my MRI comes back positive for damage.

Feels bad man.

Feels real bad. Wasn't expecting multiple diagnoses for some reason. But knowing I have both makes me feel kind of justified in my pain in a way, like even a doctor will admit I'm in serious pain every day. It's weird and feels wrong to be treated with respect and care, and to have an answer. I feel... Kinda sick tbh. I was already in a flare.

Update lol: it's actually all three. Seronegative RA, Fibro, and Inflammatory Spondyloarthritis. Go team! Fuck this meat prison

Cosentyx meets Phase III goals in axial spondyloarthritis patients

Novartis has revealed extra information from the continuous Stage III Forestall clinical preliminary of Cosentyx (secukinumab), where all essential and optional endpoints were met in patients experiencing non-radiographic axial spondyloarthritis (nr-axSpA).

ovartis has revealed extra information from the continuous Stage III Forestall clinical preliminary of Cosentyx (secukinumab), where all essential and optional endpoints were met in patients experiencing non-radiographic axial spondyloarthritis (nr-axSpA).

Cosentyx is a completely human biologic intended for the immediate hindrance of interleukin-17A (IL-17A), which is related with psoriatic joint pain (public service announcement), psoriasis (PsO) and ankylosing spondylitis (AS). For more MoA insights into the Axial Spondyloarthritis marketed drugs, download a free report sample

The two-year randomized, twofold visually impaired, fake treatment controlled Forestall preliminary assessed the security and viability of Cosentyx in 555 grown-ups with dynamic nr-axSpA, including 501 biologic guileless subjects.

It selected patients on the most elevated portion of at least two non-steroidal mitigating drugs (NSAIDs) as long as about a month prior to inception.

Members got 150mg subcutaneous Cosentyx regardless of a stacking portion or fake treatment.

The essential endpoints are the extent of subjects encountering an, not entirely set in stone as a diminishing in sickness action, with Cosentyx at weeks 16 and 52.

The preliminary's auxiliary endpoints remembered the change for Shower Ankylosing Spondylitis , Axial Spondyloarthritis Marketed and Pipeline Drugs Market Sickness Movement List (BASDAI) over the long run and change in the Ankylosing Spondylitis Illness Action Score with CRP (ASDAS-CRP).

ASAS40 is considered to have been accomplished when there is an improvement of no less than 40%, as well as at least ten units on a 0-100 scale in at least three of the patient worldwide evaluation, torment appraisal, capability and irritation.

In the interim, BASDAI looks at a patient's sickness action on exhaustion, spinal torment, joint torment/expanding, enthesitis, as well as morning firmness length and seriousness.

The Stage III preliminary exhibited a critical and clinically significant lessening in sickness movement at week 16 when treated with Cosentyx contrasted with fake treatment.

The security profile saw during the review was reliable with past preliminary information.

Novartis worldwide medication improvement head and boss clinical official John Tsai said: "These review results for Cosentyx expand on our well established insight in ankylosing spondylitis and are a stage toward another treatment choice that could permit patients to acknowledge help significantly sooner in axial spondyloarthritis.

"Whenever supported, this would be the fourth sign for Cosentyx."

The medication has been utilized to treat in excess of 250,000 patients with axial spondyloarthritis, psoriatic joint pain and psoriatic illness.