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#fibrowarrior
renee-writer · 2 years
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stillfuckingtired · 8 months
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I’ve been diagnosed with the ouchies, and there is no cure :(
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chronica11ysa1ty-117 · 2 months
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What is spoon theory?
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chronicallyuniconic · 11 months
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Exercise & Chronic Illness
I was given some basic exercises to "fix" a problem that exercise won't fix.
They are basic, simple stretching exercises. And I mean b a s i c. The type of things you can do from your bed.
I was doing yoga years before I was diagnosed, I am hypermobile & flexible. But, I agreed, to appease the medical gatekeepers.
By doing them, my physical symptoms are simply worse.
"it's just the exercises, it's normal to feel pain"
My pain is more in line with sporting injuries, it's definitely not 'normal.'
The old, active, healthy version of me, can remember.
My skeleton aches like tooth pain, gnawing, grinding, heavy weights attached to my bones. Lifting my bottled water feels like lifting 20kg.
Leaning forward to grab my medication feels like an elephant on my back, weighing me down, like the gravity in the room just went up.
Every joint is clicking at random, as well as "pops" in other places that feel like a hot knife being shoved in.
My skin is sensitive, brushing my hand over any part of it, feels like the roughest grain of sandpaper, scratching off the top layer. It feels raw, it burns. To look at though, it's just my arm.
The clothes on my back are too much & I resort to the softest blanket I have, to protect me.
It's taken me days to write because the pain has distracted my process. Writing lines at a time is all I can manage for the moment.
Once again, I am reminded that now I am worse than my baseline, I might not come out of this.
Once again I am reminded, that no, exercise is not the answer to my healing.
Once again, I am stuck here, agonising, just waiting for this to fizzle down, so I can return to the baseline I'm used to.
A shell of the person I was before.
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witchy-fibro-hippie · 5 months
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One reason humans need to be more kind and patient with one another 💜
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willowisachy · 7 months
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i hate the after-holiday crash/flare up i get. it’s like im being punished for having a good time and doing fun things :(
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positiveupwardspiral · 9 months
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“We can build a kinder, braver world together.”
~ Lady Gaga
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fakehappy96 · 1 year
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Contemplating pulling out my central nervous system and crocheting it into a shitty paraglider so it can let me down one last time
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growntourettesmemes · 8 months
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I’m a Tourettes page, but I have fibromyalgia too
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renee-writer · 1 year
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chronicallyillz · 9 months
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You know you're chronically ill when you are having multiple health issues/ flares, but know the ER will only treat one so, you pregame at quick care to take care of the sinus/ear infection, then go to the ER for the main party of 10+ level pain
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eclectic-ways · 4 days
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herbqueeninthewoods · 10 months
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All this stress is killing my body.
It's making all my flare ups act up so bad
My chronic headaches, nausea and nerve pain.
And fibromyalgia is kicking my body ass right now.
I'm fighting the best I can.
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wheresernie · 1 year
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Undiagnosed chronic illness will make you excited about like. Your body self imploding. Because it means you might actually get a test to come back positive for a diagnosis for once
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A doctor explained fibromyalgia really well to me the other day so i thought I’d share:
Fibromyalgia is a condition affecting the nervous system, usually triggered by a trauma - this can be a medical trauma, physical or emotional trauma.
Following an adverse experience, your nervous system becomes over active as it tries to avoid another trauma, and so at the slightest sign of stress - exercise, tension, negative emotions, etc - it sends pain signals so you’ll stop.
The weird thing is, if you’re doing something and enjoying it, the nervous system is less likely to freak out because you’re happy and releasing endorphins. This is why some days we can do lots and others nothing at all!
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