#axial spondyloarthritis
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the long-awaited (by me) info sheet on ankylosing spondylitis symptoms, research, and myth debunking is now available! send it to your friends, your enemies, your chronic illness groupchats, print it out and staple it to your local telephone polls - and please let me know if this is helpful, if you have questions, and if there’s anything you think should be added!
https://docs.google.com/document/d/1LLfI4ACQyiiLViyqVO030cTalZAFGfmu8n5-KuLzrrg/edit
#ankylosing spondylitis#axial spondyloarthritis#axspa#chronic pain#chronic illness#back pain#lower back pain#knee problems#knee pain#rheumatic diseases#mac.txt
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#disabledcreator#axial spondyloarthritis#ankylosing spondylitis#writing#creative nonfiction#chronic illness#chronic pain
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Today (September 13th) is my first Simponi infusion! My doctor and I discuss starting it back in April, but my insurance decided they knew better than my rheumatologist and denied it. 😡 Eventually they caved. Here’s to hoping for a little relief! So far I’ve tried meloxicam, sulfasalazine, Humira, Cimzia, and Enbrel.
#ankylosing spondylitis#axial spondyloarthritis#spondyloarthropathy#autoimmune disease#spoonie#nurse spoonie#nurse
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Sometimes I feel like my body betrays me. My immune system attacks my spine, causing really bad pain and stiffness in the mornings. That’s dumb. I also have very heavy periods to the point of having iron deficiency anemia and according to my gyno there’s no fix??? Like besides hormonal birth control which makes me depressed and a total crybaby so no thank you. I also wanna have kids in the future so hysterectomy is definitely not on the table either. I’m just so tired all the time, I don’t wanna take iron pills anymore, I don’t wanna wake up at 4-5 am in pain anymore I don’t wanna decide whether or not it’s ethical for me to have a child due to my health issues but also current world issues, I wanna be healthy and happy and sometimes it feels like I’m never gonna be able to achieve that no matter how far modern science gets in my life time
#kiwi thinks#well#kiwi rants#axial spondyloarthritis#pcos#those are the health conditions I have#I used to have migraines but not anymore#thank fuck I don’t get them anymore#tw periods
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The axial spondyloarthritis disease is relatively rare compared to many prevalent diseases, but it is quite painful and discomforting for the patients suffering from it. Awareness of the causes, symptoms, and all possible available treatments is essential for the management of the disease.
#causes of axial spondyloarthiritis#symptoms of axial spondyloarthiritis#Axial Spondyloarthritis Market size#Axial Spondyloarthritis market#Axial Spondyloarthritis
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do i have any nr-axspa Or AS followers. or people seeing this since i’m gonna put it in the tags. has anyone managed to get any actual prescription painkillers that actually do Shit,
#ankylosing spondylitis#i probably need to up my gabapentin scrip. but also.#non-radiographic axial spondyloarthritis#AS#nr-axspa#jesus christ.#i’m on a biologic and not Displaying inflammation markers as per last mri#and i take a bunch of other stuff but nothing just. For Pain#personal#the problems
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Not doing so hot tbh.
My Rheum thinks what I've got going on is inflammatory arthritis. Haven't narrowed it down quite yet but I can say, I'm pretty sure it's not rheumatoid, as my joints move fine usually (loss of ROM is from pain or stiffness, joints still move smoothly), I don't have psoriasis, or GI issues like crohn's or colitis, nor have I had an infection in any joints. So that basically narrows it down to: Ankylosing Spondylitis, or non-radiographic axial spondyloarthritis (sp?).
Which... My dad has AS with several fusions in his lumbar vertebrae. Partly surgical from an injury, but more Ankylosed further up after the damage.
I have the generally expected morning stiffness, can't stay still for long (though this doesn't mean I'm active, just fidgety and I move my legs/hips and pop/stretch my back a lot), and had pain in my shins and feet when I did walk and stand a lot. Not so much now but I don't spend much time standing. The tendons/ligaments in my hips are so tight it feels like steel cables. It's gross and it hurts. I don't have eye issues at the moment. And I am HLA-B27-. So I kind of suspect nrAxSpa rather than AS unless my SI joint is worse than I expect. I am getting xrays soon (again, in HD) of my spine, one shoulder that's swollen, and my SI joint.
I hope it's not AS, I don't want a degenerative autoimmune condition but considering my dad with AS and my sister with Lupus, it seems kind of inevitable.
I had been preparing myself for a fibromyalgia dx to be honest.
Anybody have tips? Meds that worked if you have AS? Tips for coming to terms with a scary diagnosis? I don't want my spine to fuse, it really scares me. I'm already in enough pain.
#ankylosing spondylitis#non radiographic axial spondyloarthritis#autoimmune disorders#Coping with chronic illness
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So i have to take this painkiller for 10 days, it's supposed to help get rid of joint inflammations and what not and like… I had forgotten how it feels to not be in pain.. o_o
After those 10 days i can take it "if needed", but i'm not yet sure when "needed" starts. This 10 day period of almost no pain is helping to calibrate for sure, but… it's a learning process i guess
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I just think it's funny that the diagnosis I briefly researched while bored at my sister's house a few months ago thinking "oh that sounds a lot like what's going on with me" ended up being what the rheumatologist is tentatively saying is what's going on with me
#not writing#personal#non-radiographic axial spondyloarthritis or nr-axSpA btw#basically spondyloathritis that doesn't show up in imaging which was the selling point when I stumbled across it online#the super fun part is if the medicine I'm going to try out gets covered by my insurance I'll be self-injecting once a month yay#super love getting shots /s
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Are there any keywords or special phrases that'll make folks listen to me? Cause I've tried telling people about how my spine feels like it's trying to rip itself from my back every single day and how that pain radiates into my legs and arms. But since I'm a minor all I get is "it's your posture :)" [I sit with good posture all dang day and nothing changes]. At this point I'm taking so much ibuprofen just to function that I fear for my organs. Anything I can do? I'm at a loss.
god, i fucking wish there was something that would guarantee that people listen, i’m so sorry you’re going through this. i don’t have the source on hand at the moment but as much as 80% of people have so-called “bad posture” and that many people do not have juvenile chronic back pain; something is very wrong and i’m sorry no one is taking that seriously.
back pain is classified into two categories: mechanical and inflammatory. mechanical could be something like a herniated disc, due to something like scoliosis, etc; it’s due to a trauma (as in injury) or genetic/environmental/etc factors that are affecting the position of the spine. mechanical back pain gets better with rest.
i unfortunately know too many experiences of egregious medical neglect in general and with scoliosis in particular to assume someone would have noticed that if you have it & communicated that with you, so tbh i’d see if you can find an explanation of checking for scoliosis signs (ideally geared towards healthcare professionals) and an observant, trusted friend and do that with them. other mechanical sources of pain are likely to be caught on an MRI, although no one imaging session is ever a 100% guarantee.
inflammatory back pain is what i’m more familiar with; this would be due to an autoimmune condition such as ankylosing spondylitis or axial spondyloarthritis secondary to psoriatic arthritis, crohn’s disease, etc. the key words you want to use if you think this describes your experiences are:
started gradually; got worse over time. (AS back pain is characteristically described as “insidious” for its gradual onset)
stiffness in the morning that lasts [duration longer than 30 minutes].
gets better with movement and worse with rest. (symptom summaries will say “better with exercise,” to which i say have you met a chronically ill person)
NSAIDs help. (this is just a point of diagnostic criteria, which in my opinion is bullshit because NSAIDs are hot garbage. you & others absolutely might have AS without NSAIDs helping)
any pain in your sacroiliac (SI) joint and/or gluteal muscles.
unfortunately, i have listed these exact symptoms to multiple doctors while having an existing AS diagnosis and been told nothing is wrong. there is no limit to how much they are willing to lie & gaslight you, and in many if not most cases, neglect is not preventable by the victim even if we present perfectly. the neglect & trauma you are experiencing are not your fault, and i am holding you in my heart & hoping that you receive the quality, compassionate, comprehensive care you deserve as soon as possible.
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monday, november 21st, 2022.
somewhat of a lazy day ft. Fig
my pal @kaylaeljwritesthings was over for a little bit and took these photos of myself and Fig. My hair is very messy but we’re going with it.
Did some copywriting work and worked on a holiday AxSpa article.
today’s song stuck in my head:
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POV: you suffer from chronic pain
#kiwi thinks#I had to wake up my husband to help me get out of bed#I was in too much pain#and my back too stiff#fuck i hate this#just axial spondyloarthritis things
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Cosentyx meets Phase III goals in axial spondyloarthritis patients
Novartis has revealed extra information from the continuous Stage III Forestall clinical preliminary of Cosentyx (secukinumab), where all essential and optional endpoints were met in patients experiencing non-radiographic axial spondyloarthritis (nr-axSpA).
ovartis has revealed extra information from the continuous Stage III Forestall clinical preliminary of Cosentyx (secukinumab), where all essential and optional endpoints were met in patients experiencing non-radiographic axial spondyloarthritis (nr-axSpA).
Cosentyx is a completely human biologic intended for the immediate hindrance of interleukin-17A (IL-17A), which is related with psoriatic joint pain (public service announcement), psoriasis (PsO) and ankylosing spondylitis (AS). For more MoA insights into the Axial Spondyloarthritis marketed drugs, download a free report sample
The two-year randomized, twofold visually impaired, fake treatment controlled Forestall preliminary assessed the security and viability of Cosentyx in 555 grown-ups with dynamic nr-axSpA, including 501 biologic guileless subjects.
It selected patients on the most elevated portion of at least two non-steroidal mitigating drugs (NSAIDs) as long as about a month prior to inception.
Members got 150mg subcutaneous Cosentyx regardless of a stacking portion or fake treatment.
The essential endpoints are the extent of subjects encountering an, not entirely set in stone as a diminishing in sickness action, with Cosentyx at weeks 16 and 52.
The preliminary's auxiliary endpoints remembered the change for Shower Ankylosing Spondylitis , Axial Spondyloarthritis Marketed and Pipeline Drugs Market Sickness Movement List (BASDAI) over the long run and change in the Ankylosing Spondylitis Illness Action Score with CRP (ASDAS-CRP).
ASAS40 is considered to have been accomplished when there is an improvement of no less than 40%, as well as at least ten units on a 0-100 scale in at least three of the patient worldwide evaluation, torment appraisal, capability and irritation.
In the interim, BASDAI looks at a patient's sickness action on exhaustion, spinal torment, joint torment/expanding, enthesitis, as well as morning firmness length and seriousness.
The Stage III preliminary exhibited a critical and clinically significant lessening in sickness movement at week 16 when treated with Cosentyx contrasted with fake treatment.
The security profile saw during the review was reliable with past preliminary information.
Novartis worldwide medication improvement head and boss clinical official John Tsai said: "These review results for Cosentyx expand on our well established insight in ankylosing spondylitis and are a stage toward another treatment choice that could permit patients to acknowledge help significantly sooner in axial spondyloarthritis.
"Whenever supported, this would be the fourth sign for Cosentyx."
The medication has been utilized to treat in excess of 250,000 patients with axial spondyloarthritis, psoriatic joint pain and psoriatic illness.
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#Non-Radiographic Axial Spondyloarthritis Therapeutics Market Size#Non-Radiographic Axial Spondyloarthritis Therapeutics Market Share#Non-Radiographic Axial Spondyloarthritis Therapeutics Market Trends#Non-Radiographic Axial Spondyloarthritis Therapeutics Market Growth#Non-Radiographic Axial Spondyloarthritis Therapeutics Market Demands#Non-Radiographic Axial Spondyloarthritis Therapeutics Market Opportunities#Non-Radiographic Axial Spondyloarthritis Therapeutics Market scope#Non-Radiographic Axial Spondyloarthritis Therapeutics Market value#Non-Radiographic Axial Spondyloarthritis Therapeutics Market Strategies#Non-Radiographic Axial Spondyloarthritis Therapeutics Market Analysis.
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#Axial Spondyloarthritis Drugs Market#Axial Spondyloarthritis Drugs Market Research#Axial Spondyloarthritis Drugs Market Trend
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Non-Radiographic Axial Spondyloarthritis
By Jonathan Chan, MD, as told to Hallie Levine
Confused about the difference between ankylosing spondylitis, axial spondyloarthritis, and non-radiographic axial spondyloarthritis? With so many similar-sounding terms, it can be hard to know what’s what. WebMD reached out to rheumatologist Jonathan Chan, MD, for answers to some of your most pressing questions. Here’s what you need to know.
What Is…
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