#axspa
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the long-awaited (by me) info sheet on ankylosing spondylitis symptoms, research, and myth debunking is now available! send it to your friends, your enemies, your chronic illness groupchats, print it out and staple it to your local telephone polls - and please let me know if this is helpful, if you have questions, and if there’s anything you think should be added!
https://docs.google.com/document/d/1LLfI4ACQyiiLViyqVO030cTalZAFGfmu8n5-KuLzrrg/edit
#ankylosing spondylitis#axial spondyloarthritis#axspa#chronic pain#chronic illness#back pain#lower back pain#knee problems#knee pain#rheumatic diseases#mac.txt
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a cousin of mine told me she’s “so sorry to hear” that i have to use a walker now and i know she means well but using a walker has been a life-changing positive change in my life so getting pitied for it makes me so uncomfortable
#like i don’t blame her im not mad i know she doesn’t mean it badly#but it makes me frustrated#cause i’m so happy i was finally able to get a walker#it’s a major positive change for me!!!#pots#spondyloarthritis#axspa#chronic illness#chronic pain
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Hello everyone,
I am new here. I was diagnosed with ankylosing spondylitis in december '21. Through this way I want to share my story, spread awareness, and so much more. If you are interest, you can always follow me or send me a message. Take care abt yourself🦋
#new here#axspa#ziekte van Bechterew#chronic illness#positive thoughts#AS#ankylosing spondylitis#reuma#justlivewithit#awareness#blogging
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do i have any nr-axspa Or AS followers. or people seeing this since i’m gonna put it in the tags. has anyone managed to get any actual prescription painkillers that actually do Shit,
#ankylosing spondylitis#i probably need to up my gabapentin scrip. but also.#non-radiographic axial spondyloarthritis#AS#nr-axspa#jesus christ.#i’m on a biologic and not Displaying inflammation markers as per last mri#and i take a bunch of other stuff but nothing just. For Pain#personal#the problems
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cant move our bodies well before noon bc we have the arthritis of a 70 year old: mox 🤝 me
#genuinely hin saying he cant move or wrestle before noon bc his body cant move#me too dude me too#the nr-axspa life babes get on our level
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Personal update
Hey guys, I finally have some answers about what's wrong with me and why I'm in pain. Turns out I have fibromyalgia AND either seronegative RA, undifferentiated inflammatory arthritis, or possibly NR-AxSpa if my MRI comes back positive for damage.
Feels bad man.
Feels real bad. Wasn't expecting multiple diagnoses for some reason. But knowing I have both makes me feel kind of justified in my pain in a way, like even a doctor will admit I'm in serious pain every day. It's weird and feels wrong to be treated with respect and care, and to have an answer. I feel... Kinda sick tbh. I was already in a flare.
Update lol: it's actually all three. Seronegative RA, Fibro, and Inflammatory Spondyloarthritis. Go team! Fuck this meat prison
#Kinda wanna barf#kinda wanna cry#Kinda wanna die /j#I want to crawl into a hole and hide to be honest I'm not ready to be this sick and I know I'm sooooo early on I want to fucking BARF omfg#Literally sick to my stomach at the thought of any of those much less fibro plus another one.#Fibro is what I first expected#Then AS/AxSpa#Then seronegative RA#I fucking diagnosed myself dude#This is mad weird.
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contemplating getting a head start on NaNo cuz I get the feeling...for REASONS UNKNOWN *slams hands repeatedly on table*...that I'm not gonna be up for writing at all again for a bit 😒
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Does anyone have any personal recommendations for online forums or support groups for chronic pain/arthritis/nr-axspa/ankylosing spondylitis?
I know there are sites to find open discord severs for these things, but with my social anxiety I’d really love if I could hear some like.. actual recs or something.
#chronic pain#disability#arthritis#nr axspa#ankylosing spondylitis#rheumatology#disabled#disabilties#support groups#my specific diagnosis is nr axspa btw but this all relate I feel#a talking onion#tagging this to hell and back in hopes someone sees it
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monday, november 21st, 2022.
somewhat of a lazy day ft. Fig
my pal @kaylaeljwritesthings was over for a little bit and took these photos of myself and Fig. My hair is very messy but we’re going with it.
Did some copywriting work and worked on a holiday AxSpa article.
today’s song stuck in my head:
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tumblr keeps giving me ankylosing spondyloarthritis ads like ok i get it i'll talk to my rheum about nr-axspa when i see her again
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God I hate having AxSpA so much
#I just wanna SLEEP#now I’m gonna be grumpy and eepy all day#trying to function on 5 hours of sleep while handling dangerous chemicals#WOO#can I just tell my immune system that my spine is a normal part of my body#like no need to attack it
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my girlfriend, doing her med school rheumatology unit feedback after they perpetuated the myth that ankylosing spondylitis has a 3:1 male:female incidence rate: and of course i’m going to mention the bullshit about AS—you don’t happen to have that citation, do you?
me, already pulling up the google doc: oh of course i do
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god i’m so fucking frustrated i haven’t been able to get my very important medication for my nr-axspa and my stupid insurance makes me fill it through this useless specialty pharmacy bc it’s a “specialty medication” and this pharmacy will not fill it and i thought it was finally fixed and id get my fucking medicine but no!!! there’s another fucking issue!!! cool great cool
#vent#i just want my medication!!!!#im os fucking mad i just need to ramble angrily on the internet for a second#i have to call them too i hate making calls this sucks :(#the specialty pharmacy is only online too :/ which makes things so difficult
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The US Axial Spondyloarthritis market is anticipated to reach a ~USD 2.3 Bn. industry by 2028: Ken Research
The United States Axial Spondyloarthritis market which currently has a market size of ~USD 1.3 Bn. is projected to grow at a CAGR of ~9.5% in the next five years as per the findings of Ken Research.
Story Outline
Rising cases of Axial Spondyloarthritis pose as a demand for the correct diagnosis and treatment of AxSpA which helps in the growth of US AxSpA market.
Increasing US health expenditure allows hospitals, research institutes and pharmaceutical company to research, diagnose, and treat AxSpA thereby accelerating the US AxSpA market.
Technological advancements in diagnosing AxSpA such as MRI, CT scan, and ultrasound can provide early and correct diagnosis which pumps the US AxSpA market.
Availability of various treatment options also help in the effective and efficient treatment of AxSpA which contributes in the growth of US AxSpA market.
A fast growing industry, rising cases of Axial Spondyloarthritis, increasing health expenditure, and technological advancements along with the availability of many treatment methods are the various reasons that are contributing to the growth of US Axial Spondyloarthritis market. This market is projected to grow at a CAGR of ~9.5% in between 2022-2028.
Click to read more about US Axial Spondyloarthritis market
Rising cases of Axial Spondyloarthritis: accelerating the US AxSpA market
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Axial Spondyloarthritis is group of inflammatory disorders which have the traits of autoimmune diseases. It is primarily of two types, i.e., Ankylosing Spondylitis and Non-radiographic Axial Spondyloarthritis. The prevalence of Axial Spondyloarthritis is very high in the United States. It ranges in between 0.9% to 1.4%. Moreover, in the United States, more than 3 million people suffer from Axial Spondyloarthritis.
It’s one of the most common subtype, i.e., Ankylosing Spondylitis almost affects 1% of the US population. Its second type, i.e., Non-Radiographic Axial Spondyloarthritis affects about 0.5% of the US population. Speaking of its incidence rate, it was 0.39 in 2007 and rose from 0.39 to 0.57 in 2017. It is clear that the cases of Axial Spondyloarthritis is only rising in the United States and we will be seeing more cases of it in the near future.
Axial Spondyloarthritis is primarily caused by the presence of HLA-B27 gene and a high number of people in the US have this gene which increases their chances of developing Axial Spondyloarthritis in the future.
Overall, the prevalence of this gene is 3.5% in overall US population. Almost 7.5% of the Hispanic-White people have this gene. This gene is present in about 4.5% of the American-Mexican people. Lastly, 1% of Black-Non-Hispanic people have this gene. With such high prevalence of Axial Spondyloarthritis, there becomes a greater need to correctly diagnose the patients and furthermore, correctly treat them which ultimately helps in the growth of US Axial Spondyloarthritis market.
Rising health expenditure: contributing in the growth of US AxSpA market
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The national health expenditure in the US has been constantly rising in the United States. The rising health expenditure helps hospitals, research institutes and pharmaceutical companies in correctly diagnosing and treating AxSpA. It also helps pharmaceutical companies in developing more medicines and therapies to help in the effective and efficient treatment of AxSpA.
In 2017, the US government made a health expenditure of ~USD 3.4 Tn. In 2018, ~USD 3.6 Tn. worth of expenditure was made in the healthcare sector. In 2019, this amount rose to ~USD 3.7 Tn. In 2020, a healthcare budget worth of ~USD 4.1 Tn. was allocated. Lastly in 2021, the US government made a healthcare expenditure of ~USD 4.2 Tn.
As it is evident, that the healthcare expenditure in the United States have only been rising and it is projected to rise further in the upcoming years. The rising expenditure would allow hospitals, diagnostic laboratories, pharmaceutical companies and research institutes to research, diagnose, and treat Axial Spondyloarthritis along with develop first line medicines and alternative therapies to effectively treat Axial Spondyloarthritis.
Technological advancements: a boon for the US Axial Spondyloarthritis market
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Various technologies are used in the effective and correct diagnosis of Axial Spondyloarthritis. Some of the most common technologies used in the diagnosis of Axial Spondyloarthritis include Magnetic Resonance Imaging (MRI), Ultrasound, Gene Testing, and Computerized Tomography (CT) scan.
A Magnetic Resonance Imaging (MRI) is the most common method of diagnosing Axial Spondyloarthritis. This technology works by taking the cross-sectional images of your body parts with the help of radio waves and magnetic field.
It has a success rate of almost 80 to 97%. It helps in AxSpA diagnosis as it has the ability to detect early changes happening in the Sacroiliitis.
Ultrasound is another technology that is primarily used to diagnose AxSpA. It works by sending the body sound signals or ways as the internal body is examined. It is primarily used to take a look at the inflammation of Sacroiliac Joints to diagnose Ankylosing Spondylitis. The success rate of ultrasound ranges from 90% to 97%.
A Computerized Tomography (CT) scan is another technology that is used to diagnose AxSpA. It provides valuable information in regard for osteoporosis, ankyloses, erosion etc. which extremely helps in making the correct diagnosis of AxSpA. This scan has a success rate of almost 85%.
Thus, technology is indeed a boom for the US AxSpA market as the task of correctly diagnosing ankylosing spondylitis and non-radiographic Axial Spondyloarthritis has become greatly easier. With these technological advancements, early diagnosis is made which accelerates the US AxSpA market.
Availability of many treatment methods:
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There are many treatment options when it comes to Axial Spondyloarthritis. NSAIDs, Biologics, Analgesics, and Glucocorticoids are primarily used in the effective treatment of Axial Spondyloarthritis.
NSAIDs is an initialism for Non-Steroidal Anti-inflammatory drugs. These drugs are the first line treatment of AxSpA which causes high pain and inflammation. These drugs reduce the pain and inflammation. The most common NSAIDs used in the treatment of AxSpA include Ibuprofen, Naproxen, and Diclofenac.
Biologics are another set of medications that are primarily used to treat Axial Spondyloarthritis. These medicines are generally given to such patients who do not respond to NSAIDs. Common biologics used to treat AxSpA include Adalimumab, Etanercept, Infliximab, Crtolizumab pegol, etc.
Sulfasalazine is a type of anti-rheumatic drugs which is primarily given to patients who complain of pain in other joints than the spine and pelvis ones. Moreover, this drug also has is known to make your back less painful and stiff.
Glucocorticoids can be best described as a type of steroids which are generally given for pain relief. These are anti-inflammatory and generally come in the form of injections.
Thus, there are many treatment options available for the treatment of Axial Spondyloarthritis. As the treatment options are widely present, more and more patients widely benefit from them which ultimately accelerates the US AxSpA market.
Conclusion
Axial Spondyloarthritis is an inflammatory health condition which is of two types, Ankylosing Spondylitis and Non-Radiographic Axial Spondyloarthritis. The US AxSpA market is associated with the diagnosis and treatment of AxSpA.
There are various factors responsible for the growth of this market which include rising cases of Axial Spondyloarthritis, increasing health expenditure, and technological advancements along with the availability of many treatment methods. As per Ken Research, this market is projected to grow at a CAGR of ~9.5% in the next five years.
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I saw your post about AxSpA and getting medication for it (a few months late I know) and the only thing my rheumatologist ever prescribed was ibuprofen or a different nsaid, the best one was etoricoxib, the only minor inconvenience is that I am allergic to it and had to find out the hard way. She doesn’t want to put me on immunosuppressants until I show signs of fusion (cause of insurance in my country so switching to a different rheumy wouldn’t work) so yea, I haven’t gotten anything that *truly* helps
hey sorry this is a fucking nightmare. do you have like patient advocates accessible to you you should ABSOLUTELY be on a biologic or some equivalent the goal is to PREVENT fusion in the first place. i've been on cimzia and then simponi for years without fusion and am grateful for it every day i. man i'm really sorry if there's Anything you can do i really do recommend and support pushing as hard as you can for real treatment. it's so lucky to be able to get a diagnosis Without fusion your rheum should be taking advantage of that to help you ☹️☹️☹️
re the rest of it i'm banned from otc nsaids because i'm on celebrex lol. SAD. sorry about your allergy that just happened to a friend of mine as well and it really sucks 😭😭😭
#i'm actually doing a bit better lately :) my rheum is awesome and has been referring me for all kinds of stuff#feel free to come off anon also btw i love to chat arthritis!#genuinely good luck out there also. wishing your rheum a very grow a brain ☹️#asks#anonymous#the problems#at the very least you should request gabapentin and/or steroids btw. low dose prednisone is awesome and gabapentin's like a miracle drug
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I am finally officially Diagnosed physically.
Rheumatoid Arthritis, Fibromyalgia, and Inflammatory Spondyloarthripathy at several sites in Spine. Which I'm pretty sure is one step below NR-AxSpa. So yeah. I have all three, which is why I couldn't figure out which "one" I had on my own. These were the three conditions I had settled on as options, basically. Feels bad man.
At least I can start Humira this week or early next week. Still can't believe I didn't have to get a PA. And that it's actually going to be free like the rest of my meds. If they weren't I'd not be able to be on much of any of them, and I'm reliant on them to function. Yet another reason I'm thankful to have been a foster kid for at least a year. Too bad I can't keep this insurance forever. It's almost like living in a world with universal Healthcare. But that's far too much to ask in the good ol USA, huh?
Lots of conflicting feelings right now.
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