#actually diabetic
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i want you all to understand this.
insulin pens are very often used by diabetic children (or their parents, but they were very easy to use during the short time i was prescribed them when i was a child myself). they’re less cumbersome, produce less waste, and are far easier than pulling insulin from a vial with a single use syringe, as syringes are much more susceptible to air bubbles, which result in the diabetic not getting enough medication. i’m explaining this part because i know that some diabetic adults do also use them, and i’m sure that that’s true of diabetic adults in palestine with such scarce resources. when it’s life or death, you can’t really be picky.
the israeli occupation is now banning insulin pens from entering gaza.
lack of insulin results in diabetic ketoacidosis — essentially a very, very dangerous version of the effects of the keto diet. insulin is a key for the sugar from one’s food (both slow and fast acting, since all food has some carbohydrates, from nuts to potatoes to table sugar) to get from their bloodstream into their cells. without insulin, the body resorts to eating through its own fat stores rather than the sugar it cannot access and tries to flush the excess glucose that is in the blood through the urine. this results in weight loss, headaches, nausea, dehydration, blurred vision, abdominal pain, impaired mental faculties, and, if left untreated, will result in a coma, and eventually death within a matter of weeks. not “can.” it will kill you if not treated, and was largely considered a lethal diagnosis until insulin was discovered in the early 1900s and made readily available in 1922.
i’ve been in dka. admittedly, i was very young and have blocked much of it out. but i do remember that it fucking sucked. i couldn’t focus on anything, i was ravenous no matter how much i ate, and the room spinning to the point i felt like i was going to throw up became an increasingly regular occurrence. i was seven years old and wasting away like i was starved. i was dying. a few more days, and i likely would’ve gone into a coma and might not be here now.
to inflict that, willingly and knowingly, on innocent people, is nothing short of a crime against humanity, and violates the geneva conventions (item 2.a.ii. torture or inhumane treatment, including biological experiments and item 2.a.iii. willfully causing great suffering or serious injury to body or health). not that the israeli occupation cares, of course, as south african prosecutors have already extensively detailed their crimes in the icj, and this one in particular has already been committed near-countless times.
this entire occupation is a genocide, and this is only one more nail in that coffin. but, as a diabetic — as a human being who has been in that state and was lucky enough to have the resources to live almost another fifteen years (with the anniversary of my own diagnosis about halfway through next month), i can’t find the words to express my disgust and rage anymore. maybe it’s selfish to be so deeply impacted by this particular blow. i don’t know. but these people have done nothing wrong but be disabled in gaza, and as someone with the same disability, i know that no one deserves this, even if they have committed a crime (which, again, these civilians, largely children, have not). i will not fucking stand for it.
we need a ceasefire. we need an end to the occupation. we need a free palestine. now.
here’s a masterpost of how you can help.
EDIT: here’s a post on how to help diabetics in gaza specifically
#free palestine#free gaza#israeli war crimes#actuallydiabetic#actually diabetic#actuallydisabled#actually disabled#shut up emrys
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Happy Pride Month to all those with chronic illness and disabilities!! Pride is not only for those who are healthy. You have just as much of a right to be here as anyone else, and you have love and support from your community.
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#chronic illness#actually chronically ill#chronic illness memes#chronic fatigue#chronic pain#health issues#long haul covid#long covid#covid19#type one diabetes#type one diabetic#actually diabetic#I AM TIRED OF BEING SICK AND TIRED!!#dysautonomia
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i love you diabetics.
i love you type 1s, i love you type 1.5s, i love you type 2s, i love you prediabetics, i love you gestational diabetics, i love you diabetics who don't fit into a single type/have a specific type not mentioned here, i love you recently diagnosed diabetics, i love you diagnosed years ago diabetics, i love you diabetics who use CGMs, i love you diabetics who prick their fingers, i love you diabetics who do MDIs and fight with needles, i love you diabetics who use pods/pumps/infusion sets, i love you diabetics who use insulin inhalers, i love you diabetics who are sick and tired, i love you diabetics who went into DKA, i love you diabetics who have "bad" a1c, i love you diabetics that are struggling to stay motivated to care care of yourselves. i love you diabetics!!!!!!!!!
#and even if you weren't mentioned here somehow (i'm very sorry) and i love you!!!!!!!!!!!!!!!!!!!#tallorambles#t1d#t2d#diabetes#actually diabetic#actually disabled#spoonie#spoonies#disability positivity#type one diabetic#type two diabetic#type 1 diabetes#type 2 diabetic#type 1 diabetic#type 2 diabetes#OK I THINK IM DONE#sorry i made this because i am so so tired rn and want to spread positivity and love to my fellow so so tired diabetics#needle ment#needle mention#needle
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diabetic nutrition is: avoid carbs :)) but also dont :) use healthy fat :))) but also don't because it makes your BG unpredictable :) eat protein :) but have some carbs otherwise it raises your BG :))) watch out for spikes after breakfast :)) but also you need to eat breakfast with carbs or your liver gets angy :) and floods you with sugar :))))))
#b4 anyone gets angry i know it's all in moderation but it's overwhelming ok 👍#actually diabetic#diabetes#type 1 diabetic#type 1 diabetes#t1d#type 2 diabetes
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if youre ever going low but think "hmm i'm too lazy to go eat something maybe it'll go away in a couple minutes" dont listen. thats the devil talking
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We can’t rage bolus our way out of this one, boys.
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It's World Diabetes Day!
Update: it is no longer World Diabetes Day. We did it guys! We're cured!
So here is Ed Gamble (diagnosed T1 aged thirteen) devouring eight desserts in a row as a judge on Great British Menu and having an absolutely lovely time.
plus a few words from the greedy boy himself:
Ed Gamble, Glutton: The Multi-Course Life of a Very Greedy Boy, 2023
and finally a lil bonus arms, cat, Dexcom appreciation
#ed gamble#world diabetes day 2023#ed talking about his t1d#great british menu#diabetes#type 1 diabetes#actually diabetic#this idiot was genuinely my inspiration as a kid#flashbacks to when all my friends were getting into bts and tom holland when we were like 15#and i was just like yeah but what about this dumbass comedian#tbf they all love him just as much as me now thanks to taskmaster and off menu
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Thinking about how low bg is kind of a medical emergency, in the sense that if not urgently treated it is life-threatening, but it doesn't feel like a medical emergency because the treatment is like, drinking juice and waiting 20 mins then it's fine. It's just another Tuesday.
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My glucometer is so friendly to me. Hi guy!!! 😊✨😁☀️ hi friendo !!!
#diabetes#posts I can’t make on Facebook because people will sad react and ask me if I’m ok#it’s funny!!!! I took insulin!!!!! let me have my gallows humor it’s how I keep going!!!#actually diabetic#my post
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actually wait i can just make a post about this lmao
diabetics who may struggle to get the insulin they need, read below the cut 👇
hi! i’m ariona and i’m a type one diabetic and have been since i was 14! i struggled a lot to get the insulin i needed for a long time, but now, closing in on a decade since my diagnosis (nine years in february!) i and my fellow diabetic family members (an aunt and two cousins) have become fortunate enough to wind up in a place in life where we altogether have a LOT of extra insulin, thanks to being lucky enough to have decent insurance either through our state (washington) or through our jobs, and also thanks to my badass endocrinologist who is ALSO t1d who writes my prescriptions specifically to get me as much insulin as my insurance will allow every month.
basically: we have a lot of insulin, more than what we need for an emergency backup stock, and we’re at a point where we’re worried that it might start to expire before it can be used and have been looking into places we could take it to help people who need it more than we do, that way this literal life saving hormone can help keep people alive.
we have:
mostly novolog (mostly vials, but i believe some pens as well)
humalog (not much, but some)
some lantus pens
i currently take fiasp but have no negative reactions to novolog or humalog, so i can use either of them in place of fiasp as well
my insulin gets delivered so we have easy access to like little coolers and ice packs that can be used to ship insulin, and i’m not super well off financially but i will happily pay shipping if i can afford it to send this insulin to anyone who needs it!
i don’t want money, i don’t want anything in return. when i was first diagnosed we struggled a LOT with getting the insulin i needed, especially since i struggle badly with insulin resistance and it took a few years before i was being given the amount i needed to not constantly battle super high blood sugar, and thankfully i had a pharmacist at the time who was willing to bend the rules for us in order to save me multiple hospital trips, and now that i’m in a place capable of doing the same for others, i want to
my dm’s are open, my ask box is open, if anyone is in need of insulin or even just wants to take a couple vials for backups just in case, please reach out!!
EDITING TO ADD:
we also have extra supplies in general! i used to have a medtronic pump and have a lot of extra supplies from that, and we have a shit ton of syringes and stuff. idk how shipping syringes would work ?? but i can look into it and see what we can do!! basically if you need something, there’s a chance we have it, so reach out!! if we don’t have it then i can also do some research to see if there’s anywhere i can point you to instead to help you out!!
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When most people say "That has so many carbs!" It's toxic diet culture
When I say "That has so many carbs!" I am complaining about the fact that I'll have to spend so much insulin and I don't want it to run out so fast
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extremely selfish of you to be born needing help, maybe try killing yourself instead?
#this is what it feels like to be disabled KFKFKDKFKF#actually autistic#autistic#autism#type one diabetes#type one diabetic#actually diabetic#t1d#diabetes#diabetic#actually chronically ill#disability#disabled#actually disabled#ocd#actually ocd#actuallychronicallyill#actually mentally ill
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beautiful women named "dexcom g6 app" keep texting me on my phone
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how to write a diabetic character: CGM edition
is your diabetic character wearing a CGM? do they have to?
CGMs
these are Continous Glucose Monitors that can detect how much sugar is in your bloodstream.
How are they different than tradtional fingerprick (blood) tests? they take blood sugar readings 24/7, and provide you with how your sugars are doing at all times, rather than just at that moment. This leads to tremendously better control over blood sugar.
The way they work is that they can "sample" your blood sugar by testing your subcutaneous tissue for sugar levels then adjusting that value.
However, they're less accurate than a fingerprick (blood) reading and will often "lag" behind by about 15 minutes.
SO if you have a character who is expereincing low or high blood sugar - they'd get an alarm on their CGM, and then they might take a fingerprick reading to make sure. CGM false alarms DO exist and it can cause some very annoying situations.
A less careful/depressed/struggling/burnt out character might
A. not care or "sleep through" alarms
B. not double check with a finger prick
C. not care that they're wearing a CGM - pump into stuff or just rip it off (although they are very expensive!).
can you mute them? yes, and a character might choose to do this while they're sleeping, having an exam, or if they know they're about to fuck up their blood sugar.
how long do they last? the libre ones last 14 days. the dexcom ones last up to 10 days.
can you shower with them? yes
can you swim with them? yes
can you have sex with them on? yes, and i've read very funny anecdotes from diabetics having to pause during sex because their cgm was beeping
are they expensive? yes! sometimes, they're covered by insurance, but not completely. If a character is in poverty, or do not have insurance, they likely would have to rely solely on fingerpricks.
Who usually uses CGMs? they are very widespread between T1Ds and are increasingly being used by T2Ds as well.
can you share the readings on multiple devices? yes! your character might share their info with their SO, parents, roommates, close friends...etc. It is genuienly one of the most telling signs of a close relationship between people - because those people will see your "mistakes" and decisions.
where do you stick them? the libre ones (circular ones) officially just go on the back of your arm. The dexcom ones can go on just about anywhere that's "soft" - stomach, thighs, back of arm, chest...etc.
does putting them on hurt? sometimes! the way they are installed involves a needle going into the skin then sitting in the subcutaneous tissue. This can sometimes cause some bleeding, and soreness for a few hours.
Often times the process is completely painless, but this is not the case for everyone. A thinner character might struggle to find a place "cushy" enough for a cgm.
can you put them on your own? yes the process is made for one person to stick it on, but i've seen some couples on instagram act all romantic and sappy about applying it together, so that should give you some ideas for your diabetic characters' budding romances ;)
Some CGMs are just naturally faulty, i'd say about 4 sensors is a busted one, and in that case you'll have to replace them - which most companies just do without any hassle.
do they work with insulin pumps? some insulin pumps can work in tangent with CGMs and provide feedback for the user to automatically generate the correct doses of insulin, depending on their current blood sugar.
do they come off easily? depends on who you're asking. some people swear up and down that they never last and have to put on patches, which are admittedly very cute. Weather, clothing, and how clumsy a character is all factor in this. For me personally i just put them on raw and keep them together by sheer willpower.
CGMs can cause anxiety in diabetics. The constant flow of information can easily burnout people, and this can possibly be the case for any diabetic character you might write. Seeing arrows going down or up can be very distressing, especially knowing how painful some of the consequences are. I personally take breaks for both myself and my wallet from using CGMs to avoid burn out.
nonetheless, CGMs are WONDERFUL pieces of technology that have personally made me much happier as a diabetic, freer and a lot more independent.
does your character want their CGM to show? lots of people, including myself don't like revealing their CGMs - but your character might like showing them off!
and lastly - my favorite thing about CGMs - taking them off and having a "naked" shower once a month where i dont have to worry about it coming off.
- They look like this:
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I think all cgm apps should have a little 'perfect parry' sign to pop up every time time you have a Special Treat but dose your insulin perfectly & your blood sugar doesn't spike up
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