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andivmg · 3 months

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speak up andi, I beg of you, you have been mistreated the most here, I know it took shubble a lot of courage but she has helped so many people

i want to start this off by saying it is not a competition and i do not want to compare my experience to anybody else’s. shubble is so fucking strong and i admire her and everyone else who has spoken up about experiencing abuse endlessly.

DISCLAIMER 1

this is way longer than i intended it to be. i did not plan to go into as much depth as i did but the words just kinda kept coming and i kept thinking that if someone else is in a similar situation to the one i was in, it would be good to point out even some of the smaller details so that they can see that these behaviors are not something to be overlooked and could be a symptom of a bigger issue… idk. i apologize for how lengthy and wordy this is but i hope it all makes sense somehow

DISCLAIMER 2

a lot of you know who one of my exes is and i am asking you to please not make this about him. i am simply sharing my experience with some of my past relationships in hopes that they help someone else. i beg of you, do not go on twitter making threads speculating on whatever because it’s just going to cause me a bunch of problems and i don’t want this to be brought to his attention. if you share my story, please do not do it with the intent of starting drama. if you share my story, focus on the behaviors i am talking about instead of trying to figure out if it’s about him.

DISCLAIMER 3

this goes without saying but i’ll put it here anyway: i will be talking about toxic relationships, mention of self harm, mention of sex, implied violence. if any of these topics are triggering to you please scroll away, protect yourself.

I have been in a lot of relationships, but there are 4 that i would truly identify as the ones who had the biggest impact on me. Two of those i would consider emotional mistreatment. I don’t want to say i was abused for reasons that i will be discussing with my therapist this week, but i can certainly say i was mistreated. For the sake of privacy, i will be referring to these two dudes as 1 and 6.

I think the biggest difference between 1 and 6 is that 6 was obsessed with me to the point where i felt like i was being suffocated, whereas i’m not sure if 1 ever cared about me in the first place.

6 and i started out pretty normally. we had a bunch of friends in common and we were around the same people. so eventually, we became friends too. we would text and call all the time until feelings developed into a relationship. in the beginning he was really sweet and caring, saying all the right things that got me falling head over heels. now, something important to note is that i am someone who has always had a lot of guy friends. when i was little and in school, my mom made friends with a bunch of other moms and those moms were boy moms, so i grew up surrounded by boys. i bring this up because 6 didn’t like my guy friends. actually, i think he just didn’t like the fact that i had guy friends at all. so, whenever i would hang out with my friends, it was a problem. so this resulted in me never being able to go out or hang out with my friends unless he was there. then it got worse. before we started dating he had decided to cut back on drinking and to stop smoking. so because of this, i decided that i wouldn’t drink or smoke around him in solidarity. this was not enough for him. i had to stop drinking and smoking altogether. so once, when i was hanging out with my girl friends we decided to stay in and get wine drunk. we posted about it on our private stories on snap and once he saw, 6 called me arguing and yelling at me because i was drinking and posting about it on my story for “attention”. after this incident, i was no longer allowed to hang out with my friends because they were a “bad influence”. he also didn’t like the clothes i wore. sorry, let me reiterate: he didn’t like my clothes when he wasn’t around. it was perfectly fine for me to wear a short dress… if i was with him. i was not allowed to wear “revealing” clothing if he wasn’t around. mind you, none of the clothes i wore were revealing, it’s not my fault i’m hot yk? he took over my life. who i talked to, what i did, what i wore, where i would go, it was all up to him. my life no longer belonged to me. and at the time, i was okay with that. i didn’t realize that he had so much control over everything. i was young and naïve and he convinced me that he knew what was best for me. that he had lived more than i had and experienced more than i had and that he knew better. he was so good at making everything my fault and making him the hero or victim depending on the situation. i got catcalled on the street? “because you were wearing that fucking dress again, andrea you know how that looks. of course you got catcalled. this is why you can’t wear things like that when i’m not around to protect you”. I decided to have a fun night in with my friends and get drunk? “i just don’t understand why you would be posting yourself on your private story like that. you’re drunk and vulnerable. why do you want other people, other guys, to see you like that? and you know i’ve cut back on drinking so how do you think it makes me feel to see that? don’t you love me enough to do this for me?” the worst part is i believed him. because, in the beginning, he helped me so much and i looked up to him so much, surely he had my best interests at heart, right? this relationship went on for way longer than it should have. you may be asking yourself, how did you leave? if you were so in love with him and entranced by him to the point where he consumed you, why did you leave? he raised his hand. that’s what got me to finally leave. a year after we broke up, i found out that he was drinking, smoking, and doing all kinds of shit he told me he wasn’t throughout our entire relationship. he was awful, and i’m really proud of myself for being strong enough to leave when i did. i’m also really grateful for my friends, who stuck out that whole train wreck with me. who i lashed out against in order to protect him and defend him. they stuck by me through it all and i don’t know where i would be without them so shoutout to them lmfao.

1 was a bit more complicated. it started out in a similar way. we had the same friends, hung out around the same people, so it was only a matter of time until we became friends too. we would call and text every day until feelings were developed. at least i developed feelings, i’m still not sure he did. i told him this and i don’t remember how the conversation went but basically we had decided that we were talking as more than friends now. enough time went by where i was ready for it to become a relationship and i communicated that to him. looking back, i think he felt pressured into the relationship by me and by our friends. anyway we started dating and everything was fine. we would hang out and talk all the time but i felt like he was bored or disinterested by me, so i would constantly beg for his attention. i became this needy clingy version of myself that i hated. it felt like when we would hang out, he was always distracted by something else. i basically felt invisible to him. that is, when i wasn’t hanging out with my guy friends. similarly to 6, 1 did not like my guy friends or the fact that i had guy friends in the first place. i had a guy best friend at the time who is one of the most amazing people i have ever met. let’s call him S. S and 1 were acquainted with each other, hung out in the same circles etc. but 1 still didn’t like him. sometimes, whenever 1 was busy doing whatever he did when he wasn’t with me, i would hang out with S, we would watch shows together and just talk. Some days, it felt like i talked to S more than my own boyfriend. this did not sit well with 1. he would ask “why the fuck are you always hanging out with him?” to which i would reply “maybe if you hung out with me more, i wouldn’t have so much free time to spend with him” (toxic ik but what can i say? i was feeling neglected). so you can see what problems this caused. eventually i cut S off. I stopped talking to him completely and i haven’t spoken to him since. Back to 1. even after cutting off my best friend, nothing really changed. He didn’t spend much time with me and whenever we would, i felt like he couldn’t wait to go off and do something else. this got exhausting. at that point i was begging him to love me, to pay attention to me, to care about me. this led to us breaking up. he broke up with me over text. it read, and i quote, “i think we aren’t meant for each other. i think you deserve someone that will treat you better than i do. I don’t think i’m in love with you and i tried to force myself to love you because i thought that’s what i wanted but i really don’t think it is. we started this relationship when i was just tired of being alone and i really just don’t think it is right anymore. i don’t think i am attracted to you. I am sorry, i really didn’t know how to end this and this probably isn’t the best way to do it but it’s time”. The relationship went on for another six months after this. granted, i should have had more self respect and never gotten back together with him but it is what it is. so after he told me that he didn’t love me and that he wasn’t attracted to me, we stayed “friends”. which basically meant that we did everything that a relationship involved. without actually being in a relationship. that is, until one of his friends hit me up. there was some flirtation going on but nothing serious. i was still in love with 1 but, at the time, i was in desperate need for attention and his buddy was there to provide it. when i told 1 about it he flipped out, called me all kinds of crazy and decided he was done with me. his friend and i talked about it and poked fun at the fact that he broke up with me but got mad at someone else paying attention to me. when 1 saw this (he ended up forcing me to show him the screenshots of the conversation) he was even more pissed and even more done with me. the next day he called me and we were basically back together again.

however, this time, i was meant to earn his affection. because i did something so unforgivable and atrocious, he was basically in the clear to treat me like shit. and he did. he would cancel plans to go hang out with his friends. he would only come over late at night, even when i had class the next day. i was basically at his mercy. we only hung out when he decided. we only spoke when he wanted to. i honestly can’t even recall us going on any date after that incident, save for one dinner. in short, i was not a priority to him. this, combined with some other stuff, really took at toll on my mental health. i entered a deep depression and began self-harming after being clean for 3 years. i sought out help and found a wonderful therapist who really helped me. but, 1 only saw this as one more problem. when we hung out he would complain that i was too sad. important note: because of that text he sent me i was incredibly insecure. so, little arguments would always end up escalating because i felt like he literally did not care about me and he would just keep making me feel like shit about being depressed. whenever we argued (which was very often) it would end in me locking myself in the bathroom, sobbing, nearly throwing up, while he was on his phone. i remember one specific argument started because he asked me if i would leave him for harry styles and i jokingly said yes (i am not and have never been attracted to harry styles). that argument escalated to the point where we almost broke up and he said to me “you should warn people before they fall in love with you that you are so mentally ill. because you’re always going to bring down the mental state of who you’re with”. he used my mental health against me like that a lot. whenever i would bring up something i wanted him to do or something that i didn’t like, he would call me needy, clingy, and say that he was trying his best but that i needed too much, that i was too much. all i wanted was reassurance. looking back, that’s all i ever asked for. whenever i would ask him if he loved me he would say “well i’m with you aren’t i?”. this is the same man who decided to go to vegas with his friends on my birthday after he promised he wouldn’t. this is the same man who said that he didn’t love me. the same one who said he wasn’t attracted to me. the same man who i would catch looking at other girl’s (some being his “friends”) provocative pictures on twitter. (this is definitely tmi so i’m just going to put a bunch of asterisks at the end of the tmi so you can skip there if you don’t want to read it) but there was a long period of time in our relationship where we had zero intimacy, and it wasn’t because of me. this fucked with my head a lot because i had this idea that because i was so emotional and needy that i could compensate physically. but when that stopped, my thoughts looked something like “the only thing i was useful for was sex and now he doesn’t even want that from me”.************whenever i remember this, a part of me thinks he might’ve been cheating on me during that time, but i have no proof so i guess we’ll never know. also during that time period, we were arguing over the same things over and over “it feels like you don’t love me” “but i’m hanging out with you” “that’s not the same as loving me” “you’re so fucking needy. and then you wonder why i don’t like coming over”. it was exhausting. we had the same friend group. and even our friends got so sick of us that they would tell me to break up with him. this went on for months until one day, on our one year anniversary, he told me that his plans for the day included playing video games. nothing else. that’s when i broke up with him. that was the straw that broke the camel’s back. i just couldn’t do it anymore.

we stayed friends afterwards in order to keep the peace within the friend group. after about a month, he told me he was going to do better. he said he was going to start going to the gym, and maybe even going to therapy, that he was going to eat better and live a better lifestyle for me. he said he was going to plan dates for us and treat me the way i deserved etc. very much vibes from that one euphoria scene. but i was done. maybe i didn’t communicate that well enough to him and that’s my fault. but i was really confused at the time and i didn’t know what i wanted. eventually we had a conversation and that’s when i told him that i was no longer interested in a relationship. i think i just didn’t believe him anymore. i didn’t believe that he would change for me or anyone else for that matter. through the entire relationship he was mean to me, he neglected me, belittled me, and overall made me feel like shit at worst and invisible at best. even when i would offer to plan things or suggest activities for us to do together, he would be disinterested the entire time or just cancel and make plans with his friends instead. and of course it was all my fault for one, flirting with his friend that one time, and two, just not being interesting enough. he made it feel like i wasn’t good enough, and at the same time victimized himself. he would tell me “nothing i do is ever good enough for you” while i was the one putting in all the effort in the relationship. then he would go “well why would i put in effort with you? remember when you were flirting with [redacted]? I still think about that and it fucks me up”. mind you, he would only bring this up whenever i brought up any concerns or issues. anyway, as you can tell it took me a really long time to realize that this relationship was toxic and unhealthy and i’m really proud of myself, again, for having the strength to leave and never look back. i think one of the reasons why it took me so long to realize that i was being mistreated was because everyone around him loved him. and to me it was hard to see how someone that was so well liked could be bad. so i felt like i was the problem. i felt like there was something wrong with me and if i just fixed that, then he would treat me better and love me and care about me. it took a lot of therapy to realize that he just wasn’t that into me. i was like a toy to him that he could just pay attention to when he was bored but ignore me the rest of the time. but then, when someone else showed interest in me he would suddenly care and be like “no she’s mine, you can’t have her”. he didn’t want me but he didn’t want anyone else to have me and that was the bottom line. that was the base off all the problems and toxicity that happened while we were together.

in conclusion, both of these men were awful in their own unique ways. i hope that by sharing this, someone who is in a similar situation will see it and identify these behaviors as something to watch out for. i hope that someone will see it and realize that they are not alone, and that they are not the first person to go through it, and that it gets better. these events all happened over two years ago and now i am in a beautiful and healthy relationship, i’m studying something that i am passionate about, and i am surrounded by people who love, care about, and support me. i am in a much happier place now and you will find that too, whoever you might be <3

#andianswers #i might’ve given myself a migraine with this one

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saltydkdan · 5 months

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Hey, I just came from watching the UT Yellow Genocide VOD and wanted to let you know that saying things ‘low/lack of empathy = reason for bigotry/makes someone bad’ (said during the trans rights segment) is an ableist statement due to the fact its can be a common symptom of neurodivergency (mainly autism iirc) and personality disorders. I know you, like most people, probably didn’t intend it to be because low/no empathy is unfortunately just not talked about a lot right now. a better word to use in the context you did would be sympathy/compassion and such. Again, not gonna start a crusade against you since its an unfortunately common mistake, just wanted to let you know

Okay so, I got to learn something today! It’s a very nuanced conversation, and because of that, I failed to talk about it properly and used a blanket statement for something much more specific! Let me see if I can rephrase what I’m talking about so it comes off closer to what I was trying to mean now that I know a bit better:

So, obviously, the incapability to feel empathy for another person’s struggles isn’t inherently a bad thing! Emotional nuerodivergency is not bad, whatsoever, I want to make that super clear.

What I talked about during that stream is that people on the Alt Right side of the political spectrum are usually that way due to a LACK of sympathy/compassion (better words, as you said in your message!) The inability to feel anything or think of anything for someone based on their situation, the life that they have lived, and the struggles that they may face being who they are.

Lack of empathy can definitely play a role in this alongside the absence of stuff like compassion and sympathy, but as I said, lack of empathy alone is not a bad thing. It can be difficult in general to feel empathetic to an experience you are unfamiliar with. That’s true for anyone I think.

But it’s a lack of “acknowledgement” that’s the real issue. People who are born with so much privilege that they don’t care to look outside of their own self contained box to see how much pain others might be in that live in the same world as them.

So as you said, I def think sympathy/compassion probably works much better definition wise. Honestly I was confused as to what the difference was until I did proper research. Thanks for letting me know on that.

I’m hoping that this portrays my feelings on it better, but you can by all means let me know. Just need to replace the word “empathy” in my brain and swap it with stuff that better fits what I thought it meant.

Anyway, really sorry about that. That’s insanely embarrassing and I’m glad you sent this.

#saltydkdan #salty asks #ableism

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therainscene · 1 year

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It’s funny that Bylers are so often accused of being delusional, because I was at my most delusional when I was anti-Byler.

I spent most of S4 refusing to acknowledge that Will had romantic feelings for Mike, despite knowing damn well what all that love triangle imagery and sad gay pining was implying. I convinced myself it was just bros before hoes drama; that perhaps Will wanted to come out to his best friend but felt nervous after six months of radio silence following “it’s not my fault you don’t like girls!”

The van scene forced me to accept that he really was in love, and it pissed me off because what was even the point of making him fall for a straight boy?

Mike’s bizarre “no homo” behaviour was clearly a symptom of growing up in a conservative 80s household, and witnessing Will’s sacrificial act of love in the van was the shitty lesson he needed to get over his homophobia.

I saw a typical straight male protagonist in an 80s coming-of-age film getting to coast his way to self-actualization on the back of queer suffering; a cruel and homophobic trope I thought we’d moved past by the year 2022.

But then the NINA reunion scene rolled around--

--and I immediately picked up on the heavy parallels between Mike and Will in how they greeted El. The realization hit me like a tonne of bricks: Mike feels the same way about her as Will does.

I thought, “wait, does this mean I was wrong about...? Oh my god. No way.

No fucking way.

Will was in love with El this whole time?? What the fuck, he’s been gay since S1 and she’s his sister this is BULLSHIT I will personally strangle the Duffers--”

Heteronormativity is a hell of a drug, kids.

Let this be a lesson to those of you who think media illiteracy is to blame for Byler denial -- how well someone understands the mechanics of storytelling is irrelevant if they insist on treating Mike’s supposed heterosexuality as an axiom instead of an evidence-based conclusion. The issue lies with bias, not literacy.

I was stubbornly anti-Byler because I knew I’d immediately fall in love with this ship if I allowed myself to have hope it could be canon, and the general state of queer rep in mainstream media meant I was all but guaranteed to get hurt if I was so stupid as to have hope. But in my desperation to cling to the “safe” heteronormative outcome, I only ended up hurting myself with my own silly assumptions.

We’ve seen both canonically gay characters in the show make exactly this mistake, needlessly hurting themselves with their silly but self-defensive assumptions about their love interests.

Stranger Things absolutely nails its depiction of the subtler ways internalized homophobia can manifest -- Will may feel like a mistake and be prone to beating himself up, but he isn’t some pitiful self-loathing queer who wishes he was straight, either. He’s just so crushed by heteronormativity that he accepts it as an inescapable fact of life and lets it guide his beliefs and actions.

Don’t get me wrong: Will, like Robin, is very sensible for being cautious in such a horrifically bigoted environment -- trying to openly defy that level of homophobia by yourself, especially when you’re young, is a bad idea.

But unlike Robin, he clearly struggles to accept that he has the right to chase his same-sex love interest. He's no longer simply exercising caution, but conforming to homophobic standards -- much in the same way I thought I was sensibly refusing to be queerbaited, when really I was just agreeing with the heteronormative status quo.

I realize now that this is the real reason Will was written into a homophobic 80s trope: not to teach Mike an outdated lesson in acceptance, but to maneuver Will into position for the lesson he’s going to learn in S5 about resisting conformity.

Will needs to learn that castrating himself to make straight people comfortable is a bad idea too. Not only is that a miserable way to live his life, but what sort of world is he leaving for the next generation of queer kids if he never questions these homophobic standards?

It’s just the cycle of abuse scaled up to the societal level.

This is what gives me confidence in Byler endgame. Queerness isn’t just an incidental element of Will’s personal arc, but suffuses the show to its very core -- it’s in its themes, its allegory, its characters.

So Will getting the boy isn’t just nice fan-service for Byler shippers, but a necessary ending if the show’s most important lesson is to land:

That it’s rewarding to make the difficult choice of standing up to bigotry in the face of forced conformity. Of choosing love.

Could it be the case that I was right the first time, and Stranger Things is going to turn out to be yet another heteronormative mainstream show that doesn’t commit to its own themes? Sure, maybe. But that wouldn’t invalidate the valuable lessons this show has already -- and apparently accidentally lol -- taught me.

Anyone who calls us deluded for hoping a mainstream show is going to have a gay pairing as its main couple just doesn’t realize -- or doesn’t care -- that they’re contributing to the very problem they’re describing.

#stranger things #byler #will byers #mike wheeler #robin buckley #my analysis

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velchronica · 4 months

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pov. ♬~*.°₊· ͟͟͞͞➳❥ itoshi rin

i wanna love me the way that you love me

for all of my pretty and all of my ugly too

i’d love to see me from your point of view

or, itoshi rin loves you, infinitely, even when you’re struggling to find reasons why he should

content: insecurity (physical & emotional), hurt/comfort, pro footballer!rin, gn!reader, non-celeb!reader, established relationship, sfw

wc: 1.4k

rin always holds you close and let you cry into the crook of his neck when you need him the most, rubbing soothing circles onto your back, comforting and warm. he doesn’t complain about the tear stains on his shirt—instead, he stays there with you in his arms for hours on end. it’s as if there isn’t anything in the world that could move him until you’ve had enough of him.

rin is always understanding. he’s had his own depressive episodes—(often sae-related) symptoms of his unresolved abandonment issues, the fear of not being good enough. yet in those difficult moments, the one who’d worked through all of it with him had been you. so it’s only natural rin plays his part to repay you, to show gratitude for the fact you’re in his life.

life can be cruel, and the world can be cold. people can be both, even if they don’t mean to be. but rin is neither when it comes to you.

some days are better than others, and others may be worse than most. but no matter what’s led to your subsequent breakdown, rin doesn’t question it, he simply lets you cry it out. and if you’re willing to let go of him for a short moment, he’ll be back in no time after making some hot cocoa and getting your favourite sweet snacks, and he’ll carry you—clinging onto him like a baby koala—to your shared bedroom.

once you’re both comfortably sprawled across the bed with a variety of scrumptious delicacies on your bedside cabinet, you muster up the courage to speak up. rin is attentive: his eyes never leave you once while you rant, but his gaze never grows bored, nor does it show signs of it being childish indulgence or empty support. no, rin will sympathise, and never does less than his best to help you through it.

insecurity is not linear, nor is grief or worry. most of the time, there’s no trigger, nor is it a culmination of many miseries. it isn’t straightforward at all, not something that can be ‘fixed’. you’re not ‘broken’ for feeling that way. you’re human, that’s all there is to it.

to be honest, when you tell rin that you sometimes feel unworthy to be by his side, he doesn’t understand. “you’re the itoshi rin, and i’m, well, this,” you say, scoffing a little at the end.

he doesn’t get how you can undermine yourself like that, how you don’t see all the things—whether they’re as easy to spot as the sky above or a miniscule thing even you’re unaware of yourself—that make you so beautiful. to rin, you’re divine. heaven on earth is your feather-light touch, your smile when you look at him, your laughter whenever rin makes a sour face as if he’s just bitten into a lemon because someone’s annoyed him. heaven is every moment he spends with you.

somehow—god knows how—you don’t see that.

sometimes loving rin is all you know, but other times you know he’s so gorgeous that he catches the eye and captures the hearts of all who pass him by. in your eyes, you’re by no means special, but he is. rin’s beautiful in the way his brows furrow when he wakes up in the morning, thick, dark lashes fluttering like butterfly wings as they begrudgingly blink up. the world knows rin’s beautiful, too, because you see it under every post he makes on social media. you know the world loves rin (maybe just not as much as you do) when they scream his name as he walks onto the pitch. he’s like an idol, the way they treat him, with the name banners and the feral fans.

you don’t blame them. who can resist itoshi rin?

you don’t understand how rin can love you, when your ‘imperfections’ are all you can see when you look in the mirror. when you compare your body to that of the celebs that rin’s fans ship him with, or nonsense gossip magazines photoshop him with, because you can imagine rin with someone else—someone more beautiful, more talented. surely there’s a million other alternatives. surely someone as beautiful and special as rin deserves someone equally beautiful and special, someone who can match him, someone deserving.

“sometimes i think you deserve better than me. you’re too good for someone like me.”

when the truth you’d buried comes tumbling out your mouth one night, rin simply cannot comprehend how you could possibly think that. if anything, you’re the one who deserves better than him, right? you simply just settled for him, when you could’ve done much better.

“how could i ever want anyone who isn’t you?” rin says, gritting his teeth. “how can you say you’re undeserving?”

and he pulls you into the most devastating kiss, his hands roaming your beautiful body, every edge and every curve, warm and strong. your hands claw at his shoulders, grasping, and you’re breathless as rin’s lips leave yours momentarily, before they’re slamming back into yours once more.

“you’re beautiful,” rin confesses against your lips, before drawing back. something warm falls on your cheek. when your eyes refocus, rin’s crying. “i love everything about you. all that you are. i can’t explain it. i don’t need to pinpoint your best feature when everything about you is the best. you don’t need to be perfect. i don’t believe in that shit anymore. i just want you to be yourself. i want you to be proud of who you are, and i want you to be happy when you’re with me.”

you reach up to wipe rin’s tears away, feeling your own eyes sting with the telltale warning of your tears’ return. however, rin simply takes your hand in his own, and holds it against his cheek.

“i could spend the rest of my life telling you all the things i love about you, because i’d have to talk about everything about you,” rin says, and your breath hitches in your throat. your boyfriend is a man of few words, he’s always been a patient listener when it comes to you. confessing that he’s willing to talk about everything he loves about you for the rest of his life isn’t a small feat.

the day you broke down rin’s walls and entered his monochrome world, he began to believe in love again. and now he’s learned to simply love again, he’s not going to stop loving you.

and now you’re tearing up again. “i wish i could love myself as much as you love me,” you whisper. “there’s so much i hate about myself.” the words don’t roll off your tongue easily—they’re hesitant, reluctant, like a secret.

“then let me love you,” rin says. “i’ll love all the things you love about yourself and the things you hate about yourself. i’ll love you so much that you’ll learn to love the things you hate about yourself. i’ll remind you of how much i love everything you are, every day, whenever you need me, always.” his turquoise eyes are ablaze, and they look like blue-green flames, scorching with passion and love. “if you don’t want to face your fears alone, i’ll be with you. if you want time to yourself, i’ll wait for you. i’ll keep loving you, even when you’ve forgotten how to love yourself.”

when he pulls you close again, you rest your head against his torso, and you can hear the racing rhythm of his beating heart. in his arms, you feel warm, complete.

“i love you, rin. thank you. i think i really needed that today.”

rin exhales shakily, and you feel the vibration of his chest. “i love you. so damn much.” his hold of you tightens slightly, gentle but protective. “i love you because of who you are. if you decide to change for yourself, i’ll still love you. if you can’t love yourself, i love you for all the self-love you’re missing. and i’ll never stop loving you. don’t you dare forget that.”

#itoshi rin x reader #itoshi rin #blue lock #bluelock #bllk #bllk x reader #rin x reader #rin itoshi #rin itoshi x reader #bllk imagines #bllk fic #♬~*.°₊· ͟͟͞͞➳❥ vivi #♫ songfic

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hybridzizi · 1 year

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Here are some things that are true: if you don’t have gluten intolerance, gluten is not going to hurt you. Gluten does not cause autism or ADHD or whatever.

Here are some other things that are true: Up to 20% of people will suffer from IBS during their lives. IBS is more common in people with autism and other mental disorders. IBS symptoms are uncomfortable and having them all the time can distract you and push you towards a meltdown. Bread is a common IBS trigger.

I’m going to ramble, so here is the important advice: if bread upsets your stomach try switching to sourdough (check the ingredients -- if it contains vinegar or acid it’s not real sourdough) and make an appointment with a dietitian (not a nutritionist. Dietitians have training. Nutritionists have opinions).

Now let’s pretend you don’t know the above facts. You just know that dealing with meltdowns is hard. One day a friend tells you that cutting gluten helped them and you’re desperate for anything so you try it. You feel better. You have less meltdowns. You make an appointment with your doctor to tell them about this. The doctor runs a test and tells you you aren’t gluten intolerant. The doctor doesn’t ask any more questions. Maybe you try reintroducing bread back into your diet and your symptoms come back. Do you conclude that your doctor knows what he’s talking about? Or do you conclude that gluten is bad for you despite your apparent lack of gluten intolerance -- maybe it’s just a poison! Maybe no one should be eating it!

I don’t have a point. Rather, I have several points.

The first and most important point is to get yourself checked for FODMAP sensitivities. Wheat is not the only FODMAP and if you tweak your diet a little you can have a much better time.

The second point is that if someone tells you something stupid try to meet them with compassion. It might not be true that they have a secret gluten issue that the doctors are lying about, but it might be true that bread upsets their stomach and makes them miserable and they are telling you about this with the best language they have. It might be true that everyone else is either dismissing their problems or telling them that gluten is a poison, and by giving them a more even view (it probably isn’t gluten but did you know that wheat has other components?) you are opening up the world to them! This will be a lot more persuasive to them about the gluten thing than just telling them they’re wrong will be.

The third point is that even if someone is wrong about why something helps they might have a point about it helping. Homeopathic hospitals had better survival rates in the 1800s because the doctors washed their hands. Buying gluten-free bread can help your autistic meltdowns by not triggering the IBS you don’t know you have. Asking why someone thinks something will get you a lot farther than just telling them they’re wrong. Curiosity is an awesome tool. Use it!

Shit’s complicated. We’re all just doing our best.

#someone asked about gluten in the work neurodiversity channel and got piled on #and as someone whose symptoms got a lot better when I stopped eating bread for a few years that seems unfair!

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lordmushroomkat · 1 year

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《The strong association of PCOS with cis womanhood, the defining of it as a disorder or syndrome, and its framing as a “women’s health issue” obscures the fact that PCOS is a natural hormonal variation, an endocrine difference that is illustrated through secondary sex characteristics.

During my initial search for resources and community, I also learned that PCOS, given its characterization as a hormonal variance, falls under the intersex umbrella. This intersex umbrella covers a wide range of “individuals born with a hormonal, chromosomal, gonadal or genital variation which is considered outside of the male and female norms,” and PCOS meets that definition.

This is not an attempt to sway every person who has PCOS to identify themselves as intersex—though it is an acknowledgment that we have the option and the right to do so if it rings true to us. Rather, this is to say that shifting my perspective on PCOS and viewing it through an intersex lens allowed me to better understand it as a natural human variation rather than an affliction causing my body to do the “wrong” thing.

“I believe that someone with PCOS has every right to use the term intersex for themselves if they want, but I also understand it if they don’t,” said writer and intersex advocate Amanda Saenz.

“As an advocate and an intersex person, I opt to use a definition of intersex that is open ended and expansive,” Saenz explains. “The experiences that a term like ‘intersex’ hopes to define include differences in hormonal production and hormone reception, and the phenotypic effects these differences have on the body. To me, this is inclusive of things like PCOS.”

Discussing PCOS in this way is often met with indignation and resistance. Our society has a hard time separating gender from sex. This has resulted in a widespread misunderstanding of intersex identity as equivalent to transgender identity. Many who vehemently resist the idea of PCOS being under the intersex umbrella do so because they categorically link “female” with “woman,” and therefore misinterpret any acceptance of intersex identity as a denial of womanhood. Moreover, the stigma around and marginalization of intersex communities prevents many people from feeling comfortable with embracing it.

“You can be intersex and cisgender, transgender, or nonbinary. The ‘opposite’ of intersex is endosex, not cisgender,” explained Eshe Kiama Zuri, founder of U.K. Mutual Aid. As a nonbinary intersex person, Zuri approaches these ideas with a clear understanding of how the bodies of intersex individuals as well as many people with PCOS interrupt binary thinking about both sex and gender.

“The resistance to PCOS falling under the intersex umbrella is due to a white supremacist society’s desperation to cling to binary genders, which we know [have been] used as a colonial tool of control,” they offer.

The same medical and surgical interventions that legislators seek to ban trans and nonbinary people from accessing—which would be gender-affirming, life-saving care for them—are often forced on intersex infants and children who are unable to consent. This is done in efforts to align intersex bodies with social expectations of female and male, man and woman; the same logic undergirds the societal and medical pressure to “feminize” the female-assigned bodies of PCOS patients.

PCOS is “shockingly common [and] the most frequently occurring hormone-related disorder.” However, according to Medical News Today, “up to 75% of [people] with PCOS do not receive a diagnosis for their condition.” If we were to understand and accept something like PCOS as intersex, considering how “shockingly common” it is, the dominant idea of binary sex, with intersex being thought of as nothing more than a fringe occurrence, would be shattered.

“PCOS is only one of many conditions that could fall under the intersex umbrella, and care for people with PCOS would be considerably better if it wasn’t for the forced gendering and resistance to providing actual support for people with PCOS, even if it challenges society’s ideas of gender,” says Zuri.

Combating myths built around the gender and sex binaries would create more space to understand PCOS traits as part of normal human variation, rather than inherent problems to be fixed, symptoms to be eradicated. As Zuri so beautifully put it, “When we start to accept that this is not a body behaving ‘wrong’ and it is just a body, we stop blaming and punishing people for how their bodies work and start challenging societal expectations.”》

I was fucking right!

#PCOS #Poly-Cystic Ovarian Syndrome #polycystic ovary syndrome #Intersex #female-assigned intersex #afab intersex #polycystic ovarian syndrome

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anghraine · 2 years

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The assumption that autistic adults who can express ourselves on the Internet must be fully verbal “high-functional” adults with no symptoms beyond mild and easily remedied social deficits is just—

I mean, of course it’s personally frustrating, as an autistic adult who can express myself on the Internet but has a lot of cognitive issues (with regard to things like spatial reasoning, math, multi-tasking, figurative language etc) apart from literal comprehension of words. And I do think that it’s glaring that there’s this obsessive fixation of people, often allistic people, with the symptoms of autism that are the most apparent and disruptive to others while largely ignoring symptoms that can make life much more difficult for an autistic person but don’t inconvenience other people much.

Like, the fact that I can’t drive—I do know how; I literally can’t without endangering pretty much everyone involved—does not affect random strangers who find me a bit awkward and stiff but otherwise easy enough to get along with. It drastically affects me, though. My struggles with all math beyond basic addition and subtraction don’t inconvenience anyone else as an adult, but for me, just shopping for groceries is very difficult. Nearly all sensory stimuli are actively upsetting (touch, bright or erratic light, many flavors, so on), but if I can hold it together until melting down in my apartment, nobody else has to care. And so on.

And—okay, my capacity to ramble about P&P or Star Wars or whatever for ten years on the Internet tells you nothing about that. You don’t know. Part of my autism testing involved imagining how an object would look if turned in various directions or recognizing visual patterns/spatial relationships—I’m really bad at things like that. Of course, strangers can’t be expected to know about that or how it affects my life (it does, severely). But strangers can realize that they don’t know all the factors that go into some random autistic person’s diagnosis (or often, don't know the diagnostic criteria of autism at all) before they assume they know everything there is to know about our lives.

#anghraine rants #rare breed of attack unicorn #discourse hell #long post

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pray4byron · 3 months

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Hello :) I saw you were doing Hazbin Hotel matchups and honestly I would be very excited to see who you would assign to me (no pressure ofc!!!) so I hope this request is finding you at a good time ^^

ABOUT ME: Feel free to just call me Zo! I’m AFAB and I use she/her as my pronouns. While not officially diagnosed due to growing up in a household who treated it as taboo something that I couldn’t “catch” I definitely fall under the umbrella of neurodivergence. From past research I’ve found ADHD symptoms relate to most of my experiences.

SEXUALITY/ROMANTIC TYPE: To be frank, I’ve always internally struggled when it came to my sexual and romantic identity. Found myself craving some sort of connection that traversed the likes of just platonic bonds but the couple times when someone showed interest in me I’d clam up and push them away. The couple crushes I did have always happened to develop after I had built rapport with them, after we had grew close. So for the sake of labels and for this matchup I’d definitely like to say I’m demiromantic? In terms of sexuality all I got for you is that I’m not repulsed by it??? All I know for sure is if I like them, we’d have to have been friends or at least know each other. (In terms of gender I’m fine with either or! I’m just curious to see who fits the box el oh el ^^)

PERSONALITY: Oh boy. Ok so to start off with I’m an INTP 5w4😼…. My hog warts house is Slytherin. My temperament is Melancholic (my sub temperament is tied up between Melancholic sanguine and melancholic phlegmatic). I definitely fall under the umbrella of shyness, however I’ve also noticed that depending on my company I tend to emulate the majority of the vibe. A half hearted defense mechanism in order to fit in is what I assume it be. I’m told I’m a very emotionally intelligent person, and my friends prefer to talk to me about issues and problems due to the fact that while I can comfort I can also hold them accountable and give them solid advice. They also make jokes on how I should’ve been a psychologist if I wasn’t actively getting a degree in early education. I’m terrible when it comes to changing topics which just makes it me all the more unintentionally hilarious. I’m always more funny when I’m not actively trying to be, I just have this unknown charisma that activates when i don’t try hard being funny </3. I struggle when it comes to maintaining my relationships and also most of my responsibilities, maybe it’s a numbness for my own priorities but it’s so easy to help other people in their own slumps, that when I’m forced to face my own issues and problems I can’t help but make myself numb to it and push it on the back burner. Not for lack of care, but more of seemingly frozen in place, it’s all so terrifyingly overwhelming that I just don’t even acknowledge it. Scarily good at doing that while also avoiding spieling my own feelings on personal matters that my friends always believe I have my all together. So ironically enough while I’m good at helping my friends communicate I’m terrible when it comes to communicating about myself (yippee⁉️ #imworkingonitiswear ) more or less I’m laid back, However I did used to be more of a doormat, luckily I don’t bend backwards for every little thing that breathes now LMAO. I do have a bit of a competitive streak when it comes to games (cough uno cough) and I definitely have a penchant of using my mind and other mediums as a form of escapism. Which can be ok, but sometimes I overdo it.

LOOKS: Medium length dark brown hair, round hazel eyes. I have a round face, and here in the future I want to get wispy bangs to compliment my face shape :D. Pale but not too pale skin, I have the pear shape body type, in the sense that my hips are wide, and I have somewhat big thighs but other wise I’m relatively flat. I do have a bit of chub when it comes to my midsection. Oh! I’m like 5’5 (maybe a little taller????)

LIKES: My cats Basil and Mugwort (literally my sons). I prefer more morose weather like rain. I quite like fall compared to the other seasons. I used to draw a lot but now I don’t as much, still a joyful hobby nonetheless. Recently bought a couple new books and am getting back into the grove of loving reading once more. I will absolutely demolish croutons of any kind. Currently really into mlp, it’s those TikTok infection slideshows I swear (I redownloaded the game….) I like to ramble about my interests like animation and its evolution, cats (the breeds, the care, the everything), and much much more.

DISLIKES: I hate beans. The taste. The texture. If I see beans in food it’s an immediate ick. I will gag. Overstimulating events, like I can bear with it and grow accustomed to it, but that’s doesn’t mean I’ll like it every single time. I hate being/feeling like a burden. Oh and not really a dislike and more of an annoyance(?) the fact that ritz cheese and cracker packs don’t come with the little red plastic spatula to spread your cheese anymore. I assume because it could prove to be a choking hazard, but still I’m just like 😞

LOVE LANGUAGES: Had to really scroll through my gallery because I did take an online test before!! Physical Touch was my highest (ie im extremely touch starved but am too awkward to initiate </3) Something in me just yearns for some kind of comforting touch, but I always tend to swallow it back and push it away for fear of rejection. After that focus, intellect, acts, and words of affirmation were literally all tied not even 5% behind phys touch. I’m just a kind of mentally paralyzed overthinking insecure(ish) gal, my bad bro 😎 But on a real note the confirmation that I’m being seen and heard will make me melt.

Alright!!! Hopefully my yapping was coherent and not a chore to read through!! I think it’s really cool you’re doing this and I’m mainly curious to see who it is you’d pair with me! Because I have a favorite character in mind who’d jump with joy to see, but that’s just because of bias 😭😭

And if it’s not too much of a bother is it alright to ask not to pair me with angel dust? It’s mainly personal preference so hopefully it’s not too much of a bother :))🫶🫶🫶

hey zo! this was quite the adventure to read through haha, after some deciding, I decided to go with…

Alastor !!

I can see you and Alastor meshing well together due to your craving of a platonic bond (you both may or not have a QPR? idk)

Alastor takes deep appreciation for not only your charisma and wit, but also your ability to read the room and match everyone’s energy, it’s helpful in certain situations with him

He isn’t the most touchy feely person you’ll meet in Hell, but he does make an effort, you’ll both usually have your arms loops while holding hands, or he’ll let you lay your head in his lap while he reads and he’ll rub your scalp

But Alastor isn’t afraid to tell you how it is, he makes sure you know your worth, and that he sees you all too clearly

#reqs closed #x reader #mio’s writing ! ☆#mio’s matchups ! ☆#fanfiction #hazbin hotel #x y/n #x you #hazbin hotel x reader #hazbin hotel x y/n #hazbin hotel x you #hazbin alastor #alastor hazbin hotel #alastor x reader #hazbin hotel alastor #alastor #alastor the radio demon #radio demon

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malavera · 1 year

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(18+) I'll show you how I am yours — Tom Cruise

summary: you're being emotional because it's that time of the month, Tom had to assure you for the millionth times that he's not going anywhere. To seal the deal just to convince you, he shows you how he's devoted to you and only you.

warnings: lil bit of fluff & angst, age gap (25/59), mature content, allusions to period sex, daddykink.

tagging: @tomsf18 @helloitstsyu @moondustfairies @deanscroissant @katherineswritingsblog @elenavampire21 @gypsymoon548 @love2write2626

We all know each month, a woman does not stay sane the same. The pre-menstrual mood swings would comes in various ways. We are all familiar with the Obsessive thoughts, easily irritated to feeling guilty and most importantly very self-critical. Your beloved has dealt with all kinds of moods and symptoms that you projects every month. But, he never complains. In fact, he lets you be however your mood wants you to be. When you said you wanted to be alone, although you made it clear after you snapped at him that you wanted him to leave you be—he would. But, it’s not like what you fear. He would close the door, lean against the wall besides it and wait for at least 5-10 minutes or more, for you to cool down—then he’d walk back in either with a cup of tea or bringing up your favorite sweets.

He’s different from the last two guys you dated. Because when it’s your time of the month, they’d never take you serious. They’d never wanted to take care of you, all they would do is complain on why couldn't you control it, why do you choose to snap at him, why are you so angry all the time and always ends up with a fight. That’s why you’re always insecure and afraid when the time has come, how would your new beloved react to you getting through all of these crazy hormones.

Sighing, you tighten your grip around his torso, snuggling your cheeks more to his chest. A negative thought has occurred, being a woman comes with so many fears towards man. What if it’s all just a façade?

“Tommy,”

“Yes, darling?”

“Do you think I’m pretty?” Tom scrunched his eyebrows in confusion, a small smile displayed on his face, turning his attention from the TV to look down at you.

“What do you mean? Of course you are beautiful, baby.” He replied with a kiss on your forehead.

“Why did you chose me?”

“Don’t you find me irritating sometimes?”

“Do you ever find me irritating?”

“Is there anything that I should change?”

“Out of all people, why did you choose me?”

"Would you ever leave me if you find anything that doesn't suits you?"

“Do you really love me?”

In all honesty, listening to all of your insecure questions due to your obsessive thoughts, aches his heart. Tom concludes that you have abandonment issues. Which breaks his heart not because he doesn't want you around, but it's because how easily you belittle yourself sometimes when you became his partner. He's glad that he found you, but he's not a jerk, he wished that you would've loved yourself more than you love anybody else.

"I'm sorry, do you think I'm annoying for talking too much?"

"I'm sorry if I would snap at you in any time of day later today, I wouldn't mean to. It's the hormones you know?"

Tom sighs with a warm smile on his face, he gestured for you to sat up and lean against the pillows, his arm placed behind your shoulders.

"Baby, listen to me... You don't have anything to be sorry for, okay? I understand. No, you could never irritate me. No, I would never find you irritating. No, there isn't a thing I want you to change, you're perfect in your own way." He gently spoke, his knuckles moving a strand of your hair out of your face.

"I chose you, because I know that I want to spend the rest of my life with you. You're a good woman, you have a good heart. Yes, you may be tough at some time or place and you'd stand on your ground when it comes to your principles, but I respect that. I love you." Your lips tremble, the tears forming in your eyes almost blurred your vision as you are moved listening to the wonderful speech he said about you.

"You would never leave me, right Tommy?" You muttered.

"I would never. Because you're mine, and let me show you how I am yours."

And with that, his soft lips connected with yours—pulling you to sit across his lap gently without hurting you as your body is fragile during your period. His big and calloused hands caressing your sides, feeling the soft fabric of your baby pink tank top sending you shivers down your spine as the actions gives your brain ideas on what could those hands do. Just by thinking about it, sends tingle through your pussy as you start grounding your ass on his growing tent.

"Tommy, I think we should stop." You spoke in between the kiss.

"Hmm, why?" His lips captured your bottom lips, seductively tugging on them, as his eyes watches the way it bounces back once he lets go.

"I want you, but I'm on my period. It'll be a mess, besides, don't you find it disgusting?" Your voice sounded so soft and delicate, it almost came out as a squeak and he finds it adorable.

"I told you, I'm going to show you how I am yours, right? Then let me show you, baby." He muttered against your neck before he connected his lips to your sensitive flesh as you throw your head back rolling your eyes closed, your mouth fell agape letting out a moan.

His hands went to play with your clothed breasts before he tore the fabric off of your body, earning a gasp from you. He switched from your neck to snatch one of your nipples with his mouth, giving a light suck as the other he played with. You could never understand the anatomy of a woman's body, on why when men played with our breasts and giving them attention—an electricity will spark down to our pussy. Or is it just you?

You couldn't help but grind your hips against his bulge, circling and grounding to let him know that you really need him as soon as possible. But, he's taken his sweet time on getting you all worked up. He wants to prep you, before he goes on action.

"Tommy, please.."

"That's not my name, what's my name?" You whimpered, with a slap to your ass another one escaped.

"Need I remind you, baby?"

"Daddy, please. I need you, I need you to fuck me, now please." You pleaded.

"See, that wasn't so bad right?" He breathed. He switched both of you as you are now laying against the bed with him on top of you. He spread your legs as if its your wings, wide. He stands on his knees, palming his tent, looking at you with his jaw clenched.

“Now, I don’t care how messy it’s gonna get cause daddy’s gonna fuck you so good your pussy’s going to only want no one but me.”

#tom cruise #tom cruise smut #tom cruise fic #tom cruise x reader #tom cruise dirty imagine #tom cruise movies #tom cruise imagine #tom cruise x y/n #tom cruise one shots #tom cruise oneshot #tom #cruise #smut #tom cruise fanfiction #tom cruise fan fiction #tom cruise fiction

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thebibliosphere · 1 year

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I’m rereading your bvd/cci/eds/migraine posts with interest, bc I’m coming at it from the other direction—cervical spine degeneration and my body’s compensation attempts being the cause of the vision and other neurological symptoms, where you seem to experience that compensating for the vision problems exacerbates the issues with your spine.

Did you end up trying the preemptive bracing, since you found that monthly hormone changes caused eds flareups and migraines? What kind of brace, if you don’t mind saying?

And do you find that chiropractic adjustments help or hurt more than massage?

Not asking you for medical expertise, but it is so nice to hear from people who are speaking from the lived experience.

Thank you!

I haven’t tried bracing my neck yet, no. I doubled down on cervical stability exercises in PT and that seems to be helping a bit more. (Though I am still on the lookout for a brace that doesn’t break me out in hives.)

And no, chiropractic adjustments of the neck are never recommended for anyone, but especially not for anyone with cervical instability issues. I found this out after a neck adjustment tore all the muscles in my neck and required me to have an MRI to look for a possible brain bleed after I started developing neurological symptoms from the injury. I was bedridden for weeks.

This was not a “bad” or wrongly performed adjustment: it’s just the risk of having your neck adjusted.

It’s been 5 years and I still don’t have full stability on the right side of my neck and often get tingling numbness on that side.

The spinal specialist I saw for my recovery told me he used to primarily see people with brain injuries from car crashes and construction accidents. Now most of his primary patients are people who saw chiropractors and had their necks adjusted.

I still sometimes see a chiropractor for mid and lower back adjustments, and my hips because those pop out of place fairly often and my chiro is better at getting them back in than the local urgent care, but my person uses gentle stretching motions rather than the more abrupt cracking motions. She also refuses to touch anyone’s neck ever. There are far too many vital nerves and blood vessels there to risk it. The fact that she knows this makes me feel safe entrusting my pain management to her.

Massage and physical therapy are how I manage my issues the best.

Mysofascial release therapy has been very helpful for me in reclaiming a lot of my range of motion, breaking up muscle adhesions and building healthy soft tissue. There’s some new-agey bullshit claims about it, but if you find someone who knows how to do it and who doesn’t believe the “cures cancer” horseshit (claims some chiropractors also make) it can be beneficial.

The real long term progress, however, has been from regular physical therapy from providers who know how to deal with my hypermobility.

#chronic health tag #body injury

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basshole-astard · 1 year

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hey you, blogger. do you find yourself in incredible pain daily? even weekly? despite being in your 30s, or younger? despite doing everything that's ""supposed"" to help?

On top of being in incredible pain, can you or could you at any point in your life:

bend yourself into funny positions like putting your foot behind your head

can bend down without fanfare and put your palms COMPLETELY FLAT on the floor

do your elbows bend a bit backwards? how about your knees?

you can bend your pinkies backwards 90 degrees

you find your joints are incredibly weak and garbage; wrists often in pain despite doing stretches; shoulders/neck always hurting no matter how good your posture is; can’t get down on your hands and knees because doing so is Ow Ow Oof Ouch

you have gastrointestinal issues that you cannot link to food in any way (yes, for real,)

headaches/migraines – especially unexplained, but even if you do have an explanation (for real)

never had enough room in your mouth for your teeth

vision prescription gets better and then gets worse again and you find yourself very confused about how??? why????

have really bad allergies including “I can’t use x soap it gives me a rash for some reason” or other similar “coming into contact with certain things makes me break out” (it’s called MCAS, it’s often comorbid)

stand up and your heartrate spikes and/or you get dizzy (that’s called POTS, also comorbid)

Then, hi, you might possibly have something called Ehlers-Danlos Syndrome, or EDS; specifically the hypermobile subtype (hEDS), which doesn’t yet have a known genetic marker and goes wildly underdiagnosed in patients, partly because the things they test for hypermobility are pretty limited, partly because doctors don’t know what it is, partly because doctors would rather diagnose you with a different condition (if arthritis or fibromyalgia diagnoses/treatment didn’t help, well...!) because if it sounds like a horse it’s PROBABLY a horse (but it could be a zebra)

Of course having any one of these does not an hEDS diagnosis make, but if you have multiple on my above list? Multiple of the list I am including below the cut? It’s worth looking into. You can continue on reading to see my brief overview, or you can head to www.ehlers-danlos.com to do your own research; they’re a great resource!

"I have a lot of these but not all of them" that's still worth looking into! I've only got five on the above list, and i definitely still have hEDS! Even three is worth considering!

more symptoms and info below the cut, if you want to hear it from a fellow blogger who was diagnosed at 25 and found the diagnosis Extremely Eye Opening as to why i was always in pain and Various Other Issues

---

General hEDS info: EDS itself is a genetic disorder that affects your connective tissue, which in general makes your joints weak and your ligaments weaker. hEDS is the most common subtype, in which you have a lot of EDS traits AND hypermobility BUT none of the genetic markers for the 12 other EDS subtypes.

“Wait, but this thing I can do is normal, my whole family can do it!” or “my mother’s side of the family is all like this!” hEDS is genetic. It’s possible to have it if your parents don’t, but VERY unlikely. So unlikely, in fact, that having immediate family history of hEDS is one of the 3 main diagnostic criteria for it. (You can still get diagnosed if you hit the other 2, but they only ask for 2/3.)

“Surely it can’t be so hard to diagnose that doctors don’t notice it!” my sister did not find out until she was in her 30s, because one of her friends has hEDS, and when my sister was bemoaning how useless doctors were, her friend was like “....hey those sound like MY symptoms, have you considered you might have hEDS?” (Which, due to it being genetic, is how my mom and I found out we also probably had it.) Also, much like ADHD, doctors are wary of diagnosing people with it, afraid they’re just trying to get the “good” meds.

“What good does a diagnosis/research even do me?” 1) an explanation for why you’re in pain all the time 2) knowledge so you can avoid doing things that would hurt you (you have to be SOOO careful with most forms of exercise!) 3) it’s a disorder that warrants higher pain meds than what you can get OTC, so if you are seriously in a lot of pain all the time, and would like to not be...

I’m gonna put a more in-depth list of symptoms below. If you have any five of them, I highly suggest you poke around www.ehlers-danlos.com and do your own research, because even if you aren’t in a position to get a clinical diagnosis right now, even suspecting you MIGHT Have it is useful, either for an explanation for all the things that seem wrong with your body that couldn’t otherwise be explained, or to know that... hey, you should really be careful with what kinds of physical exercise you’re doing, because your risk of injury for some sports is WAY higher than it is for people who don’t have hEDS. More on that below, as well.

Symptoms list time:

*THIS IS ALMOST DEFINITELY A MARKER OF hEDS*

hypermobile joints

unstable/weak joints

joints that dislocate frequently

CHRONIC PAIN

stretchy and fragile skin (classic EDS marker, but can show up in hEDS): do you bruise easily? Do cuts take forever to heal?

your parent(s) are also like this (it's a genetic disorder!! Chances are you got it from one of them!!! Love to hear “oh my hips do that too!!! Didn’t realize it wasn’t normal” thanks mom.)

"my parents don't have hEDS tho" are you sure. like. my mom didn't know until my sister found out she did. this thing is *wildly underdiagnosed*. Mom’s in her 50s and had doctors diagnose her with arthritis and fibromyalgia, the treatments for which didn’t help her because it wasn’t what was actually wrong

*OTHER THINGS THAT OFTEN COME FREE WITH YOUR hEDS*

chronic fatigue

gastrointestinal issues (if you thought you had IBS, but hit any of the hEDS things, you should consider, well, an hEDS diagnosis; gastroparesis is a common comorbidity)

dysautonomia; i don't have this but it causes things like POTS or "heartrate spikes when i stand" or "i get dizzy when i stand and lose vision briefly"

headaches (and/or migraines!)

MCAS, aka really bad allergies. your nose gets offended at the slightest bit of pollen. the weirdest materials give you a rash. you can only use one soap because all the other ones make you break out. etc.

...ADHD. I’m not shitting you. It is so frequently comorbid that in the UK when you test positive for either ADHD or hEDS they will immediately test you for the other. Connective tissue exists in your brain, as well, so I guess if your connective tissue just doesn’t function properly...

HEY CAN YOU PUT THIS IN NON-CLINICAL TERMS FOR ME

sure! did you, at any point in your life:

- able to bend into funny positions like put foot behind head; especially as a kid (hi! that's me!) but of particular note if you can still do those things now

- stretches like butterfly or crossing your arm over your chest just... don’t feel like stretches? (my sister)

- could you bend and without effort place your palms flat on the floor? can you still now? apparently most people struggle - without regular stretching - to touch their toes, let alone put their palms *completely flat* to the floor. that's hypermobility baby!

- elbows bend a little bit backwards? knees?

- can you bend your pinkies back 90 degrees?

- consider yourself double-jointed?

- shoulders/neck always hurt? and like your muscles are SOOOO tight in your neck all the time? hey guess what: the thing EDS does is make your body produce less collagen, which makes your ligaments weak as fuck, and so your muscles are constantly spasming to hold your head up. this is why you're in pain. this is why working the knots out never helps and they always come back. no, this isn't because you’re on your computer too much. your body was just built differently (poorly)

- stretching never seems to help? stretches make you hurt more??? or even: most forms of exercise cause you pain? yeah, most exercise/stretches are meant for Able Bodied People, not people with an underlying undiagnosed hypermobility disorder. You have to adapt them to your needs, and also stretches will never be the be-all-end-all solution to back pain like those funny little infographics on the internet will try and tell you. Maybe it is for able-bodied people, if you have a genetic condition that causes chronic pain, well,

- “but my shoulders are soooo tight tho” POINTING ABOVE AGAIN. they are doing that because the muscles have to overcompensate for your weak ligaments. Stretching does not fix this; you may loosen your muscles, but they will simply tighten again later. The real fix is doing exercises to improve your shoulder muscle stability – I’ll talk about some exercises below.

- have you ever thought to yourself "what the hell, i'm too young to be in this much pain all the time??" you're right! it might be hEDS.

- struggle with opening jars? weak upper body strength? randomly lose your grip on things you’re holding with your hands? “are you serious” I’m serious

- can't crawl on your hands and knees because that hurts your wrists and your knees?

- tangentially: did your parents say you crawled funny as a kid? army crawl? started walking way earlier than expected? yeah.

- you can't squat or kneel because ow oof ow your ankles ow ow your knees? yeah.

- is getting up from the floor hard sometimes?? despite being 30 or younger???? yeah.

- despite everything, and not trying to be, you're still kind of really flexible???

- like, you could do the splits as a kid without having to train yourself to do it?? you can still do the splits now without any effort at all?

- do you seem to get injured really easily? joints especially, or, again, bruised really easily.

- are you in pain right now? think about it. shoulders? back? legs? did you see the part where one of the diagnostic criteria for hEDS is chronic pain? yeah.

i could probably keep going.

~here's some specific connective tissue disorder things; i've included only the extremely "normal" ones that haven’t already been listed above and/or are easy to check yourself. you can find a full list at https://www.ehlers-danlos.com/what-is-eds/hypermobile-ehlers-danlos-syndrome-heds/ under "how is hEDS diagnosed?"~

listed above: stretchy/fragile skin. By stretchy btw I mean: can you pinch your skin anywhere and pull and get even half an inch away from your body? Neck/back of hand is a good place to try. If you can’t pinch your skin at all w/o hitting Meat then you don’t have this (I don’t, even tho my sister does!) but it’s worth looking out for and alone is like THE thing EDS (all types) is characterized by, so if your skin stretches, that’s of particular notice (but your skin not stretching does not disqualify you from having EDS)

stretch marks (they hate to use this if you're afab, but,)

"Bilateral piezogenic papules of the heel" uh when you're standing are your heels kinda. lumpy. like they got balls in 'em. that's what this is. (this is one of the things i have)

dental crowding (lol!!!!)

can you close your thumb+pinky around both your wrists? (steinberg sign)

when you make fists, thumbs underneath fingers, do your thumbs stick out past your fingers? (walker sign)

“Hey, I’m not really hypermobile - is it still possible to have hEDS??”

in theory! I’m only mildly hypermobile myself, outside of the “foot behind head” trick from when i was ten and the “can even now at 25 bend down and put palms flat on floor with no effort” i have… basically no other signs of hypermobility. Though, I guess “things that should be stretches like butterfly or touching your toes are super easy and not stretches for me” also counts as being hypermobile, huh. It’s just really mild.

And, you know, maybe you just have a different EDS subtype. EDS as a whole is not super well understood, so the chances you got a doctor who didn’t know what it was / didn’t want to order a genetic test about it is still, like, high enough it’s worth looking into, I think.

Basically every issue my body has can be drawn back to hEDS, and that kind of knowledge is insane but also really liberating. There is a cause for this. I’m not just in pain for no reason – or worse – because I’m “bad” at taking care of myself. I have a genetic disorder that makes it so my joints don’t work right and also I’m in pain all the time. It’s not necessarily happy, but at least it’s an explanation, instead of sitting there and shrugging and going “I dunno” about it.

So, sincerely, if even five of the things I’ve listed above sound familiar to you, I think you should look into it. Maybe you’ll research and go “oh, that doesn’t sound like me at all, actually”, but on the chance you, like me, start researching and find yourself going “THAT’S WHAT’S BEEN CAUSING THAT THIS WHOLE TIME????” I think it’s worth looking into. That validation is sincerely quite freeing.

“Ok, you've convinced me. Now what do I do?”

first of all research some more!

https://www.ehlers-danlos.com/what-is-eds/ <-- EDS overview and EDS subtypes! Maybe you have one that isn’t hEDS

https://www.ehlers-danlos.com/what-is-eds/hypermobile-ehlers-danlos-syndrome-heds/ <-- hEDS specific page

https://www.ehlers-danlos.com/heds-diagnostic-checklist/ <-- hEDS diagnostic checklist

https://www.ehlers-danlos.com/assessing-joint-hypermobility/#1667831445611-fb40d58e-84a4 <-- the checklist opens on something called the Beighton scale, which is explained in more detail here. **IF YOU DO NOT SCORE HIGH ON THE BEIGHTON SCALE BUT STILL HAVE MOST OTHER HEDS ISSUES, PRESS FOR DIAGNOSIS NONETHELESS. ENTIRELY POSSIBLY YOU ARE HYPERMOBILE IN AREAS THAT AREN’T TRACKED BY THE BEIGHTON SCALE. IT’S IMPERFECT AND PROBABLY NEEDS TO BE REPLACED BUT THEY HAVEN’T GOTTEN AROUND TO IT YET.**

https://www.ehlers-danlos.com/2017-eds-classification-non-experts/ <-- EDS things in layman’s terms, including comorbidities, like what I was talking about wrt gastrointestinal issues, orthopedic issues, chronic fatigue issues, etc, etc, etc. if you have issues with allergies look at the Mast Cell Disorder one. if you have that “heartrate spikes or I get dizzy when I stand” issue look at the Cardiovascular Autonomic Dysfunction one.

(ngl, sorry if its gross, but learning that hEDS often comes packaged with gastrointestinal issues was what really sealed the whole deal for me being convinced, despite “your sister has it and your mom almost definitely has it” being EXTREMELY damning evidence, because. I have had issues with diarrhea my whole goddamn life. I can’t tie it to food. It just curses me daily.)

second of all: talk to your doctor! or, find a doctor in your area that specializes in EDS. book an appointment, see what they can offer you. they can probably hook you up with physical therapy options (to safely strengthen your muscles to compensate for your weak connective tissue) or some pain management options! If you find the physical therapist is making you do things that make you hurt more and they repeatedly do not listen to you and your body, fire them and find a new physical therapist.

https://www.ehlers-danlos.com/healthcare-professionals-directory/ <-- list of doctors.

Third of all: find a support group if you’d like? There’s FB groups and Reddit groups and probably even more. Links to some of them here: https://www.ehlers-danlos.com/support/

YMMV because hEDS sometimes gets shit on by people with the other EDS subtypes, but at the very least, if a fellow Zebra is bitching about a doctor, you’ll know who to avoid.

Fourth: Just… if you think you might have it, I want you to take a step back and reconsider the way you feel about yourself and maybe about the exercise you are/aren’t doing. I had a lot of compounded guilt about how I “wasn’t taking good enough care of myself” ; when you’re in pain all the time you sometimes start blaming yourself, especially if you, like me, find that exercise is difficult and painful and that stretching doesn’t ACTUALLY help, you quit doing it. But you don’t always quit thinking “well apparently if I did those stretches to prevent back pain that people always talk about, then I wouldn’t have any back pain!!!!!!” and that kind of mindset... sucks.

It's also not true. Like, not in general, but also especially not if you have hEDS. My back is in pain because my body was built different (poorly), NOT because I “wasn’t doing the right thing”.

So here’s my get out of jail free card, for you. You aren’t in pain because you aren’t doing anything to “fix” it. You’re just in pain. Sure, you can do some (specialized) (hEDS friendly ones) exercises to help combat it, or you could go take some painkillers, but... your pain is not a punishment for your decision not to exercise. Your pain just kinda... is.

Every generalized exercise advice you see online you need to take with a grain of salt anyway, because it was not written for people with a hypermobility disorder. If doing it doesn’t help, then you don’t need to push through the pain because “it’s the thing that’s supposed to fix everything!!!!” No no. There is no correct answer. There is no one-size fits all. If it doesn’t help, or if it hurts, then you shouldn’t do it.

I say this from a place of love. I spent several months trying to fix my wrist pain with stretches, and you know what never went away? My wrist pain. In fact, I’m mildly convinced the stretches made the pain worse. I kept pushing through it for ages, though, because I kept getting told it was supposed to help, and that it was IMPORTANT as someone who spends all day on the computer to TAKE CARE OF MY WRISTS via THESE STRETCHES WE HAVE HELPFULLY COMPILED ONTO AN INFOGRAPHIC FOR YOU!!!!! ...but that’s not how it works. The rules are a little different when you have a hypermobility disorder. You have to really look into exercises that are safe for you to do, instead of just assuming the ones that everyone passes around are going to help.

“Man, so even those shoulder stretches you see around might not help?” nope! They might not!

“What do I do then?” strengthening exercises... I’ll put resources / explain one easy one (for shoulders) below.

Also if you are someone with a job that requires sitting at the computer all day, and you’re worried about how that affects your health... Even if you just get up once every two hours and walk around / look at something else (even your bathroom!!!) for a little bit, that’s fine, that’s plenty, that’s more than enough. You don’t have to stretch your shoulders every 30 minutes. You shouldn’t stretch your shoulders every 30 minutes if that’s hurting you.

RESOURCES TIME

1) https://www.ehlers-danlos.com/resource/strengthen-your-hypermobile-core-a-home-exercise-approach-for-eds-hsd-and-hypermobility-jeannie-di-bon/ <-- webinar that covers at-home exercises you can do

2) and a whole playlist of at-home exercises (in reasonable sized video chunks) by one of the experts, here: https://www.youtube.com/playlist?list=PLp-oNOmoFdAMFZB7XfpUZyvg_xzE3S3Ue – DISCLAIMER I HAVE NOT WATCHED OR USED THESE, SO WHILE I CAN SAY I DOUBT SHE WOULD BE FEATURED WERE SHE NOT A REAL EXPERT, PLEASE JUST. Err on the side of caution. If even one of these hurts you, try not to do it until you can talk with your personal physical therapist, which, yes, I realize requires Acquiring one first..... worth poking around tho, this person has a ton of tips on how to be careful with your joints while doing chores and day-to-day tasks as well, it seems. Actual advice that might actually help you instead of “oh make sure to stretch every 30 minutes!!!!” (might not help) or “have you tried jogging? Its free and easy!!!!!” (sport that is more likely to injure you thanks to the weak joints thing)

3) You can also search “exercise” on ehlers-danlos.com and come up with a ton of other pages/videos/etc of EDS friendly exercises produced by the experts that run this site.

4) That One Easy One I Can Explain In A tumblr Post: Bridging

Meant for core stability, but also works towards strengthening your shoulder muscles as well. Bridges!!! You can probably look up guides, or the lady I linked above has a video that includes her doing bridges about 4 minutes in. here's the video (link).

The version I do involves going up for five seconds, then down for five seconds, repeating for a minute (time yourself). Each day add on ten seconds (so second day you do a minute ten, third day minute twenty, etc) until you are eventually able to do it for three minutes. You do not need to go past three minutes. You are recommended not to. You are recommended to work up to 3 minutes and then continue doing it for 3 minutes every day.

(It doesn’t have to be every day nor does it necessarily have to be 3 minutes every time; if I’m tired or in a hurry I’ll just do two minutes. If I’m really tired I’ll just skip it and do it the next day. No big deal!)

That’s all I got. Thanks for listening to me rant. Hope it was enlightening at all!

#disability bloggin #eds bloggin

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ovaruling · 3 months

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mostly a vent but—how do so many adults not only know so completely zero about nourishing themselves properly, but also have zero curiosity about their nourishment on top of that? like how are basic nutritional facts and basic food nutritional profiles and the barest RDAs not known and not even wondered about

like i meet adults every single day who literally can’t grasp the concept of a meal that they know and understand the components of. like. they legitimately don’t know or care what they’re eating at any point of the day but have complaints of many solvable symptoms of nutrient deficiency or saturation

even a large number of people who cook all the time will seem to have this incredible blind spot for knowing anything about nourishment

like there are people who think you legitimately don’t get nutrients from anything but animal flesh and leafy greens and then i’m supposed to act surprised when their bloodwork is a mess

and when i suggest “oh you may need to include more things like orange juice and potatoes and bananas and pumpkin seeds and dried fruit for other quick sources of electrolytes that aren’t just shit tons of sodium” after friendly discussions of muscle cramping despite water and Gatorade consumption

and they’re like “oh my god you’re so smart…,” lmao no i’m fucking not!!! fr how can you have persistent muscle cramping every day and not even WONDER if it’s related to what you do or do not put into your body. that’s my FIRST thought every time i have a palpable issue—“maybe i’m getting too little or too much of something, let’s get curious and think critically about what i’m currently eating and drinking”

especially people with chronic illness like me!!!!! come on now!!!!! how can you not even deign to google what nutritional advice you might benefit from!!!!

i’ve fr had people be in awe of my casual recommendation of eating more fiber. and even more awe about what foods contain fiber. like. you cannot be serious that you didn’t know that about your human body. you cannot be fucking serious!!!!!!!

how can you go through your day—through your adult life—not knowing or caring if you’re meeting your individual nutritional needs and how can you not even be CURIOUS about that if you know that you don’t know. ppl act like you need regular bloodwork to be able to suspect anything abt your body enough to try the very risky risk of simply eating more of xyz type of food (usually a fruit or vegetable god forbid) or something to just see if it helps with your issue ykwim. like eat an apple and maybe your gums will stop bleeding, matey. oh no cap’n i can’t i would need sooo much bloodwork to know if it’s ok to try eating an apple!!! come on now

like. i know im not a genius to just be knowing Feeding Yourself Properly 101. my parents never taught me a damn thing about nutrition and i never even learned it at school. it’s not hard. i know it’s not. so everyone else must just be stupid as hell abt this or willfully ignorant

and maybe they are bc the average western diet has most ppl malnourished despite a very, very large daily intake of calories so idk man IDK!!!!!

#idc if i’m being mean this is curable stupidity

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autism-alley · 2 months

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i don't know if you answer asks but you're one of the few blogs still consistently posting pjo tv crit and it's been such a relief. with the amount of praise it's gotten i feel so gaslit like am i just being a baseless hater?? but no there's a reason a lot of the people criticizing the show are writers. it's a poorly written show and the more i think about it the more problems i find

like i was thinking about the way the kids in the show just know everything and how boring it is to watch, especially the casino scene, and something hit me

the lotus casino functions perfectly as a metaphor for traits associated with adhd--the need for stimulation and time blindness. anyone would fall for the casino's lure, but especially adhd kids. the fact that the show takes that away is REALLY weird to me, to put it kindly

if i were being less kind? i would say there's grounds to argue that having these characters, who are children with adhd, be impervious to something that is designed to trap people exactly like them is, on some level, erasure of their disabilities. especially since the one character who does get affected by it is the one who doesn't have the same neurodivergencies as the two who don't. the explanation for why percy and annabeth didn't start to forget themselves was such a lazy cop out and i can't believe people ate it up

i don't know what that writers' room has against literal adhd children falling for traps that are designed to trap people, but it's embarrassing for them tbh

i’m so glad to hear it anon!! i’m a little surprised to hear it too tbh, i wasn’t sure if anyone else was still. interested in discussing it? it seems like the pjo/atla fanbase overlap means most people have moved onto to the live action atla show. and while i am an atla fan, i didn’t grow up with the show the same way i grew up with the pjo books, so based on what we’d already seen/heard of the natla show before it even released + my utter disappointment and heartbreak regarding the pjo show, i decided to spare myself the watch. i would rather keep my memories of the original show untainted; what i have seen of the show resonates with people’s criticisms of the writing (and as someone who has done costuming work. one look is all you need to understand THAT criticism lmfao).

but i’m honestly… surprised? the pjo show did not get the same level of criticism as the natla show? it’s not like pjo is not also very popular with that same generation, sure, atla being a show perhaps made it more appealing and accessible to more kids, etc etc, sure. but from the fan bases themselves, size aside? proportionately? the pjo fandom is FULL of show defenders just blatantly ignoring the show’s major foundational issues if not just outright parading them around as successes, meanwhile the critics are in the minority. compare that with what i’ve seen where the complete opposite is true of the atla fandom, it’s weird!! and especially jarring to me bc it seemed pretty clear to everyone in the atla fandom the show had Issues, meanwhile the pjo fandom heard the promise from rick riordan’s very own mouth this show is going to be faithful to the series’ spirit. it’s so weird to see the wildly different responses to what i think are prolly equally bad reboot shows, with a fandom of similar demographics (clearly not the SAME demographics or the response would prolly be more aligned but you get my point). so i agree anon, i do feel a little gaslit by the pjo fandom, and watching the atla fandom’s very reasonable response to the natla show is like. whiplash. another sign you and i are not losing it lmao

as for the lotus casino, this is an excellent point! i don’t even think it can be called unkind to point out how this episode is a symptom of the show’s overall disability erasure. i would say it’s unkind of the show to erase adhd and dyslexia representation. in fact, because of the explicit promise by its creator to see that representation, i would go as far as to call it cruel to then erase it. if anything, based on rick’s promises to add more representation, i was hoping for elements like autistic annabeth confirmation, since when pjo was first written, it was based off rick’s son and his friends who were all ND, and at the time it wasn’t thought to be possible to be AuDHD, but likely some of those kids probably were (and that then made its way into the books in characters like annabeth!). that would have been the perfect opportunity to add something with the foresight of modern times, but instead we got… absolutely no disability rep from the show aside from a few short lines of dialogue as a lame-ass bone-toss to the book fans.

the pjo show’s biggest crime is its lack of spirit of the original book series, and that book series cradled myself and every other ND child or child in an abusive situation who read it. it offered us a mother who never got angry with us when we showed “difficult” symptoms. it offered us camp half-blood, the idea of a place, a home, where people like us were not just accepted, but thrived. it offered us a new world. it offered us a friend in percy jackson. i do not feel the show truly offers anything substantial. it only takes.

#anon going ‘i’m so glad you’re still posting pjo show crit’ had me whipping my head around like ‘YOU ARE?’#so thank you anon lmao #i’m still like. marinating in the idea of making a pjo discord server (where crit is welcome)#i don’t know if anyone would still be interested now the like. hype/reverse hype for the show is dying down #and truly excellent point i had not been able to put my finger on why that scene got under my skin so bad #pjo show crit #pjo tv crit #ris raves

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monkiekidtwt · 11 months

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Genuine question, no hate! Why stay on lmk Twitter and repost stuff to here abt it if you dislike it so much? And why are we all arguing over which platform is better? They are all good and bad, there's no better over the other.

To answer this seriously: the reason I stay is because it’s where the majority of LMK fans are. It’s the only place where Monkie Kid News and other such resources resides, and it is often the place that first gets wind of stuff like new releases. If I want to have my finger on the pulse of the show, I sort of have no choice to be. So, while I’m there, I repost the good stuff.

I’ve never engaged in arguments that one social media is better than the other, mind. Just said that Twitter sucks. But the reasons why I dislike Twitter (especially fandom Twitter) are as follows:

A culture of directly harassing people for minor infractions, or what turns out to be misinformation (just the other day, a minor was harassed for something it turned out they didn’t do)

Idolization of big name fans (like I said in an earlier post; if you criticize a big name fan, then you’re gonna get dogpiled to hell and back, and if a big name fan says something, everyone will pretend they’ve always agreed, even if they’ve expressed the opposite recently)

Literal 24/7, unavoidable discourse that nobody tags (today, the topic of fandom-wide discussion was people who treat Mei like she gets in the way of Spicynoodles, which literally nobody does)

It is so hard to optimize your experience and curate your feed, because tagging is not built into the system (like, what would I filter other than ‘Spicynoodles’ to stop seeing the previous discourse, when the majority of them are just text posts with no tags? what if I like that ship and don’t wanna mute it?)

Even if you could curate it better, general social media stuff that everyone knows about Twitter at this point makes it so that you’re always seeing stuff that upsets you (it’s designed to addict you, and feeds you the algorithm which is designed to show you posts that make you upset or angry for engagement, plus more!)

And that’s not even getting into the Elon Musk of it all, or the fact that I’ve had multiple friends on there both watch and be victims of horrific harassment campaigns on LMKtwt that left them with literal trauma symptoms.

Compare this to tumblr:

The culture here is largely “block and move on”

The tagging system makes it easy for people to tag their discourse so I don’t have to see it

Since there is no algorithm, there is no issue with being fed posts to upset me

Harassment is less normalized, and when you are harassed, it’s usually via anon, which you can turn off to shut them up

I have never personally seen any people showing weird behavior towards fellow fans, which is either a sign that it doesn’t happen or that you’re able to curate your feed with minimum effort to never see it

Twitter is an infinitely worse experience, culturally and by social media design, but I stay there because it is where most of the LEGO Monkie Kid fandom is, plus the chill people that reside there sometimes.

So, that’s 1) why I hate it there, and 2) why I’m there anyway. And I run this blog to share the goodies with tumblr, so that nobody else has to feel obligated to be on LMKtwt like I feel that I do. Which is why I make jokes about making such a huge sacrifice for the sake of LMK tumblr, via running this blog.

#plus there’s no politicians on tumblr lol #long post #asks 🍭☁️

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niuniente · 11 months

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I stumbled upon above image from this blog and went “Huh, that’s exactly how my fingernails grow. I know it can be a sign of a severe health problem but doctors haven’t found anything and my fingernails have looked like that for my whole life”. (I’d like to grow my nails long but I can’t because the pressure of the curving is too much and painful.)

(and here’s a pic of healthy nails, growing as they should)

I checked the origin of the photo and found the blog I just mentioned. It’s run by an English person who was diagnosed with BJHS - Benign Joint Hybermobility Syndrome. I read all the person’s experiences and symptoms and yikes! That’s me! (with overlapping IBS and iron deficiency which can’t be treated)

“Benign meaning “it will not kill me,” not that it’s all fluffy-kittens-and-sunshine. Joint Hypermobility meaning my joints move too much in the wrong ways (yes, “double jointed,” though of course I have only a single set of each joint). Syndrome meaning that this problem creates a cascade of other issues throughout my body. BJHS is a connective tissue-based disorder. Somewhere along the line, my genetics have made it so that I don’t either produce enough of, or don’t process completely, the protein collagen. Collagen is like the scaffolding for every connective tissue in your body. Connective tissues include: skin, muscles, ligaments, tendons, hair, bones, eyes, blood vessels, spinal discs, cartilage, the intestines, the heart, the liver… basically, everywhere. In fact, I can’t actually name a part of the body that doesn’t contain it.”

Here are the blog person’s experiences VS my experiences

Insomnia: did I mention the hyper-wired, jazzed-up, over-talkative, never-shuts-down nature of my brain? That I get more hyper the more exhausted I become? That I used to sleep so lightly that my roommate in college could wake me up by writing in her journal? Did I mention that, without the right meds, I probably get one or two nights of truly deep, restful sleep… a year? Me: Yup! I sleep so slightly that when I had a flatmate, I woke up when she touched the handle of her door. Though my insomnia isn’t as bad as this persons, I do regularly need melatonin to sleep normally. Otherwise I can’t fall asleep until 8am, even if I was super tired during the day. Otherwise I sleep well.

Liver metabolism: I have serious problems processing medications, as I have a liver that is slow to metabolize chemicals. I cannot take a very long list of drugs, including most pain killers. This also includes naturopathic treatments… even my own hormones! I get side effects (or no effects) with everything I take. As my naturopath likes to say: “You just walk by a chemical, and it affects you.” Me: My shiatsu healer said that my liver is not working properly. I have hormonal problems. Even with the IUD I still get them monthly, though IUD has improved my health tremendously.

Complex PTSD and anxiety: like the stuff combat veterans get, only not quite. Caused by excessive exposure to stressful situations that one cannot escape, like, say… a bully at work (not saying that was my situation. Just as an example…). Though I received great treatment, people with BJHS are prone to stuff like this: fight or flight, remember? Me: I’m getting better but I’m 24/7 anxious more or less. I hope I can continue having anxiety medication for “bad things” like traveling. Do you know how annoying it is that you love traveling and have traveled the same journey for 10+ years and your anxiety still says “Okay but this time, something bad CAN happen!!” I was also pretty much mute for 12 years. My muscles are tense 24/7 due hyperactive nervous system and anxiety.

Heart palpitations: yucky, but harmless Me: Sometimes they happen, ugh...

Irritable bowel syndrome Me: TELL ME ABOUT IT QoQ The IUD has helped with this, too, as apparently I also have endometriosis which causes IBS to some.

Sinus problems and severe allergies (go immune system, go!) Me: YUP! Just got finally an allergy medication after sneezing daily, 20 times a day for 30 years. I new life has began! My nose isn’t running! I don’t need to have a truckload of tissues everywhere!

GERD (bad acid reflux) Me: And it gets worse with hormonal changes... I’ve got 4 different medications for this.

Poor balance and an inability to fully understand where my body is in relation to everything else. Me: Not really my issue but I do get clumsy with hormonal chances. It’s a common joke between me and my sister by now.

An inability to regulate body temperature, including both freezing extremities and excessive sweating, sometimes at the same time Me: This is genuinely THE WORST! It’s -30C outside, I go there half-naked, walk for 3 minutes and I’m sweating like a little big. All my clothes are trenched with sweat in 10 minutes. I’m inside and it’s 23C and I need wool socks and wake up with a sore throat because it’s too cold. I also “catch” the temperatures easily and shower (or sauna) is then the only option. If I catch “cold”, I will not warm up no matter how warmly I dress and sit in front of a heater. If I catch “hot”, I will not cool down even if I sat in front of a fan naked with ice-cubes on my body.

Hair that breaks easily and nails that are bent and curl off the tips of my fingers, as well as fingers that wrinkle like I’ve been in the tub for days Me: Yes. I need to use hair oil daily and baby oil for body and my eyes are like Sahara desert. Nails curve and my fingers are always wrinkly.

I have painful big toe joints, so no high heels for me. Walking long distances can be a disaster, so good shoes are very important. I suffer from plantar fasciitis, which means the bottoms of my feet hurt, especially in the morning. Me: Same. I went to doctor to complain how my toes hurt but they couldn’t find anything. My soles hurt extremely easily - like 5h walking and I’m already in pain. Doesn’t matter if I’m 45kg or 100kg in weight, it still hurts the same. Fingers hurt all the time.

My immune system is hyper-active as well, mounting elaborate, full-scale mucus or lymph node or other responses to mild colds and viruses. I’m sick a lot longer than normal people, and a lot more seriously, yet it’s not due to a poor immune system, but rather one that’s too strong. Me: Same. Last time I was sick was in 2017. It was just a normal cold but it took 4 weeks from me to recover. I was bedridden for a week. I’ve not gotten covid and despite my shitty bowl I don’t get sick easily. I don’t remember the last time I was sick prior 2017. Probably in 2007? With a bit runny nose though.

Loose connective tissues mean joints that move too easily, which means pinched nerves and pain. Think about how it feels when you throw your back out, or get carpal tunnel syndrome. Now imagine this feeling all over your body. My nerves get pinched, causing several types of pain. I get back pain, obviously. I get numbness and mild paralysis in my thighs and hands. I get weakness in my legs and arms, and sciatica/restless leg sensations if I sit too long. Worst of all, I get parasthesia in my fingers and toes (that’s the tingling, painful sensation you get when you sit funny and your foot goes numb, then starts to wake up). I have this sensation, in varying degrees, all the time. Me: I’m literally in pain all around my body from neck below, for 24/7. Only the level of pain differs. I get easily numbness to arms and legs. I’ve started to suffer of restless legs and middle body with heavy jolting, especially if I’m tired. If I’m stressed and go to sleep, my nose and lips switch a lot.

#niu's life #over the years I've tried to figure out what's wrong #but it seems - also by docs - that there's plenty of wrong #I guess whoever assembled my body must have done it on Monday #after a rough party weekend with eyes closed

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