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#livingwithed
danaernst · 5 months
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Understanding Tadarise 20mg
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croquism · 1 year
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I just wanna go home... I don't know where that is.. I haven't found it yet..
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vikingstoner69 · 10 months
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So after 5 long years 127 surgeries and two comas on the 4th of July I got the call to get a kidney and on the 5th at 6am they put it in. Everything went absolutely amazing and I am now home.
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fangwhoria · 1 year
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im so tired of this college is honestly the most fucked up thing you can do to a person
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thecpdiary · 10 months
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Living with Worry and Anxiety
In a changed global world that is getting harder for me to navigate, since my twin passed, I live with worry and continue to live with anxiety. Losing my twin is still early days, I need to be able to regulate my emotions better. My disability is also concerning, because I have no way of knowing how I'm going to age with it.
Eagle Syndrome
My twin was my safety net and now I have and deal with Eagle Syndrome, every day is a fight to stay well. I want to get into my life, and it's already been on hold because of the pandemic.
I have no idea about my physical disability as I age and the doctors don't know either. All I was told when I found out about cerebral palsy in my forties, was that as I age, brain cells would die and I would start to see physical changes. That uncertainty is a concern, a worry.
The thought of going through the ageing process without my twin is scary
Going through the ageing process without my twin is concerning. I don't know how that looks. I feel better for writing, for getting my thoughts out there, but even with my writing, I still have to get on with my life and that's where I can become stuck.
Living with worry and anxiety
I live with worry and anxiety, often feel overwhelmed and lost, not helped by the external decisions that have been made by the UK government. I can go to bed with worry and wake up to another day feeling lost and alone. Now with Eagle Syndrome, I literally have no idea on anything.
The neuralgia pain I have in my face, pain in my ear and my jaw brings yet more worry and anxiety. My twin was good at being able to find resolutions on illness. She'd know exactly what to do.
For more inspirational, life-changing blogs, please check out my site https://www.thecpdiary.com
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rakeshouseparty · 8 months
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Even tho iremade Doc i still want him livingwith nurse charlotte so if any of usee me drawing some grumpy lookin old lady along side him that is her:)
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washwashgalaxy · 8 months
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The Flute Man By Orisa Onyemachi
The Flute ManI am Onoka the flute man,not the loafer,the weaver of songs,not the failure!I needle shells of foibles,into rhythmsof soul lifting laughterI create ventson the walls of troubled livesto douse the heat of livingwith the skills of my flutingsI heal deeply seated woundstattooed upon the skin of the soul,with the magic of my oja*I lift drowning spiritsfrom the valley of griefto loftier…
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ritaltime · 1 year
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Understanding Amyotrophic Lateral Sclerosis (ALS): Causes, Symptoms, and Treatment
als #ALSawareness #NeurodegenerativeDiseases #MotorNeuronDisease #LouGehrigsDisease #ALSResearch #ALSsymptoms #ALScauses #ALStreatment #ALSsupport #Neurology #ALSfundraising #FightALS #ALSeducation #ALSprevention #ALSadvocacy #ALSimpact #ALSsurvival #ALStherapy #ALSawarenessmonth #LivingwithALS
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eric1255 · 2 years
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State Of Mind
Headed north to CanadaTo find a new way of lifeMaybe the great outdoorsWill end my suffering and strife Winters are mighty coldSummers not so muchMy friends think I’m crazySay I’m out of touch With the reality they’re livingWith the way that things areWith what our leaders are sayingEven how I drive my car Am I just crazyLeave it all behindFind a new way of livingIn a peaceful state of mindI…
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owls-howl · 4 years
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thankful that my body let me spend such a beautiful day out on the water. 💙☀️ . . . . #discoverwisconsin #wisconsin #outdoors #summerinwisconsin #kayaking #girlswithtattoos #explorewisconsin #eds #livingwitheds #ehlersdanlossyndrome (at Seeley Lake) https://www.instagram.com/p/CAUBacTHjx4/?igshid=1snebbcatj18u
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vikingstoner69 · 11 months
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So as some of you may know I have end stage kidney disease and have been working very hard to get on the transplant list. Well this morning I got the call saying I am on the list and at the top so have a bag ready for the call that could happen at any time. So fics may stop for a bit suddenly that's mostly I'm in the hospital with a new kidney.
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darcieclaesson-blog · 4 years
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We Just Disagree
Been away, haven’t seen you in awhile,
How’ve been, have you changed your style?
Over the last 216 days my life has changed unimaginably, SO I have been away for awhile.
I needed to do some life changes, I had to change my style.
Don’t seem the same, it seems you’ve lost your feel for me..
Living with Crazy, I needed something to change, so here it goes…
A little update as to where we have…
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livingwithic · 5 years
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Living with IC, you’re not alone!
After a bad flare day i’ve decided that i’m not going to let this horrible illnes affect my life any longer. I want to motivate myself and others to try to live their lives to the fullest even with chronic pain. I’m going to post both the negative and positive aspects of this disease. Self acceptance is key! Lets be survivors together!  (I was diagnosed a year ago with IC and prior to that i was in pain for half a year. Yes, i am still in constant pain.)
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goodearthyoga · 5 years
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It is EAGLE POSE-itively good to be back home!! #pun #joke #yoganerd ——- But seriously #6amcrew, #backtobasics sometimes means shifting from “low” to NO-impact water exercise. Nerve Damage may limit your quantity, but it is you who drives the quality. ——- Part of work is rest, and at each stage of it life this is a unique balance of ability, tolerance, strength, spirit and support. It’s okay to take it back to the level that serves you...TODAY!! ——- Find success in the present, if only a deep breath and closed eyes for a second. “Shivers down my spine, Body aching all the time!” So say in your heard theses words and say these things... 1) “I breath in.” Breath in for five...SUSPEND at the top. 2) “I breath out.” Let air fall from your body for five. PAUSE at the bottom. The space in between. ——- The truth of the present moment. I’m still thinking of @dianeleeyoga & @karayogadance at @bathyogastudio The words, love, and generosity of your souls was one of the absolute highlights of my trip!! To @sylvia_lane17 @ambershakiralane @abigailgreen81 @corrinruthreilly whose loving generosity knows NO bounds...My heart sends a big warm #cwtch (#welsh for hug) you all from #sunny #La!! Namaste my friends!! #poolyoga #sun #hottub #firstpoolday #wellness #healing #yoga #yogi #neuropathy #livingwith #nervedamage #feet (at Los Angeles, California) https://www.instagram.com/p/BvHKkaxF9fH/?utm_source=ig_tumblr_share&igshid=zixm0f0raw1b
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thecpdiary · 3 years
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Living with Stigma
I normalise my thoughts, by writing about what I deal with on my blog. I take away the stigma. You would have to be asleep at the wheel not to be aware. Around disability and mental health, we more than most live with stigma.
When a person is labelled by an illness or disability, when others view them in a negative way because they have personal traits or distinguishing characteristics that are deemed a disadvantage, then you know you’re dealing with stigma; where what you deal with is ignored, where no one owns up to admitting they need to make you and your disability inclusive.
You know you’re dealing with stigma, when others fail to talk about, or bring what you deal with into every day. We can all change our perceptions, the way we look at something and as soon as we do, attitudes can change.
There are days where I struggle with certain aspects of my disability. I have reconciled much of what I deal with, but as I continue to present differently, I am stigmatised and that never goes away.
If something isn’t working, you seek to understand why, to change it through new perceptions. Those like myself with a disability cannot change how we view and see the world, but others can choose to help us see our lives differently, by talking about what we deal with and bring it into our every day.
We all have a role in society to help and bring disability and mental health into everyday situations so that those people living with something, feel inclusive, not exclusive. It is important mental health and illness relating to mental health are talked about, in families and society.
Having a mental illness or a physical disability needs to be normalised. It is wrong for others to ignore, label, or judge. As a society we need to get rid of the stigma associated with mental illness, disability, race and gender.
For more inspirational, life-changing blogs, please check out my site https://www.thecpdiary.com
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