#hysterectomy experience
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Those who have done a hysterectomy.
Where there any big changes other than not having periods?
Like what is the process like, what changed? Where there any bad side effects, or good ones?
How long did it take to heal, and I understand each person is different.
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I really think we need to start talking about the stigma around hysterectomies and their place in the treatment for the symptoms of endometriosis.
Something I see often is the phrase 'hysterectomies don't cure endometriosis', which is very true, but do you know what a hysterectomy can cure?
Pain.
And you know the pain I'm talking about. The gnawing, all encompassing agony that surrounds our entire lives. The one that keeps you from going back to school, or uses up all of your sick days and vacation time from work combined, the one that leaves you dry heaving for hours until you pass out on the bathroom floor. That pain. There's truly no describing what it's like until you're living it.
And I cannot describe to you how free I feel knowing I will never have to suffer through that ever again.
If we continue to talk about our pain journeys we can end the stigma against hysterectomies. It will never be a cure-all, but remember that you are not a baby machine, you are a human being who deserves to live pain free. And I'm telling you, it's possible.
#endometriosis#hysterectomy#adenomyosis#chronic illness#chronic pain#i was discussing this with my doctor#theyre finally studying hysterectomies relating to pain#and the amount of people who experience pain post surgery#is like less than 0.1%#i like those odds#and i feel so fucking good you guys#i haven't had a period in over two months#TWO MONTHS!!!!!!!!!#NEVER AGAIN!
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#shit chat#medical cw#meatsuit renno#finally worked up the guts to message the surgeon who did my hysterectomy like#hey i know it's normal to experience pain and stiffness for a while after this surgery like at least a couple months#but uuh. it's been 8 months and i still wake up feeling like shit most days?#pretty sure regular shooting pains where my right ovary used to be aren't normal almost a year after surgery?#like i could be wrong but i feel like i probably shouldn't need 1200mg of painkillers a day to manage constant throbbing abdominal aches#after i've hit the 'maximum recovery window' for this surgery uuh [checks calendar] ...nearly three times?#at least the fatigue has finally started to go away. i feel my vitality returning slowly but steadily#but i'm still not back to my pre-op activity or mobility levels cause OOF OUCH MY ABSOLUTE PELVIS#and i've been noticing an abnormal amount of abdominal bloating that doesn't seem to correlate with indigestion or other factors#and isn't fat from weight gain like i initially thought it was#idk maybe i'm paranoid but i read an article a while ago abt someone who had a 15lb cyst in that nobody noticed for over a year#bc they were AFAB & our pain is chronically underreported and not taken seriously when it is#like did y'all leave some forceps in my gut and now i'm growing a mass around it?? wtf????#idk if i hope it's nothing so i don't have to deal with more medical bullshit or if i hope it's something to legitimize my experience#godddd it would be so satisfying if i got to tell my boss's boss who's been hounding me relentlessly about proformance and Managing Burnout#HEY JACKASS TURNS OUT I'M A VICTIM OF BOTCHED SURGERY AND YOU'RE A DICK FOR NOT GIVING ME ACCOMMODATIONS
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every few months or so, when my period would typically fall, ill have a week where my maternal instincts kick into WILD overdrive which is hilarious because while I do love children I have absolutely 0 desire to have any of my own but its inconvenient cause every time I see something small and cute there's a 50% chance ill burst into tears and a 95% chance that if I see a cute stuffed animal in a store im gonna be overwhelmed with need and buy it
#if youre curious as to why this happens despite me having had a hysterectomy- I still have my ovaries#I opted to leave them in and save myself the money on the hormonal supplements I would've needed for the rest of my life#but because I have my ovaries I still experience those fun hormonal shifts around period time#this only happens every few months so 3 - 4 times a year typically#so its worth it! but Jesus Christ I am so fuckin emotional rn#I saw a TikTok account about silicon baby animals and almost started wailing last night#luckily the prices were fucking absurd so I didnt buy anything#though im currently completely overwhelmed by the need to hold something tiny and small
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Pre-op nurse: this medication induces amnesia in most patients, so you may not remember pre-op.
Anesthesiologist: Anesthesia usually gives patients amnesia. You probably won’t remember going into the OR through a few hours post-op.
Surgeon: It’s normal not to remember much, if anything, of the day of surgery with medications like these.
Me, 8 days post-op: yah so I still remember everything. Want me to tell you what color the oxygen mask straps were? Or describe the recovery room? I can do that.
#🤷🏽#atypical drug reaction#surgery#hysterectomy#woodsfae#luckily I had a great experience#everyone was incredibly nice to me at all times#and even when I was in a lot of pain I was doing fine
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straight up lost a whole scab off of one incision while gently removing surgical glue today :o
they’ve been slowly degrading on their own — this isn’t the first one ive lost — and everything looks pink and healthy, so im not worried, but i was like “whoa” lol
#personal#in the future im gonna try & write an honest My Hysterectomy Experience post#bc there’s very very little out there for ppl who are not cishet women & are getting hystos#and a lot of my most worrisome questions about Can I Do That Yet are not answered in places ive found
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Idk how much of this is endometriosis fuckery and how much of it is autism mixing up body signals but it currently feels like my lower abdomen and upper thighs are nauseous. What the fuck do I do with that
#brb im just dying i guess#its not that my stomach as nauseous (although it is)#and its not that my lower abdomen and upper thighs hurt (although they do)#it is that the area below and entirely separate from my stomach feels nauseous#what do i do to treat that. pain meds? nausea meds? both?#a hysterectomy sounds great right about now#they told me that i may still experience symptoms during my first three months on the shot until i get my second dose#but i didnt know that it would confuse my body so much that it would start putting symptoms in the wrong place#+ all the other normal endo bullshit thats been going on#im dying squirtle#rambling
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#I have an appointment with my gynecologist in about.. 8 hours#it's making me so anxious that I can't sleep 🙃#there's nothing that I hate more. it will be awful#and I'm thinking about telling her that I'm not cis bc maybe then she'll take me more seriously about wanting a hysterectomy#I mean I've had awful menstrual cramps for TWENTY YEARS now. and in the past 8 years it's gotten so much worse.#can't get a fucking endometriosis diagnosis because I was stupid and didn't go to a specialist for my laparoscopy. and now I can't fucking#make myself make an appointment with one because that experience was horrifying tbh#so I have no fucking idea what's wrong but something very clearly is bc I've been in pain all day every day since that laparoscopy#but no diagnosis = no medical reason for a hysterectomy :)#anyway I just don't want to have a body anymore. this thing is fucking useless and I hate it#but I feel like she probably won't know shit about trans stuff so that might just make everything worse. though I feel like she might#handle it better than my GP would? ahhh I just hate everything#someone come cut my uterus out of my body please. don't care if I bleed to death I just want the fucking thing gone 😭#anyway I'm fine :) :) :)#personal#could have just put all that under a read more but I didn't even mean to write any of that so.
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I hate that we're living in a world where people are being stripped of their right to safe and affordable reproductive healthcare and I also hate that we're living in a world where "if you're so scared why don't you just sterilize yourself you selfish dickhead" is a response that makes its rounds, unchallenged, every time the subject is brought up.
#Saying this as a trans man who is scheduled for a hysterectomy in the fall: it is a very daunting and expensive experience.#To throw this at anyone of any gender or sexuality like with no regard for history or bare mimimum empathy is an insane thing to do.
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Was just having that conversation last night with @schizodiaries about thinking/reminiscing(?) about the hospital and now here I am looking through my BFF groupchat messages from the day of my laparoscopy
The first thing I sent from the hospital was this selfie taken in the waiting room at registration captioned with "Greetings from the hospital"
(I can see at the bottom that my shirt is red, and it was my officially licensed Last of Us shirt... I also had black track pants and a grey cardigan bc I'm still gonna be putting together an outfit while heading to the hospital where I will leave with holes in my abdomen)
Here is the stuffed animal I brought with me... I asked the first nurse what to do with Ulana, thinking I'd get told "Oh you can just leave her in your room" or "You should probably put her away in your bag" but instead I was asked "Do you want me to ask if you can take her to the OR?" so Ulana stayed with me until I was on the operating table, where they took her and put her on my stretcher along with my mask and my glasses
(I went shopping several times in the months leading up to the surgery with the mission of finding a plushie to take to the hospital and the 3 plushies I nearly got instead were a pig in a hoodie from Miniso, a grey and white cat from Build-A-Bear, and a Jurassic World-branded t-rex from Toys R Us)
I remember immediately asking for my purse so I could get my phone once I was returned to my room and I believe this is the first thing I sent to anybody when I got out of surgery... I also texted my mom, messaged a few Discord servers, and posted on Tumblr
(And yes, we have the Mean Girls theme for our chat)
When I woke up in the PACU, I had like 3 blankets so I couldn't find Ulana among them and had to ask the nurse for help but then I immediately lost her again lol, I think I hit Ulana with my elbow when putting my glasses on
(I handle anesthesia weirdly well so while some people don't remember being returned to their rooms and the doctor said I wouldn't remember her coming to my room to tell me what she found, I actually even remember laying on my side with the oxygen mask on and sticking my fingers under it to wipe away drool as my first memory coming out of anesthesia)
It ended up being my left butt cheek, I remember taking off the band-aid and the EKG stickers in bed at home later that day
My mom noticed I had pads on my grocery list which I needed for the first week afterwards so before picking me up, she stopped at Shoppers and got me some pads and this big squishy unicorn bc I had a pegasus-unicorn with me for the surgery to remove my extra tooth when I was 7
#aside from getting an internal exam without my consent it was a positive experience#i went back 3 weeks later with timbits and a card for the nurses station#lowkey disappointed a hysterectomy is not happening any time soon lol#i get it bc its an 8 week recovery but it would be nice to a) one and done this shit and b) find out if i have adenomyosis#my anesthesiologist for my laparoscopy was the same one who did my consult#i got a consult bc im hypermobile and have heart and lung issues but i was doing so well that he seemed confused i was there#my surgery was a huge deal to me bc it would potentially give answers#and i didnt realise until afterwards when i was mad at my body how much i was expecting endometriosis#(it could still be endo but in such small amounts that it doesnt show up in surgery)#(and thus cannot be removed)#the estrogen is slapping right now
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Well. I think I'll talk about my kidney cysts another day, I'm still really frustrated with my insurance but I'm trying to be patient and not catastrophize about what all could be wrong since it could be just a week or 2 before my doctor/insurance works out a way to get the CT scan authorized
Anyway, I have my labs tomorrow, and I really don't feel well (pain + exhaustion + nausea) but I don't want to reschedule them again, both because I know I'll just also not feel well next week, and because maybe the lab results would help provide more justification for the CT scan to be authorized, but
You know?
#erin talks#text#not to be like my usual self that views myself as a fun little science experiment#but it almost makes me want to ask for the imaging from my uterine/ovary ultrasound from 2021; my insurance wouldn't authorize my $40k#hysterectomy without it & I've talked about how like despite the Everything about my periods (2-3 periods a month; extreme bleeding;#non-stop pain) my doctor couldn't find anything Wrong with my uterus (& there was no endometriosis)... so like what did that ultrasound#show that made my insurance approve the surgery? I know my uterus tilted backwards to the point it put pressure on my intestines#instead of my bladder (which caused . GI issues since the day I was born let's say lmao) but idk if that was reason enough to approve#the surgery . sorry this got TMI lmao 😭 do you still think I'm sexy even after I described my internal organs pressing on my intestines#medical talk tw
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The appeal of a hysterectomy grows by the day
#personal#i honestly do not mind my period from a gendered perspective#it’s like having migraines#sometimes i have debilitating headaches and i manage them; sometimes my genitals hemorrhage blood and i manage it; same difference#but the amount of blood loss is getting untenable#i have dutifully taken my iron supplements and been eating a fuck ton of burgers and spinach and i’m still so tired and light-headed#i have a constant low-level headache and i can’t focus because i feel so exhausted#this is likely because i am losing 60 ml of blood a DAY instead of over the course of the entire week#which is apparently what most people experience#anyway i did very much want a hysterectomy when i was a teenager and did some semi-serious research into it#and now i’m like… ‘oh yeah i could actually just do that’#that’s a choice that is open to me#why suffer needlessly you know?
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My chronic illness is chronic illnessing
This is surprising for some reason
#endometriosis#rant#what do you mean I actually have to experience it not just complain about it#srsly can someone give me a hysterectomy this is bullshit and I’m tired
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I find it interesting how people don't seem to know about or expect trans men to get bottom surgery or other masculinizing surgery and treat top surgery as *the* surgery. Like, I saw my anthropology mentor today and I hadn't seen her since before I had surgery, and she said something along the lines of like "it must be such a relief to get *the* big surgery over with", as if top surgery would be the only major surgery I could feasibly get over the course of my transition. And you see this a lot with people equating trans men with having a vulva, using terms like "boypussy" (a personal ick) when referring to sexual experiences involving trans men, as if trans men couldn't possibly have other genitalia. And of course facial masculinization surgery is also a thing many trans men opt for, but it is never talked about as even a potential resource for trans men, despite it being a valid option.
Personally, I think top surgery is it for me. I would love to be able to get bottom surgery, but unfortunately I have genitourinary disorders and I don't think it's a good idea to mess with anything down there. But if I didn't have those disorders, bottom surgery would not be off the table. And getting a hysterectomy or something similar certainly is *not* off the table, I would like to get some sort of sterilization procedure at some point.
I don't know if this is part of people thinking trans men somehow have an easier time "passing" than other trans people without significant intervention (we don't) or people being uncomfortable with the idea of trans men "ruining" our femalehood, or maybe it's a combination of both ideas and others, but it's just such a frustrating phenomena.
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Post on r/ftm caught my eye: a trans man worried that getting a hysterectomy made him unkind/aggressive bc he'd had multiple friends including his (cis) partner tell him he'd been way more aggressive since it. His partner had the audacity to tell him it made sense bc he now lacks ALL estrogen, but he'd need to be more careful with how he acts now. A friend claimed that bc of the histo he was swearing more and "not [his] happy chipper chill sweet self." This all happened on *the third day after his surgery.* None of them were mentioned even considering that could have to do with the irritability. Sometimes the idea that trans men don't face any ostricisation or negative consequences for transitioning makes me want to Yell.
Honestly this shit is so disgusting. You hear all kinds of trans men&mascs experience this: folks who get surgery, get on T, or even just come out & suddenly their friends/family/coworkers are telling them how mean and cruel and angry and violent they are now! It doesn't matter if you can't see it because everyone else can so you need to constantly be self-policing and checking with them to make sure you are behaving Correctly! And if you ever get angry or annoyed or just mildly upset with them for this, or anything else, they'll tell you how mean and abusive you are for not being perfectly mild and agreeable all the time!
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Despite the best possible results and experience and not regretting it for a moment top surgery was still hella traumatic for me and I get flash backs sometimes if I touch my chest
#the hard part is I feel pretty alone with these feelings I don’t think anyone could’ve really prepped me for the experience#it doesn’t help that it was my first surgery#but because of it I made a mental block around getting another surgery even though I could really benefit from a hysterectomy#which isn’t as invasive
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