mybendyplaces - Tumblr blog

mybendyplaces · 5 months

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tl;dr: i’m opening commissions so i can afford some much needed braces and compression gear for EDS and POTS

hihi everyone! i’m in a bit of a bind and i really need a shoulder and knee brace plus some compression gear thats just outside the realm of affordability for me. getting a job in my minuscule college town has proven to be insanely difficult, so i’ve decided to open commissions! for the time being!!

here’s some examples of my art:

I will NOT draw:

• NSFW art (including gore)

• anthropomorphic animals (nothing against them i just don’t have the skill)

• anything regarding hate speech or the like

to open a commission, you can DM me and let me know what you want and we can talk about it! for flat color and full render i do ask for half upfront :) (also, If you want more than one person, we can talk about how much extra it’ll be!)

please please reblog for traction! the winter is coming and my knees feel brittle lol.

tl;dr I’m opening commissions so i can afford some much needed braces and compression gear for EDS and POTS

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mybendyplaces · 10 months

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[image description in alt text.]

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mybendyplaces · 1 year

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anyone else with hEDS feel like a bunch of loose bones in a ripped up rite aide plastic bag

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mybendyplaces · 1 year

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I've seen this before, but it's been years and it just came across my Twitter in its dying days. The words are from a favorite author of mine, Maggie Stiefvater, and they are the words I most need to hear when it comes to dealing with chronic pain and illness. I didn't need this the first time I saw it, six years ago. I need it now. Maybe you do, too.

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mybendyplaces · 1 year

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People who caught it put in the tags what year it was and how bad it was and if you had any side effects

#got it nov 2022 #wasn’t as bad as it could’ve been but i was out of commission for 3 weeks #had POTS flares on top of it #even missed thanksgiving

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mybendyplaces · 1 year

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i noticed its been a while since i’ve posted here! just thought i’d let you all know i’m still around :) (smiley face) just haven’t had to spoons to be on here much and reblog, nonetheless make original content. hope y’all are okay ☺️.

#spoonie problems #ehlers danlos awareness #hypermobile ehlers danlos #bone hurt disease #just chatting #bendy thoughts

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mybendyplaces · 1 year

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Please reblog if you can so I can get a larger sample size

Feel free to put any clarifications in the tags (I’d be very grateful) <3

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mybendyplaces · 1 year

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in this new year I want you to be alright. I hope you move out. I hope you have enough money to feel safe. I hope you abandon shame and forgive yourself. I hope you get enough sleep and some good news. I hope you laugh a lot and the heaviness of the world eases a bit. I wish you to be alright.

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mybendyplaces · 1 year

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I’m so angry at the number of people who have commented on my chronic pain posts like “I don’t have chronic pain so I don’t count but I do have chronic migraines-“

that’s chronic pain. that’s specifically the type of chronic pain I’m referring to.

and I’m absolutely not mad at those people, not in the slightest, but I’m furious at everyone and society as a whole that’s convinced them that they don’t count, that chronic migraines aren’t a genuinely debilitating form of chronic pain and disability.

migraines are chronic pain and have significant impacts on your life and you deserve to have that validated and not brushed off as “other people have it worse” or “not a real disability.”

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mybendyplaces · 1 year

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Me trying to get all my doctors to coordinate with each other so I can get the care I need.

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mybendyplaces · 1 year

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How to help millions of disabled Americans

The SSI Restoration Act of 2021 is currently proposed to congress. We have until 2023 to get it passed (this post is dated March 30, 2022). SSI is a type of disability payment for disabled Americans. The bill will increase the SSI payment to the poverty level. Right now the maximum payment is 9528$ a year. It will allow disabled people on SSI to marry and not lose their income which they cannot do currently. Disabled Americans do not have marriage equality currently. It will increase the asset and income caps for SSI among other improvements.

Friends and I made a website that has all of this info plus a really easy way to send an email to your state reps. If you click the link below, you can send a letter of support for the SSI Restoration Act to your state reps. It’s already written and takes only a few minutes. Seriously it is ridiculously easy. These emails have more pull to reps than resistbot so please fill out if you can!

With our letter campaign, people have sent over 5,000 letters to representatives! We've decided to make a new campaign with updated information to send to reps. So if you have already sent one through fixssi.com, you can send another! And if you haven't please take the time to do so!

We also have a Facebook called "Campaign to Fix SSI" that you can follow for regular updates as well.

And if you are able to call state reps (which has the most influence) our website has a call script and lists of your reps phone numbers. Please follow the link below for that.

Please send a letter to your reps and boost! It could change the lives of millions of disabled Americans.

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mybendyplaces · 1 year

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Hot hot girls get presyncope when standing up

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mybendyplaces · 1 year

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advice from doctors for EDS: avoid exercise!

advice from doctors for POTS: exercise!!

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mybendyplaces · 1 year

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This ABSOLUTELY works.

I have used this for many years. Definitely b do it.

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mybendyplaces · 1 year

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What is dysautonomia

Definition:

Dysautonomia refers to a disorder of autonomic nervous system (ANS) function that generally involves failure of the sympathetic or parasympathetic components of the ANS, but dysautonomia involving excessive or overactive ANS actions also can occur.

Some symptoms include:

Abnormally fast or slow heart rate

Anxiety

Excessive sweating or not being able to sweat

Fatigue

Feeling short of breath (especially when you exercise)

Feeling thirsty all the time

Having trouble swallowing

Headaches

Insomnia

Nausea and diarrhea

Vision problems (blurred vision, vision loss, tunnel vision)

AND A LOT MORE

Dysautonomia affects:

Blood pressure.

Breathing.

Digestion.

Heart rate.

Kidney function.

Pupil dilation and constriction in the eyes.

Sexual function.

Body and skin temperature control

Examples of diseases in which secondary dysautonomia can occur include:

Diabetes.

Parkinson’s disease.

Muscular sclerosis.

Rheumatoid arthritis.

Lupus.

Sjogren's syndrome.

Sarcoidosis.

Crohn’s disease, ulcerative colitis.

Celiac disease.

Charcot-Marie-Tooth disease.

Chiari malformation.

Amyloidosis.

Guillain-Barre syndrome.

Ehlers-Danlos syndrome.

Lambert-Eaton syndrome.

Vitamin B and E deficiencies

Human immunodeficiency virus (HIV).

Lyme disease.

Different types:

Neurocardiogenic syncope (NCS): NCS is the most common form of dysautonomia. It can cause fainting spells that happen once or twice in your lifetime or multiple times every day. NCS is also called situational syncope or vasovagal syncope.

Postural orthostatic tachycardia syndrome (POTS): A disorder that causes problems with circulation (blood flow), POTS can cause your heart to beat too fast when you stand up. It can lead to fainting, chest pain and shortness of breath.

Familial dysautonomia (FD): People inherit this type of dysautonomia from their genetic relatives. It can cause decreased pain sensitivity, lack of eye tears and trouble regulating body temperature. FD is more likely to affect Jewish people (Ashkenazi Jewish heritage) of Eastern European heritage.

Multiple system atrophy (MSA): A life-threatening form of dysautonomia, multiple system atrophy develops in people over 40 years old. It can lead to heart rate issues, low blood pressure, erectile dysfunction and loss of bladder control.

Pure autonomic failure: People with this form of dysautonomia experience a fall in blood pressure upon standing and have symptoms including dizziness, fainting, visual problems, chest pain and tiredness. Symptoms are sometimes relieved by lying down or sitting.

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mybendyplaces · 1 year

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I just wanted to say I'm sorry about your lack of help from nsaid's. I know immune is the "wrong word" but I stopped getting use from all nsaid's by the time I was 18, because I had used them so often that they just, didn't do anything anymore. I want you to know you're not alone, and I also know that alienating feeling of "why can't it just be easy, why can't it just work". I have faith you'll find a doctor that realizes that you came because you need help, whether you're young or not, but in the meantime just know that it's not hopeless, and that we spoonies are here for you 💕

this is so encouraging anon, thank you!!! this really made my day

#bendyasks #anon #heds #medical gaslighting cw #chronic pain #spoonie

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mybendyplaces · 2 years

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I'm really sorry for posting this again, but i really need help.

https://paypal.me/pools/c/8sRZRs2djR

I'm currently trying to get money so i could afford my PTSD and depression medication, hip brace, knee braces, rehabilitation and therapy that haven't been able to afford for a year now and i really need mental help.

If you can afford it, then please consider donating I would really approciate it and if you dm me i could draw something for you. Every cent helps!

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