I have seen some misinformation on endometriosis getting a lot of notes on this site, so here are some endometriosis facts with sources

Endometriosis isn't endometrial tissue migrating outside of the uterus, it is similar to the tissue lining the inside of the uterus (1)

The cause of endometriosis is still unknown, there are many theories still being explored (2)

Suppressing menstruation with hormones is not always an effective way to slow down the development of endometriosis lesions, current hormonal treatment options are mostly meant for pain relief/symptom management, sometimes they are not enough, and they are not well tolerated by all patients (3) (4)

Negative ultrasound or MRI results do not rule out endometriosis : Some doctors do not have enough expertise to read the results, and some types and locations of endometriosis are less likely to be visible and require a laparoscopy for accurate diagnosis (5)

Estrogen is not universally bad for endometriosis, combined oral contraceptives are not forbidden. They might be less effective than progestins but they are still a viable treatment option (6) (7)

There is no known cure for endometriosis. A hysterectomy cannot cure endometriosis, however it can provide pain relief (8) (9). Excision surgery does not cure endometriosis either (10)

Anyone can have endometriosis regardless of their age (11) (12)(13), sex (14), or gender (15) (16) (17) (18)

Endometriosis can be asymptomatic, and the stage or type on endometriosis does not always equate the severity of symptoms (19)

Endometriosis can be found outside of the pelvic area/gynecological organs (20)

Anyway, please do your own research, always double check what your doctors tell you, and don't believe strangers on the internet just because they mean well. Take care <3

suffering from vaginismus: depressing, outdated, hurts self esteem

impenetrable: innovative. badass. funky. makes me feel like a transformer.

One of my dearest friends married her college sweetheart and then confided in me that sex was extremely painful. I wish I could have been a better friend to her. Perhaps I assumed that because her father was a physician, she was okay and eventually it would all work out. Unfortunately her marriage fell apart. If only I could go back and share the following story with my sweet friends. Vaginismus is the medical term and it is treatable. Like any other ailment, we must advocate for ourselves: Listen to our bodies and keep complaining until you meet the right medical professional.

Video: "Our Story of Dealing With 3 years of Painful Intercourse: Vaginismus"

Please share this video/story with your followers. Sharing is caring.

Workmate: Does anyone have any tips for dealing with pelvic pain?

Me, cracking my knuckles: Strap in, my friend

So the most common cause for a uterine/cervical infection is an STI

and I think for most monogamous couples that would lead to an argument with accusations flying both ways

Not with us

1. He knows I am not cheating because that would require talking to someone else and letting someone else in our home which is never gonna to happen

2. I know he's not cheating because while I believe that he has options I don't believe that he would ever in a million years realise he has options nor know what to do with them if he did notice

I did ask him for formality's sake but I never doubted he was innocent

Also it turns out sometimes your vaginal bacterial flora growth can just stage an invasion of your uterus because it wants to and that feels more on brand anyway

Don't reblog.

I may have had my first episode (cyst rupture) in the longest time. I thought it was just terrible cramps but I'm having residual soreness that doesn't come with regular cramps. Like, my gut feeling knows it wasn't cramps. Plus some nausea. I was either half asleep or really awake when it happened before or around 9 AM this morning. It hurts standing up and walking around right now too.

Of course, this had to happen before the year was over...

I just had a chat with a friend who is a researcher and has been researching endometriosis and other reproductive system related things because she herself also has endometriosis. I think I can share this with you:

Endometriosis doesn't only happen in your uterus. I am not clear on how it happens (and doctors and experts also don't know why it happens) but it can appear anywhere from the belly button down. Apparently the tissue between two organs fuses which can create malfunctions, discomforts or aches not necessarily (or not only) during the menstruation.

The way they look for it right now is through cysts in ovaries. The kind of cyst that stays there at all times. It probably can be other things too, but it is a sign of endometriosis.

The only current treatment that works is surgery. They may offer contraceptive treatment to mitigate pain but that is all it will do: it won't stop it, it won't cure it. You may want to look into other pain management solutions as well. Contraceptive pills are hormones and that may entail its own side effects.

These cysts reduce your fertility. If you are over 35, you may also have other circulatory problems. In turn, if you are taking contraceptive pills, it may increase the risk for vascular plugs.

If you have been taking painkillers and contraceptives for years, it may have covered changes in how the endometriosis is playing around. This can provoke problems in the pelvic floor because it may be tense at all times or it may not react well to certain stimuli. Check with a physiotherapist to see how it's doing.

Sexual relationships can hurt. I know a couple of people who can't accept penetration because of endometriosis, mainly because the pelvic floor won't relax and it became a vaginismus. The vagina and/or the vulva may be constantly swollen. My friend also feels inner deep pain inside the abdomen when she orgasms, even when she is masturbating manually with no other stimuli. Some of these discomforts can be mitigated or improved through physiotherapy and work of the pelvic floor. Depending on how it affects your sexual life, your self perception, etc. you may also want to work with a sexologist.

Look for a gynecologist who is specialized in endometriosis or pelvic pain. They will be able to help you better and faster.

And this is it. Feel free to share it, as there is not much information about it and sometimes getting a diagnosis takes a long time. If you have extra info or comments to make, please share them!

Nothing makes me quite as mad as a doctor who dismisses your symptoms because a test comes back normal.

"The scan was normal, so, [starts laughing] you've stumped me! I don't know what else to do, maybe go back to your primary care?"

I'm glad it makes you laugh, doctor, but I hung up the phone and cried for 10 minutes because I'm in pain and all you did was send me for a test before telling me you're "stumped".

I hate that most people think that if you don’t look disabled or chronically ill, then you aren’t. I have endometriosis and everyone is always like “well it’s just a bad period.” No, it’s pain everyday. It affects me in so many ways. I cramp everyday, I have food sensitivities from it, I look 6 months pregnant from bloating and inflammation, I pass out from pain, I puke from pain, it’s not just a bad period. It ruined my mental and physical health. I have weak pelvic floor muscles from the endometriosis sitting on my muscles and literally eating a hole through my uterus. Just because someone doesn’t look sick, doesn’t mean they aren’t.

Why can’t my body be nice to me FOR ONE FUCKING DAY-

You think you’re having a not bad pain day and doing a good job (👍) recovering from your small flare and suddenly you realize you’ve been breathing heavy more than you should be from just sitting there.

Anyone relate? Tmi

I have to do internal and external pelvic floor therapy now and all the pain I’ve been having wasn’t until I had surgery.

It’s killing me, tbh I’m so scared it’s not gonna make the pain go away

. My vag is so messed up. I want to be hopeful but wtf is some kegals gonna do for this pain?

It’s like pelvic floor but the pains where my underwear line is like tf huh

Does anyone else with POTS get crazy pelvic pain or is it just me? Tryna decide wether or not I need to go see a doctor about it lmao