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cavewretch · 1 year

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misdiagnoses fucking SUCK and are TRAUMATIC and i have nowhere else to TALK ABOUT IT as i process this Major Shift i’m experiencing so i’m going to put it here <3

in 2020 i was diagnosed w cirs (chronic inflammatory response syndrome) by a total shithead of a doctor who didn’t believe in covid. OBVIOUSLY i stopped going to him and i started seeing this other cirs specialist (telehealth only). she verified the cirs diagnosis and then we did the whole getting out of exposure thing. that took me a really long time to complete (DUH) bc being told you have to completely uproot your life, get rid of your belongings or at least stay away from them, and either move/do extensive renovation/live in a tent etc to escape exposure is IMPOSSIBLE to complete quickly. i have an old google doc laying out abandoned plans for living in a shed in my backyard. it took a year of a lot of my own research and advocacy til my parents renovated a part of our house for me to live closed off in. i still live there.

living in spaces where you know the air is potentially making you sick but you can’t do anything about it is traumatic and i don’t know when i’ll be able to actually fully process it bc i still don’t feel safe .

anyway. cut to like summer 2022 im still sick, i’ve gotten a Smidge better on these intensive medications and supplements for cirs and living out of this Room, but i still feel like shit and can’t drive or work and get debilitating migraines Very Often. my cirs doctor’s response is i gotta move out of my house or move to arizona or keep eliminating toxins (what toxins. she was telling me the naturally occurring things that our bodies shed were making me sick. ur insane. i’ve been in pure survival animal mode for years now) SO! in november i was like maybe i don’t even fucking have this . shoutout to my friend pointing me towards thebibliosphere on here and my physical therapist who’s an advocate for eds and was able to fr change my life lmao

fast forwarding thru finding new doctors and getting appointments now im diagnosed with eds pots & mcas (getting a bunch of blood work done but yeah mcas) and i’m like ok what do i do now? can i go open the boxes of my books and artwork and other belongings that i packed up in 2020? can i go in the rest of my house? do i have to avoid the majority of buildings bc of potential water damage? can i stop thoroughly cleaning my room of any semblance of dust every 1-2 weeks? do i have to monitor my room’s humidity levels to such a specific range?

i’m doing this like massive reframing of everything i know about myself and the world and my health all at the same time and when i’m not sitting here fully disassociated i’m going fucking CRAZY !!!!!! good GOD !!!!!!! IM SO MAD !!!!!!!!!!!

AND ! to make it all WORSE ! i get booted off my parents insurance in t minus 1 year and 3 months so i have to figure out medicaid and probably apply for disability benefits AGAIN which sucks cuz that’s such a fucking dehumanizing process

at least i have the brain space to make all these fucking ocs (i reach into my pocket and deposit a dozen pinterest boards and scribbled notes into ur hand)

#not to mention all the trauma before even getting chronically ill that i’m also processing #therapy is very busy and from an outside perspective it seems like i’m just wasting away in my room BUT #in reality i am working incredibly hard constantly and don’t even get good sleep or have a concept of time #just this nightmare limbo state of desperate loneliness and frantic self love and indignance and dedication #at my core i believe in myself and it’s keeping me alive #i hope dear reader u have shorten long posts on cuz i can’t find how to insert a read more on mobile #long post #cirs #heds #mcas #pots #chronic illness #sickie notes

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punkpinkpower · 2 years

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Sometimes I wonder if I'm gonna make it.

Like. Listen. I have so many different and compounding health issues. My immune system is so bizarre. I'm been diagnosed with a super rare genetic inflammatory condition. Without the aid of modern medicine I'd already be out of the game.

And I know the world looks at me like. It can't be that bad sometimes you seem fine. And sometimes I am! But sometimes I really struggle. And I find it difficult to explain to people.

And I just wonder how long my body can keep going like this. Constantly being worn out and at my breaking point. I wish we lived in a world where we could rest. My body certainly needs it but the most I can give it is an hour or two here or there.

#chronic illness #inflamation #cirs #life #illness #autistic #tired #ableism

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drgeraldrapp · 5 months

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#chiropractic #blackmold #chiropractor #cirs #moldillness #toxicmold

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dr3am1ndigo-16 · 2 years

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The shit that frustrates me more than anything is when someone can have the audacity to say the most outlandish, most fucked up things to you and few minutes later they forget what the fuck they just said. Like, you're not demented I don't need to tell you what you what came out of your mouth.

#hybridcore💠#vaporwave #small rant #sorry #gaslighting #redfinger #cirs

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lafoget · 21 days

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visual guide to main supergirls

If your supergirl appears in comics from 1962 to 1985 (plus many happy returns arc in 2003) wears a classic costume or these variations, and uses a brown wig in her civilian disguise, then she is kara zor-el/linda lee danvers

she dies during CoIE AND DOESN'T EXIST IN THE NEW UNIVERSE UNTIL MAY 2004, in the 90s superfam hang out with other supergirls

If your supergirl appears in comics from sept 1988 to sept 1996 (plus convergence supergirl in 2015), wears a classic suit and most often has heavy curls and sometimes turns into a pink blob of goo, then it's matrix/mae kent. she was created by lex from another universe and on the new earth ma and pa kent accepted her as their own daughter

and mae is kon's first supergirl

yes also she dated handsome lex but he was pretending to be his own son so we don't judge her too much for that lol

if your supergirl appears in comics from sept 1996 to nov 2000 and has a classic costume, but also fiery wings sometimes, she's called an earth-born angel and in her civilian form she is a foot shorter and brown-haired with a bob, then this is a fusion (yeah like in steven universe) matrix and linda danvers ORDINARY HUMAN GIRL

if your supergirl appears in comics from dec 2000 to may 2003, wears a suit with a white top, blue skirt AND a blonde wig, and in her civilian appearance is a short-haired brunette, then it’s just linda danvers, matrix separates from her and later finds a new host

linda goes back in time for some time and marries silver age's clark, yes, that's ok, they are not related in any way the day when twitter learns that it's linda and stops being hysterical about incest will be the happiest day of my life

if your supergirl appears briefly in fifteen issues in 2003, wears a black swimsuit and has short black hair, then it's cir-el/mia kent, the pseudo-daughter of clark and lois created by brainiac 12 in the future

if your supergirl has been appearing in comics since may 2004 and wears these costume variants (and sometimes holo-glasses with disguise from 2016 to 2020), then this is kara zor-el again, kara lang until 2011, kara danvers from 2016

#kara zor el #mae kent #linda danvers #cir el #superfam #supergirl #dc ref #dc

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waitingforthet · 4 months

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Check my Patreon out if you’d like to support the comic, even a little bit helps. Or just to check out the reward tiers, there’s some neat bonus stuff and I tried to make them fun: https://www.patreon.com/waitingforthet

#supergirl #kara zor el #matrix #cir el

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clementine-circaetis · 1 year

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