Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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there's something deeply gutting about being a writer right now. watching studio execs brag about starving people like you out of your very house just to not pay you anything above the pennies you currently make. watching some people cheer over AO3 being targeted for a DDOS attack. the complete lack of profitability of writing commissions or writing in general in transformative spaces, especially in contrast to fanart. the pivot of so many social media platforms to be video and image based near-exclusively.
I don't know. it just makes me sad to know that the hobby that kept me alive while growing up homeschooled with dial-up internet and local antenna TV... is only ever gonna be a side job with minimal engagement. I know this site is good about supporting libraries and the concept of books but, do me a favor? Reach out to a writer friend you know. Leave a comment on your last five read stories on your favorite website.
Tell us you care.
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when a character says "please don't do this" and they're begging: 🥺
when a character says "please don't do this" as a warning:
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Phoenix Tatooine day trip Goes Wrong™️ (X)
This is a little idea where Luke needs something (don’t ask me what) that he can only get on tatooine, so dinluke adventure ensues. The plan is to get there and leave ASAP, but then nostalgia hits and he needs to hit every shop and place he used to as a kid. But you know, “college kids comes back to hometown” syndrome hits and he realizes he’s changed too much. Think of how the holiday season doesn’t feel the same anymore now that you’re an adult, same feeling. AND YES ITS ALSO DUNLUKE BECAUSE I WANT THEM TO KISS AND TALK ABOUT THEIR FEELINGS AND ALSO KISS.
Heres some extras 🫡
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