Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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i both firmly believe that self-diagnosing saved my life and i think that the way tiktok and instagram have recently been spreading misinformation about mental illness/neurodivergence is incredibly harmful.
people who are looking for answers are already people who are in a vulnerable situation.
much of the misinformation appears logically sound; and is presented as definitive fact (prefaced with claims such as "research shows"). it's imperative we remember correlation does not prove causation. it is incredibly dangerous to make definitive statements like "if X happened in your childhood, you now Z as an adult." real scientists will almost always use may or other less-definitive terms. similarly, equating one behavior/experience with any single condition is also unsafe. many conditions have overlapping symptoms; and many people "mask" their key symptoms, even to themselves.
we cannot discern from a singular data point any conclusion. in official diagnosis, for a behavior/experience to be considered a symptom, it must significantly influence your life. many people enjoy an organized space. that is a preference. disrupting your daily life even at personal cost in order to prioritize organization is more likely a symptom.
again, a single data point is not an effective diagnostic tool. it is necessary and important work to catalogue and consider all unwanted/distressing behaviors in order to understand a complete picture of the person.
i will see creators in paid partnerships make generalized behavioral/emotional claims that apply to a large portion of a community, and then they will suggest that the "solution" to that behavior is through their paid partner/through their personal support. "follow for more psych tips/facts" is an incredibly evil marketing tactic. i very rarely see unpartnered/unbranded content on how to aid/comfort those behaviors and feelings.
much of the misinformation employs a subtle technique (called confirmation bias) of setting up a conclusion before "proving" the conclusion. "you know you have X when you experience A,B, and C." no person's experience of their conditions/behaviors will look exactly the same as another's. while knowing certain things might be a sign/symptom of a condition, it is irresponsible to consider it definitive.
confirmation bias is unfortunately extremely effective on tiktok specifically. the algorithm will notice that you interacted longer with the video that "proves" (through a singular video) that you "have" a condition. it will continue to feed you related videos that further confirm what you believe.
this is dangerous because we are, unfortunately, not good at knowing ourselves. i did not know it was unusual to vividly nightmare every night; i didn't consider it a symptom. i was similarly dismissive also of any other signs of my PTSD - i incorrectly assigned them to anxiety/adhd. on the small scale, this can mean a longer journey to healing. on the larger scale, it can mean people with extremely difficult situations are unable to get the help they need.
please, if you can, and you're looking to self-diagnose: be careful about what you assume about yourself. try to keep an honest journal of what you're thinking/feeling/doing for a few days.
do not go in with an assumption. try to keep an open mind. i think we all "suspect" we have something - but like i said, i completely missed my own PTSD symptoms, because i suspected the ADHD the most, and only "saw" those symptoms.
do your own research. if the tiktok says "research shows", google that research. figure out who paid for that research. do further research related to that study - has it ever been repeated? is it peer reviewed? do other researchers seem to accept it as conclusive?
if you feel you really resonate with the materials of one person's experience with a condition, find other examples. see if you relate to other creators who identify similarly.
and please - please do not stop once you come to a conclusion. i fully believe that the diagnostic process should be seen as a first step, not a destination. by knowing what you might be struggling with, you gain an incredibly powerful tool on how to gain peace with that condition.
if you feel yourself emotionally respond to a tiktok/etc that suggests something that might be true about yourself, i'm glad you had that experience. but it's also important to not relax into the "easy" answer. interrogate it. start googling what else that could mean; what ways you could work on healing that wound.
healing does not "belong" to any one condition. i want you to begin to look into healing no matter if you have "proven" you have a condition or not. it is never selfish to practice responsible self-care. even if you don't relate to having adhd, you are not harming me by using adhd-inspired study tips. it is not making my condition worse for you to seek peace by asking for more time on tests. even if it was - the fault would be with the system, not in your need of something the system makes inaccessible.
remind yourself that everything you experience is real. and because it is real, it is complicated. while things might be related - even sometimes clearly related - a stranger on the internet cannot make that discernment for you. you as a person deserve the work, attention, and care that goes into the process of unravelling the harm that has been done to you.
it makes me very, very upset to see how popular these videos have become, because they're so irresponsible. and they clearly are targeting a vulnerable group. for example, making generalized claims about children of unloving caretakers is targeting those who have experienced neglect. there is no way to use 30 second videos to correctly analyze what that neglect might have caused in your adult life. i'm sorry, but it's snake oil.
i know it is so powerful soothing to recognize that you aren't broken. that others exist like you out there. i want every person looking for answers to find their answer. i want you to feel seen and heard and understood. i want you to find your community.
i just want it to happen safely.
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mini-fic 3!
Cere POV. linguist!Cal, Mantis Crew as Family, Merrin & Cal bonding
1.2k words
“This one?”
Cal squints at it for half a second, says “yes,” then looks back down.
“What about this one?”
“Yes.”
“You didn’t even look!”
“Greez, that’s the third time you’ve shown me that one.”
“No, it – oh, wait, haha, yeah it is. Okay. Let me see….”
Cere watches in fond amusement as Greez goes back to the shelves. Merrin comes over with a tome from deeper within the city library and angles it in a way Cal can look at it without straining his neck. His expression brightens and he takes it, running his fingers over the edges and corners.
There’s a slight twist in the Force that Cere’s beginning to learn means he found an echo. She has to focus pretty hard to feel it so she only pays it enough attention to be sure Cal’s not about to fall into anything nasty – not that she can do anything about it if he does, but she likes to be prepared – and tunes back into the softly murmured conversation between Merrin and Cal.
The Nightsister looks absolutely delighted at having found something in a language Cal doesn’t recognize, all quiet pride and subtle preening. Cere hides a smile behind her hand. Adorable. Cal flips the tome open and the two of them duck heads, Cal underlining a few words with his finger and saying something that Merrin repeats. He shakes his head and says it again. Her face twists in thought as she sounds it out before giving it voice and he nods rapidly, grinning. She smiles back, one of those small soft ones that pops up whenever it’s just her and Cal.
Cere is just about to go back to her own readings when Greez arrives, BD-1 whirling on his shoulder, a book held over his head in triumph.
“Ha! Try this on for size!”
Cal takes the book carefully. “I know this one,” he tells Greez, who groans in disappointment. “But, oh wow.” He flips through a few pages, lips moving as he reads the text silently to himself. “I can’t believe they have a book written in pre-Reformation Gwyrdd’tafodi. Do you know how rare that is? When they switched over, they deliberately destroyed all they could! An archivist hid this away for a hundred years in order to get it safely off the planet. It kept getting passed down the family line until one of them got passage on a ship.”
Greez crosses one set of arms, his free hands on his hips. He watches Cal fondly as the young Jedi’s excitement grows with every page flip. “You know, I would’ve never pegged you as such a gigantic nerd.”
“Jedi were scholars and peacekeepers before they were soldiers,” Cere says quietly. A hush falls on the group. Cal ducks down, shoulders hunching, eyes kept resolutely on the page though it’s obvious he’s not reading a single word. She smiles and adds lightly, “We’re all nerds.”
Cal laughs first, tinged with grief and legitimate delight. He tucks the book Greez brought under the one Merrin showed him, which makes Merrin throw Greez a smirk and for the latero to throw his crossed arms up in the air in a huff. Cere rolls her eyes fondly and catches Cal’s gaze. He grins, unrepentant, enjoying whatever contest is going on between their friends. It gets Cal more books without him getting up, so he’s not going to stop them.
Greez’s frustration is amusing to watch, especially when he snatches BD from scanning the book Cal has open so he can co-opt the droid’s database to help find a language Cal doesn’t know. It’s not helping. BD-1’s database might be filled with years and years of history and culture but knowing the intimate details of a language instead of just a simple dictionary is completely different.
Merrin listens to Cal read out loud for a few minutes, humming at all the right moments, but obviously thinking hard about something. Cere gives up on reading her book and focuses on the two of them, curious as to what’s going to happen next.
“How many languages do you know?”
Cal’s teeth click he stops talking so fast. “I don’t know,” he admits with a shrug. “Sometimes I don’t even realize I know a language until I see or hear it again. Sometimes not even then! It doesn’t always register it as a different language. It’s just…words I understand.”
She tilts her head, expression intense. “Could you learn Dathomiri?”
He grins and quips something in the smokey, gritty sounding language of Dathomir. Merrin’s eyes widen, and then, suddenly, they glimmer with a wetness both Cere and Cal pretend they don’t see.
Knuckles pressed to her lips, she breathes a very quiet, “oh,” before clearing her throat and adding roughly, “Your accent is terrible.”
“Is it though?” Cal asks smugly.
Merrin scowls. “I will teach you more…if you want to learn.”
Cal’s expression softens. “I would love to. Thank you for sharing it with me.” He adds something in Dathomiri at the end that has Merrin abruptly turning back to their shared book, expression pained and grieving.
Cere nudges the Nightsister with a tendril of the Force and gets a small smile in response. They don’t share the same bond as Jedi do, but theirs is enough for Cere to believe her. She settles back in her chair, musing on what her life has become, sharing a bond with a Nightsister, before she shrugs it off and fully intends on finally going back to her reading with Merrin and Cal’s back-and-forth as a background noise.
Except Greez comes back again, the book he carries is much thinner than any of the ones stacked around Cal like a barrier. BD-1 clicks excitedly and Greez is grinning smugly as he waves the book in the air.
“Did you know this place has an unknown language section? Guess who found it!” he all but brags. Merrin frowns, nose wrinkling while Cal laughs brightly and holds out a hand for the book.
Greez slaps it in his hand, earning a scandalized look from one of the librarians. Merrin and Cere laugh as he hunches down with quick apologies. Cal inspects the book carefully. If there are any echoes, they’re soft and quick. He grins.
“Congratulations, Greez, I don’t know this one.”
The latero cheers silently, all four arms thrown up in victory.
Merrin rolls her eyes. “You still lost. I found one first.”
Cal hums. “Best two out of three? This place is open for another five hours.”
The two of them exchange looks for a full second before Merrin jumps out of her chair and rushes into the depths of the library. Greez yelps and follows her as fast as he can without running. Cere hides her face, as though that will keep people from realizing they’re with her. Cal laughs, covering his mouth with his book. His eyes peek over, glittering in mirth. He pulls the book away, and holds it to his cheek, leaning in like he has a secret. Cere can’t help but lean in to hear it.
“I already know the language,” he admits.
Cere blinks at him then laughs loudly – nearly getting them kicked out of the library.
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I think ishigami/miko were really good conceptually as a couple, they're really interesting foils with their approaches to justice, and the most compelling part of their dynamic is that these convictions constantly lead them to help each other out behind their backs. A rigid sense of morality and justice is the center of Miko's character, and this means she always does what the Right thing to do is- including standing up for someone she thinks is a pain in the ass. On the flip side, Ishigami doesn't care about rules or whatever but he cares a lot about people, and can't stand to see someone being treated unfairly and thinks this should be corrected. But both of them agree, maybe out of pride, that they don't need to be rewarded for their help, so they don't really say anything. Instead they just keep helping each other out, whether it's Ishigami protecting Miko from bullies, Miko protecting Ishigami from within the public morals committee, Ishigami convincing Miyuki to help Miko during the election (Albeit in a different way than he thought), or Miko convincing teachers not to hold him back during his suspension. All that stuff.
But since they don't KNOW about the stuff the other person has been doing for them, they also feel resentment because of their attitudes seeming so laissez faire, which is the real source of most of their bickering. Like, "ohh after all the shit that I've done for this motherfucker they're seriously going to be a pain in the ass again today I'm going to KILL them. But yes I'll also keep helping forever obviously." And ultimately this fits really well with the themes of Kaguya-Sama as a whole, being about open and honest communication. And how, just like Kaguya and Miyuki, all their relationship issues really stem from just Not Talking To Each Other without masks on.
It's a REALLY good set-up and I think it's executed fairly well too, but I also think that after a certain point it becomes over-developed with drama on Miko's end since she realizes her crush way before him. But somewhat under-developed on Ishigami's end due to the ending getting rushed (which ik is out of the story's control), because he went from being in love with Tsubame to Miko a bit too quick and it didn't get to feel as natural.
So I kinda understand the manga ending on the note of "Now they're going to go through their version of Kaguya and Miyuki's love story." I do. But it also feels like wasted potential that we didn't see the actual ending of their arcs and I wish the story didn't just get rushed like that. SAD!
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