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tucknroll · 4 months
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I think one aspect that's missing in cripplepunk is our sole focus on rage against ableism and how we're forgetting an important pillar of punk: kindness, and how being kind is pretty punk, actually.
Offering mutual aid to fellow disabled people, like giving them shelter, supplies and the financial means to survive in a society that deems us hopeless burdens.
Simply being there for others, like providing each other emotional support and forging strong communities and lasting friendships whether online or irl.
Standing up against ableists and offering comfort to the bullied (and maybe getting to drive over the feet of/hit said ableists, as a little treat.)
Being understanding of and believing other people's symptoms and giving them space/support for bad days, forgoing oppression olympics and rejecting both toxic positivity and negativity alike.
Kindness is punk and that absolutely goes for cripplepunk, too.
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tucknroll · 5 months
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only wheelchair users respond!!
hi! im currently writing a character that is a full time wheelchair user and i wanted some help from actual wheelchair users in writing her!
if you’d like, can you share a little bit about life with a wheelchair?
things such as difficultys, things that people maybe jealous of you for, anything that comes to mind about daily life with a wheelchair!
you can comment or dm me if you’d like and a help would be appreciated!
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tucknroll · 5 months
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i wish i didn’t have multiple floors to my house, even with things like the chairs that move up stairs, having multiple floors is always a pain in the ass
Disabled people reply to or reblog this post: what would you want ideally / do you currently have in your home to make it accessible? I'm gathering ideas to design a (purely hypothetical) living space but want to see if there are any ideas I can incorporate into my daily life.
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tucknroll · 5 months
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daily update: i still hurt!
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tucknroll · 5 months
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i am very much a burden because it’s easier for me.
IT IS OKAY TO BE A BURDEN! YOU ARE ALLOWED TO BE A BURDEN! IT IS NOT A REFLECTION OF YOUR MORALITY!
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tucknroll · 5 months
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not a c punk post, still about disabilities though!!
one thing i’ve noticed is if a show or cartoon or any media had “disabled representation,” it will usually have one disabled character, and really only one. i want more than one disabled character in media, i wanna see disabled characters interacting. i want to see disabled characters sharing tips, sharing mobility aids, sharing what doctors are good and what are bad. i wanna see disabled characters interacting, please.
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tucknroll · 5 months
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sometimes my brain is like 'you're not Actually That Disabled. you're fineeee' & then. i remember. i literally can only shower once a week bc i don't have energy to do it more than that. even though i DESPERATELY want to shower every day. and i only change clothes when i shower and wear the same clothes Every Day between showers bc even changing clothes takes energy i Do Not Have. even though i Like wearing different clothes despite not ever leaving the house. (which is Another Thing in itself, never leaving the house.) so like. Fuck imposter syndrome. it Really Is That Bad.
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tucknroll · 5 months
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tucknroll · 5 months
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I’m Native American. If a start a movement for specifically my tribe (Ayamara & Quichua) to discuss issues specific to natives in the Altaplana, other natives aren’t going to start complaining that they’re being unfairly excluded. Me starting a group for people like me isn’t saying that other natives aren’t native, and it’s not invalidating their indigeneity.
Following so far? Great.
So then why is it that when a marginalized group like physically disabled people want a movement specifically about the struggles we face as physically disabled people, we’re told we’re unfairly excluding others?
Why do people feel entitled the cripplepunk movement, a movement and space that isn’t for them, especially when there are plenty of movements that center their experiences?
There are two main reasons I’ve seen:
“””””internalized”””””” ableism: you feel as if your mental disability doesn’t count as a disability, so when you’re told that you can’t participate in a space for only physically disabled people, you feel as if that confirms your ableist internal belief that you’re not disabled enough. “Internalized” is in quotes because people with this attitude really just externalize it to hurt others.
“””””Lateral””””” ableism: as a disabled person, you hold and perpetuate beliefs that echo the wider structures of institutional and systemic ableism, and you feel entitled to hold those beliefs because you are disabled. This is comparable to trans people who are transmedicalists. “Lateral” is in quotes because most of the time, people who hold this attitude are lashing out at people with a completely different disability than them.
So let me ask you: why do you feel so fucking entitled to a movement that’s NOT FOR YOU?
And before you say “I’m physically disabled and I think it’s fine for non-physically disabled but mentally disabled people to be included”, re-read the “lateral” ableism point. Your ableist opinions aren’t correct just because you’re disabled.
DISCLAIMER: I’m not saying mentally disabled people aren’t disabled or that one kind of disability is always worse than the other. Any BS in replies will either be mocked or blocked.
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tucknroll · 5 months
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seriously, cause honesty, there is nothing and if i get that response one more time, i might actually cry!
Idk if it's the same for y'all (other chronic pain ppl) but the main reason i don't tell people I'm in pain is because even when they're at the most supportive, the response is "I'm so sorry, I wish there was something i could do for you" and like what am i supposed to do with that
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tucknroll · 5 months
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Anyone else find it difficult to remember that abled bodied loved ones are gonna worry when we talk about new/concerning symptoms? Like in my mind its just another day,just a bit more pain, just a flare etc. but for them its different and sometimes i find it hard to be mindful of that.
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tucknroll · 5 months
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don't let it fool you, i might look terribly sick all the time but in reality i'm actually just terribly sick all the time (chronically ill)
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tucknroll · 5 months
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attention disabled people!!! please listen see!!!!
is doing school project on disabled bodies and abled disgust react with disability, is collage, but things teacher give not talk or show disabled people. so want go to community to people live with!
how can help/participate: if have scars, disability aid, or deformity (not have better word sorry), can take picture and write words on how abled people treat because of disability. however, only do if comfortable with collage displayed, not want people feel bad about.
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tucknroll · 5 months
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tucknroll · 5 months
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making premature gazan babies suffocate on their own bodies is unbelievably cruel. i can't help but think of my own birth - 25 weeks, 1lb 14 oz, with underdeveloped lungs. i am alive solely by the grace of medical treatment, so for anyone without much knowledge on prematurity:
it isn't even nearly as simple as these babies needing oxygen. they need incubators. and feeding tubes. and weight checks. and vitals checks. and hats. and blankets. and their (potentially dead) parents touch/presence (literally can help keep them alive). they need 24/7 supervision. they need to be in the neonate ICU, able to immediately go for surgery or imaging. they need this and more for MONTHS; i spent the first few months of my life in an incubator, on oxygen. i was not even able to be held by my parents.
without this intensive, even long term medical care, these babies WILL die. they just will. iirc, the complications of lung issues in premature babies is the leading cause of our death, and these babies are suffocating, some undoubtedly getting brain damage from low oxygen. there is no good reason that in another 22 years (my age), these babies should not be living life, surrounded by their loved ones. they should be able to live as long, happy, healthy lives as they would get with the best medical care on the planet.
if you believe in any measure that they somehow deserve this or are "collateral damage," you have lost what it means to be human. you are genocidal, without a shadow of a doubt. palestine must be free. from the river to the sea.
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tucknroll · 5 months
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one day i’ll be strong enough to accept my disability. maybe i won’t be strong enough to get out of bed, but i hope i can accept that i have a reason i’m glued to it. maybe it’ll hurt to accept it, but maybe it’ll be the first time i haven’t experienced pain when it comes to my disability, but either way, it’ll happen.
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tucknroll · 5 months
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i hate that the first question my dad asks anytime i say that my entire body hurts is “do you exercise enough?”
i’ve tried, and it hurts so bad. it makes my pain worse, and when i do it where the exercise doesn’t hurt me, i’m still in pain.
i hate this question cause when i answer, it’s just like to move to the next conversation or ignore me till i dont talk about the excruciating pain i’m in.
i hate that people masquerade my pain under the idea of not exercising enough because it’s fucking easier on others to say it’s my fault and that it could be an easy fix rather then paying attention to the fact that i’ve said i’ve been in pain for almost 8 straight years!
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