When the cleaning lady saw a pre steroid picture of me...

lol, that’s after she finally believed me that the pic wasn’t of someone else.

I’m chronically il and I was given steroids for a week (thank god it’s over) but it was such an experience

Hmgnhm coughing up an au. Have some undercooked doodles

I TESTED POSITIVE FOR LUPUS ANTIBODIES

Welp...after three years of avoiding it, COVID finally came for me 😭

masato's Super Serum bullshit is still wack to me but i hope it wears out while he and daigo are tryna get nasty in the back of a hot topic and now daigo has to carry him out and daigo's being supportive and just tryna be helpful and nice but masato's acting like a damp cat three seconds away from murder the entire time

I think I might take a break from writing on here (quite possible a lie) </3

after four years of disease, two years of diagnosis, and one year on a successful (but permanent & damaging immunotheraputic) drug i'm finally hitting the anger stage of being diagnosed with an incurable life limiting disease and it does suck. a bit

People who have taken seroquel or people knowledgeable about psychiatric medications- HOW do you stop the horribly strong munchies you get from quetiapine every single night? Or at least how do you cope with it….. Or how can you overcome the urge to eat literally everything when you’re not even fully awake? I can’t just stop taking it (bAAAADDDDD IDEA) but I’m so tired of this. I eat healthy and balanced all day then take my seroquel and feel like a fucking zombie with a bottomless pit for a stomach and eat in a way I never would normally. It disgusts me so much and I need help figuring out a way to not do that shit anymore

I’m experiencing my first ever asthma exacerbation. Rosacea or prednisone flush? 🤷🏼‍♀️🙄👎🏻

happy to announce that after 4 different sinus meds and several hours i can mostly breathe through my nose again

Recovering from this asthma flare up is taking longer than I thought. HOPEFULLY tomorrow I’ll feel well enough to write.

now that the elation of being on-paper sick has worn off i'm back to getting my feelings hurt by innocent posts. anyway someday within the next few months i'm gonna be on a bunch of prednisone or other steroids and then i'm gonna do all my dishes and clean my whole house and go swimming and do my job and fix my life and it's okay that i fucking suck at doing any of those things now because i have a debilitating physical disability.

snide posts about how depressed people need to put on their big-boy pants and take care of themselves are not actually about me because what i am contending with is not depression. what i am contending with is a progressive disease that destroys my muscles, skin, joints, and potentially lungs kidneys and brain. that is not the same as being too sad to get up and wash a dish.

generalized spoonie advice and outlooks feel too optimistic or out-of-touch or non-applicable to me because they aren't applicable to me because what i am contending with is not an average spoonie experience. it is a specific progressive disease that destroys my muscles, skin, joints, and potentially lungs kidneys and brain.

if i feel bad and need to rest and don't pull my weight in my relationships it's because i need to wait to be treated with steroids and in the meantime i just need to hold on. i am not required to do anything else to take care of myself. my body is eating itself with a condition that has a high rate of fatal complications and literally my only job is not to die.

my only job is not to die. that is the only thing i need to do right now. any posts saying that people need to do anything else for self-care or for being a good person or for having healthy relationships are not applicable to me, because my circumstances are highly specific. healthy people need to take steps to better their lives. people like me need to rest until our doctors can help us because overtaxing ourselves might kill us.

a depressed person being too sad and hopeless and miserable to get up is being lied to by their brain. my brain is not lying to me when it tells me that i need to rest because my body is on fire.

my only job right now is not to die.

every day I open the twitter app, see the worst takes ever made in human history, close the twitter app

I found out I’m allergic to my favorite edible the other day this sucks

my cat will not stop having asthma attacks so i may be a bit scarce