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biggest-gaudiest-patronuses · 3 years

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So I (finally!) bought a pair of really good noise cancelling headphones, and it has changed my life! It's the fanciest thing I've bought in years, so to recoup some of the cost, I’ve researched & written a little essay based on my experiences with extreme noise sensitivity.

Hypersensitivity to sound is something I’ve dealt with all of my life, but I only recently found out it's medically known a Hyperacusis. (Please note this is a separate condition from Misophonia.) If you consistently struggle to cope with noise, the info below could be helpful! I’m including a link to my ko-fi, and I will be answering questions in the notes.

(skip to the bottom to read fun facts about my tax return and/or street organs vendettas!)

DISCLAIMER: I am not a professional, this is based solely on my experiences as a patient, and on what I have read and been told by professionals. Please notify me if you have corrections or concerns about accuracy!

BACKGROUND: Sensitivity to sound is a common type of sensory issue. While anyone can experience such issues (most people, for example, might be bothered by loud music in a crowded restaurant), some people are more sensitive than others, to the point it becomes a quality-of-life aka a medical issue.

If you consistently struggle with environmental stimuli that other people aren’t bothered by (background noises, bright lights, certain textures and tastes, etc), to the point it causes daily discomfort or limits the environments you can be in, I recommend reading about Sensory Processing Disorder.

SPD and sound sensitivity are both super common in autistic folks (like me!), but allistic (non-autistic) people can experience them too. Weep, ye prisoners of mortal coil, for none are safe, nothing sacred, not in this thy most accursed tomb of human flesh!

Anyway.

SOUND SENSITIVITY or HYPERACUSIS: Noise issues are particularly difficult to navigate in a world that is increasingly...noisy. The relatively new phenomenon of constant overhead music in restaurants, grocery stores, shopping malls etc—all of this means that public spaces are increasingly inaccessible to people with auditory issues.*

As a kid, nothing quite triggered sensory overload/meltdowns for me like the constant exposure to noise I couldn’t control—the background chatter of other kids in the lunchroom, the constant noise in public spaces, being trapped in the car with the radio on.... I had so many fights with my siblings about the car radio, and who got to choose the music.**

But it’s not just loud sounds that are the problem. As an adult who lives alone and works from home***, I’m lucky enough to be able to avoid loud environments most of the time. This does wonders for my general levels of anxiety and discomfort. But even in a mostly controlled environment, I still experience problems. Because part of sound sensitivity is that even normal or quiet sounds can feel loud and intrusive. Here are some “normal” sounds that can cause me discomfort (ranging from annoyance to outright pain, depending on the day):

refrigerator/AC/ceiling lights humming

dishwasher/washing machine noises

ceiling fan making that damn ceiling fan noise

faint sounds of traffic

riding in a car

other people having a normal conversation in the background

someone talking to me in a perfectly normal inside voice

Unfortunately, even in a “controlled” environment, many triggering noises can’t be controlled. And many parts of life can’t be lived in a controlled environment. This presents...some incredibly freaking annoying problems. Luckily there are solutions!

Sorta.

There are sorta some solutions.

They are imperfect, but they help.

TREATMENT: And now I have something rather shame-faced to admit. In all the years of managing my symptoms, it never once occurred to me to see a hearing specialist for my issues with sound. I wasn’t even aware that treatment options exist, because none of my other doctors mentioned it. Instead, I’ve spent years finding my own coping mechanisms and tools, with help from therapists and psychiatrists, but without ever consulting an audiologist/ENT. It was only while researching this post that I found out that was even an option, holy shit.

So it turns out I am going to be making an appointment with my local ENT practice. shit.

Apparently treatment options include sound/acoustic therapy, systematic desensitization/exposure therapy, cognitive behavior therapy, sound machines, and other options that I had no idea even existed, goddammit.

MANAGEMENT: In the meantime, here are my current coping mechanisms. I’ve relied rather heavily on hearing protection, which is very useful when used in moderation. Unfortunately, it can cause its own problems: it’s important not to overuse hearing protection, because in the long-term this can increase your sensitivity. So again: a useful tool, but be careful not to overdo it.

With that in mind, here are some of the coping strategies I’ve used over the last decade to manage my symptoms. This is not a perfect system and you should contact your local ENT clinic for better, long-term solutions, but in the meantime here are some tips I use to just get myself through the damn day:

Regularly spending time in a quiet controlled environment, to allow my nervous system to decompress.

Wearing earplugs, (I use two different grade, depending on the level of noise prevention I need), and always carrying an extra pair in case I need them unexpectedly. I bought a 50 pack for $7 and put spares in all my bags and jacket pockets.

(I mostly use Mack’s Ultra Soft, but there are so many types and materials and brands, including foam, silicone, wax, custom moldable etc. Even if you have trouble wearing things in your ears, you might be able to find something comfortable.)

Similarly: hearing protection earmuffs, the kind used in gun ranges and on construction sites. I bought mine online for $10. they look like normal wireless headphones, so I've never gotten comments when wearing mine in public (other than “cool heaphones” bc i added skull glitter stickers).

Sometimes I wear the earmuffs on top of earplugs, when life is just too damn LOUD.

Listening to music w/ earbuds or headphones is a great way to balance out background noises, especially if you can find soothing playlists that help you concentrate. Also useful to put in just one earbud when you need to pay attention in class/at work.

Pro tip: if your hair is long enough you can wear wireless earbuds without anyone knowing.

White noise, rain noises, ocean noises etc can be helpful! Some people like whale songs although personally this activates my primal fear response

Active noise cancelling headphones: the reason I wrote this post to begin with—I finally bought a pair! As in, a really good pair! As in, a depressingly expensive pair with noise cancelling technology that actually WORKS, holy shit. I probably need to wear them a little less at home (bc overprotection causes problems in the longterm) but they have absolutely transformed my ability to go out in public and i never ever want to take these suckers off again please take a power screwdriver and nail these to my head, bury me in the sweet sweet shroud of silence. holy canoli and cream puffs I want to marry form a civil partnership with these headphones. Plus they have a bunch of features, like being able to control the level of noise cancellation, so I can hold a conversation or be aware of some ambient noise for safety reasons.

Oh, and also they play music I guess?

Sorry sorry I promise this post wasn’t supposed to be me shilling for Big Electronics. I’m just excited, I’m an excited flabby little ball of expired flubber. ANC headphones aren’t a perfect solution, and I still sometimes wear earplugs underneath, and I will always be uncomfortable some of the time, but for me it’s been a big step.

Unfortunately the cost of good quality ANC technology means this isn’t an option for everyone, and the (much cheaper) gunshot protection earmuffs I mentioned earlier still provide an impressive amount of protection and bang-for-your buck (maybe even an equal amount of protection, if you can find ones that fit well). But if noise consistently prevents you from enjoying public space and life in general, and you’ve already tried earmuffs & earplugs and find they don’t offer enough comfort/convenience/protection, and if you’re in a position to save up for a one time non-necessity purchase of $150+, noise cancelling headphones are an option to be aware of. (Please always check the return policy so you can try before you buy. I ended up buying and returning 2 pairs before finding what worked best for me. And please look for a retailer that offers an extended warranty. You want those motherforkers to last).

There are cheaper options available, including some under $50. The ones I tried didn't work as well as my hearing protection earmuffs, but some people report good experiences, so that is something to consider. it's always good to know your options! Passive noise canceling is another affordable alternative.

Medication: A final tool in my toolbox, which for me personally has helped as much as every other method combined. Like, a lot, it’s helped a lot. It turns out some anti-anxiety medications can also help sensory issues. There’s not much research on this, and I only discovered it firsthand when a medication my doctor prescribed for anxiety ended up significantly helping my sensory issues. I no longer need medication for anxiety, but my psychiatrist still prescribes that same medication off-label for my sensory stuff. Ask your psychiatrist to research your options (they will probably have to do some digging to find relevant research, but you deserve to know all your options, even the obscure ones). Fyi, the medication I use is in the benzodiazepines class, but there are other options for those concerned about dependency or side effects.

(I'm also told anti-anxiety supplements may be helpful, though I haven't tried this yet. If you're on prescription meds, always talk to your doctor about contraindications before taking anything over-the-counter.)

So there you have it, my main coping strategies for sound sensitivity! They are not a replacement for medical treatment (except that last one which is in fact...medical treatment), but I find them helpful and I hope some of you will too! I’ve struggled for a long time, and I’m very pleased to have reached the point where I can just do things in public. Eating out in loud restaurants? I can do that now, and even enjoy it, holy shit! I can comfortably travel in cars for hours at a time, and walk around shopping malls and grocery stores with overhead music, and, and —and just exist. It is so so freeing, to feel like maybe, after everything, you are actually allowed to just exist in a world that wasn’t really designed for you.

Again, be careful not to overuse hearing protection—the goal is to allow you to be less uncomfortable and to function better, but if you find you are becoming more sensitive to noise, it is time to dial it back a notch. Or maybe consider listening to music (at a reasonable volume) to block out background noise instead.

*(This also includes people with hearing loss and related issues, btw. While that’s not my area of knowledge, I would welcome it if any of my HoH followers want to share their experiences.)

**A sign of sensory issues that parents often miss is when a child complains about music being too loud—but has no problem listening to their own music at high volume. This is because music that is already familiar to the listener (and that the listener enjoys) is much easier for the brain to process, since it knows what pattern of sounds to expect. Loud music that they get to control can be soothing for people with sound issues, especially when it blocks out background noise and sensations. This is why repetitively playing the same songs can be a helpful form of stimming.

***(working on this blog, actually. since it’s my only source of income, my 2020 income tax return literally lists my occupation as ‘Tumblr Blogger.’ Oddly, my parent didn’t feel this achievement was worth including in the holiday family newsletter.)

bonus fun fact: Charles Babbage aka “father of the computer” may have been autistic and hypersensitive to sound. He definitely had a huge problem with public noise pollution, and spent his later year waging a war on street musicians (and organ grinders in particular).

(bc like, yeah. screw organ grinders.)

Sometimes when I’m out in public and the overhead music is particularly unbearable, I’ll take a moment to look up to the sky and scream out: “HE TRIED TO WARN US! THE FATHER OF COMPUTERS TRIED TO WARN US!!! we should have listened, sweet heaven we should have listened!”

except i don’t scream it, i say it very quietly under my breath

(i have issues with noise)

so yeah that is my short essay. and here is the ko-fi goal

k ciao i gotta go pick out glitter stickers for my headphones

#actuallyautistic #not a shitpost #holy shit how did i spend 3 hours writing this what even is my blog #this blog is supposed to be blue whale anxiety and uncomfortably sexy clown jokes #what am i doing #sensory processing disorder #sensory issues #mental health #actually autistic #NOTIFY ME OF ANY TYPOS #i proofread this 5 times my eyes weep an unceasing flood of blood and regret #adhd #actuallyadhd #autism #sensory problems

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