#endometriosis awareness month
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It's endometriosis awareness month! Here's some general knowledge on my condition, as misinformation is constantly spread about it.
Endometriosis is a disease affecting 1 in 10 people with uteruses. A tissue similar to the endometrial lining, of period blood, grows and sheds on the outside of the uterus. As the menstrual cycle comes, the blood has nowhere to go. This causes intense pain and irritation to surrounding organs. It is one of the most painful diseases recorded.
Endometriosis was first discovered in 1860, though it was recognized in the Hippocratic Corpus around 4,000 years ago. Treatments have varied through the years, starting out with bloodletting, leeches, hanging upside down, exorcisms, genital mutilation, and chemical douches. During the Middle ages, the perception of chronic pelvic pain shifted from a recognized condition to something caused by hysteria, promiscuity, or it was made up. In the hayday of Hippocratic practice, Endometriosis was more common than it is today, likely due to the inaccessibility of diagnosis compared to 4,000 years ago. Somehow.
Today, treatments include birth control, surgery, hysterectomy, and pain relief. There is no cure.
It takes an average of 7-12 years for someone to receive a diagnosis.
Anyone can get endometriosis, including cis men
A hysterectomy is not a cure, as endometriosis will continue to grow and spread to other organs
The pain one experiences due to endometriosis does not correlate with staging. Staging reveals how extensive endometriosis lesions are, not pain. Someone with stage 1 could experience excruciating pain, while someone with stage 4 and frozen pelvis can experience no pain.
Endometriosis lesions are not endometrial lining. The tissue is similar, but not the same. Thus, no one actually knows what endometriosis actually is.
It is only diagnosable through laparoscopic surgery. It can be detected via imaging such as ultrasound or MRI, but more often than not, it isn't seen. You can have completely clear tests up until your surgery and still have even the higher stages of Endo (like me!) (this one was for all you undiagnosed people, you're not crazy!)
Endometriosis is comorbid with many things, including pelvic floor dysfunction, adenomyosis, vulvodynia, uterine cancer and fibroids, ovarian cancer, many autoimmune and inflammatory conditions (rheumatoid arthritis, MS, IBD), and cardiovascular disease.
I've provided links in each point and I deeply encourage you to read my sources, whether you have endo or not. Not enough people understand endometriosis so a lot of us who deal with it don't get grace or compassion, be it in our work lives, relationships, friendships, or family. People with endo, happy endometriosis awareness month.
#endometriosis#endo#endometriosis awareness#chronic illness#disability#cripple punk#chronic pain#chronically ill#disability awareness#cpunk#endometriosis awareness month
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You are not too young to have endometriosis. Endo can start with puberty. The research saying it starts later in life like 20s and 30s is false. I developed symptoms at the age of 11. I’ve had chronic pain from it since the age of 15 because no one wanted to diagnose and treat me. Finally got a diagnosis at 17. Will most likely be getting a hysterectomy at 26.
You are not too young to have endo.
#endometriosis#endometriosis awareness month#chronic illness#chronic pain#actually chronically ill#free to reblog
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Happy Endometriosis Awareness Month. This is my story
Hi, I'm Nia and I have endometriosis. Probably. For the past several years I have been fighting to be believed by the healthcare system only to be told over and over again that there is nothing wrong with me. Despite the fact that I have all of the symptoms and that the 'whatever is wrong with me' has progressed in the past several years.
About a year and a half ago I went to the doctor for the first time about my debilitating pain where I was told that I was just overly anxious and my mental health was affecting my periods. I was given pain meds and sent on my way. After that it was a billion blood tests to see if it was a thyroid issue, hormonal imbalance, blood pressure, anemia, anything that could be tested was tested. Finally my doctor goes 'it's PCOS' and proceeded to list a bunch of symptoms that I did not have. Then I did not have it.
During this time I was given birth control medications. The first one, I was able to stay on for around a week before I rushed back to the doctor to change it because it was affecting me so badly. The second prescription was great, for all of two weeks. Then I bled for the entirety of October and thought I was going to bleed to death. I became seriously anemic because of it. The third one is the one I've been on for 4 months now. I'm tired and sore 24/7 but hey, at least I'm not dying.
I have missed over 50 classes this school year. It was not until my second medication failed so badly that my doctors finally agreed I probably had endometriosis and that it was certainly a serious situation.
For the past three years and a half years, my life has revolved around my period. It is a constant worry for me of when I will get it next and how bad it will be. It is also a terrifyingly realistic possibility that it will be several more years before I get any type of answer.
Endometriosis is a horrific, cruel and neglected disease. At every turn, the job of advocating and fighting is left up to me. I have to call doctors, check in on referrals and beg and plead to be taken seriously. I’ve been told again and again I need to make the doctors like me, I need to make a connection. I need to make myself a human to them. Not another name on a list or another young person who doesn’t understand their own bodies.
I keep fighting anyways. Most importantly, I talk about it. I was raised not to be ashamed of being a woman and I am not afraid to talk about my struggles, even if menstrual cycles are still considered taboo subjects by many. I know that there is something wrong and I refuse to stop searching for answers. I am not afraid of my body, I am afraid of the system that is determined to undermine and dismisss womens pain. If you think you have endometriosis or something similar, put on some armor and get ready to be a warrior. It’s going to be a long journey and you’re going to have to fight. Fight like a girl.
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✨ March is Endometriosis Awareness Month! ✨
I just wanted to take a short moment this morning because, although it's nearly the end of the month, it's an important topic I want to cover with any of my uterus-owning followers. I know I don't often talk about real-life things on this blog, but repro-issue visibility is important to me and so is healthcare!
If you don't already know, I have a chronic disease called Endometriosis which has effectively stunted my quality of life for most of my teen and adult years. I am Stage Four, but have been in remission since 2019.
If you ever feel immense emotional changes or pain during cycles, please know you are seen and you are valid! Your pain is not normal. Your suffering is not normal. So many doctors dismiss uterus owners but I just want to tell you that you can fight for advocacy and push back.
You are not alone in this world if you have anything like Endo, PCOS, PMDD, Adenomyosis, etc. Awareness and conversations about these diseases that diminish quality of life to millions are so important, and my inbox/dms are always open to my followers and mutuals if you're going through something and need someone to listen. Much love to everyone, and best of health and wellness! xo
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Something my therapist said when we talked about my endometriosis.
#art#my art#digital art#original art#blood#endometriosis#endo#endometriosis awareness#endometriosis awareness month#chronic illness#chronic pain#actually chronically ill
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Of course we are Anti Endo!
Anti endometriosis. This fucking disease finally needs a cure and people who suffer from it need to be taken seriously!
#endometriosis awareness month#of course we are pro endogenic systems#plurality#plural system#endo safe
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I am very aware of my endo this month.
💛💛💛💛💛💛💛💛💛💛💛💛💛
#endometriosis#endo positivity#endo awareness#endo#endometriosis awareness#endometriosis awareness month#endo warrior#period cramps#endometriosis symptoms
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Endometriosis Awareness
Yes, I am rehashing from an old post but I’ve added alot more to it.
March is Endometriosis Awareness Month
March is Endometriosis Awareness Month
What is Endometriosis? In layman’s terms, it’s when the cells the are supposed to live in the uterus also live outside the uterus.
What does that mean? Well, it means those misplaced cells act like they would it they were in the right place. They…
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#Abdominal Pain#Anti-inflammatory#Awareness#Awareness Ribbon#Back Pain#BCP#Birth Control Patch#Birth Control.Pills#Chronic Pain#Debilitating Fatigue#Debilitating Pain#Digestive Issues#Endo#Endometriosis#Endometriosis Awareness#Endometriosis Awareness Month#Fatigue#Irregular Menstrual Cycle#Irritable Bowel Syndrome#IUD#Living in Pain#Lupron#March#March is Endometriosis Awareness Month#Medication#Medications#Menstral Cramps#Menstrual Cycle#Menstruation#Month
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Hey everybody 💗
Every March I like to share some information about endometriosis, a common and debilitating chronic illness that affects 1 in 10 people with a uterus.
I suffer from this chronic illness, and when I finally was diagnosed and started to get treatment, I told myself I would make sure to spread awareness for others. I don't want people to have to go through what I went through.
I won't make this a huge long read, I just want to pass along the infographics above, and tell everyone that if you or someone you know has period symptoms that are so bad it makes them take off of (or wish they could) school or work, that this is not normal! Doctors tend to disregard a lot of peoples' concerns on this, and the average time it takes for a diagnosis as of now is 8 years. When I was diagnosed, the stat was 10 years, so while it has improved a small amount, this is still not good enough.
Some people are told it's all in their head, are accused of trying to acquire drugs in order to abuse them, or are just brushed off with "welcome to womanhood, this is how it is."
If you or someone you care about is experiencing issues, talk to/urge them to talk to their OB/GYN and to be adamant about tests. Endo is not the only issue that can cause the symptoms associated with it for one thing, and too many doctors will write "dysmenorrhea" in the person's chart notes and maybe suggest birth control pills to control the symptoms. But this word dysmenorrhea is a symptom itself, it means painful periods. What is needed is to find the cause, for many people are being forced to live in misery and often try to hold their jobs.
Lastly, I want to leave the link for Nancy's Nook. This organization can help you find a doctor that will take you seriously if your current one is not:
& note that you may want to do a little reading on others' experiences with this site above, as well as connect with others who have this condition on reddit.com/r/endo
#blog#endometriosis#endometriosis awareness month#chronic pain#chronic illness#nancy's nook#spoonie#r/endo
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Fun fact! Raspberry tea can often help menstrual cramping! If over the counter pain meds don’t seem to be helping, I would definitely give it a try. (And I think it tastes best with two spoonfuls of sugar instead of honey.) Sometimes this is all that helps to manage my endometriosis pain.
#endometriosis#endometriosis awareness#endometriosis awareness month#the power of tea#honestly it works
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My chronic pain disabilities (hip fuckery; migraines) do not stop me from working. It doesn't mean I should treat my disabilities with less respect than disabilities that DO make it impossible to work.
When my endo pain was at its worse, I did all the things I was supposed to do--according to HR--to protect my job. I filed ADA paperwork. I communicated when I used it. I had the doctor's note. Etc.
Two days before my hysterectomy, I got a call from HR. "Oh, we're not sure we'll have work for you after you recover."
Which, first of all, is fucking illegal to say to someone who has ADA paperwork in place with you.
And, second of all, you're a fucking liar. I was the ONLY tech writer in a company of 500 people. Don't bullshit me.
I should have filed a complaint and sued the fuck out of them, but all I wanted to do was be able to possibly get out of pain and not have to worry about my paycheck after that. So, I called someone else in the company who I knew would lose his shit if I told him I'd basically just been told I had no work to do.
Two days after surgery, I had an email from HR to my personal account. Which, technically, they ALSO should not have used to contact me while on medical leave that was--like my disability paperwork--100% lined up and signed off on.
But the HR person wanted me to know that "Oh, looks like there IS work for you! Lol! Didn't know!"
This is bullshit. She was very aware.
Years later, I'm at a much better company. My supervisor, who is nothing but supportive, recently floated that it might be good to have ADA paperwork in place for my migraines because they flare during stress, which is the time I'm needed at work THE MOST.
No shit: I went into hard shutdown for about two minutes after he said it. It wasn't a threat or a dismissal of my migraines. It was him going, "Oh, hey, so no one can ever try to use them against you to say you're bad with stress, you might do this."
But all I felt was how I was absolutely fucked over by a bad company because they said, "You need to follow these legal steps," and I did, and they still tried to get around them.
So, no, I'm not dealing with getting punished if I have more than 2k in my bank account. I'm not dealing with people touching me, or my assistive devices (I don't currently use any). I can park anywhere in a lot and walk to the store entrance. But I was disabled, and I AM disabled, and I have had people try to punish me for existing in a body that just fucking HURTS because it HURTS.
It's Disability Awareness Month. I am disabled. Less so than I was ten years ago, which is a fucking stroke of luck. But also my right hip has started to go now, and who knows what the next 10 years will bring.
It's Disability Awareness Month. If someone says, "I'm disabled, and I want to talk about my experience," please pay attention and listen and learn and understand there's all sorts of ways disabled people are fighting to be treated with basic human dignity and under the basic rule of law.
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From Natural Womanhood on Facebook:
Doctors often prescribe hormonal birth control, like the Pill, to manage endometriosis symptoms in teenage girls instead of performing definitive laparoscopic surgery. This delay in diagnosis is fueled by the misconception that menstrual irregularities and pain are normal for women. However, relying solely on the Pill can worsen the condition, impacting a woman's fertility when she eventually stops taking it.
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Hey everyone 💜 March is Endometriosis Awareness Month and I've decided I will be periodically posting on this blog throughout this month to contribute. As someone who was formally diagnosed with the illness in 2020, I would like to share my own experience with my followers as well as information from other sources. If any of my followers has endometriosis and wants to share any of their own stories as well, feel free.
Endometriosis is a full body disease, it can spread anywhere in the body and has impacts all over with many different symptoms. The misconception is that it's "just a bad period" which is not true. There is no cure. It is underreported, under researched and a lot of misinformation is spread around.
My hope is the awareness posts might help someone who has questions about their own "bad periods" or assist someone in learning more to help a partner who has it, etc.
Thanks for reading 🥰💜
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March is Endometriosis Awareness Month.
If you’re asking, ‘Endo-what?’ you’re not alone, so don’t worry.
Here you can pick from a series of questions and send me them as an ask, anonymously if you wish. There’s no limit to the amount you can send either. I’ll be answering them throughout the month. A re-blog helps create awareness too. Don’t hesitate to ask your own questions, if one you want to learn about isn’t listed.
*Most information statistic wise is (perhaps) UK based.
Thanks!
Post Contains: Surgery / Menstrual Cycles / Chronic Illness and Pain / Treatments
1. What is Endometriosis?
2. What can be done to help?
3. How could I go about receiving a diagnosis?
4. Can you list some of the symptoms?
5. Is there a cure for this disease?
6. How were you diagnosed?
7. How long does it take to be diagnosed on average?
8. Are there any statistics?
9. Could you provide some leaflets / websites about the condition?
10. What is ‘laparoscopic surgery’?
11. Does Endometriosis only affect the pelvic organs?
12. How many people do you think know of the disease?
13. Does the condition disappear after menopause?
14. Can you tell me some of the treatments you have had, to help with the growth and manage the symptoms?
15. How does it affect someone on a daily basis?
16. What are the menstrual cycles like?
17. What are the stages of Endometriosis?
18. Does dietary changes help?
19. I know someone with Endometriosis, what can I do to help?
20. Tell me how the pain feels during a flare up / menstrual cycle?
#endometriosis#tw surgery#tw menstrual cycle#Chronic illness#chronic pain#questions and answers#q&a#endo#awareness#march is endometriosis awareness month#endo awareness
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