Things I learned over my 5 years as a chronically ill person:
Obs: I have some kind of illness that's similar to Chron's disease, but like, not as bad. It still impacts my life in more ways than I ever expected, including fucking up my liver and mental health. Anyway;
Eating the "wrong" thing is better than not eating - when you have an illness that affects your appetite, the best course of action, in my experience, is to eat what you feel like eating. If that means having a jar of cookies for lunch, it's completely fine. Eat what you know your body will accept, because that's better than not eating anything or having your body reject what you eat.
Body fat = healthy - this is specific to my case, but I was just skin and bones before getting the right treatment. Even if I might feel bad because beauty standarts, getting enough weight and body fat to the point I became a midsized person (after years of being a walking skeleton) is something that should be celebrated. It means I'm eating enough and my body is becoming healthier.
You gain a hell of a pain tolerance - remember how I said my liver is fucked up? It means whenever I take painkillers, my stomach becomes a rebelious teen and tries to kill me. A.K.A, nausea, and actually throwing up if the medicine is too strong. I've learned to endure pain in order to not need painkillers, or to only take them if it becomes too much.
Kiss many adult experiences goodbye - Taking more than two sips of alcohol is a no-no, and don't even thing about drugs. I'm always the sober friend, which is not bad per se, but I would like it more if it was a choice.
You will be known as the sick friend (if you're the only one in the group) - I got sick at 12/13 and only got treatment for it at 16, so high school was HellTM. Get used to people asking if you're feeling alright everytime time your face moves two milimiters, and to cancel plans because you're sick. It also makes flirting with your crush harder, because they might see you as fragile (seems like people don't find you sexy if they know you have intestine problems).
Antidepressants are not exclusive for people with depression - Did you know the intestines are considered the second brain? Anyway, I was prescribed antidepressants (that also work as anxiety medication) to help with my chronic illness, and honestly, it kinda works.
Hope is good but don't hope too much - sounds depressing, but at least in my case, seems to be true. Things get better, and with the right treatment, you'll have a good life and achieve yours dreams, and overcome many, many symptoms and difficulties. And I really don't like thinking about it, but I know that this is probably my case, and it's a fact: I will never be 100% healthy again. Not like how I was before.
You won't have all the answers you want - I have an illness that's names, in my mother language, as "Indeterminate". It means doctors are not able to know how it developed, why it developed, if there's a cure, and how to treat it. The treatment I went through can only be described as "fuck around and find out". So yeah, sometimes you just have to accept there are no answers.
Anyway, this was depressing as shit, but I needed to get it off my system. To all my chronically ill siblings: hold on tight! We can do it!
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Rant about Harry Potter and JK Rowling, stick with me here
Ok, so, I hate JK Rowling. I feel like that's a given, right? Like, she's a transphobic homophobic bigot who hides behind feminism and routinely denies massive parts of the holocaust, and I despise her in ways that I don't think words can even express. I can't stand her, but y'know what I also can't stand?
When someone implies that my mother, who is one of the most supportive people I know, and a massive part of the founding, organization, and actions of a local group made specifically to fight Moms for Liberty and school boards in our area trying to harm trans and queer people, is transphobic because she likes Harry Potter
Wanna know why my mom likes Harry Potter? Because when she discovered the series at 12 years old, she quite literally lived in a cupboard under the stairs and was in an abusive household. The magic of the wizarding world or whatever was her escape, it's the reason she's still alive, and by extension, the reason I was ever alive.
But, sometimes, not even often, when I try to express even the most minimal amount of appreciation of that, someone says to me "but isn't JK Rowling transphobic? Why would you support someone like that? Are you transphobic?"
Which pisses me off beyond belief, as one might imagine
In this situation, "separate the art from the artist" isn't exactly a good phrase to use, given the fact that the goblins or whatever run the bank are Jewish stereotypes and the house elves generally being happy to work under their masters being a straight rip from the whole happy slave myth, and those are very very important things to recognize and understand, among others
I feel like it's a lot closer to "separate the hundreds if not thousands of lives she's helped from the hundreds if not thousands of lives she's ruined", or even better, understand that the good she's indirectly done for people makes all the bad that much more horrid
My mother is the closest thing to a hero in this entire world and I will not stand to hear one more person accuse her of being transphobic purely because she thinks fondly of a book series that saved her life. I will not stand for people saying she's just as bad as a holocaust denier because she owns every book in the series. I will not stand for anyone going entirely against their point of not judging a group as if it's monolithic by saying all Harry Potter fans are bad people, including my mother. And, once again, it's not often at all that this happens, but it happens and I'm pissed about it and needed to rant
Anyways rant over JK Rowling sucks don't believe a single thing she says and don't support her unless you wanna support someone actively trying to make the existence of queer people illegal
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