#aacuser | Explore Tumblr Posts and Blogs

silentdreamystars · 1 year

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I don’t hate having autism. I just hate the meltdowns, the mental and physical health issues, the regression, burnout, catatonia, communication challenges, sensory issues, the isolation, the way people view me. I love being autistic and I also really fucking hate it. I wish I was normal sometimes.

#moderate support needs #level 2 autism #aacuser #autistic catatonia #autistic burnout #autistic regression

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nonspeakingkiku · 2 years

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Hi! Kiku has an important post, please share and help if can.

Kiku is trying to crowdfund the AAC app LAMP because it goes on sale soon for AAC awareness month. It is $150 plus taxes and fees so probably closer to $180.

Kiku would also like to raise funds for food because Kiku's family is low on food. Kiku's husband recently got a new job but we not know what his start date is.

For those that not follow Kiku, Kiku is a mostly nonspeaking high support needs autistic disabled aac user. Kiku currently uses Proloquo2go but would also like to have LAMP for the motor planning aspect which works very well for Kiku.

If you can't help please share.

If you want to donate, Kiku's partner has paypal, paypal email is [email protected]. Kiku is willing to make art for those who help if they want ☺️.

Edited because partner suggested putting paypal email in post.

Thank to everyone who is reblogging. ☺️

Kiku wants to add that LAMP go on sale the 10th (in 3 days) and sale ends the 16th, so if Kiku wants to get LAMP on sale need to get money by 16th.

Kiku currently has $30/$180 goal (to make sure can cover tax and everything)

Update: Kiku tried update earlier but looks like didn't go through but. Kiku's family was lower on food than though so used money have got so far for food and we got luck and managed get a lot with what we had.

So for LAMP Kiku is back to $0/$180 but not have worry about food such good thing ☺️

Update: Had someone donate ☺️

$15/$180

Sale starts today ☺️Kiku very excited

#actually autistic #autism #autistic #aac user #nonspeaking #apraxia #nonverbal #aac device #dyspraxia #dyspraxic #help #crowdfund #disabled #aacuser

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talkingkeyboards · 5 days

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About Augmentative Communication Device

Our augmentative communication device empowers individuals with diverse communication needs. It's intuitive, portable, and versatile, facilitating seamless interaction through various modes. Designed for accessibility, it enhances expression, fosters independence, and enriches lives, ensuring meaningful communication for all users. If you need augmentative communication device then connect with Talking Keyboards, we our communication device like text-to-speech convertor keyboards.

#augumentativedevices #aacdevices #aacusers #communicationdevices

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autiboards · 2 months

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I started posting on TikTok because there are things I can't show with just pictures . here is my first video . : )

#aac user #aac app #proloquo2go aac #< organisation tag #aac #actuallyautistic

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autistic-demiboy · 2 years

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I'm so happy. I applied to a program that helps people get AAC devices and I got approved. They've already ordered my ipad but it's going to take a while to ship due to part shortages but I'm so excited. I'm getting an ipad, a protective case with a strap and stand, a tempered glass screen protector, and TD snap. I'm going to post about my device once I get it. :3

#aacuser #augmentative and alternative communication #aacdevice #TD snap #semispeaking #semiverbal

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cryptid-collective-blog · 2 years

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Other AAC users, I'm finally making a fully customized AAC board and I was wondering, what should I add?

This is mostly for the main board but can be for any folder

The buttons and folders I already have on the main board (as I haven't started making the folders)

Buttons -

I

We

Am

Want

Me

My

Us

Are

You

Your

Need

He

She

They

It

Can

Will

Please

Thank you

Don't Stop

Yes

No

Folders -

About Me

Talking Verbs

Emotions

Personality

Internet

Religion

Sports

Weather

Money

Food

Drinks

Adjectives A - Z

Places

About You

Help

Work

Music

People

A - Z Actions

Vehicles

Objects

Animals

Questions

School

Body

Clothes

Time

Countries

Art

Small Responses

Pronouns

Phrases

AAC

Sensory

Social

Color/Visual

Stimming

Tone Tags

Curse Worda

Queer

Little Words

Neurodivergent

Disability

Picture Schedules

Hyperfixations

Scripts

Keyboard

#m is typing #aacuser #aac board #aac #aac user #actually nonverbal #non speaking #nonspeaking #nonverbal #autism #actually autistic #autistic #autistic culture

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the-healer-thomas-james-stuart · 3 years

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I don't need to take any test. Just the aacuser takes the test

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iangelfood-blog · 7 years

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Thanks for calling me a BITCH

"Once a gimikera, always a gimikera. Once a bitch, always a bitch." May short clip akong napanood before about a daddy having his first daughter sa tummy ng mommy. It says there, please protect me by educating your son or other boys to stop calling girls bitch even when young. Hindi ko naexpect na sasabihan ako ng ganito, lol. Of all people, first time akong nasabihan ng bitch. Kaloka. Buti pa ung kay alec, ang sinabi nya wala akong kwenta. Hahahaha. Ganon sila eh. Porket d nakuha gusto, mang aacuse na. Tapos ang bigat pa ng salita. Mahal? Mahal mo pinagsasabihan mi ng ganyan? Wag ako, iba na lang. The moment you said that, lahat ng hesitations ko aa decision ko, NAWALA. Nabunutan ako ng tinik sobra, buti na lang it ended na. Mas malala pa siguro masasabi at magagawa nya pag tumagal pa kami. Lol. #betterdays

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nonspeakingkiku · 1 year

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Kiku got Kiku's picture card binder! Kiku is sooooooo happy with it. It's great (it's bigger than expected but Kiku isn't a great judge of size😅). There's so many cards, it's so tactile, can just hand someone a card. It's so great. Kiku is super happy with it. ☺️

#kiku squeaks #special interest #nonspeaking #nonverbal #aac user #aacuser #autistic werewolf #minimally speaking #aac system #low tech aac #communication binder #picture cards

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nonspeakingkiku · 1 year

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Please share!

Kiku is crowdfunding again.

Someone found Kiku's instagram post from when Kiku was trying to crowdfund for an ipad pro and donated, and Kiku doesn't feel right not posting to crowdfund again. (Kiku would likely not be doing this if the person who donated had not donated).

Kiku is trying to get an ipad pro 12.9" to use for AAC because Kiku has been having a lot of problems with Kiku's vision recently. Kiku also needs to get a screen protector for the ipad. Kiku has a case and shoulder strap already. Please help if you can! Kiku really needs this ipad because Kiku's vision issues have been making using aac very difficult. If you can't help please share.

The goal is $450 to cover ipad and screen protectors.

Below are Kiku's partner's paypal link and the amazon wishlist with the ipad on it.

Current total:

$28/$450

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nonspeakingkiku · 1 year

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Kiku wants post more about Kiku's experinces, with becoming nonspeaking/nonverbal and becoming an AAC user.

Kiku is not a lifelong nonspeaker, Kiku could talk a lot when younger actually. (note when Kiku says younger Kiku means tween and older mostly because Kiku not remember much before that and Kiku goes off what told about how was).

Kiku has always been the quiet kid, and Kiku struggled a lot with words not coming out how Kiku meant them (whether that was wrong order or word sustitution because of what Kiku thinks is aphasia due to migraine, or what Kiku said not meaning what Kiku meant it to mean and entirely different words coming out (unreliable speech), and also just with figuring out what Kiku want to say (Kiku is learning that Kiku has trouble understanding what words mean sometime, not sure why tho). Self generated language is hard, with Kiku using echolalia/gestalts a lot with writing and Kiku's AAC. Kiku likes to discribe Kiku's language like a puzzle Kiku has build from other's words. And Kiku isn't very good at english, even though it's Kiku's native (and pretty much only) language. Kiku has a hard time learning languages and is slow at it.

Kiku thinks Kiku was more semiverbal/semispeaking when younger (although that was at least partially out of a trauma response from being forced to talk) and feeling like had to talk any time was around people so to compensate Kiku spent much of middle and high school in Kiku's room completely silent. As Kiku got older and older Kiku has had access to mouth words less and less and when had them it was exausting to talk, and errors were likely.

Now most of Kiku's attempts at speech (that aren't just repeating something Kiku heard or sometime Kiku's gestalts, because for some reason Kiku can do that sometime) sound like gibberish, and often aren't understood even by Kiku's partners. (There's like a 30-50% chance one of Kiku's partnes will understand Kiku's mouth gibberish.)

Kiku can voluntarily make sounds, but words just not work most the time. Kiku suspects Kiku has global apraxia or at least apraxia of speech and motor apraxia (Kiku doesn't remember all the words right now). And Kiku knows Kiku experiences situational mutism, even now with Kiku's AAC, Kiku just gets so anxious that Kiku can't communicate using out loud words. It's one of the barriers Kiku has to using AAC to communicate effectively.

Kiku has for as long as Kiku can remember had trouble with words (except reading, at least on the surface. Kiku is hyperlexic and read a lot but Kiku's reading comprehension isn't actually the best, Kiku can read real fast but not always absorb the information, which common with hyperlexia. And Kiku is dyslexic, which has caused pronounciation problems when Kiku has come across words Kiku not know the sounds for. )

Kiku thinks Kiku's becoming nonverbal would be considered a regression. Or caused by burn out (Kiku not sure if those words used interchangeably or if mean different things.

Getting AAC helped immensely with Kiku's ability to communicate, but it not a magic fix all, Kiku has barriers to Kiku's aac use. Including anxiety, trauma from being forced to speak, it not occuring to Kiku that Kiku should/can communicate, motor difficulties, Kiku's migraines and visual issues from them, processing issues, and problems with wording what trying to communicate probably among other things Kiku can't think of right now.

This has kind of turned into a ramble but Kiku wants to talk about this. Also if anyone has questions about Kiku's experiences with becoming nonspeaking/nonverbal and an AAC user feel free. Kiku loves answering asks.

#kiku squeaks #actually autistic #autism #autistic #special interest #apraxia #nonspeaking #nonverbal #aac user #dyspraxia #dyspraxic #aacuser #autistic werewolf #aac device #aacdevice #disabled #minimally speaking #aphasia

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nonspeakingkiku · 1 year

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Kiku and one of Kiku's partners went to store and got food and snacks and stuff and Kiku used Kiku's talker and talked to the cashier a little and she talked back like Kiku was using mouth words. ☺️

#actually autistic #autism #autistic #kiku squeaks #nonspeaking #nonverbal #aac user #apraxia #dyspraxia #aacuser #dyspraxic #aac device #aacdevice #minimally speaking #autistic werewolf

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nonspeakingkiku · 1 year

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Does anyone have tips for using a rollator?

Kiku hasn't before but has seen posts about tips for wheelchairs and canes but not for rollators/walkers.

Plus Kiku hasn't known anyone who uses one, just people who use canes and wheelchairs. Kiku is feeling little lost 😅

#mobility aids #rollator #rollator walker #walker #actually autistic #autism #autistic #kiku squeaks #nonspeaking #nonverbal #aac user #apraxia #dyspraxia #aacuser #dyspraxic

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nonspeakingkiku · 1 year

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Kiku is curious what other methods of communication other than AAC other AAC users use. When Kiku having trouble use talker or not have it Kiku partners ask yes/no questions or use a number system for two or more options (like if have three things to choose from each one numbered and Kiku hold up that number fingers.

☺️

#actually autistic #autism #autistic #special interest #kiku squeaks #nonspeaking #nonverbal #aac user #apraxia #dyspraxia #aacuser #dyspraxic #aac device #aacdevice #minimally speaking #autistic werewolf

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nonspeakingkiku · 1 year

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Other AAC users, what's your favorite words your communicate device says? Kiku likes Kiku's talker say Juice

#kiku squeaks #nonspeaking #nonverbal #aac user #aacuser #aac device #aacdevice

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nonspeakingkiku · 1 year

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Please share!

Kiku is crowdfunding again.

Someone found Kiku's instagram post from when Kiku was trying to crowdfund for an ipad pro and donated, and Kiku doesn't feel right not posting to crowdfund again. (Kiku would likely not be doing this if the person who donated had not donated).

Kiku is trying to get an ipad pro 12.9" to use for AAC because Kiku has been having a lot of problems with Kiku's vision recently. Kiku also needs to get a screen protector for the ipad. Kiku has a case and shoulder strap already. Please help if you can! Kiku really needs this ipad because Kiku's vision issues have been making using aac very difficult. If you can't help please share.

The goal is $450 to cover ipad and screen protectors.

$25/$450

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