#M.E.
my hot take is that if a historical city has modern roads for cars they could in fact make that city wheelchair accessible, they just have chosen not to
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The chronically ill urge to buy a Baymax pencil case to hold all my handbag meds rather than the makeup bag they’re currently in, because its funnier.
I want this one specifically
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Chronic illness buddies, ever have one of those days where your body just goes "peace out sucker✌️" for absolutely no reason and you just feel off and bad and a little sick but not with your usual symptoms or reactions to external factors so you're just left there a little off center like,,,,,alright but in a ???? way
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Unfinished vent art about my struggle with chronic fatigue syndrome, it’s been rough.
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HAPPY BIRTHDAY TO MY FAVORITE HOBBITS!!!
Happy Birthday to my favorite Hobbit! (Happy Birthday to Bilbo, as well!)
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This new picrew is so cute😍
Not tagging anyone cos I’m feeling shy. But if you make one, tag me pls, I’d love to see😍
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Emily Dickinson was an autistic women possibly with M.E./ C.F.S. and DEFINITELY used the singular "they" in her writings
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If you live in the UK and you have ME/CFS (Chronic Fatigue Syndrome), please consider taking part in the DecodeME study!
They are planning to collect information from tens of thousands of people with ME/CFS and analyse DNA to see whether the disease is partly genetic and if so, help pinpoint what causes it – which is the path to finding treatments.
You can participate from home by completing a questionnaire, and you may also be asked to provide a saliva sample via post.
Visit decodeme. org. uk to find out more and take part!
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Here we are, in the year of Our Dolly of Parton 2024, and I have just been recommended Graded Exercise Therapy by a doc from occupational health at work.
Un-fucking-believable.
For info - GET is dangerous to people with M.E. and was removed from the NICE guidelines back in 2021, after years of campaigning by people with M.E. and doctors who were listening.
The irony of having an energy limiting condition but having to spend your energy educating doctors.
It's lucky I've still got a very healthy sense of humour.
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Çünkü hislerim konuşmayı bilmediğim diller gibi.
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Phil Youngs, who has had ME for 20 years, said Boxer’s story and her ear seeds business could lead to more stigma for a condition that some people already consider psychosomatic or fake.
He said: “As a community, we are now being questioned as to why we aren’t getting better if such a simple solution exists – bearing in mind that we don’t even know what causes the disease, never mind how to cure it.
“Picture someone going on [TV] claiming they could cure cancer, or ALS, or Alzheimer’s. They would be questioned immediately, by everyone on the panel. There would be public outrage. We know there is no cure for any of these diseases, there are millions and billions of pounds being spent on research every year.”
I haven't been diagnosed with ME or CFS but I do have fibromyalgia and hypersomnia, and as someone who has had to fight against being characterised as 'lazy' or 'depressed' by everyone from my own family to health professionals, I can see why the ME and CFS community are fighting back against this nonsense - and I wish them the best of luck.
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This study suggests that COVID can reactivate latent viral infections in the body. It also is one of the few studies done on COVID in people with ME/CFS and yes, it can cause the disease to reactivate or worsen.
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Есента е коварна. Напомня ни колко е шарен светът, но и как нищо не е вечно. Листата падат бавно, дърветата се подготвят за сън, някои растения умират, други раждат плодове. Природата заспива, за да се събуди през пролетта.
И всичко това ми напомня за хората…
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