#my internal screaming is constant and I think of the video saying the normal level would be zero too often | Explore Tumblr Posts and Blogs

crispturquoisewater · 3 years

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Another day, another battle...

I constantly find myself astounded at the gaslighting that goes on from the doctors at my surgery. It’s absolutely shocking, and has recently brought to my mind the podcast ‘Dr Death’. When listening to this podcast, as a naive listener, you think ‘how could this guy possibly get away with this for so long?!’ But it’s simple really, doctors stick together and belittle patients. So, any complaint that is raised is dissolved or made to be the patient’s ‘mosunderstanding’ and is flung carelessly into the ether.

Yesterday, I called the surgery and spoke to one of the new doctors. I had to request repeat blood test (which were already requested on the letter from hospital for the surgery to carry out but of course that doesn’t happen without having to make an appointment). I mentioned that at the weekend, whilst bleeding profusely and in agonising pain in my kidneys, I didn’t know what to do. I received no answer or advice. I said that I’m waiting for a referral for nephrology, but that doctor X had refused to make the referral because he said that it wasn’t his job and that he wanted to make a point that the hospital could not “workload shift”. Immediately, this new doctor jumped in and “explained” (like I’m fucking incompetent) what doctor X meant by his comments, and that actually he was saying that it was quicker for the referral to be done in-house and that it would be easier for me if it was done this way (queue internal scream of utter fucking frustration!).

Firstly, do not patronise me. I am a grown women who, despite everything I am going through, is perfectly competent and reasonable - unlike like the doctors at my practice. Secondly, how unfathomable that a doctor that was not a part of the conversation thinks she has any right to tell me what was actually said(?! Arghhhh!!).

As much as I was infuriated by her blatant attempt to manipulate and dismiss what doctor X had so clearly said (I still find it astonishing that a doctor would try and tell someone else what happened in a conversation that they were not present in - she didn’t even say, ‘I think what he meant was’... just flat out gaslighted me. Nope, no denying it, he called the hospital lazy, was furious that they hadn’t done their job, and was perfectly happy to see his patient suffer in pain, rather than make the referral, in order to prove a point, because they “had to learn”. Narcissism at its finest), I still kept my cool and was polite and explained that he was clear in what he so emphatically and angrily stated. What I wanted to say was, how the hell do you think you know what was said or meant? But I didn’t. She then went on to try and patronise me further by explaining how the system works. I’m very clear on how the system works. For a period of time - not so long ago - I worked in an area of the NHS. I know perfectly well how the system works, but it incredibly concerning that they do not. However, brilliant to know that they are ignoring patients’ requests, and filling their responses with a load of infantile lies.

It may seem like nothing important, but this constant belittling is having a massive affect on my self-worth and self-belief. I try not to let their gaslighting affect me, but it does. Massively. As I am sure is the point. After all, if you continue to feel worthless or lacking in self-confidence, you will stop pushing for the treatment you deserve.

After we’d moved on from that, I asked to be referred to physiotherapy. I’ve got osteoarthritis, and due to severe bone pain and joint swelling, I can barely walk anymore - even around my apartment - and I desperately need someone to look at me, and help me. For a normal surgery, this should be simple. You have a physical problem including joint pain and muscle weakness, you get referred to physio. The fact that I cannot walk properly, and barely at all anymore due to the pain in my feet being so severe, is not normal. I have been reporting worsening bone pain and swollen joints for six months.

At the end of December I insisted on actually being seen in practice because the pain in my lower back and legs was so severe (they still weren’t seeing anyone due to covid). The doctor openly mocked me, asked me no questions about how long id had the pain (even though I’d reported it multiple times), told me that she “does yoga”, like I was lazy and not helping myself (I’d actually started physio of my own from watching videos to try and help myself), and told me that MRIs were SOLELY used if a patient was considering neurosurgery and not for any other reason (🥴 I’d asked for an MRI because the pain in my spine and hips were so bad and had been progressing for four months. I was at the point of not being able to sleep or stand for long properly). Actually (as well as arthritis), what that SEVERE pain turned out to be, was adrenal crisis. My cortisol levels was so low that it was (as the A&E doctor put it), barely existent. And all the symptoms I was reporting were clearly it.

I don’t mind a doctor not knowing something - they clearly are not trained in everything - but please do not mock me or make me out to be a hypochondriac without even looking into it or trying to find out. I came away from that appointment distraught at being belittled, again. Oddly, when I found out that I had adrenal insufficiency, I actually felt vindicated, because I think their attitude towards actually made had started to make me doubt myself.

I truly feel for people who present with traumatic symptoms of mental illness. My symptoms are physical. My bloods are showing issues. Im pissing blood. I’m unable to walk properly or without pain, and yet I am STILL being treated as though I am making the seriousness of this up. I can only imagine how harrowing it must be when there is nothing physical to show. And my heart goes out to you. I’ve spoken to friends who have been mocked or belittled by doctors over their mental health. Im so sorry they do this to you, and us. They are definitely in the wrong profession. The one they must switch to is the Narcissistic House of Disbelief.

Anyhoo, I digress.

So, what should have been a simple request for referral, turned into another battle. The doctor will not refer me until she gets my latest bloods back. And then she will decide if she deems it worthy of me to see a physio. I am in so much pain I can’t describe. How is it that our health is at the mercy of these people?

So, now, almost totally unable to walk because any pressure on my feet is so agonising, and my knees are ankles are so swollen (I’m vegan and eat a healthy diet, this is not excess salt or fats), I am left, yet again, in pain and without a referral.

It’s utterly exasperating. Totally and utterly exasperating, and draining, and mentally, emotionally and physically horrendous, which counteracts my ability to get better, because I end up facing a constant stress from the people that are supposed to help. And stress makes the symptoms worse.

Yesterday, after this agonising call with the doctor, after which I thanked her for her time (despite feeling despair inside - no need for me to be rude, even though the anxiety of each call with that surgery knaws like a ball inside my gut), I had to call the hospital to see if the referral had been made their end (it hasn’t - they simply sent the same letter back to surgery), had to call a different part of the hospital to see if the bloods had been put on the system and then call the blood department to make the booking. That was aside from five other phone calls chasing things. Being ill is a full-time job. And not made easier by doctors with inflated egos who believe they are untouchable.

If you haven’t listened to Dr Death, listen to it. It’s very easy in this situation to believe that this is only happening to you. But it isn’t. My surgery has a 2 star rating. That is testament to the fact that this is not just happening to me. But who will change it? No one, likely. Because complaints are buried. Patients are ignored. And you’re made out to be a complete crazy who somehow, and for reason, wants to be sick.

And why don’t I change? Because my illness is complex, and I don’t have the strength to start again. Also, I don’t believe that any other surgery will be any better. If it’s anything more than a cough and cold, they don’t want to know. Actual doctoring rarely goes on.

I want to finish this blog with a praise to doctors in A&E. because my surgery refuse to look at issues or pay attention to serious problems, it forces patients to go to A&E - because they’re not overstretched and exhausted enough already. Due to having a reaction to my new medication, I ended up there two weeks ago. And the doctors and team were fantastic. I was there seven hours, but I never, ever moan about the wait. These people are inundated with cases. And the reason it took so long is because I had to wait to see a specialist medical team once my bloods had come back. But, throughout, I was treated with respect and dignity, and left feeling assured that I was okay.

Respect and dignity should be a given, however, unfortunately, so often it is not. I do believe some doctors that have been practising for a long time believe themselves to be untouchable, and that is a dangerous precedent to set. But unfortunately, I believe it is one that rings true far often than anyone would like to admit.

Maybe if I was a man, and spoke to them with rage, I would receive a different result. It’s amazing how respect is expected one way, and not the other.

Is the NHS sexist? I think so...

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