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ididit-allofit-foryou · 1 year

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Chronic Illness Products: Tried and Tested by a Fellow Spoonie

Hey! I’m Rain, and I have various chronic illnesses and disabilities, including: POTS, chronic migraine, chronic pain, and chronic fatigue. The following products are some that have helped me with my symptoms!

Migraine Ice Head Wrap

https://www.amazon.com/dp/B09BN7TV6N/?coliid=I2CB88I8424KRB&colid=OPCCR26R0SR4&psc=1&ref_=list_c_wl_lv_ov_lig_dp_it

This is great because it can be either heated in the microwave or cooled in the freezer. It has gel in it and it is heavy so it puts a little pressure on your head. It also has velcro closure so it can be adjusted for head size and pressure. You don’t even have to put it in the freezer if you like it cold, because if you keep it at room temperature (my house is usually between 68-71 degrees F) it will get cold by itself and it can help for a while, about 10 minutes before it gets warmed by your body heat.

Monthly Pill Organizer

https://www.amazon.com/dp/B09V53JTM6/?coliid=I2IBUBXDTRNU36&colid=OPCCR26R0SR4&psc=1&ref_=list_c_wl_lv_ov_lig_dp_it

I hated having to refill my pill box every week, so I got 2 monthly organizers and use one for morning and one for night, and I only have to fill it once a month! I like this band because it is easy to open and each week comes out by itself so if you travel you can take just one week with you. I also like that they are all in a case and it closes for safe keeping.

Bed Tent

https://www.amazon.com/dp/B07T4JV6ZT/?coliid=I33UE149JTQBTG&colid=OPCCR26R0SR4&psc=1&ref_=list_c_wl_lv_ov_lig_dp_it

This is more expensive, but it is absolutely worth it if you have migraines. It has 6 zippers: one on each side, one on each end, and the top part of each end flap has a second zipper that opens a mesh area if you want air or light. You can close it entirely, and it makes it dark even in daylight, but it is still breathable and not stifling. There is also a pocket at one end that can hold a TON of stuff. I keep snacks and things in there for easy access. Finally, there is a little circle hook on the top where you can hang a camping fan or light if you want!

Cooling Neck and Head Towel

https://www.amazon.com/dp/B00JH4H5AS/?coliid=I3L6Z4MFFV2IK1&colid=OPCCR26R0SR4&psc=1&ref_=list_c_wl_lv_ov_lig_dp_it

There’s a few different brands of these, and I couldn’t find the exact one I have, but any will work! My brother used this brand for when he played sports–I use mine to cool my neck when I’m nauseous lol. It stays cold for longer than just a regular rag and the water doesn't get everywhere.

Neck Pillow

https://www.amazon.com/dp/B09MQ416CR/?coliid=I34LO7QKQ5H4Z&colid=OPCCR26R0SR4&psc=1&ref_=list_c_wl_lv_ov_lig_dp_it

Simple, yet effective. If you have POTS or any other condition that makes it hard to sit up for long periods of time, or a condition where you have neck weakness/pain, then this is for you. Riding in a car? Recline that seat a bit and put on a neck pillow. 10/10 much better car experience.

Cane With Seat

https://www.amazon.com/dp/B00DPOOCC0/?coliid=I133WRLIWPH40D&colid=OPCCR26R0SR4&psc=1&ref_=list_c_wl_lv_ov_lig_dp_it

I have POTS, and I use a wheelchair for most places that require walking, but a lot of areas where I live are not wheelchair-accessible. So, I use this! If I feel dizzy, I can just open the seat and sit down for a bit until by body chills the fuck out.

Electric Toothbrush

https://www.amazon.com/dp/B08LJNZW3Y/?coliid=I189MT1VEIKUTZ&colid=OPCCR26R0SR4&psc=1&ref_=list_c_wl_lv_ov_lig_dp_it

It doesn’t have to be this kind, but since I can’t stand long enough to brush my teeth very long (or at all some days), I use an electric toothbrush to get a better clean in a shorter amount of time. They cost a bit more, but less than a cavity filling.

Shower Chair

https://www.amazon.com/dp/B07NM77DJ2/?coliid=I1SRRBS7ISI3E1&colid=OPCCR26R0SR4&psc=1&ref_=list_c_wl_lv_ov_lig_dp_it

If you feel dizzy in the shower, or can’t stand very long due to pain, or for whatever reason, and are considering getting a shower chair, this is your sign to do it!! It has helped me so much and makes showering SO much easier and way less daunting.

Bath Pillow

https://www.amazon.com/dp/B0B9WG925R/?coliid=I1C4T2MUPR33WU&colid=OPCCR26R0SR4&psc=1&ref_=list_c_wl_lv_ov_lig_dp_it

I have chronic pain and laying in the bathtub in warm water can help with it, but it also hurt my neck to lay on the hard surface. Not anymore! I’ve also seen full-body bath pillows that would be GREAT but I don’t have anywhere to store it. For this one, I just keep it in the tub all the time.

That’s all I could think of at the moment, but I will reblog this with more items if I think of any! Feel free to add to this list yourselves!

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ididit-allofit-foryou · 10 months

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hard pills

The back-ache days and too-long nights are becoming unbearably heavy, gouging my eye-bags deeper with every fall of the sun. I can only hold so much under my tongue without swallowing– and I don’t want to taste the truth that this might be forever; that all my tomorrows will be a battle to keep my eyelids from dropping; that every time I rise from my prison-bed slumber I will have a clock on my spine counting down at slipping-slide speeds to the time I have to return. The brain fog chews at my mind, the fatigue eats at my soul. I can’t take this! I want to live! Let me be! I just want to be okay. I’ve never known peace in my life, and just when I just began to look it in the eye, my body started to crumble. What good is a life you can’t live? What good is a sharp mind when it can’t cut through the smog? I’ve been dealt a losing hand, again, and again, and again. I don’t want to give up the hope I just found, but I feel so helpless. Everything costs too much, including consciousness. Every time I move, a joint pops. Every minute I spend upright is another hour lying down. Math doesn’t add up here, and the clocks turn too quickly. How does a bird fly when there’s no air?

This is a poem I wrote about my experiences with chronic illnesses, including chronic fatigue, POTS, and chronic pain. I thought I would share it for disability pride month! You can find it, and more like it, in my latest poetry book, KNOW ME!!!

#me/cfs #chronic fatigue #chronic illness #pots syndrome #fibromyalgia #chronic pain #hashimotos thyroiditus #hypothyroidism #poetry #poem #poets on tumblr #disability pride month #rain writes #disabled author #disability #cripplepunk #queer cripple

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