#protactile
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The protactile articles raise a very good point about DeafBlindness. Why is it so often called the loneliest disability? Why are we so isolated? Why are we kept separate from the world purely because we aren't hearing-sighted?
Why can't we interact and navigate the world tactilely? Why can't we touch and explore and learn and interact? Why can't we talk and socialise with each other and everyone else? Why do hearing-sighted people shrink from exploring hands and shoeless feet walking through a room?
Why are we made to be lonely when we can experience our world through touch? Why is that somehow lesser? More dangerous? Something to be afraid of?
Why do people insist on isolating us?
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It was excellent!
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"The question I am asked most frequently by hearing and sighted people is “How can I make my [website, gallery exhibit, film, performance, concert, whatever] accessible to you?” Companies, schools, nonprofits, and state and federal agencies approach me and other DeafBlind people all the time, demanding, “How do we make it more accessible?”
[...] The arrogance is astounding. Why is it always about them? Why is it about their including or not including us? Why is it never about us and whether or not we include them?"
— John Lee Clark, "Against Access" (from McSweeney's 64)
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Thinking about the article critiquing access as a concept and I think it is true that I have been hesitant to include subjective interpretations of vibe on the My Chem clips and gifsets I have been image describing lately, and I think that part of it is because what the fandom and I are responding to in many of those is finding them sexy! Like, so much of the tag commentary is a chain of “I will not say anything” and if you didn’t already know what people were responding to, you would have NO idea what they were talking about! That isn’t the fault of any one individual person, but I do think that much of tumblr has taken a turn toward discouraging expression of sexuality, and it does have implications for access, both in the disability sense and in the broader sense.
#I don't know what I'm going to do about image descriptions tbh#what the article emphasizes for protactile deafblind interpretation is the relationship that the interpreter has#and like. image descriptions get seen by hundreds of people#many of which I do not know what they'd want to know about an image or video#idk. just thinking.
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worth saying for anyone who doesn't know: i'm not deaf. i'm actually visually impaired and struggle with visual signed languages for that reason. my partner's extended family is deaf and so i have a connection to the culture, but mostly i'm just a linguist and someone who spends a lot of time thinking about disability and disability justice.
#e#his grandmother was actually the president of the NAD (national association of the deaf)#and his cousins are 7 generations deaf#i wish i could talk with them not via messaging which is why i want to learn protactile
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This article is fantastic. Disability access is a shitty compromise in a lot of ways. And let's stop encouraging people to write accurate image descriptions and to write beautiful ones instead.
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I want to learn protactile asl. Any resources online? From Deafblind content creators?
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I opened this from a post about image description the other day but I lost the post. anyway fantastic article about interpretation and accessibility, really well written and great perspective. also had me thinking of all the connections between interpretation and translation. big recommend. and no paywall!
#number one emotion after reading this is I need to learn everything about protactile immediately#language!!!#frames
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A note on Kiku's deafblindness.
Kiku has hearing and sight but both are unreliable. Kiku is still figuring out what is hard, what helps, and what this means for Kiku. Kiku grew up thinking Kiku was sighted and hearing and knowing now, that that isn't true. That Kiku is blind and is deaf, are big. Very big and a lot to process.
When Kiku first started really questioning if Kiku was actually blind, really actually considering the possibility that that is true, a very nice lady whose son is deafblind due to CVI and CAPD reached out to Kiku, and listened to Kiku, and confirmed that Kiku's experiences sound like CVI, and that Kiku very well might be deafblind based on Kiku's experiences and even more important, she talked about the trauma that others with CVI and CAPD/Cortical Deafness have experienced, by growing up deafblind and not even knowing it. At first Kiku thought, Kiku doesn't have trauma from that... But Kiku does... All the things that weren't believed, or understand, or listened to. Glossed over. Explained away. Every time someone said: Just pay more attention, just listen, it's right there just look, we called you five times why didn't you answer.
Kiku does have trauma from growing up deafblind and not knowing it. Kiku is so glad that Kiku knows now. Glad that Kiku can accommodate self now. Can learn to rely on things that work better than Kiku's hearing and sight, because they are not reliable. Familiar things are sometimes easier, familiar things can be easier to see, familiar sounds or speech can be easier to identify, although not always easier to understand. Especially speech. Most of the time speech sounds like gibberish. Sounds are hard to identify, can't always tell where sounds come from. Unfamiliar things are worse. Unfamiliar places are a swirl of confusing color, unfamiliar sounds make no sense. And sometimes especially when stresed, overwhelmed, tired, or similar even the familiar is lost in a swirl of colors or sounds. Too many things too many sounds. Is that rain or something else? Someone talking or a sound on the TV. A passing car or something else. The more sounds the harder it is to tell. And if hearing can't see well, and if seeing, actually seeing processing what looking at, can't hear. Will be looking at something and realise halfway through someone talking that they talking and Kiku didn't hear half of it.
But Kiku is learning things to help.
White cane
Braille
ASL
Take break to focus listen, so hear better. Still hard. Still hear gibberish often.
Take break from use sight. Use screenreader. Use braille to make note for self.
Rely on tools that help and loved ones.
Learn more, always learn.
Remember what used to do to help (hand trailing, spend time by self in familiar place, dark, limit sensory input. Block background noise to focus using sight. Block visual distraction to help hear somewhat better)
And things want to learn/have in future to help.
More ASL.
Deaf culture
Protactile ASL
To use white cane well
Hearing aids
Other things.
This post is mostly for self. Just dumping it all out to help process.
Will bio family accept all this... Probably not. They didn't see Kiku's disabilities the first time. But also they not the ones matter, not really. Ones that do, chosen family. The ones who accept Kiku for Kiku, disabilities and all. And are learning to help Kiku while Kiku learn to help self.
Also if Kiku has any deaf, blind, or deafblind followers who have anything they want to share, whether that is their own stories, resources, art, ect. That would be great. Kiku probably should have had all this a long time ago, (community and awareness of self) but Kiku is glad do now.
Thank to anyone who reads this.
#kiku squeaks#blind#deaf#deafblind#CVI#CAPD#APD#hard of hearing#low vision#visual impairment#hearing impairment
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Hi! So I’m trying to write this fanfic where my oc is deaf and one of the main characters they interact with is blind. Obviously, this’ll make communication pretty hard for them. I know my oc has the ability to read lips (they do struggle to make out a lot of words and phrases though) and I’m trying to do research of different levels of deafness so I can get a good idea on how my oc’s deafness can be written and stuff that’ll be at least mostly accurate, however I’m trying to think of more ways their relationship could be impacted with how the two would have to communicate differently.
I was wondering if you could think of different ways the two could maybe learn to communicate with another? How they would interact and stuff like that?
I’m not quite sure if this is how I’m supposed to do this, I feel like this is rude in some way or something, bps I im really SPRRY of it is. Have a good day,
Character Who is Blind Interacts with Character Who is Deaf
There are lots of ways a character who is blind can communicate with a character who is deaf. Partial sight or hearing may allow them to use speech and sign language to communicate, but even if not, there are many other options.
One of the simplest ways a person who is deaf can communicate with a person who is blind is via something called "protactile sign language" which is sign language that relies on touch.
youtube
Another option would be to use an interpreter if one is available. They can read the sign language and verbally translate it for the person who is blind. Then, if they lip read, they can interpret the response themselves. Or, the interpreter can sign the response back to them.
Technology can also play a role. A person who is deaf can type what they want to say into a device, then the person who is blind can have the app read the text out loud. Voice recognition software can also be used to translate speech to text.
I hope that helps! :)
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rn my interests are wayne hancock. werner herzog documentaries. ivan illich. the degrowth movement. my own novel. stop cop city. yoga. lucinda williams. the protactile movement and john lee clark's essays. sensuality. marxism. nutrition. young thug's rico case. small farms. the luddite revolution. clarice lispector. protein.
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Just before Art Fight I was working on updating refs for some of my ocs I focused on my little guy Kilit (and his friend Second hes doing protactile sign with)
He’s from my project Ascended and comes from a dimension thats very rural and homey and lives with a bunch of monk-like people.
And has his companion creature Petcha to travel with.
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sick and weak shabbosposting
thankfully that is a woe-is-me exaggeration. my therapist last week said she was getting over a cold but was no longer contagious and i, like a fool, believed her!!! woe!!! agony!!! struck down by seasonal cold!!! and yet i persist
listening: about halfway through episode 5 of partizan! so far i have laughed a lot more than i thought i would, the most recent bit that had me cackling was about "donating" their "extra mech" to midnite as "charity". really really good. am keeping up with SSHG episodes, i am very excited for them to watch the first hunger games movie at some point.
reading: we're back on the academic papers. i'm giving a general-audience presentation on my research on monday to other graduate students and needed to make sure that i actually understood the fundamental assumptions that we made about the topic. the good news is i think i do! the bad news is uh oh, gotta make a presentation...
some articles i read this week:
against access, john lee clark: this was a really really cool article. definitely has made me re-think the way i should be doing captions on images. the poetry of the tactile descriptions of people involved with protactile made me a little emotional.
vanishing words, grazia rutherford-swan: i'm not sure how to articulate how i felt about reading this. it's raw and it's good. content warnings for abuse and assault.
crying in luke's lobster, byran woods: i am not a public crier and i do not think i will ever be but i am working on being more vulnerable and allowing myself to cry in therapy right now. i think if i were to be a public crier, train station restaurants in NYC are probably the ideal choice, followed closely by airport food courts and library stacks (does this count as public still?)
watching: last weekend i watched the cowboy bebop movie with the boyf!
COMPLETELY unrelated but at this point in writing this post a car driving down the main street my apartment is absolutely BLASTING you're out of touch i'm out of time. incredible. no notes.
anyways i enjoyed the bebop movie! once again they are soooo weird about native americans. it is a little funny to see the like...the way western media others the "far east", but it's japanese media doing that but about native americans? there's something to talk about there that someone more articulate than i can take care of. some of the timeline of this movie didn't quite track to me but it's fairly easy to hand-wave (vincent would have had to have been made immune to the nanomachines BEFORE having ~relations~ with elektra and then lost his memory in some separate incident i guess? or lost it just as time went on? who knows, also the implication of the Sexually Transmitted Nanomachine Vaccine is sooo funny). i really liked the comedy relief old guys getting a job to do!! good movie overall, 9/10.
making: i gave up on intarsia for my stupid vertically striped scarf and instead have cast on [drumroll] three hundred and sixty nine stitches!!! give it up for three hundred and sixty nine stitches!!!! my main worry now is that one 50g skein of each color will not be enough and i'll have to order more and risk the dye lots being crazy different...
anyways, ceramics! last saturday i took a day trip to an art museum and nearby ceramics supply store and got a bunch of underglazes, so i'm excited to try out some of those!
did a carving of an illuminated manuscript-style dragon inspired by this beastie on a mug! obviously he is difficult to photograph because curved object, and also isn't colored in yet so it's a bit difficult to pick out, but i'm hoping some fun and creative glaze application will make this guy really really fun
misc: very thankful that i have a work-from-home friendly schedule right now! wednesday suuuuucked, thursday was a little better, and i feel a little better again today, so hopefully with the weekend to recuperate i'll be good for my presentation on monday!
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From the Malevolent nonverbal messages illustrated chart: @sillyshrimpfella I'm cool with people using the concept for your own work! If you'd like to use the borrow the ones I came up with then I'd appreciate being credited or tagged. I didn't invent protactile language (a term I admittedly had to search up, thank you person in tags who taught me this) I only made up my own version of it for these characters and their most common situations
Quite a few folks mentioned that they liked the hand-language concept but wouldn't work well in a podcast medium, and I 100% agree. There's nearly no clear way to communicate that over audio format. However, I saw a few tags mentioning fanfiction potential so if you'd like to borrow it feel free to, with credit. I've seen other people make up their own versions before I did-- most notably the Surrogate series off the top of my head although I am sure there are more
Tactile communication has been around and evolving a long time for people with disabilities and it makes me happy to see the Malevolent community adopting it so welcomingly
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I know this may be, like, really odd, but your 2003 raph x mute reader really helped me out. I had no idea tactile sign language was a thing, and im really glad I found out about it. I'm autistic/adhd and go nonverbal a lot, and asl has always been super tricky to me. Sometimes, I struggle to even text. I'll now be learning tactile and protactile sign language to communicate 💕 Thank you, like genuinely :) This means a lot. And besides, I think it's quite humorous. I found this out through a fanfic 💀
I am so happy that you liked it!😭💚💕 I have very little experience with nonverbal people, and was therefore highly aware while writing it. I've never used tactile or protactile sign language, but I did use a little sign language back when I worked as a barista, but that was only with deaf people.
It really makes me happy to hear, that one of my fan fictions did something to help💚 Autism and ADHD runs in my family (spoiler alert, I might have it as well), and I therefor fully understand how nice and comforting it can be, to read a fan fiction with a character or situation that one can relate to (also applies for any neurotypical people, or people with a diagnosis other than autism or ADHD out there reading this). I believe that fan fictions are a way for both the writer and reader to feel comfort, or feel a closer connection to something they both find comfort in. To know that I've made you feel a form of comfort or reassurance with my fan fiction, means a lot to me💖💕
And damn, it is quite humorous😂 I learned about it on Insta during a doom scroll💀😂
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