#meawareness #cfsme #cfsawareness #millionsmissing https://www.instagram.com/p/CdcjOI8tq6B/?igshid=NGJjMDIxMWI=

New blog up now 🤬 https://alishawhittam.com/ #me #myalgicencephalomyelitis #anxiety #meawareness #mecfs #mecfsawareness https://www.instagram.com/p/CdTA-xuMgQ9/?igshid=NGJjMDIxMWI=

🤣🤣🤣 Step back satan! - 📸 Via 📷Unknown, tag to credit! - Tag someone who needs to see this💙 - Follow 👉 @sick_gone for more content💓🌼🥰 ======================= Follow 👉 @sick_gone for more content💓🌼🥰 - - - - #spoonielife#potssyndrome#mecfs#raisingawareness#chronicmigraines#spooniesupport#chroniclyme#chronicillnessmemes#notalldisabilitiesarevisible#chronicpainsurvivor#meawareness#spooniesunite#fibromyalgiaproblems#chronicpainlife#costochondritis#spoontheory#chronicpainmanagement Reposted from @spooniesaw https://www.instagram.com/p/Ci8jB-UOobv/?igshid=NGJjMDIxMWI=

Sharon Tiday said on Twitter: For a while now people have told me that I should get this short story/poem published so I sent it off and Edge of Humanity Magazine has now published it please share it for #MEAwareness

happy first #disability pride month post

its the pathfinder 2e and dnd backgrounds optional rules for my condition

m.e/c.f.s

inside other than info on my condition is info on background notes for gms

and 3 tables covering mild to severe m.e

and an optional variant where the tables only give you flavour instead of mechinal issues

the idea is to roll once every day or as much as you like after picking what version feels right for you

this was done for me awareness as well as a personal desire to see if my condition can work in these universe and it can

ofc!

its pay what you wants so enjoy!

For #TeaPartyForME2021 See Tea Party For M.E. for how to participate and donate to M.E. charities to raise funds into the research we so desperately need and do not get.  Post viral illnesses are on topic these days, but they are not new.  I’ve suffered for almost 2 decades after a bout of glandular fever and my life has been devastated by it.  We’re not faking being ill, we’re not exaggerating, most of the time we’re downplaying it and pretending to be well.  See us. Listen to us.  Understand us.  Help us.   

Drama web series based on the experiences of real life M.E sufferers, which hopes to shine a spotlight on the issues sufferers face. Please share.

#Repost @meactnet with @get_repost ・・・ #Repost @myillnessmythoughts with @insta.save.repost • • • How amazing would it be if that apology came via education & biomedical M.E research in these communities. Now that would effect change. * It’s time for change 🙌🏻 it’s time for #understanding #awareness the end of #neglect & for governments to allocate adequate funding for this life destroying disease known as ‘the living death’ #facts #meawarenessmonth #meawareness #millionsmissing #missingbutnolongersilent #endcfs #mecfs #meadvocacy #maymomentum #openmed #actionforme #endtheneglect #cfsme #thetruthoflifewithME #canyouseeMEnow

THIS! 15 years of struggling, I have got a little bit better at knowing my energy limits but it doesn’t stop me feeling the effects, I’ve just lessened the severity of the crash. I still have some days when I will purposely push myself too far because you only get one life and I don’t want to miss out on everything, but I’ll plan for a couple of days rest after. #meawareness #cfsme #spoonie #PEM #postexertionalmalaise #fatigue https://www.instagram.com/p/CPGqTRthgGFmhLLQFD3lmxOIRtUjaLiToSyYeg0/?utm_medium=tumblr

Quick cross stitch started on ME/CFS awareness day this week #meawareness #cfsawareness #crossstitch https://www.instagram.com/p/CdicUlRticx/?igshid=NGJjMDIxMWI=

I really do mean it has been years 🤗 so pleased with myself #me #meawareness #myalgicencephalomyelitis #myalgicencephalomyelitissucks #myalgicencephalomyelitisawarenes #disability #disabled #wheelchair #disabilityawareness #chronicillness #chronicpain #disabledlife #chronicallyill #disabledandproud #nevergiveup #disabledblogger #disabilities #disabledbodiesmatter #disabledmum https://www.instagram.com/p/CU3FMxrMbwB/?utm_medium=tumblr

New YouTube video: Lets talk about ME/Chronic Fatigue Syndrome [CC] I really hope this video helps spread awareness and don't forget to share & subscribe xx https://youtu.be/tMJY9_d5dR8

A wonderfully illustrated comic to explain Myalgic Encephalomyelitis/Encephalopathy (M.E) also known as Chronic Fatigue Syndrome (CFS) to other people. ---

Mahli Quinn Art "But... you did it before" in video form The ME Association asked if they could make the comic into a video in part to help those people with ME who struggle with reading/cognition in those areas and those who are so severely affected that they cannot read at all. I was keen to give narration a go, and, well... here we are! Many thanks to my partner, Nick, for co-narrating and doing all the sound editing and mixing (I would have been hopeless!). Many thanks to Emma and all at the MEA for putting the video together, too. May your batteries be good to you, today https://youtu.be/G4Rijt8jtZg

Today is ME/CFS and Fibromyalgia Awareness Day. . These debilitating conditions are poorly understood, despite hundreds of thousands suffering from ME and 1 in 20 having Fibromyalgia. . More research into causes and treatment for both conditions is badly needed. . #MEAwareness #CFS #Fibromyalgia https://www.instagram.com/p/COxo7t0pnVA/?igshid=k6etu5kmlmtk

I am one of millions missing. I'm missing from concerts, work, animal activism, church, worship team, volunteering, dancing, driving, time with friends & family, dating, my independence. I'm missing from MY LIFE. #MillionsMissing #myalgicencephalomyelitis #ME #missing #unseen #unheard #unfunded #may12th #meawareness #invisibleillness #wearenotinvisible #seeus #unrest #spoonie #spoonielife (at Elk Grove, California)

Some days the pain is so overwhelming, like I’m feeling it for the first time again. I’m always looking for the good things in life, the things that bring me comfort or a moment of distraction. My balcony bed is one of them. . What brings you comfort and/or distraction? =) . [#imagedescription four panel comic. Above the panels the text says “it’s hard living with pain every day” First panel: Nika is laying on her balcony bed. There is a pink umbrella giving her shade. There are yellow stars shooting from her body, indicating pain. Second panel: we see Nika view, it is part of the pink umbrella, a blue sky with the sun, and some plants on her balcony railing. Third panel: a bowl filled with cherries sitting on the pink pillow on the balcony bed. Fourth panel: Nika laying on her side on her balcony bed, she is holding up her phone to her face. Her hands are supported by a small yellow pillow. There are yellow stars shooting from her body, indicating pain. Below the panels the text says “I’m trying to make the best of it”] . #chronicpain #chronicpaindiary #diarycomic #spoonie #meawareness #fibromyalgia #spoonielife #houseboundlife #balconybed https://www.instagram.com/p/BypyhjroURr/?igshid=7v4im2jf4rei