lately, i've seen more people in the online autistic community acknowledging the struggles of people with higher support needs, which is of course an important development. but for some, that seems to come with the implicit assumption that low needs autistics "have it easy" or experience no stigma at all, which is just wrong??? people with low support needs are still disabled by their autism and still face discrimination because of it. sure, they are impaired to a lesser degree than those with higher support needs, but that doesn't mean you can just erase their struggles, y'know?

do you think you could talk a little about being autistic? im wondering if i might be autistic and im still not sure bc i like pass as neurotypical rlly well so far and i thought it would help to hear about actual people's experiences. you don't have to though and im sorry if this is weird!!

This has been in my inbox for a bit, I’m sorry! But yeah, I can talk about it. Keep in mind that everyone’s experience is different and its less of a “spectrum” from mild to severe/low to high functioning and more of a complex where different people have different experiences. A lot of people use functioning labels to dismiss the experience and opinions of “high functioning” folk when it comes to being autistic because tjey “don’t seem autistic” or “aren’t like those other low functioning autistic people”, but really “function” is relative and can even change day to day… on someone’s bad days they could be totally nonverbal rocking back and forth and on good days pass better at neurotypical than I do…

Ok so, I was diagnosed with Aspergers when I was ~10. I was essentially non-verbal in school and other high stress social situations and had been since I was very very young. This was interpreted as “very shy!” despite me having severe difficulty from a young age in saying anything at all to teachers, doctors, church people, even many of my peers, etc and often feeling like i was physically unable to speak but you know… because I spoke at home and with my neighborhood friends, I wasn’t considered non-verbal at all. Or I guess selective mutism is the correct term which is something I definitely still struggle with. Like when I was in middle school, I spent a few years literally being known by my mom’s friends and by some people at school as “Meep” because thata fuckin all I could physically say when somebody tried to talk to me haha

BUT ok that got away from me, point being: i was diagnosed with Aspergers at a young age which is a diagnosis that no longer exists/has been absorbed into the greater Autism diagnosis. Aspergers was separate for a long time because it was basically used to say “these kids are high functioning and different than those low functioning non communicative kids!”. Basically because I had most of the “cool and good” autism traits, my “not as cool and kinda crippling” autism traits and needs got shoved aside and essentially ignored for a long, long time. Which I think happens to a lot of kids! Even to the point of not getting a diagnosis at all or getting a wrong diagnosis and only realizing later in life what may be going on and what was missed.

Whoops before this becomes a bitter tangent, back to my experience of autism I guess. Ok, so on top of still being selectively verbal/mute (some days are worse than others and sometimes it isn’t even directly anxiety related it’s just a mostly mute day), my other symptoms include 1) it’s almost physically painful to make eye contact with anyone 2) formal social situations are beyond me, I never know what is correct or what’s coming next and usually I survive informal social situations by cracking jokes and making weird references to shit or being obnoxious and just accepting the label of “weird ass obnoxious kid but that’s just bre” 3) usually feel like I’m just two steps away from understanding what’s going on in some social situations lol like sometimes i have good intuition, can read people, can guess at what they’re thinking and then something happens that makes me question my entire interpretation of the situation and I realize maybe I wasn’t reading them correctly the whole time!!!! It’s the social equivalent of being the only one to get a wrong answer on a math problem and frantically rechecking your work lol 4) sensory overload yayyyyy when too many things happen at once (which can be like… 2 thing), I zone out and feel like my environment is unreal or blurry (fun and cool dissociation) and I can never predict what will cause that overload or when but also a lot of people have the very dramatic “autistic child screaming from sensory overload” image in their brain and thats not always accurate… my overload results in shut down 5) also along with that, I have sensory issues such as texture, sounds, etc. Certain fabrics as a kid would legit make me cry if I touched them or if my mom made me wear them (WINDBREAKERS ARE SENSORY HELL) and that still happens lol also with stuff like… chewing sounds, shoes that touch my toes in any way, loud music/bass, etc 6) along with that and with sensory overload… stimming. Stimming is basically a self-regulatory response to overwhelming stimuli and plenty of non-autistic people also do similar things when faced with high anxiety situations. Like foot jiggling, pencil tapping, nail biting, pencil chewing, etc it’s basically a soothing compulsion and not always something many autistic people can control without great effort and that control comes at the cost of not regulating anxieties or sensory overload well. I’ve got and always have had a lot of verbal/language stims and am very reptitive in my speech and writing patterns (y'all and lad anyone???) which is kinda self soothing. I have literally always had catchphrases. When im on my own i also do rock baxk and forth and other repititive body motions, also fidgeting with objects, especially cool round objects 7) catalog all the useless info in my brain!!! I can memorize information very well (not numbers though) and when I was a kiddo that got me labelled as #gifted and I was “savant” level in reading and writing but that is less cool and fun to people than beinf a math or science savant or something. 8) anyway related to that, as evidenced by this blog, I get VERY INVESTED in certain topics/ “special interests” to the point that it eclipses all other thoughts in my brain yay!!! Which isn’t a bad thing, I mean it gets me through and also if you have “good” special interests, people think you’re smart and interesting and ask your advice about stuff lol

Symptoms I don’t have that a lot of people think of when they think of an autistic person 1) I am horrendous at math I fuckin hate it numbers are the devil!!!!!! 2) 99% of my humor is sarcasm and I can understand it and figures of speech lol though sometimes i do get it wrong if i can’t read you otherwise 3) I don’t have “zero empathy”, I can feel for the plights of others VERY strongly, and can usually see any (most) POVs if it’s explained to me

There are others probably and there are certainly autistic people who have thise traits and who have different traits than I have. There are LOADS of different ways to be autistic. But also, there’s a lot of overlap between autism and between other things like ADHD, anxiety disorders, etc! So keep that in mind. Some people are strongly anti-selfdiagnosis of autism but knowing how easy it can be for kids who don’t present 100% stereotypically to slip through the cracks, I am all for it. I pass a lot of the time as neurotypical and can do most society things ok, though I have a steep learning curve compared to others… and with passing as neurotypical comes the frequent dismissal of my opinion on autism related topics and the lack of acknowledgement that actually I often DON’T pass as neurotypical and at those times my lack of passing is interpreted as rudeness, deliberate lack of effort on my part, stubbornness, lack of intelligence, lack of professionalism, an assumption that I’m angry with someone or don’t like them, etc etc. It’s an endless, awful cycle!

And I don’t really have too much personal advice for figuring out if you’re autistic or not… I did go through a point in time where despite being diagnosed I strongly denied that I was autistic and kind of had to come back to that as a near adult and realize nope… definitely autistic. And then knowing what to do with that info once youve figured it out is just… I mean there’s not much. There are little to no resources for autistic adults, very few support groups made up of autistic people and led by autistic people, very little resources directed at autistic people themselves in general, usually the focus is on the parents or guardians and talk aboit autistic people as abstract concepts… whoops, can you tell I’m bitter haha gonna end this before I go full “mental health professionals failed me and I’m a mess” etc