ourhopefulrecovery
Becoming who we are
Here to make friends and share hope & experiences in trauma recovery.
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You can read the rest of the thread here. Plus here's the 84 page document submitted by South Africa
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On COVID, propaganda, and the normalization of mass death and disability by themme_fatale
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Disabled people pointing out ableism by the wider queer community is not "ruining the vibes" of pride month
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Thinking about this conversation from Discord
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listen, all the winners in this decade have sung in their own language, not in english, and for us to lose that streak to fckn sweden is unacceptable, so do the right thing and vote for finland
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Hugely curious about the stats of this. I'm testing a theory. Elaborate in the tags if you please.
Please reblog!
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I love the "glasses are disability" thing because it applies to basically every complaint abled people have about disability
"You're not even that bad, why would you get that?" Have you ever used a magnifying glass for small details or zoomed in on a picture
"Why do you have that accommodation TODAY?" Why do you wear reading glasses when you're reading
"It seems like your 'needs' are inconsistent." Yeah and you wear sunglasses when it's sunny and not all the time
"But you can technically walk without that." Yeah and if I put the page really close to your face you could read it, it would just hurt and be hugely impractical, inconvenient, and limiting
"But you COULD go without it all the time, you don't NEED it to live." And maybe you could technically see without your glasses, doesn't mean it's comfortable or practical day to day
"If you REALLY had a hard time seeing you would have glasses." Have you ever known someone who couldn't afford a new pair of glasses? Or eye appointments? Someone who needed vision therapy or special prism glasses? Someone whose vision only gets bad during migraines or seizures? Someone with astigmatism that glasses can't help? Someone who didn't qualify for LASIK?
"You only use it when you're out in public." Have you ever gotten up to use the bathroom at night without putting on your glasses
"Decorating it is just trying to get attention, and it's a medical device so stop glamorizing it." Do you hate any patterned or colorful glasses frames too? Art with characters who wear glasses? People who make OCs with glasses? Glasses chains, prescription sunglasses, aesthetic fake glasses with tinted lenses?
"There are secretly lots of people just using aids for fun and attention." There are secretly lots of people wearing fake glasses or colored contacts for fun and attention, it does not affect you
"We need to find fakers, they're stealing disabled resources!" Someone pretending to need glasses is "taking" a seat in the front from someone who might need it more. That sucks and they shouldn't do that. But I'm not going to scrutinize every person who wears glasses to see if I think they really need that seat. You personally are not the arbiter of who is (based on the random times you've seen them) secretly not disabled
"My friend has that and doesn't act like that." Does every pair of glasses in production, or even every pair close to your prescription, work for you? Is your vision identical to every other nearsighted person?
"If you can do X why can't you do Y? Some people with that can do Y."/"But if you have that how can you do X? People with that can't usually do X." Some people are nearsighted and some people are farsighted and some people are both. Some farsighted people can read some without glasses and some can't. And good distance vision doesn't mean you don't ever need glasses, it's just an entirely different reason you'd need glasses
"You're too young to need that." And there are young people who need bifocal lenses
"Why don't you use this DIFFERENT aid though, it would look like you didn't even have an aid." Why doesn't everyone in the world wear contacts
"Why can't I/my friend/my kid play with it?" Do you let random strangers and children try on your glasses at the grocery store
"I was just trying to help, I thought you'd need a push/you were in the way." Are you cool with me suddenly pulling your glasses off your face to clean them, or because the glare was distracting me
"You'll eventually stop using it though right?" Are you planning on no longer needing glasses someday
Disabled people are free to add
I am aware this is not a 1-to-1 perfectly accurate post. Do not come into the notes trying to "um actually this isn't a perfect comparison." I know. Just don't
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By the way. Before you rush to get a professional diagnosis for a Brain Thing you should really weigh your options. Like do you just want to "prove it" or will this actually give you access to treatment you can't have otherwise? Are the treatment options available worth having the government know you're neurodivergent? Because sometimes it's better to keep things off the record because unfortunately we still live in a very deeply ableist society and you might not want to have more real material oppression stacked against you than you have to
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There’s one thing I always think of when I hear “how could you let it get so bad?” and similar phrases. It’s in the comments of every video of matted hair or a dirty kitchen.
I think the appropriate response is “what would have to happen to you for you to let it get that bad?” And when you think about that question, and the horrifying answers that come with it, you almost certainly have more sympathy for the person you were being judgemental to.
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Because my comics have gone around the internet, many people have asked if I’ve “gotten better yet”. The answer is a firm NO because that’s not how post-viral illness triggered by an infection that causes organ and brain damage works. Please consider your behavior and who you are leaving behind.
Check out the People’s CDC here where they provide weekly updates on the COVID situation in the U.S.
ID in alt text and below!
ID: a 10-image black-and-white cartoony comic.
The 1st image is titled Pandemic Year 3 and dated January 2023. The drawing shows a masked boy with fluffy hair, Joey, surrounded by unmasked people. The text reads: At some point, the people around me decided that the price of me staying alive — a few small inconveniences for them — was too high.
In image 2, Joey sits at a table with his drawing tablet looking concerned. The text reads: The world, many loved ones included, is actively hostile to me continuing to live. How do I cope with that? I don’t have the answer. I’m just really alone.
Joey, stressed and frightened, clutches his laptop. The text reads: And I mean really alone. A figure on the laptop screen says: High-risk people will take care of themselves. Joey yells: How?
This image is split into two panels. The first one reads: How do I keep myself safe when the store, work, and school, is a death trap? For each word, a triangle displays that maskless environment. The second panel shows Joey’s sad face in a Zoom window. The text reads: I’m taking my final semester of undergrad online to the displeasure of many.
Joey lays face down in a pillow. The text reads: If you’ve been following me for any time, you know I got Covid in February 2020 at 19 years old and have become disabled by long Covid. Everything smells and tastes like rotting meat, I can’t keep anything I eat down, and I’ve started randomly fainting after years of dizziness.
Joey is shirtless and masked and hooked up to an EKG. The text reads: I’m one of millions of Covid survivors for whom re-infection is much more dangerous. Not to mention everyone who was already high-risk.
Joey lays on the couch and looks at social media posts where people are posting photos of themselves maskless in crowds. The text reads: The general public is very happy to isolate high-risk people from society if it means never having to think about us ever again and continuing with the actions that kill us. That’s eugenics, by the way.
This image is split into two panels. The first one shows Joey laying down, clutching his heart, and crying. The text reads: And it’s not just the people who don’t see us. The second panel shows Joey looking disheveled. The text reads: The cognitive dissonance is unlike anything I’ve seen. A speech bubble says: Are you sure you won’t do indoor dining?
Joey holds his hands lovingly under his face and raises his arms. Hearts are around his head. The text reads: If you’re here with me and isolated from the rest of society while being continually told that your life doesn’t matter and that you’re crazy, I see you. I love you. You’re not alone.
Joey is shirtless and looking down at the portable EKG attached to his chest. The text reads: To the rest of you, I’m here asking for my life. I’m 22 and deserve to not only live but live joyfully. How much death and suffering is acceptable to you? The week of writing this, January 11th through 16th, at least 3,907 Americans have died of COVID. Recorded deaths have been over 2,500 weekly for months. Data from the People’s CDC. Recorded deaths are an undercount as many places stopped collecting or reporting data. End ID.
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I think it needs to become common knowledge that "inability to read social cues" can show up as overcompensating.
You don't know how much misbehaviour is allowed, so you become the perfect child who never tests rules.
You don't know if someone is irritated with you, so you'll be extra generous and self-effacing.
You don't know how much is expected of you at work so you'll kill yourself in a minimum-wage job and not notice that nobody else is working like this.
"Hardworking and quiet" should be as much of an autism red flag as "ignores rules and doesn't know when to stop talking". Or why don't we just start using words to communicate so i can stop tracking everybody's eyebrow twitches, that would be great.
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think first “will this help me heal?” before reopening old wounds
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Having ADHD and Being A Little Punk Rock
So….a huge amount of the discourse on Tumblr around neurodiversity generally is just venting. Which is good, it’s good to vent and Tumblr is a good place for it. And I know that often, when venting, the LAST thing you want to hear is someone trying to offer help or solutions. So generally I keep my mouth shut unless someone is speaking to me specifically.
But a while back I saw someone asking (rhetorically) about what people with ADHD wish their parents had known, and I had a lot of thoughts about that which I started jotting down. Reading the various ADHD tags, I also see a lot of teens and twentysomethings with ADHD who visibly have no coping mechanisms and no way of creating them. I don’t blame the kids, and it’s not some kind of personal failing on their part; they’re young, and nobody has taught them. But I look at them and I think, A little sideways thinking would help you out so much. Then, recently, I got an ask (thank you for the permission not to respond directly) that was full of feelings about not being able to process or communicate well, and feeling a lot of negative emotions because of it.
So, maybe it’s time to just throw this out there. I want to offer some advice as Fandom Dad with forty-three years of being neurodiverse and exactly seven months of actually being aware I was neurodiverse. Which for once is actually going to be pretty helpful! Because I looked at the world and I assumed my own neurotypicality and I thought, well, okay, but fuck all that.
Allow me to explain.
Keep reading
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What to Write in your Journal to Move on
When we are struggling with something traumatic, or something we experienced that it’s hard to get beyond, writing things down in a journal can help. Here are some suggestions of what to write about:
1. A description of what happened.
2. How it left you feeling.
3. Who was there and what they said and did.
4. What you wish had happened instead.
5. The reasons why you find it hard to let go.
6. Small steps you could take to start to move on.
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This ABSOLUTELY works.
I have used this for many years. Definitely b do it.
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