I think about your son a lot. How is he?

Aw, this is so nice 😭…he’s better than he has been, but not nearly well. We did 3 Rituxan infusions last year (which was brutal) and they seem to have eased the worst of his symptoms, but we’re stuck at the moment in a not-terrible-not-good plateau. He actually has an appointment tonight with a homeopath who comes very highly recommended by other parents of PANS kids, but I don’t feel super optimistic about it.

On the brighter side, he has been able to go back to school this year (it’s been tough, but he goes), and he finished 2nd in the spelling bee and is in the top math and reading groups (he’s in 5th grade) after basically not having any school for 2 years…he’s so smart and he tries so hard. So yeah, we’re just keeping on keeping on, expecting nothing and hoping for nothing but appreciating any good day as it comes along.