Today is rare disease day let your loved ones with a rare disease know they are loved. In medical school doctors are told "When you hear hoof beats think horses not zebras." This means to think of a more likely cause over something thought of as farfetched or rare. This makes it quite hard for anyone with one of these diseases to be heard and taken seriously as they are often shoved aside as hypochondriacs. I remember always being called one by everyone including friends and family. I remember starting to believe them. I remember being afraid of stairs for a long time because I fell down them, I remember these incidents leading to me being called clumsy. I remember being in physiotherapy in grade 1, I remember wearing high tops shoes because my ankles were "weak" and gave out. I remember my parents thinking I faked stomach aches because I liked the taste of Pepto. I remember still falling down stairs as a teenager and being told I was doing it for attention. I dont need to remember the stigma and comments like being called lazy because I still face them.. but mostly I remember the struggle to find out what was wrong with me and the relief of finding out I wasnt crazy because Not everyone gets to win the battle of seeking answers. . . . . . #eds #ehlersdanlos #ehlersdanlosfighter #edswarrior #ehlersdanlostype3 #edsdiagnosisstruggle #raredisease #rarediseaseday #rarediseaseawareness #edstype3 #invisibleillness #spreadawareness #invisibledisease #hypermobility #hypermobilitysyndrome #hypermobilityspectrumdisorder #hypermobileehlersdanlossyndrome https://www.instagram.com/p/CpOvh_5D1XH/?igshid=NGJjMDIxMWI=

When your #awesomehusband is a pro at packing your hospital bag with all you will want and/or need after years of doing it! #plushie to love on while I miss my #Sophiegirl; #mandms for my pity party #chocolate craving(happens every admission) ; #kindle WITH my #librarycard ; my #favoritefluffysweater ; and my #cleancomfypjs; and there maybe/probably/definitely was a #ReesespeanutbuttercupwithReesespieces that someone (me) gulped down like a maniac only to regret it a few minutes later when she (I) was sick from being a pig. I don't know what i would do without this amazing man! #happywife #blessedmama #lupuswarrior #heartdisease #heartdiseasesurvivor #ehlersdanlossyndrome #ehlersdanlosfighter