p0re
I imagined you taller.
robin / they-them
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what an absolute tragedy i ever had to abandon this url because of a stalking abusive asshole. i loved this url
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“Help the hurt, save the small. If I become a demon, cut me down.”
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Please help me find someone else with my rare conditon
My name is Valerie, I’m a teenager, and I’m chronically ill.
I’ve been sick for a decade now, and unfortunately, I tend to get all the rare and ~special~ disorders. Because of this, I currently have doctors in nine cities spanning across five states. I battle six chronic conditions, and balancing them is a daily struggle, but I’ve managed.
But my newest condition has turned my life upside down. It’s called Recurrent Subacute Thyroiditis (RSAT) and most doctors will never see a case of this in their lifetime. I luckily have found a doctor who has least seen a few cases of this before, but I am the youngest person she has ever seen with this condition.
RSAT is an inflammation of the thyroid that causes overactivity, leading to high heart rates, trouble breathing, low blood pressure, dizziness, chest pains, insomnia, fatigue, hair loss, and muscle weakness. The overactivity lasts for about 2-3 months, and then the thyroid flips to inactivity, leading to lethargy, extreme fatigue, depression, low body temperature, and slow heart rates. The inactivity lasts for 2-3 months as well, making this a 4-6 month condition. I am currently in the middle of my second episode, and my first episode was just two years ago.
I am terrified. This condition has caused me to be rushed to the ER twice. This condition has rendered me so dizzy and dropped my blood pressure so low that walking is a hazard and I am in a wheelchair. This condition has prevented me from attending school since the end of October. This condition can occur again, and there is no telling when or how often.
I’ve scoured the web, posted in countless Facebook groups, analyzed research, and even scheduled a conference call with doctors in another country to try to get some answers. Not only is there no information on it, but I can’t find anyone else with it (and due to HIPPA laws, my doctor is not allowed to connect me with the other cases she has seen). I have support from my friends and family, but they cannot even begin to understand what this is like.
I am alone in this right now, but I know the internet is a powerful place. I’ve seen other kids with rare conditions find support and/or answers, and I thought I might as well give it a shot. Please, please - even if you don’t have this condition, even if you don’t know me, please reblog this and spread this around. I just need to know that I’m not alone in this. Even finding one person who has this would make the world of a difference.
Thank you in advance. Those who know me best know I absolutely hate asking for help, but I can’t do this alone anymore.
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Who am I?
I am the girl who loves my island
I’m the girl who loves the sea
It calls me.
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youtube
this is the worst thing i’ve ever seen
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“Misery loves company”
“You don’t have to tell me that. It’s the basis of our whole friendship”
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just a wittle self indulgent thing ……………… my favs all geared up for winter
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Cinematic Parallels
X-Men: Days of Future Past (2014) — The Shooting AKA Dear Sister (2007)
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God I had a dream last night that a new mgs game came out and it was basically a dating sim where you were snake and you had to stop all this awful stuff from happening while also trying to simultaneously woo otacon
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How Suicide Squad should have ended honestly
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warrior cats movie bad end: filmmakers transparently try too hard to make the film hip and have a broad appeal, end up somewhere in the middle of over the hedge and alpha and omega 2: family howliday, tone and animation are completely inconsistent and there’s a lot of very shoehorned-in humor, sandstorm is voiced by katherine heigl
warrior cats movie neutral end: guardians of ga’hoole treatment. the animation is lovely and the tone is fine but some of the plot and characters get lost in translation. overall its just alright and we’ll all pay money to go see it anyways
warrior cats movie good end: watership down but with cats, as it should be
warrior cats movie true end: ok so graystripe comes up out of the warrior’s den and offers firestar some of his delicious fresh-baked waffles and then
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didnt think about it till now, but since im back to the otasune url it’ll show up in the ship tag. easy fix: blacklist “otasune replied” and it’ll hide replies from me!
#otasune#also a reminder that i hate terfs and im so glad having this url makes a shitty person angry!#i hope everyone else has a neato day tho !!#oops fixed wording
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even tho i dont use tumblr too much anymore i changed my url bc ive been thinking about gay mgs dudes a lot
have a nice day ya’ll
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