chrome-barkz-aac
chrome's aac
main acct is @cytochrome-sea!! this is where i post aac stuff i hope something good happens to you today! pfp is the lilycrew
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カッパおやぢのつぶやき
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showering:
pros: you get to feel clean. you get non greasy hair, non oily feeling skin, it just in general makes you feel better, more energised, refreshed.
cons: there are so many steps. oh my god are there so many steps. before getting into the shower there are steps. during the shower there are steps. and once youve gotten out of the shower? guess what!!! more fucking steps!!!!!!!! UGHHHH
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When I talk about visible autism on my blog, I’m usually not talking about those who are clocked as quirky and weird. Although that’s completely valid, I’m not talking about them. I’m talking about those of us who are VISIBLY autistic. Those of us who are clocked as those autistics. Who are clocked immediately as having something wrong with them. Those of us who are named as slurs. Who are yelled at. Who are attacked. Who are glared at, pointed at, stared at, pitied. Those of us who are automatically assumed to be with caregivers. Those of us you see talked about in medical journals and on the news as “inspiration” when we graduate or get invited to prom.
This is us. This is who we’re marked as. This is who we are seen as. We are seen as less than, as animals, as objects, as “inspirations”. When we accomplish something it’s usually not seen as our accomplishments but as the accomplishments of our caregivers and support staff.
I get so mad when someone comes onto my blog, MY blog. Me. A visibly autistic, nonverbal person, and doesn’t even look at my tags or pinned post and says “Omg me too, I’m seen as quirky and awkward, I’m visibly autistic 🥰” and like…go you but I’m not talking about you. I’m not talking about “low masking”. Im talking about LOW masking. No masking or very very low masking. Those of us who are immediately seen as autistic.
And it’s frustrating. It’s frustrating when people come into my blog and say this because, you DON’T get it. You just don’t. You don’t get what my life is like, what my experiences are. What it’s like to be LOW masking or no masking. You don’t get that. And yet you try and squeeze yourself in. And that hurts. It hurts to have people who won’t ever understand this squeeze themselves in. Stop doing this.
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I AM E,PLOOOOOOOD€DIIIIIING OHBHHH MY HOD OH MY GOD OH MY GOD OH MY GOD
ITS FINALLY HERE I FINALLY HAVE MY AAC DEVICE IMSSOOOOOOO HAPPYYYYYYYYYYYY AAHHHHHHHHH IM EXPLODING IM DYING DYINKNGNGGGGGG DYING DYING AAAAAAHHHH AAAAAAAAAAAAAAHHHHHHHH
I CANT BELUEVE THIS IM SO SILLYYYT SO HAPPYYYYY SO SO HAPPYYYYY I GOT TO SHOW IT TO MY PSDISCHOLOGIST & SHE LOVED IT IM SO HAPPY IM SO HAPPY
I FINALLY HAVE MY AAC DEVICE COMPLETE !!!!!! !!!!!!!!!!!!!!!
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Went to a doctors appointment. And get this, I did it myself! I went in, gave them my name, my information, navigated the appointment (although they were VERY accommodating and lead me through every step of the way) and made the follow-up appointment by myself. No one even batted an eye when I used AAC, they were patient, accepted my head nods and hums, accepted my long typing, and were patient with me. One of the people was surprised I was alone though which was pretty funny to me.
It’s the first time I’ve done an appointment alone, and it will probably be one of the rare times I do because of how impractical and almost impossible it is for me, but I did it. And I’m super proud of myself. This was a special circumstance where I could do it myself and I’m lucky and proud of that.
Slowly learning to be more independent and do things on my own is a slow process, but it’s a process I’m proud of.
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Me, going into AAC user tag: wow so excited to see-
Ace attorney art: sup
Me: what.
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A poem of sorts I wrote about feeling trapped within my own body.
Zoo animal.
Dance for us zoo animal.
Within a body that is not your own.
Within a body that does not follow your every command.
Within a body that you feel trapped in.
With a body that can’t utter a sound.
Dance for us zoo animal.
Dance until your body regains control, until your feet hurt, until the words finally come out.
Dance until you can’t anymore, zoo animal.
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tragic update:
image id: a light skinned person wearing overall shorts and glasses (labeled clueless mutt) lays on the floor holding their phone(labeled tumblr) . he has dog ears and a tail. next to them is an amp ( labeled amp) , an electric guitar (labeled guitar, abandoned) and an ipad (labeled ipad for aac and recording) at the top the words HIS ASS IS NOT RECORDING!!!!! is written in magenta. end id
“alright im going to record the vocals for my song on saturday morning” 😎
saturday morning rolls around
🧨‼️💥🔥😤💪🤘🚨 SPEECH LOSS EPISODE HURRICANE 9000 🧨‼️💥🔥😤💪🤘🚨
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EPIC GAMER WIN YALL I CANT TALK BUT I CAN SING?????
brain y r u liek dis XP
“alright im going to record the vocals for my song on saturday morning” 😎
saturday morning rolls around
🧨‼️💥🔥😤💪🤘🚨 SPEECH LOSS EPISODE HURRICANE 9000 🧨‼️💥🔥😤💪🤘🚨
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“alright im going to record the vocals for my song on saturday morning” 😎
saturday morning rolls around
🧨‼️💥🔥😤💪🤘🚨 SPEECH LOSS EPISODE HURRICANE 9000 🧨‼️💥🔥😤💪🤘🚨
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don’t exactly love going around define & police what is & isn’t high needs autism but some you all “this character/shows/etc is high needs autism representation” and show is people who can live independently/ semi independently & go to community without supervision & bunch examples can only think of iADL examples & not autism inherent symptoms bc no brain right now
like can we collectively acknowledge be visibly awkward & “weird” speech pattern & low/cant mask… not exclusive to high needs autism. n not all of what high needs autism mean. right. like can we
we know low support & level 1 autistics can struggle w masking… right
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The communication bill of rights by Tobii dynavox
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For this autism awareness/acceptance month, let’s listen and support nonspeaking, nonverbal, and mute autistic people.
Let’s listen to them, interact with them, and support them. Let’s educate others on their terms that verbal people shouldn’t be using. Let’s uplift their voices. Let’s celebrate and center them. Let’s talk about those who can’t communicate via AAC and alternative communication. Let’s talk about the more marginalized nonspeaking/nonverbal/mute autistic people. The POC nonspeaking/nonverbal/mute people. The trans nonspeaking/nonverbal/mute people. The queer nonspeaking/nonverbal/mute people. The high support needs nonspeaking/nonverbal/mute people.
Let’s center them, talk about them, and celebrate their achievements, accomplishments, and just for being here and being them.
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Great AAC resource
With this website, you can make your own boards. It's really good for low tech aac. You can use it to make fringe boards and communication cards. There are options for how big you want the images and words to be. You can upload your own pictures. It's really good.
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Kids
The weather was lovely and sunny the other day, which meant picnic in the park! My caregiver brought some chalk and bubbles with us – and a lot of the children there (and parents!) decided they wanted to join in.
None of the kids were bothered by me using AAC, or even my wheelchair. In fact, they were fascinated with my assistive devices.
When I go out in public, I never know how people are going to react to my AAC device or my disabilities in general.
Often, there are stares – some out of curiosity, others out of pity or annoyance. Sometimes people whisper and point, as if I somehow don’t notice.
Today, that wasn’t the case.
_
I had children come up to me and ask if my “computer” can say the word dinosaur, and ask for the computer to tell them my name. I had kids come up to me and show drawings they had made for me.
Instead of wondering what was wrong with me, they were more interested in just being in the moment – enjoying a simple sunny day at the park.
It didn’t matter to them that I didn’t speak. Instead, they were more excited about some of the tricks I did in my wheelchair, and beamed with pride when I complimented their chalk art.
_
The part that stuck with me the most was something a little girl said at the end of the day. As I typed to say goodbye, she stopped her mom who was walking away – and said “wait, she’s typing something!”
This is something that I can’t even seem to get some professionals to grasp. The concept of waiting for me to communicate? They find it burdensome. They want to rush the interaction, moving off before I’ve finished typing or simply ignoring what I say.
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If young children can grasp the idea of inclusion and acceptance, why can’t the adults?
It makes you wonder how disability becomes stigmatized.
Where does that radical acceptance go?
And how do the adults get it back?
-Courtney Johnson, @justkeepstimming
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i get the feeling that my dad doesn’t like it when i use aac over my mouth words. i was trying to tell him about the ritual i attended for Vithar and he was like, you’re going to have to say that out loud. it was frustrating, like you wouldn’t have understood if i said it out loud anyway because you have never heard the word before. he also suggested going out to dinner tomorrow as opposed to today so that i could talk with everyone. like i’m using aac SO THAT i can join in the conversation. like i’m trying to be with you. i’m trying to be here and present and aac is the best way for me to do that. if i didn’t want to communicate i wouldn’t. but i do. and i’m trying. and it’s not enough for you.
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AAC and Self-Determination: Autonomy and Safety in Home/Community-based Services
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