i gotta chill the fuck out mais ce n'est pas possible

Im not lazy just sleepy.

All about Idiopathic Hypersomnia Idiopathic hypersomnia (IH) is a sleep disorder in which a person is excessively sleepy (hypersomnia) during the day and has great difficulty being awakened from sleep. Idiopathic means there is not a clear cause. Idiopathic hypersomnia (IH) is a chronic neurological disorder marked by an insatiable need to sleep that is not eased by a full night’s slumber. People with idiopathic hypersomnia sleep normal or long amounts of time each night but still feel excessively sleepy during the day. They may take long naps, but wake up feeling no better or worse than when they fell asleep. IH is similar to narcolepsy in that you are extremely sleepy. It is different from narcolepsy because IH doesn’t usually involve suddenly falling asleep (sleep attacks) or losing muscle control due to strong emotions (cataplexy). Unlike in narcolepsy, in which scheduled naps may help, daytime naps in people with IH are often long(hours) yet unrefreshing. People with IH may experience improvement with medication; however, medications do not work well for all people or may stop working over time.(it’s like a band-aid works for a little while but falls off and stops working) __________________________________________________________________________________ “SO To Whom It May Concern: I am writing this because I wanted to help you better understand some of the issues I face on a daily basis because of idiopathic hypersomnia (IH) or narcolepsy. The first thing I can promise you is that I hide as much of my suffering as possible because showing it would drag everyone else down. This is commonly referred to as our “game face.” If you ask “How are you?” the response you get is relative to how I feel all the time, so it doesn’t mean the same as when you use the same words. If the response is “Good!” it probably means I am really tired but dealing with it well enough to almost function like any other person. There is also a pretty good chance that it is a flat-out lie. If the response is something like “OK” or “fine” I am struggling and needs your help. If the answer is “tired” I am on my last leg. Something more like “crappy” is an indicator that, if you really care, you need to send me to bed and keep the kids or people quiet or take them outside or somewhere else so I can sleep. When you have IH/narcolepsy, your body usually gets plenty of sleep, but your brain is in a constant state of sleep deprivation. People with IH/narcolepsy carry a significant amount of sleep deprivation which only gets worse over time because sleep doesn’t provide relief. The most common symptoms of sleep deprivation are forgetfulness, memory issues in general, difficulties with concentration, decision making, and overall ability to think clearly. The extra effort required to focus on the issue at hand makes it very easy to forget about things that are out of your field of vision, causing problems with anything that resembles multitasking. The emotional results of sleep deprivation are probably the easiest to see, though. I am sure you are familiar with how easy it is to get cranky when you are tired? Now imagine fighting off this crankiness every minute that you are awake and trying not to cry from exhaustion. When you have IH/narcolepsy, your head is often a blur of thoughts and instead of mentally lining steps up in chronological order, everything just blurs together, so nothing goes as planned and you wind up being late for things regardless of how important they are to you, making time management difficult.(even though i can wake up on my own when i have my alarm set i fall asleep during or right after what i had to need to or am currently doing) People with IH/narcolepsy may get medications to help them with energy, mental clarity, etc., but there is no replacement for restorative sleep. Healthy people can’t stop sleeping at night and take a pill in its place, and people with IH/narcolepsy are no different. These meds may help some people gain mental clarity, but they still may be struggling to stay awake most of the time. Or they help some people stay awake, but may do nothing to help with clarity and can actually make it worse. A very good friend of mine says: “My meds just help me do stupid stuff faster.” They may provide the energy to do things, but they can take away a person’s ability to channel that energy properly. Have you ever pulled an all-nighter and relied on high doses of caffeine to get you through the next day? Yes, you made it through the day and you accomplished some stuff, but do you remember how you felt all day? How many days in a row do you think you could do that? That is just about exactly how I feel when my meds are working their best. On top of all of the internal difficulties people with IH/narcolepsy face, other people sometimes just don’t get it. As a disabled workaholic, the thing that really gets to me is the way people tend to think I am lazy. I become accustomed to being criticized for not trying hard enough by people who aren’t putting forth nearly the effort she is.  Like almost every one of the thousands of people with IH/narcolepsy I have talked to or read about in the past couple years, I am constantly beating myself up for what feels like constant failure. I have often been told that I just need learn to cope like other people with other diseases do so I can function like a normal adult.  The problem is that IH/narcolepsy lies right where a person’s ability to cope is supposed to come from, so getting irritated with them for not functioning right is like getting irritated someone with emphysema for not being able to breath right.” __________________________________________________________________________________

One of the first questions people ask me when I talk about idiopathic hypersomnia is, “what’s it like?”  The first way I answer is, imagine sleeping for an entire night and feeling like you’ve gotten no rest at all and that you been up for days without coffee. That’s the first “feeling” I experience when I wake in the morning. Inside my body, I feel like I’m running a marathon while I’m standing still. I don’t know how else to explain the exhaustion and pain. What I’ve found most interesting is that, when I talk about idiopathic hypersomnia, few people realize it has anything to do with pain. However, when your body is always fighting to stay awake, it’s painful. Every muscle in your body is struggling to help keep you awake. It starts in your back (feels a lot like tension), and then creeps into your arms, legs, and everything else. Living with hypersomnia has taught me many things — even before I received my diagnosis. I used to hear a lot of negative talk throughout the years, like this for example: “There’s no reason for you to be as tired as you are — you don’t actually do anything.” I heard that from my own family. Hearing things like that not only hurt, but it confused me. Like why would you say that when you know what i am going through… There were so many days when I’d just come home and cry because I knew I had so much stuff to get done that day, and I knew that if I napped I wouldn’t feel any better, but I just couldn’t do anything else but sleep. _________________________________________________________________________________ Dating someone with IH just learn about it and talk to them about it!