#my oldest friend had a medical emergency and i've been taking care of her. had to come home eventually though | Explore Tumblr Posts and Blogs

2-the-moon-and-2-saturn · 2 years

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“your hand is the only part of you with only minor injuries and the doctor [healer, whatever] is right there and will get mad at me if I move you”

There's your prompt for SC, please. You may spread your love forever now. ☺️

okay so i may have taken some creative liberties + merged this with another prompt i've had sitting in my asks... (also on ao3)

“No snuggling,” Alex calls out, without taking her eyes off of the strip of fiberglass she’s been working on.

Kara groans, dropping back onto her chair. She assumed she was out of her sister’s field of vision. “Remind me what rules we agreed on before I let you in here,” the oldest Danvers demands, in an insufferably righteous tone.

“Don’t distract the patient,” a terribly bored Kara recites.

“And?”

“Don’t bug you.”

“Exactly. And by constantly trying to invade Lena’s bed and possibly disrupting this entire process, you’re doing both,” the doctor announces while placing the strip onto her patient’s broken leg. She looks up at the overly dramatic Kryptonian who’s been acting like her girlfriend is in need of emergency surgery ever since they arrived. “So I urge you to please, for the love of all that is keeping me from smacking you in the head right now, stop.”

“If you smacked me in the head, I wouldn’t be the one to suffer the consequences,” Kara grumbles under her breath.

Like any self-respecting Director of a secret government organization that fights evil every day would, Alex throws a roll of gauze at her sister.

“Rule number three: don’t be a smart ass.”

“You two are children,” Lena chuckles weakly before turning to face the younger Danvers. “Darling, I’m fine. It was a silly accident, and I’ve dealt with much greater medical misfortunes in this lifetime.” She turns to the redhead, “Alex, thank you for your aid; I’m sure there are much more pressing matters you could be tending to at this moment.”

“You’re having your leg immobilized,” the blonde balks in disagreement, the same time as Alex mumbles something about family coming first without taking her eyes off of her work.

It’s been nearly a decade since meeting Kara and her abnormally tight-knit group of friends, yet Lena still isn’t sure what to do with that word, so she focuses on replying to her Earth’s Champion without seeming too affected by the warmth that’s taken place in her cheeks.

“Which is a perfectly common occurrence among those of us who haven’t been granted invulnerability by the radiation of a young star.” Lena extends the arm that didn’t suffer a wrist sprain towards Kara, who, upon taking it, finally aquiesces and sits back down – bright blue eyes watching her with such care, Lena maybe wants to cry a little. She keeps talking instead. “If anything, my ego suffered the worst of it. I can’t believe we’re spending our Sunday in the Med Bay over something as silly as a bit of Halloween preparation gone wrong.”

Truth be told, it is nearly funny how, over months of fighting numerous enemies, the most dangerous battle Lena’s taken part in featured her sense of balance, and a ladder. With Halloween fast approaching, Kara’s excitement has been growing exponentially, and for weeks, she’s watched TikToks of “decor inspo”, then proceeding to eagerly present her favorite ones to Lena – nevermind that they live in an apartment most people can’t even see.

Of course, Lena relented (happily agreed, more like, because most things that put a smile on her beloved’s face also put a smile on her own). And next thing she knew, she was hanging up purple and orange fairy lights while Kara took a shower break – while performing quite the Taylor Swift concert, by the way. The rest, as they say, is an embarrassing flavor of history.

“Hey,” Lena’s hand is delicately cradled by both of Kara’s; maneuvered until her palm is exposed. Soft lips meet her skin in a gentle kiss, and she looks up at ocean eyes once more. “Any Sunday with you is a nice Sunday.”

The clattering of metal prevents the youngest Luthor from finding a suitable response to blabber out.

“And, thankfully, I’m done,” Alex announces before making a beeline for the door.

Kara giggles, “She’s so extra.”

Lena’s flawless eyebrow arches in response, “Nia’s been teaching you new slang?”

“Yeah!” The blonde grins, “I’m cool now.” For all her qualities, Lena isn’t sure her girlfriend has a ‘cool’ bone in her body (which, to her, is perfect- he never fit in with the cool kids).“You’ve always been cool to me, darling”

“And you’re beautiful,” is delivered with butterfly kisses to Lena’s fingertips, which reverberates in her stomach, “and smart, and incredible; and you really don’t have to beat yourself up over this.”

“I- I’m not-”

“You are, a little,” Kara tilts her head as if in question, and Lena gives a minute nod. There’s no reason to lie – it’s no wonder the youngest Luthor has a few problems with failure and making a mess. “And that’s okay. I love you all the more for your less-than-accurate calculations.”

“So you’re saying I made a mistake, are you, now?” The corner of her mouth ticks up in a challenging smirk, and Kara can’t help but be pulled in a little.

“Mhmm. I think so,” she answers confidently, if a little dazed by the forests that Lena’s eyes hold, then plants a kiss onto the tip of her nose. “Come on, scooch over; I want to be closer to you.”

Already having been leaning into Lena’s space, Kara plasters herself onto the side opposite Lena’s injuries, an arm over her midriff, hands still intertwined. She barely settles her head next to Lena’s when the intercom nearly jolts her onto the floor.

“I SAID NO SNUGGLING!”

The blonde sticks a tongue out to the security camera, then nuzzles deeper into Lena.

“You’re not the boss of me, I can do what I want,” she declares, then proceeds to fry the devices with just a tad of heat vision.

And- yeah, maybe letting Kara, in all her clumsy glory, near Lena’s drying cast is not a great idea. But, to be honest, the cocoon she finds herself in is far too warm, and far too cozy, for her to be making safe decisions.

thank you very much for the prompt and a special thanks to @autisticlenaluthor and @apple-knees for proof and beta-reading as well as brainstorming with me <3

#supergirl #supergirl cw #supergirl fanfic #supercorp fanfic #supercorp prompt #kara danvers #lena luthor #supercorp

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reserwrekt · 8 months

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I feel like I had everyone fooled into thinking I was normative or "okay" for two years. (2017-2019)

But the thing is, I never said I was. I had started over after my oldest brother passed away and all my friends left me to deal with it on my own.. I had told everyone around me that I'm not okay, that I have all these diagnosis, that I was sui, and I'm sick all the time.

But everyone ignored me. They ignored those parts. Then, when I started showing signs of my problems and disabilities- they'd act surprised. "I didn't think it was that bad."

My situationship at the time famously told me to drive myself to the ER when I woke up with sepsis, beginning stages of shock, kidneys shutting down. And as I was getting ready, I passed out, pissed, and vomited everywhere. It took me not being able to get back up, for him to sigh angrily and take me.

When we got to the hospital, I was stoic. The staff didn't expect anything. When they took my blood pressure, they suddenly started swarming me, ripping my clothes off my body, and scolding him for not calling an ambulance. (Blood pressure was nothing, like I think 50/40 something like that.)

But again, the fact that the ER staff assumed nothing was wrong, taking their time, and then realizing the emergency. I've always been treated like this..

During my hospitalization, the antibiotics weren't working. That made sense, because I've had a long history with antibiotics and already had antibiotic resistant sickness. But I could hear the staff talking about moving me to a critical care unit, in my valume induced haze. I could hear the nurses explaining "sepsis protocol" to each other. I would get woken up to more anticoagulant being injected through my stomach. I could hear them gossip about how they've "never not felt a pulse in a living person." As they started using my feet to check instead.

During this time, maybe I was hallucinating, I was having long vivid conversations with my passed brother. He told me I had a choice to join him now or not.

I put my deadbeat family's grieving, over my own. It was extra hard bc I was the only one supporting my brother, everyone left us alone.. I told him I couldn't. Then I started to respond to the medication (they switched antibiotics.)

For the next year, I felt I had a tie to my brother and we kept having conversations.

I was dating someone who literally wouldn't believe me or even try to empathize (same idiot.)

I asked my brother why doesn't everyone experience this? And he said it was because they couldn't handle it... and he said "look at how you've been.." and he was right. I was starting to obsess over it. I was regretting my choice to live. And then I'd have to wake up, feeling all this grief, next to a golden retriever who wouldn't even acknowledge that I woke up sobbing every day.

I had to get out of there, but because I had started over, the only people I knew, were HIS people..

I didn't trust his friend that was a little too eager to know me, but I didn't have anywhere else to go. I talked to her about some of the issues and how I don't know how to make it on the street as I'm awaiting disability.

Ofc she invited me to live with her, but I knew she had just married a guy she didn't even like. The red flags were there. And I told her on the first day, what always happens in my life. I said how no one ever helps unless they have other motives. I told her about every "family friend" who promised to get me out of foster care. I said EXACTLY how this was going to end, and I was right every step of the way.

I told her "I have severe problems that no one understands. They always say they do, but when I show signs and symptoms, they demonize me."

"No I won't. "

She did.

I told her "every family friend that said they were going to rescue me, went around and told everyone that's what they were doing, and then usually something happens like their partner gets jealous of me or something, it creates problems, and then when they break up, they leave me to die." And literally all of those things happened.

"I'm a licensed therapist." Yeah, and that's the scary part.

Meanwhile her husband was microagressing me the entire time I was there, I had JUST got my disability money (1yr living there) and then instead of being a dick to just me, he started taking it out on her. Then she immediately found ANOTHER Indigenous, two-spirit, Bipolar person to abuse. Then, that person told me that she basically told them that she was ME. She used her photos, but told them to a T MY personality.

All the people around us during that time, had no idea about me or my life. And then I got to see her go on and be successful at MY personality.

So for the past while, the things that I was interested in, that I showed her, shared with her, no longer felt like mine. So now I'm like in a very weird place with who I am.

I basically feel like for the past couple years, everyone ignored the real me, and cherry picked every detail THEY liked. So now I'm just extra messed up.

#i got the tysm #beware the people who mirror you to gain your friendship #i literally got her into collecting bones bc im Indigenous and its something my family had always done #and i showed her how to find them and everything #she wouldn't hang out with me towards the end saying she was depressed over her divorce whilst going on vacation #during the pandemic and she took a yt friend to COLLECT BONES after ditching me for months #i feel colonized lol #then she told the Indigenous person that was her thing lol #she's white passing and she stole my personality. it works for her bc she looks white but it doesn't work for me and that's ME #like i was already messed up before all that and it makes it worse that she knew everything i went through and she KNOWS #i predicted her every move from day one #but I'M always the one that ends up alone. and now I'm discovering I'm autistic #I'm sure it's a matter of time before “she does too” even though she's against meds and told me being trans was a mental illness antivax #like she's got a degree from a school that actually edicated ppl think is way behind on mental health #her ex husband is autistic and she didn't know that. my gf is obviously autistic to neurotypicals and she “didn't know” that #but she knew how to manipulate them that's for sure #you ever have a neurotypical see you vocal stimming and they infantalize you and think its cute so they start doing it #and pretend like they did that all along? yeah that's her.

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edsspoonie · 4 years

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#myEDSchallenge May is Ehlers-Diablo’s Syndrome awareness month. I’ve written out my story below. It’s probably way more than you ever wanted to know about me,😂 but I wanted to share for awareness sake.

Approximately 1500 words

What Chronic Illness with Ehlers-Danlos Syndrome Looks Like for Me

Pat Berryhill

I wasn’t diagnosed until I was in my early 40’s but I always knew something felt “off” with my health and energy levels in comparison to others.

I hated Physical Education in school and began to notice pain in my joints around Jr. High School. I requested “sitting out” (later just not dressing for gym class at all) starting in 8th grade. I’d notice ankle and knee pain on a regular basis and especially with sports during class. Volleyball killed my hands and wrists. I ended up passing Physical Education with a D (One step above failing) because of it. This trend continued through graduation.

As I grew older and began to attend college, my book bag would cause uncommon pain in my back and shoulders. I began to experience migraines and just a general feeling of malaise. I had a lot of issues with my mental health, as well, and was diagnosed with bipolar II. The issues continued until age 31, when I had to have a hysterectomy due to exacerbated pain and blood loss. I had already given birth to my two daughters, so there weren’t any issues about fertility, although I had an ectopic pregnancy and an additional miscarriage between my kids. I was diagnosed, as a young mother in my 30’s and found it tough to keep up on housework. I just didn’t have the energy and the pain was steadily increasing.

I went back to school and got my Medical Laboratory Technician Associates degree in Laboratory Science and began working for a large medical organization in their freestanding Emergency room. I loved my job and was proud of myself for overcoming my issues enough to go back to work. I had been on disability from age 31 after my bipolar diagnosis and having had 17 jobs from age 16-30. I would work awhile, have pain, fail at a job because my performance would drop. I only got fired twice. Mostly, I quit to find something “better suited” for me and the cycle would continue.

But as an MLT, all was well. I loved my job and by then, I had begun taking prescriptions for my pain. So, I was happy. When I started having issues remember how to run quality control test and maintenance, I thought it was simple brain fog. I couldn’t remember anything, I was scared of hurting someone if I didn’t do the blood work tests correctly because of potentially missing a step or improper documentation. I attributed it to my fibromyalgia. In reality, I’d had a small stroke in the area of the brain that holds and retrieves memories and deals with cognition. It doesn’t manifest physically like other strokes and is easy to miss.

After leaving my MLT job, I was devastated. I had been off of any psychiatric medication since before graduation. However, the stress from my problems at work caused a resurfacing of my bipolar symptoms and I took a leave of absence which turned to a permanent one. This returned me to my SSI supplementary disability income. I felt like a failire. After leaving my job, I decided I would return to college and get a BA in creative writing.

During college and immediately after graduation, I began a literary magazine called ”Wraith Infirmity Muses” online (no longer available). It was here an “EDSer” introduced some of her writing and a book about her journey to diagnosis. It was like reading my own medical chart. I took it to my primary care physician who made me an appointment with a geneticist who said I fell one point shy of diagnosis because no one in my family had been diagnosed.

Since then, my daughters have taken steps to seek diagnosis due to surfacing pain and subluxations they have experienced since childhood and are progressing. My oldest now has her diagnosis. When I see the geneticist again (my appointment is 2 YEARS out due to lack of doctors in the field), I will update my diagnosis from HSD to EDS and be typed, (I hope).

I have multiple issues that stem from my EDS. Muscle spasms where they struggle to try to hold together my sublexing joints. I have had radial ablation on my neck and am about to have it on my lower back. My ankles, feet, shoulders, wrists, and hands are the source of most of my pain beyond my back, hips, and neck. I used a cane for years, but have since upgraded to a wheelchair to increase my independence. I have issues with Postural Orthostatic Tachycardia Syndrome. It makes me pass out sometimes. I’ve learned this with my heart arythmia and lack of coordination comes from dysautonomia. Another symptom is anxiety. You cannot regulate that “fight vs. flight” system. I’ve always had major anxiety (even more so during this tune of the pandemic) and at times I’ve even struggled with agoraphobia, a fear of leaving home. I sometimes fear being out and being in pain or sick and unable to get back home, whether that looks like an inability to drive or out with someone else that determines the timeframe of the day.

Lipomas and cysts are littered throughout my body. I deal with the discomfort and embarrassment of eczema on my scalp and face. My hair comes out by handfuls when I wash it and I style it parted on the side. I’m constantly wearing wide headbands and hats. I take high doses of antihistamines for an overactive immune response called Mast Cell Disorder.

I’ve had several blood clots, including one in my lung and a Cerebral Veinous Sinus Thrombosis which is rare. It went from the sinus cavity in the brain (that drains blood back into the body from your brain) down into my juggler vein in my neck. It remains partially present to this day and has scared the area. I have to have imaging done periodically and every headache I get makes me nervous it's coming back. Most are discovered on the autopsy table.

I have an idiopathic blood clotting disorder I take blood thinners for, daily. Managing my levels at an even keel is difficult with my issues. I must take a high dose to be effective and sometimes have to give myself shot of another type of blood thinner when biweekly tests show it is too thick. They cause huge bruises and pain. If it is too thin, I have to watch for blood in my urine and bowel movements. I've had numerous tests done to find the cause and it cannot be found.

I have irritable bowel syndrome and I am now having gallbladder issues and am looking at a surgery in the near future to remove it. . I use a CPAP machine to sleep at night because stretchy tissues make me stop breathing 20-40 times an hour without it.

I own multiple braces including a hard neck collar, knee, ankles, wrists, and finger braces. I also have had to integrate slings when my shoulders are bad. I sometimes use athletic tape to support my joints. I sleep on 5-6 inches of memory foam and use 6 pillows when I sleep to get situated in a position that will account for the least amount of time with my hearing pad for my back the next morning and hope none of my joints dislocate in my sleep.

I’m unsure how my health will be affected from this point on, but I’ve been blessed with many zebra friends within the EDS Facebook support groups that help me not feel like a hypochondriac and support for when I visit a doctor that treats me like one. I hope to go to a conference or in person support group maybe this year.

It's a lot and the sheer magnitude if of it along with managing doctors, testing, and surgeries gets really heavy. I often feel useless, ostracized, and invisible. I try not to complain too much and continue to do what I am capable of and sdapting the things I am incapable of to make it work for me. I am fortunate to have a loving and supportive husband, mother, and kids. I worry, at times, my husband will get tired if it all and leave someday even though he assures me he is much to in love with my brain for that to ever occur. There are daily encumbrances that make life painful and clumsy. There is always some new system brewing beneath the surface. I know this from the trajectory my illness has taken so far. I haven't even touched on side effects of medications and managing those. I am dependant on Lyrica. After taking it for three or more years, I've decided to wean off if it due to side effects and a tolerance I've developed that makes it ineffective for my pain. It will take me months to step down my dose little by little to avoid withdrawals that match those from people dependent or addicted to Benzodiazepines.

All in all, I agree with my oldest daughter who says her ”meat sack sucks”, but we have a deep appreciation and love for life, music, art, and mindfulness that I often wonder if I would have attained without my Ehlers-Danlos. At the end of the day, it's good to be me.

#chronically ill #zebrastrong #spoonie #dysautonomia #posturaltachycardiasyndrome #irritable bowel syndrome #gall bladder #chronic panic #folowforfolow

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