Tumgik
#i'm actually doing a bit better lately :) my rheum is awesome and has been referring me for all kinds of stuff
gideonthefirst · 1 month
Note
I saw your post about AxSpA and getting medication for it (a few months late I know) and the only thing my rheumatologist ever prescribed was ibuprofen or a different nsaid, the best one was etoricoxib, the only minor inconvenience is that I am allergic to it and had to find out the hard way. She doesn’t want to put me on immunosuppressants until I show signs of fusion (cause of insurance in my country so switching to a different rheumy wouldn’t work) so yea, I haven’t gotten anything that *truly* helps
hey sorry this is a fucking nightmare. do you have like patient advocates accessible to you you should ABSOLUTELY be on a biologic or some equivalent the goal is to PREVENT fusion in the first place. i've been on cimzia and then simponi for years without fusion and am grateful for it every day i. man i'm really sorry if there's Anything you can do i really do recommend and support pushing as hard as you can for real treatment. it's so lucky to be able to get a diagnosis Without fusion your rheum should be taking advantage of that to help you ☹️☹️☹️
re the rest of it i'm banned from otc nsaids because i'm on celebrex lol. SAD. sorry about your allergy that just happened to a friend of mine as well and it really sucks 😭😭😭
4 notes · View notes